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    Old 04-25-2005, 06:46 PM   #1
    TinaBeena
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    Could this be Addison's?

    Hi, I'm new to this board and not really sure what is going on with me. I posted on the digestive disorders and on the high/low blood pressure board. The more I read, the more I'm finding out about what might be wrong. Sorry this is so long, but I'm hoping and praying that someone will have some advice for me.

    I am 36 years old, have three kids and I'm happily married. I've been sick for many years. The problems really started when I was pregnant with my first child at 18. It was a normal pregnancy, until the 6th month when I had a fever of unknown origin (105.8) that sent me into premature labor. After that, it was all downhill. I started getting sick all the time with colds, flu, strep throat, chronic yeast and bladder infections, mouth sores, allergies (that I didn't have before) and so many other things. I got salmonella when I was 23 and nearly died from it. (misdiagnosed)

    As I got older, fatigue set in, as well as bouts of extreme leg pain. I was diagnosed with IBS at 25. I kept gallon size baggies of ice to take to the restroom with me and cried with every BM. The IBS miraculously disappeared after they found I had endo and adenomyosis and removed my uterus at 29.

    I was tested for hypothyroid, Lupus, MS, Sjogren's, RA, can't even recall everything. My doctor said he just new I had an immune disorder, but all tests were negative. I was diagnosed with GERD, Reactive Arthritis and hypoglycemia. I had to have an ovary out a year after the hysto due to a bleeding cyst. (I had polycystic ovarian syndrome) I have fibrocystic breast disease and had a 2cm adenoma removed from my neck 4 years ago and a 6cm fibroadenoma removed from my breast two years ago.

    Here's a list of my symptoms:
    Low BP 90/60 down to 70/40 at times
    Low temp. 96.5 on average
    Hair is falling out
    gallbladder spasms
    abdominal pain
    nausea & vomiting
    intense pain in my lower back, butt and down my legs
    kidneys feel like they're throbbing
    spasms in my legs and they feel like I have no more muscles
    headache
    dizzy
    extreme fatigue (especially in the morning and afternoon)
    low blood sugar episodes (have to cram food in my mouth, sweating, feel like I'm going to pass out)
    extreme thirst
    salt cravings
    moody(biting everyone's head off, husband says I'm hormonal)
    depressed
    lost 10 pounds in two weeks (and it's not from not eating...I HAVE to force myself to eat with hypoglycemia)
    skin has changed in short time (lots of spider veins everywhere and vitiligo on my arms)

    I have found that the Licorice Root I take for GERD raises my BP by 20 points! My BP dropped to 76/46 last Saturday morning and I took the licorice root. Withing 30 minutes, my BP was 90/53. The hypoglycemia is getting worse. I used to have problems once or twice a month, but now it's almost daily. My kids know when to run and get the orange juice and candy by just looking at me. I'm afraid one day I will just pass out and not wake up.

    I now have no insurance and I've been through the ringer with doctors. I have an appointment tomorrow with a gastro about my gallbladder and I'm scared that I'm going to get the run around about the other problems again. They always ask me how my home life is and want to prescribe Prozac. It makes me want to scream.

    Does any of this sound like Adrenal problems to any of you??? Should I be more proactive and ask for specific tests? Does anyone live in Texas and have a WONDERFUL endocrinologist that listens and is willing to work with someone to find a cause? I'm just so tired of being misdiagnosed and told it's all in my head. This is getting worse and I'm really nervous.

    Tina

     
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    Old 04-26-2005, 03:36 PM   #2
    ChristyE
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    Re: Could this be Addison's?

    Tina,

    Hi! My goodness, you must be feeling awful. I'm so sorry for everything you're going through.

    Alas, I am not one of the experts on here, so hopefully they'll chime in, but your symptoms definitely would definitely make me suspicious of adrenal fatigue or even Addison's.

    I have been diagnosed with adrenal fatigue, and my main complaints before meds were hypoglycemia and suicidal depression. I started Cortef about a month ago, and oh, what relief!!! I am not exaggerating when I say that the Cortef probably saved my life.

