It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Addison's Disease Message Board

  • how can I tell if I am getting too much, or not enough, hydrocortisone?

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 08-04-2003, 02:30 PM   #1
    itskt2u
    Junior Member
    (female)
     
    itskt2u's Avatar
     
    Join Date: Jul 2003
    Location: NC USA
    Posts: 28
    itskt2u HB User
    Post how can I tell if I am getting too much, or not enough, hydrocortisone?

    can anyone tell me what to look for? I have a way to monitor my blood pressure and pulse rate at home; Drs advise 'lowest amount that feels best' but I am still experimenting with my dose and never feel normal anyway. Supposedly a few weeks on the right dose of hydrocortisone (thyroid too) will allow me to feel much better.
    -K

     
    Sponsors Lightbulb
       
    Old 08-04-2003, 08:45 PM   #2
    orion
    Senior Veteran
    (male)
     
    Join Date: Nov 2000
    Location: canada
    Posts: 1,616
    orion HB Userorion HB Userorion HB Userorion HB Userorion HB User
    Post



    First off, no one knows what the proper dose for Addison's is. It is thought to be around 0.18mg/pound of weight so a 150 pound person should be around 25mg/day. But a normal body regulates cortisol on a minute by minute basis and can sometimes triple or more the dose you receive. Of course you can't do that because the need for more cortisol is not directly obvious. Worse, the dose that makes you feel find today, might be too big or small tomorrow when you get an infection or the flu.

    So what I am saying is, you won't be able to find the perfect amount, but it is somewhere between 15 and 30 mg/day for most people. It used to be thought you should try to be as low as possible, but now people wonder if being too low harms your immune system because cortisol is a powerful regulator of immunity.

    Normally, when you get sick, cortisol goes high for a day or two and then suddenly drops. The drop signals your immune system to go into high gear and attack the virus/bacteria you have. This also happens at night when your immune system ramps up as the cortisol levels plunge. That's why it's wise to take most cortisol in the morning and little at night and to take more cortisol when you get sick and then drop it after a few days.

    Your thyroid dose is a bit easier because you can take blood tests for that. However the normal range of thyroid is pretty wide so what makes one person feel energetic won't for another. Again, you will have to experiment, remembering that changes take a week to come into full effect and not to change by more than 0.025mg/2 weeks. Watch for symptoms of high and low thyroid incase you go too far.

    It took me 2 years to balance my hormones. I now take 25mg/day of hydrocortisone and 0.175mg of synthroid. My original starting dose was 15mg/day and 0.1mg. Both doses gave me normal blood readings.

     
    Old 08-05-2003, 08:15 AM   #3
    itskt2u
    Junior Member
    (female)
     
    itskt2u's Avatar
     
    Join Date: Jul 2003
    Location: NC USA
    Posts: 28
    itskt2u HB User
    Post

    thanks orion-

    glad to know it can take something like 2 years to get things straight (so I won't be so impatient!); I have been on thyroid almost 15 years, but on hydrocortisone only a few weeks

    do you feel well, or close to it, now?

    my thyroid dose cannot be regulated by blood tests, because I have hypothalamic dysfunction which skews the lab results

    -K

     
    Old 08-06-2003, 04:47 PM   #4
    orion
    Senior Veteran
    (male)
     
    Join Date: Nov 2000
    Location: canada
    Posts: 1,616
    orion HB Userorion HB Userorion HB Userorion HB Userorion HB User
    Post


    Yes I feel physically good most days. Getting sick, with the flu is harder to deal with. Also I am balancing 5 hormones so it's a bit tricky at best.

    Can't your thyroid be monitored using T3 and T4 instead of TSH? That's how mine is monitored, puting T3 and T4 in the up 25% range.


     
    Old 08-09-2003, 07:06 PM   #5
    itskt2u
    Junior Member
    (female)
     
    itskt2u's Avatar
     
    Join Date: Jul 2003
    Location: NC USA
    Posts: 28
    itskt2u HB User
    Post

    Do you mean in the upper 25% of 'normal' range for the T3 and T4 tests? I think my new endocrinologist is trying to monitor my dose this way, and I am awaiting new labs for T3 and T4; the first test done with only T4 shows it below the normal range (and I take 180mg of Armour thyroid!). Previous doctors didn't seem to care to make it right; they test one thing and send you on your way if it's 'normal'.

    -K


     
    Old 08-11-2003, 07:34 AM   #6
    GhostH
    Newbie
     
    GhostH's Avatar
     
    Join Date: Jul 2003
    Location: Fargo ND USA
    Posts: 7
    GhostH HB User
    Post

    itskt2u

    I just picked up a digital blood pressure machine on ebay.

    In the next month I intend to test BP 4 times daily & make notes as to med levels, over all feeling, high stress days etc.

    I believe there is a direct connection that might help us self regulate a bit better.

    If your inclined sounds like it wouldn't be hard for you to do the same. Be easy enough to compare results here.


     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Can someone tell me what my blood test numbers reveal? LilE1977 Thyroid Disorders 10 05-16-2008 08:42 AM
    Tell me about your heart attack!! confused32 Heart Disorders 2 03-15-2008 08:17 AM
    Switching from Cortef to generic hydrocortisone. MMK4 Addison's Disease 6 09-15-2007 07:04 PM
    Feeling "low", getting puffy. Military Mama Addison's Disease 4 01-20-2007 09:51 PM
    I can't tell if I actually have OCD. Yeah, this is pretty dumb. Ericathetwin Obsessive Compulsive Disorder (OCD) 7 09-27-2006 03:21 PM
    Stress & Hydrocortisone Dose PunyDeb Addison's Disease 2 05-29-2005 09:02 AM
    Cortisone Acetate vs Hydrocortisone? WoodRunner Addison's Disease 8 02-28-2002 07:31 PM
    Hydrocortisone and Bone weekness WoodRunner Addison's Disease 2 07-01-2001 04:09 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 06:12 PM.





    © 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!