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  • Distraught and deflated

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    Old 05-19-2014, 05:03 AM   #1
    DebMox
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    Distraught and deflated

    Hi guys,
    Trying to keep it together for this, my first post. Excuse me if I rattle on and on. I'm desperate for any advice at all.
    Me.....50 yr old female nurse.
    Past history.. Acute CMV at age 30. Misdiagnosed as Glandular fever. Sent home with acute encephalitis for 10 days. No treatment due to wrong diagnosis. This was the beginning of 20 years of misery. Began feeling tired all the time.
    Age 32 got acute Guttate psoriasis...treated with methotrexate successfully.
    From there on out I contracted every virus, flu, allergy etc known to man. Had strep throat uncountable amts of times. Just worked and worked and put up with it all.
    In the mean time I began gaining a stack of weight, up to 130kg and couldn't budge even a kilo.
    April 2011.... Had Gastric Sleeve Surgery to lose weight. Lost 35kg and suddenly stopped just before holidays.
    March 2013.. Fell ill on cruise holiday and slept most of it.
    April 2013....presented to my new GP (wonderful person) so sick with fatigue, brain fog and all over pain that she sent me to Emergency Dept at hospital. Bloods came back with :- Na 137, K 4.8, Cl 102, Bicarbonate 26, Urea 5.4, Creatine 50, Protein 69, Albumin 38 Cholesterol 4.6, TSH 0.87..all just inside normal limits.
    My BP, on the other hand was 78/35 and would not budge even with 3litres of fluids. Suddenly it rose and I was sent home. "Virus"!!
    July 2013....again sent to ED and had CTs done of abdo...pancreatic duct enlarged. Pancreatitis diagnosed.
    August 2013.... Surgery for pancreatic stent insertion. Removed within 36 hrs due to my body rejecting it and my Lipase levels rising to 1200! Very ill.
    TSH 1.34, CA19.9 marker 6, fasting glucose 4.8, ANA negative. BP under 100/50 for three days.
    November 2013 continued with all symptoms and now alternating constipation and diarrhoea . FOBTest positive bloods.
    December 2013... Colonoscopy and removal of lrg polyp.
    2014.... Progressively worsening symptoms of fatigue, weakness, brain fog and dizziness. BP low most times, orthostatic BP, heart palpitations that were monitored by a halter monitor for 24hrs which only showed rare ventricular and atrial ectopics.
    April 2014... At work when I become confused and lost!! Can hardly walk or speak. My back feels like it's breaking and my headache (constantly have one from the time I open eyes) becomes "different" and hurts in the back of my head. Rushed to hospital ANC told I had a "migraine" and sent home terrified with a very angry husband. Don't remember the next 4 days as I was just in a daze. EEG/MRI brain shows damage from Encephalitis but nothing "terribly abnormal"!

    Present day.... Nausea after food, nausea when I am in bed, waking often throughout night, open eyes with headache, get up and go to work but fatigue quickly and by the end of the shift I am almost in tears. Go home and sleep 3 hrs, cook dinner etc and go back to bed.
    Two cortisol levels done in last month,....first done at 10:30am..12, 2nd done at 8am was 15!!! So now they say can't be Addison's but I'm not convinced as I am even really dark skinned in the face and arms/hands. Today I am nauseated++ and pain in kidney area is very bad. What the heck do I do next??

     
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    Old 05-19-2014, 07:00 PM   #2
    luvthesun
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    Re: Distraught and deflated

    Wow .. I'm sorry you're having such a difficult time. You clearly haven't found the right help. I would find a good endocrinologist or a good "hormone" doctor and have EVERYTHING looked at. An endocrinologist will give you the ACTH test to stimulate your adrenals and see if, and how much they're responding. And given that you are a 50 year old woman, all of the other hormones should be evaluated as well. Declining sex hormones (estrogen, progesterone, testosterone & DHEA) can REALLY make you feel lousy and will present with multiple symptoms; nausea, fatigue, difficulty sleeping through the night, headaches, mood swings, etc.

    Hormones are the DRIVERS of our health and vitality.. and when they're deficient or greatly imbalanced, all hell can break lose. Unfortunately, my experience has been that most traditional docs pay far too little attention to this MOST important aspect of health.

    Take care

    Sincerely,
    Mollie

     
    Old 05-19-2014, 08:02 PM   #3
    DebMox
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    Re: Distraught and deflated

    Thank you Mollie for your reply, I woke up so ill this morning that I decided I am going back to my GP for a referral to an endo' to get on top of this! I can't stand it anymore. It will be interesting to get all my hormone levels done. I am still as regular as clockwork with my period and get them to the hour each month, but who knows.
    What has delayed me deciding on getting the referral earlier is not knowing whether I need an immunologist or endo' with the immune symptoms that plague me every day. Swollen throat glands, axilla lymph glands that throb with pain and rashes. Two days ago at work I looked like a monster with hives all over me the size of eggs.
    Looked really hard at myself this morning in the mirror, and although I have a darker then fair complexion, I am looking like I have been living it up in the Mediterranean! My face has a mottled appearance at the sides nr my ears that almost looks like a bad concealer application. Impossible as this girl never wears makeup.
    I have managed to do some baking this morning and will now prepare veggies for dinner before I crawl into myself by evening and we eat toast. Have phoned my dr surgery but no appt. available till next Monday. Oh we'll, I've waited this long!!
    Thanks again Mollie and you take care of yourself too okay,
    Regards, Debra.

     
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    addison's disease, adrenal disease, autoimmune, thyroid disease



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