    My hypoglycemia, like yours, started out with infrequent episodes about 15 years ago, but by the time I got into the right doctor about 3 months ago, the episodes were everyday, sometimes several times a day. It was almost as if there was nothing I could eat that would make me feel good. Even my "emergency" food--orange juice, just like you--wasn't working anymore. I got to where I was having anxiety over simply eating because it was pretty much "damned if I do, damned if I don't". It was really awful. And all the doctors ever told me about it was "you need to eat every two hours". Argh!!!

    I also have low progesterone. One reason I mention this is because progesterone also affects your blood sugar. And with you having had "female issues", one thing I would wonder about is your hormone levels.

    Something that really helped me with the hypoglycemia is raw adrenal glandulars. The Cortef is working well for that now, but some afternoons I still have to take the glandulars for a little help with the hypo. I know some people have differing opinions on glandulars, but I'm just mentioning this because I was absolutely desperate to get some relief from the hypoglycemia, and this was the only supplement that helped.

    Some of your other symptoms sound like thyroid. Do you have any results that you could post on the thyroid board? They're so helpful over there. Sometimes what a doctor considers "normal" results can actually be abnormal for a person and make a person symptomatic.

    With the IBS, something that I just thought I'd mention...I too had IBS in my twenties (I'm 32 now). For me, though, once I cut the sugar (not that I avoid it completely, but it's way down from where it once was!) and overeating, the IBS all but disappeared. For example, anytime I head to Macaroni Grill and uh, overindulge, in their bread and pasta, I can pretty much guarantee an IBS episode. I'm not saying this is what's causing your symptoms, but I just thought it might be worth mentioning.

    Have you had your cortisol checked? Your hormones? I would think this would be something that would be top priority for your docs?

    I live in Houston, so I could definitely recommend my doctor. She's not an endocrinologist, "just" a family doctor, but she is the first doctor who has actually listened to me and been willing to work with me (instead of wanting to quickly write a prescription for Prozac!!!! Yes, I've been there too!!!! ).

    {removed}

    Well, I'm sure this post is all over the place! That's one thing the Cortef hasn't completely cured--brain fog!!! I think my thyroid meds need adjusting (have been on thyroid since the birth of my second son)!

    Please keep posting and looking for answers. This is a great place to come for help.

    Christy

    Last edited by moderator2; 04-27-2005 at 06:55 AM. Reason: do not post any kind of information to find a site not allowed to be posted here

     
    Old 04-26-2005, 06:38 PM   #3
    TinaBeena
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    Re: Could this be Addison's?

    Christy,

    Thank you SO much for replying! I went to the gastro doc today and he ordered blood work and an ultrasound of my abdomen. I voiced several concerns over my adrenals and thyroid, but I don't think he took me too seriously. He did say that I MIGHT have a thyroid problem and he ordered a TSH. I asked about the T3 and T4 and he said it wasn't necessary because the TSH is HIGHLY sensitive to catch thyroid problems. He said that if I had a thyroid problem I would be gaining weight, not loosing weight. I'm pretty much convinced that none of the tests will show anything. They never do and they're the same ones...over...and over...and over...

    My BP was really low, and wouldn't you know it...by the time I got to the appointment I was sweating, felt like my head was pounding and my BP was 121/79. It's NEVER over 90/60! It's probably anxiety because I get nervous going to the doctor.

    D/FW is a 3 1/2 hour drive for me. I was hoping to find somone in central Texas, but I'm willing to travel if that's what it takes to get better. I too, think I have hormonal issues. I did sign up to take part in a study on Bioidentical Hormones in Tyler. It doesn't start till June, but they check EVERYTHING! Estrogen, progesterone, DHEA, Cortisol and they compound an individualized cream for you. I just wish it were sooner.

    My girls used to get sick every time they ate pasta, bread, etc... They were diagnosed with gluten enteropathy. Now they hardly ever get a stomach ache, unless they get hidden gluten in something.

