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  • What Is It?

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    Old 09-01-2021, 05:28 PM   #1
    berryapple
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    What Is It?

    Hi, I'm not sure who to turn to or ask for medical advice since my own providers are not able to provide additional help after 16+ blood tests including allergy test. Switching between dermatology and allergy department. No one can give be even a small bit of information from what I already know or what I have discussed via my symptoms.

    I have been experiencing an allergy reaction rash that occurs throughout my body. It starts on my legs (thighs) and it slowly spreads around my legs to my butt and later down my calves. At the same time, I have the rashes on my elbows and it'll spread along my arms. As time progress, they'll move from one area of my body to the other covering my whole body. Similar to how the body is trying to get rid of the toxins inside. These rashes are red, bump, raised, but flat across. They're not scaly or dry, just a normal hive reaction look. However, they last about a month. I had 5-6 occurrence happening as of this year.

    The symptoms I have experienced are severe irritation (making it hard to resist scratching them), swollen and sometimes tightness as the rashes begin to form together into one huge rash, swollen ankles, wrists, and fingers/hands (unable to curl fingers or form a fist, experiencing mild to moderate arthritis feeling), inflammation (taken steroids to help alleviate the pain from it), fever, difficulty breathing, and limited mobility due to the rashes forming tightness.

    After bringing these symptoms up to my doctor and talking to both specialists, I was told it may be a dermatology related issue. However, these allergy reactions are caused when I have consumed food that have meat (land meat) and have touched/cooked meat (land meat) in some shape of form (cross contamination with utensils touching prior/cooking meat fat, etc). Some examples of food I had ate and experienced the symptoms were were shrimp fried rice that may have touched other food from the utensils and asian flat noodles cooked in meat fat.

    Recently, I had 2 incidents following prior the week of 8/24/21. I had consumed Pho. The broth was made from meat, there was no vegetarian/vegan options. The broth was clean with no visible meat debris and I had ordered just plain noodles. I was feeling ok, did not experience any rashes or symptoms. Waited 24 hours to see if something may appear based on prior experiences related to consuming meat (land meat). No symptoms or reaction occured.

    2 days later, I had consumed cheese tamales that had pork seasoning. I had no prior knowledge until after consuming a couple. I started experiencing difficulty swallowing and breathing. To which, I took a Benadryl right as soon as I found out (within the same hour after finished eating). The symptoms alleviated a couple of hours later.


    I have reported this incident to the allergy and requested to get testing done to see if I'm allergic to meat (land meat). The results had shown little no normal values (0.1 kUA/L) with the standard value as <=0.34 kUA/L. Thus indicating I am not allergic to meat (land meat) even though I have experienced the symptoms of an allergic reaction. The other test I have taken in regards to dermatology showcased I had a positive value (may be a false positive) of ANA. Further testing were done indicating that I had inflammation as a result.

    A skin biopsy was unable to be performed at the time I have experienced these issues. I also have been experiencing dermagraphism recently as well. All these allergy reactions and consuming/touching meat (land meat) I have had not an issue before until this year. I am pescatarian by forced (for the necessary protein consumption), so I don't eat meat (land meat) and find them undesirable since I was an infant. My family does consume them, I do not. So, I'm stuck and losing faith in medical help.

     
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    Old 09-02-2021, 03:36 AM   #2
    Titchou
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    Re: What Is It?

    Several things come to mind. Typically, meat allergies are sensitivities to the enzyme in the meat. Can you eat chicken? You only mention red meats.

    Have you tried taking a zyrtec or allegra every day? People with environmental allergies do so it wouldn't be unusual to do that.

    Do you plan to have th skin biopsy?

     
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    Old 09-02-2021, 07:59 AM   #3
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    Re: What Is It?

    Many people with lupus have serious allergy issues as well as hives. I would see a rheumatologist to check further for lupus as the cause of your hives, joint pains and inflammation. Thereís also an uncommon illness called mast cell activation syndrome. Itís an overreaction of the mast cells to various stimuli and severe allergic reactions occur. Itís possible you have both conditions. I would ask your allergist about the mast cell syndrome. It may be hard to find a Dr familiar with it but it can be treated to control symptoms.

     
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    Old 09-02-2021, 02:08 PM   #4
    berryapple
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    Re: What Is It?

    Quote:
    Originally Posted by Titchou View Post
    Several things come to mind. Typically, meat allergies are sensitivities to the enzyme in the meat. Can you eat chicken? You only mention red meats.

    Have you tried taking a zyrtec or allegra every day? People with environmental allergies do so it wouldn't be unusual to do that.

    Do you plan to have th skin biopsy?
    I don't eat chicken at all. Any (land) meat such as poultry, turkey, beef, pork, etc. I don't consume. I do consume seafood such as crustaceans and eggs (main source of protein).

    I have not tried taking zyrtec, but I have taken allergra when my outbreaks does happen during the whole period. Outside of the allergy reactions, I do not take any anti-histamine.

    And yes, I'll be doing the skin biopsy next week for further examination.

    Last edited by berryapple; 09-02-2021 at 04:09 PM.

     
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    Old 09-02-2021, 02:15 PM   #5
    berryapple
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    Re: What Is It?

    Quote:
    Originally Posted by ladybud View Post
    Many people with lupus have serious allergy issues as well as hives. I would see a rheumatologist to check further for lupus as the cause of your hives, joint pains and inflammation. Thereís also an uncommon illness called mast cell activation syndrome. Itís an overreaction of the mast cells to various stimuli and severe allergic reactions occur. Itís possible you have both conditions. I would ask your allergist about the mast cell syndrome. It may be hard to find a Dr familiar with it but it can be treated to control symptoms.
    This is very interesting. I believe I tested negative for lupus based on the blood test results they have done. However, they haven't indicated further request for lupus testing, so I will definitely bring it up along with mast cell activation syndrome.

    In regards to the mast cell syndrome, is it treatable for short term or long term (ie. curable within x amount of month or can only be maintained with control substances?

     
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    Old 09-18-2021, 03:45 PM   #6
    ladybud
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    Re: What Is It?

    Quote:
    Originally Posted by berryapple View Post
    This is very interesting. I believe I tested negative for lupus based on the blood test results they have done. However, they haven't indicated further request for lupus testing, so I will definitely bring it up along with mast cell activation syndrome.

    In regards to the mast cell syndrome, is it treatable for short term or long term (ie. curable within x amount of month or can only be maintained with control substances?
    Itís probably not curable but definitely treatable longterm. It depends on how many sensitivities can be identified and eliminated/controlled. You have to be a good detective and disciplined in controlling your environment, diet etc.
    Your allergist should be able to help you with this or you may consider going to the Mayo Clinic for help. Good luck!

     
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