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My 13 year old was just diagnosed with addisons I have a question Please Help!

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Old 01-14-2011, 09:46 PM   #1
Join Date: Jan 2011
Location: Riverside Ca. United States
Posts: 1
jaystacers HB User
My 13 year old was just diagnosed with addisons I have a question Please Help!

My 13 year old son was just diagnosed last week with addisons disease. They started running tests for certain enzymes which were not present. Now they want to test him for Adrenolukodystrophy. I am scared to death and do not know what to expect from this test. I am still praying for addisons because he will still be able to live a normal life. I think the cause of my sons addisons disease may be linked to him having mono when he was 7 years old. I am curious and wondering if anyone knows how long you can have addisons disease and not know it?

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Old 02-04-2011, 02:47 PM   #2
Join Date: Jan 2011
Location: Philadelphia, PA
Posts: 5
erinc3 HB User
Re: My 13 year old was just diagnosed with addisons I have a question Please Help!

your sons dr should be able to give you an idea. Since its autoimmune, which means that your body essentially attacks its own cells, I would think it could take a long time for a person to know they have it. I started getting symptoms pretty abruptly, but Im not sure how or for how long the disease progressed before then. Again, I would ask your dr. And although they dont really know what causes autoimmune disorders, there is a genetic component, and its usually triggered by something else, which could have been his mono. Good luck with your son. Like you said, if its just Addison's, he'll live a totally normal, healthy life.

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