    Thanks again for replying! It's nice to know someone else has been through what I'm going through and can offer advice. I may need to get a list of tests I need for thyroid and adrenals and just demand that they be done. My legs and back are hurting really bad and I'm achy all over. I call it a flare-up. It can last a week, or three months, and it only gets better with prednisone. I usually tough it out as long as I can to see if it will go away on its own, but it never does. I don't want to take prednisone if I need more tests either. They did a bunch of bloodwork for Lupus and RA a few years back after I had been on prednisone for two weeks. I don't think you are supposed to be on steroids for tests like that?

    The brain fog is not fun! It's like watching your life happen on a movie screen and walking around with your head in the clouds. I have had entire weeks go by that I don't even recall what I did. Have you ever gotten in the car, and after you get where you're going, realize that you don't remember driving there?

    I will post test results when I get them.

    Thanks again!
    Tina

     
    Old 04-26-2005, 09:09 PM   #4
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    Talking Re: Could this be Addison's?

    Hi Tina,
    I just finished reading your letter and I could really feel your pain and frustration.
    I was diagnosed with Addison's Disease when I was 19 yrs. old. I'm now 38. It is possible to live a normal healthy long term life with Addison's.
    As I was reading about the symptoms you described having, I've had similar symptoms as well. I've listed them below so you can compare them to yours.

    These are some of my early signs before being diagnosed.

    ~Rapid weight loss
    ~tired and sleepy all the time
    ~No energy
    ~Skin appears tan as if out in the sun
    ~Darker pigmentation in areas of the skin usually around the knuckles on the hands, feet, and elbows.
    ~Low blood pressure along with constant lightheadedness, dizzy and weak.
    ~Constant vomiting
    ~Trouble concentrating and difficulty understanding things
    ~balance or hand eye coordination way off
    ~salt & sugar cravings
    ~back, neck, and leg pain

    I was first diagnosed with Hypothyroidism but Drs. still had no clue why I was still sick. Then, I had a Doctor who told my parents I was sick because I had mental problems!! AND..that I was either taking drugs or misusing the thyroid medication as a weight loss method!! Can you believe that! This Dr. put me in the hospital and for 3 weeks he kept me doped up on psychotic drugs. Don't ever let a Dr. tell you it's all in your mind ok?! This happens with lupus and chronic fatigue suffers as well.

    Tell your Doctor to run a blood test and specifically check your potassium levels as well as your sodium levels. If the blood work show's high potassium in your system..there's a good chance you have Addison's Disease.

    Usually thyroid disease (hypo mostly) and diabetes work hand to hand with Addison's disease. The disease is an antibody that's working it's way throughout your body attacking vital organs and shutting them down. Usually starts with the adrenal glands, then to the thyroid (causing the skin darkening and pigmentation), and so on. When it's diagnosed and treated properly, the cycle can be halted. However, there is no cure yet.

    If you ever need to talk, please feel free to email me. I'd love to talk to you.

    Take Care hun!
    Shelly My email address: [ please carefully review the posting rules - no emails ]

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    Last edited by moderator2; 04-27-2005 at 06:25 AM. Reason: The only contact you may make with members is to post on the board.

     
    Old 04-27-2005, 04:39 PM   #5
    TinaBeena
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    Re: Could this be Addison's?

    I'm still waiting on test results. I called at 1:00 today and she said they had come in this morning, but he didn't have time to look over them yet. I had to take my son to get his allergy shot in the same building that his office is in, so I popped in to ask if I could get a copy of the results. She said no and that he would call me. So, here I sit, in horrible pain, waiting to find out. He said yesterday that I should get some potassium supplements since my legs were hurting. Should I wait to find out what my potassium levels are, or would it be ok to take a supplement? (I can't eat bananas)

     
    Old 04-28-2005, 12:31 AM   #6
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    Re: Could this be Addison's?

