It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Addison's Disease Message Board

Just diagnosed with a few questions

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 07-01-2011, 12:06 AM   #1
Join Date: Jun 2011
Location: Venice, CA
Posts: 1
AdamG4 HB User
Just diagnosed with a few questions

Hey Everyone,

So i'm a 25 year old male who was diagnosed with Addison's Disease and Hypothyroidism about two months ago.

was diagnosed based off of Cortisol, ACTH levels and my TSH levels. I've seen on this message board and elsewhere on the internet that diagnosis usually involves an ACTH stimulation test which I haven't had. Should I be asking for the ACTH test to be absolutely sure?

Also, along those same lines should I be getting scanned to check on how far gone my adrenals are and to rule out the possibility of a tumor?

Here is my original blood work if that helps anyone with an answer:

Sodium: 127
Potassium: 5.3
Cortisol: 1.3 (taken at about 2:00-2:30)
ACTH: 2000

Thanks in advice for any help and advice.

Sponsors Lightbulb
Old 10-28-2011, 03:41 PM   #2
Junior Member
Join Date: Jun 2011
Location: NH, USA
Posts: 14
sandylake HB User
Re: Just diagnosed with a few questions

I just noticed your post (back in July) and it's a shame that no one replied to you.

I hope that you are doing ok. My 22-year old son was diagnosed with Addisons over Memorial Day weekend this year. He went to the emergency room and they admitted him because his sodium levels had been very low, his potassium levels were very high, and he was experiencing orthostatic hypotension (upon standing his BP was very low and his heart was racing). They did not do an ACTH stim test because the doctors immediately started him on high doses of hydrocortisone (so that he would not die).

My son's labs, while in the hospital, showed that his thyroid was off, but once he was stabilized and on hydrocortisone (now prednisone) his thyroid function returned to normal.

I hope that you are in the care of an Endocrinologist, as most physicians don't understand this illness. I also hope that you are doing well. IF you do have Addison's Disease, it is very important to take your medications and be under the care of an Endocrinologist.

Old 11-01-2011, 05:53 PM   #3
Junior Member
Join Date: May 2011
Location: Oak Hill, VA, USA
Posts: 23
kiaguppy HB User
Re: Just diagnosed with a few questions

From what I've heard the ACTH test is the definitive test for Addison's. Otherwise, you may have some other adrenal disorder in combination with hypothyroidism. there's also a test to determine whether your hypothyroidism is due to your immune system attacking your thyroid. It doesn't change the treatment so it may be worth having that test.

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
just diagnosed with addisons. pls help ozzyie135 Addison's Disease 23 06-22-2011 04:10 PM
Recently diagnosed with Addison's, need info! ahotmess Addison's Disease 12 02-19-2010 07:21 AM
Just Diagnosed with Addison's chris1021 Addison's Disease 18 05-05-2008 02:09 PM
I have recently been diagnosed with Addisons Diane44 Addison's Disease 35 02-16-2008 07:37 PM
Newly Diagnosed - Need Help with Dosing katlane Addison's Disease 6 09-18-2007 05:58 PM
questions please read! jen77 Addison's Disease 6 05-10-2007 11:14 AM
Can AI be diagnosed by cortisol test? jen77 Addison's Disease 1 05-10-2007 09:30 AM
New with questions mome22 Addison's Disease 10 04-23-2007 02:30 PM
Questions RE: SAI (long post) gtts4u Addison's Disease 3 01-31-2007 11:24 PM
Juss been diagnosed. DrummerGirl Addison's Disease 2 04-22-2004 11:47 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 12:22 AM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!