    Hi Tina,

    I'm so sorry for your illness and frustration with doctors. They can be a challenge sometimes-so stubbornly not listening to the diagnosis their patients practically lay at their feet. I wanted to mention something you likely already know. If your children have gluten enteropathy...that is an autoimmune disease. Once autoimmune disease is in a family it tends to show up in other people in the same family. Addison's is also an autoimmune disease. You sure sound suspiciously Addisonian with improvement on steroids, too.

    I would hold off taking any potassium supplements until seeing what your electrolytes look like on bloodwork. High potassium is a risk of Addison's and it can lead to heart problems.

    I am surpirsed at how few gastro specialists know anything about Addison's. My husband has Addison's and just had to have a colonoscopy. I asked his doctor about increasing his Cortef dosing for the procedure (prepping for it involves alot of fluid loss, unfortunately) and he said, "No need". HA! My husband became hypoglycemic and hypotensive immediately after the procedure-he felt horrible. Geesh. We upped his cortef for the day and he is better now.

    Please make an appt. with an endocrinologist. Tell them your concerns and ask to be tested for Addison's disease with an ACTH stimulation test. It is easy and cheap. It is so frustrating to be so sure of what is wrong with you but not able to get a doctor to listen.

    Good Luck and keep us posted on your progress.

    Sadie

     
    Old 04-28-2005, 10:00 AM   #7
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    Re: Sadie.....

    Sorry your husband had to suffer because of doc's lack of knowledge. For future reference with addisons we need to double the day before (because of prep) & the day of the procedure. I had no problem with my colonoscopy except being a bit dehydrated even though I drank allot.

    Wanda

     
    Old 04-28-2005, 03:01 PM   #8
    sadie-mae
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    Re: Could this be Addison's?

    Thanks, Wanda!

    You are so thoughtful to share that with me. It is really good to hear from someone who knows that our thoughts on the matter weren't so far off. Unfortunately, my hubby is prone to polyps from radiation therapy he had for cancer treatment a long time ago. Such joy to have the every-three-year bliss of a colonoscopy starting at age 35!

    We have learned not to trust much the doctors say (if they aren't the ones managing his endocrine stuff). I can't believe a GI doctor wouldn't understand the horrendous risks of severe diarrhea on Addisonians. My husband ended up taking almost double the first day because we worried he may not absorb the pill well later in the game. I guess we were right! He doubled up on the second day, too. All with no guidance from his doc. I was also surprised that no one advised the doctor when he had the episode during recovery-in spite of my asking them for help. Geesh. Well-we are ready for next time (and ready for a new GI doc!)

    Thank you again,
    Sadie

     
    Old 04-28-2005, 06:00 PM   #9
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    Re: Could this be Addison's?

    Sadie,

    Thank you for recommending that I not take the potassium supplements. My legs really hurt, but I don't want to create more problems than I already have.

    I'm really sorry that your husband had to go through that. What is wrong with all these doctors? I mean, if it was just a few, I could understand, but so many?????? What the heck are they learning in medical school???? I go through this with every thing that has been wrong. They send me for tests (the same ones over and over) and then they say it's stress and depression. I always counter with, "Yeah, I AM depressed. Depressed because I always feel terrible, can't drag my butt out of bed half the time, and I have three kids counting on me."

    I have an even better one! I told the gastro doc Tuesday that I have hypoglycemia. He nodded and asked me about my leg pain. When I left, the receptionist said I couldn't eat or drink after midnight for my 9:00 am ultrasound. I told her that I would try, but if I got hypoglycemic, it wasn't happening.

    At 6am...I am shaking and starting to sweat, not to mention about to cry because I know I'm not going to make it. I cheat a little and have a small glass of OJ. I get to the radiologist's office at 8 and tell them I couldn't wait, that I had to have OJ. They decide to try anyway and she can't do it because my gallbladder is still having spasms. They call my gastro. The gastro tells them to tell me to come to their office, and I BETTER NOT EAT ON THE WAY! On the way there, I feel like a child that is about to be in trouble. I get there and he wants to know why I think I have hypoglycemia, that people just don't HAVE hypoglycemia. It is caused from another disorder, like an insulinoma (or something like that) or an ADRENAL problem! I can't just walk in and diagnose myself with hypoglycemia. (remember, I told him Tuesday I had hypoglycemia, and he changed the subject) He said I needed to have it documention showing that I am hypo.

    Woooo...you talk about a hot chick! I was sweating, shaking, knees knocking, feeling like I was about to pass out, and I'd had enough. (I guess I was REAL nervous) I got snotty (tried hard, but it flew out) and informed him that my family doctor had my fasting blood sugar tested twice. Once it was 44, the 2nd time it was 42. HE is the one that told me I had hypoglycemia, HE is the one who said I needed to eat every two hours and keep OJ with me at all times. He is also the doctor that I am no longer seeing because HE can't seem to figure out what is wrong with me. HE would rather just keep throwing steroids and anti-depressants at me. He is the doctor that put me on 20mg. of prednisone for two weeks at a time...several times...for several YEARS without telling me I needed to taper off. He was the wonderful doctor who diagnosed me with IBS, told me I would need to learn to deal with it, gave me sulfa drugs, while I suffered for YEARS before I found out I had endometriosis. IBS is gone now.

    Then he informs me that he doesn't think I have hypoglycemia, he just thinks I'm a nervous person. He says this with a smile on his face. Then he tells me all my blood work came back fine. TSH was .8 and NO he didn't do a T3 or T4. (Because TSH is THE best test for thyroid disorders)

    He said that if I couldn't make it to this ultrasound, they would have to admit me to the hospital to give me IV insulin so they could get it done. And he said I could not even have so much as an ice chip on my tongue before the ultrasound. I almost asked him if I should spit so I didn't swallow any saliva, but I got control of my tongue before it slipped out. I told him that if I could make it 4 more hours, I would try to have the ultrasound.

    Well, I made it and I took OJ and food in there with me. They even offered me more food as I was coming out because they knew I wasn't doing too good.

    I'm sorry to go on and on. I just had to vent...and now my fingers are wore out!

    I feel like I just took $600 and threw it in the trash can. I feel like just not even going anywhere else and forgetting all of this, but I know it's going to happen again. Will regular doctors, a family practice doctor or OB/Gyn do the ACTH stimulation test, or do I have to go to an endo?

    There's only one endocrinologist in our town, and he's a Hindu guy who is against Armour, and will only prescribe Synthroid. My friend sees him and I don't like some of the things she tells me. He gets angry with her each time she goes because he wants her on Zocor. She doesn't have high cholesterol, but he thinks all "older people" need to be on it. He doesn't sound like the type of guy that I could just walk in and tell him to test me for Addison's. I may have to drive to a bigger city, like Dallas, Houston, or Austin.

    How does addison's start out? Before diagnosis I mean. What happens? Does it come in spurts, like...flares that are brought on by illness? Does it come and go, without medication long before it's diagnosed? If I'm feeling like I have the worst flu I've ever had, (body ache wise, not the cough, fever part) and I suddenly feel 100% better on prednisone, is this normal? Does anyone (general population, not people with addison's) feel better after taking prednisone when they are sick? Does everyone get the lightheaded, feeling like they are about to pass out, sweaty, clamy, heart racing, and shakes when they need to eat?

    Last edited by TinaBeena; 04-28-2005 at 06:14 PM.

     
    Old 04-28-2005, 06:12 PM   #10
    TinaBeena
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    Re: Could this be Addison's?

    I'm sorry about the long, blabby post. I have been crying all day and I'm not the most positive person right now. I'm sitting here staring at the anti-depressant bottle through puffy, red eyes, like it's filled with Godiva chocolates. As much as I hate medications, I'm about to give in to temptation.

    Tina

     
    Old 04-28-2005, 08:18 PM   #11
    sadie-mae
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    Re: Could this be Addison's?

    Oh Tina,

    I am so sorry. My heart goes out to you- I can hear the exhaustion and frustration in your post and I really empathize. I think I could have written your post. I, too, have health issues that I believe are endocrine but I don't have answers yet either. I have had terrible experiences with doctors, too. It is so hard to find the strength just to go on day by day, let alone trying to logically explain why you think you need a certain test (that they should know to order without your help).

    I would agree with you that your local endo doesn't sound like the best choice. Ugh. Listen to that inner voice and seek out an endo in one of the cities you mentioned.

    I do think you sound like you need to be worked up for Addison's. And I think that in the office of a good endo--it wont be too tough to get it done. That said...I would aim for a large teaching institution-take any previous labwork from other doctors that supports your concerns-like the low blood sugar tests.

    I don't think that you should be afraid to tell them what you worry is going on-or to ask for testing. At the worst, they just say no and don't help...but sometimes planting the seed gets things rolling faster. An evaluation of your pituitary function (LH/FSH/TSH/ACTH/IGF-1) in addition to free T3/T4, estrogen, testosterone, DHEA-s, cortisol all done at 8am if possible. Then, hopefully an ACTH stimulation test soon thereafter, or at the same visit.

    Do NOT give up. One bad doctor is usually followed by one that is better-right when you are ready to give up for good. You have a treatable problem and I think you are close to getting the help you need because YOU know what to aim for. Put that mean 'ol gastro in the closet and shut the door. There are good, kind and smart doctors out there and you will hopefully find one of them soon.

    Keep using the board to vent-it's exactly what we're here for--support and understanding.

    Sadie

     
    Old 04-28-2005, 10:03 PM   #12
    TinaBeena
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    Re: Could this be Addison's?

    Thank you so much Sadie! It did help to vent. I can't believe other people are going through this same situation. It's just scary! Not to mention frustrating and finacially draining.

    I was talking with my husband earlier, when he came home from work. I told him everything that happened at the doctor (in greater detail) and he was really mad. He said something that I didn't even realize earlier. The gastro doc said if I couldn't make it without eating, he would have to admit me to the hosp. and put me on IV insulin so I could have the ultrasound. If my blood sugar was so low that I felt I would pass out, and I said ok to him admitting me....wouldn't the IV insulin put me in a coma????

    I can't even afford to go to an endocrinologist right now. I just spent $600 out of my pocket to see this guy, have the bloodwork, and the ultrasound. I wish I had gone to an endo first. It will take me a couple of months to get more funds together to go see someone else.

    On top of everything else, my only remaining ovary has a cyst on it that is killing me. I'm hoping my threshhold for pain can outlast the cycles of my ovary. I am really hoping to keep this one. Isn't it great being a woman. <--my ovary No! THIS is my ovary!!! ------>

    Thank you again for the moral support!!!!!!!!!!!
    Tina

    Last edited by TinaBeena; 04-29-2005 at 12:33 AM.

     
    Old 04-28-2005, 10:26 PM   #13
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    Re: Could this be Addison's?

    Hi Tina,
    I'm so sorry for what your going through. I don't understand why they're doing this to you. I agree with Sadie....that if it takes driving or flying to the nearest teaching hospital or endocrinologist, then do so. If indeed this is Addison's, it could mean your life. I don't understand why more Doctor's aren't educated with the disease.

    The town I'm from has over 200,000 people living in it and yet there's only 1 endocrinologist. In fact, I've been the only patient of that endocrinologist with Addison's for 10 years! And, he's not all that educated about it either.

    On that note: So I can compare my medications and dosages, can anyone tell me what their daily amounts or strengths of Cortef is? I'm on 20 mg in the morning and 10 mg at night. What other types of medications do you take for the Addison's? I used to take Florinef as well but I stopped taking it many years ago on my own free will. My present doctor has never mentioned it or prescribed it to me. Also, I don't have diabetes...do most Addison's patients have diabetes? I am also Hypothyroid....since Addison's and Hothryoidism come hand and hand...Doctor's call it Schmidt's Syndrome.

    I appreciate any information you can give me. I have never spoken or known anyone who has Addison's ...so when I found this site, I was very excited.

    Tina, I truly feel that you will find a compassionate Doctor who will help you and who will guide you to better health.

    God Bless,
    Shelly

     
    Old 04-29-2005, 12:31 AM   #14
    TinaBeena
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    Re: Could this be Addison's?

    Thank you Shelly!

    I can't believe there aren't more endocrinologists around. You would think with it being such a specialized field and having so few doctors, that people would be jumping at the chance to study endocrinology. Just from what I've read in the past few weeks, it is certainly interesting!

    There's so many tiny things producing such huge results in our bodies. So much for learning in school that you eat and it comes out the other end eh? God, in His infinite wisdom, made every little cell and function. It just amazes me. Maybe if I live long enough and get healthy I will go to medical school and study this field. Once, a long time ago, I had dreams of being a doctor. Then I had a baby and it was alllllllll down hill with this worn out body.

    Has anyone ever heard of immunizations causing problems? I have been up, pretty much typing out my history for the next doctor so it's all down and documented. Then I remember that while I was pregnant with my first child, they told me I had no immunity to the german measles. As soon as he was born, they gave me the MMR vaccination. I always associate my decline in health with the birth of my first child. After looking up reactions to MMR, this is what I found:

    "The following afflictions have been reported subsequent to the individual or combined MMR vaccine: neurologic disorders, seizure disorders, learning disabilities, encephalitis, subacute sclerosing panencephalitis (demyelination of the nerve sheaths), Guillain-Barré syndrome (paralysis), muscle incoordination, autism, deafness, optic neuritis (including partial or total blindness), fever, headache, joint pain, arthritis (acute and chronic), transverse myelitis, thrombocytopenia (blood clotting disorders and spontaneous bleeding), anaphylaxis (severe allergic reactions), inflammatory bowel disease, Crohn's disease, ulcerative colitis, meningitis, diabetes, immune system disorders, and death."

    Hmmm...wonder if there's a connection there. I think I need to make a connection with my bed.

    God Bless!
    Tina

     
    Old 04-29-2005, 03:37 AM   #15
    Martha H
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    Re: Could this be Addison's?

    Dear Tina, after reading your letter to the Alzheimer's Board I looked up your other postings.

    I am appalled at your lack of medical insurance. What is this country coming to? Am I correct in understanding that you were kicked out of coverage because you were sick too much? That is unacceptable!

    Have you spoken to a lawyer? I WOULD try for legal aid assisted lawyer's help if I were you. Medical insurance is THERE because people get sick, not only for healthy people with a cold once a year ... how could you lose coverage? I lived in Europe for 30 years where every tooth cavity was covered and every pill ..if you worked or your husband worked, and all kids under 18 were covered whether anyone worked or not. My ex husband is covered for his whole life although retired, by a special plan for seniors. He is alo an 'expensive' patient, having been on anti cancer drugs, having had operations, heart drugs, etc .. the very idea of kicking him out of the system because he is sick is incredible. Can NOT happen in most other civilized countries.

    I advise you to get legal help to be reinstated in a health insurance plan... also investiagte all other possibilites. I recently heard of a pay as you go plan .. not traditional health insurance, you pay a doctor or group of doctors so and so much a month whether sick or well and are then covered by him and his colleagues. Of course I don't know if an endocrinologist is in the group. I believe it was in California.

    I have friends from China. Outside of the appalling political system, there are a couple of good things in that country: your doctor's job is to keep you well. You pay a fee for that service. If you get sick, you don't pay until (s)he gets you well. A complete opposite of our way of thinking.

    I wish you well. Please let me know what happens, what your diagnosis is. My sister lived with a painful ovarian cyst and it is shrinking now at age 67.

    love,

    Martha

     
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