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    Old 01-02-2004, 03:22 PM   #1
    christie080500
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    Chronic Hives

    I noticed the thread concerning hives was kind of old, so I am trying to start a new one. I have had chronic hives and angioedema for a year now and am allergic to NOTHING! I spent 3 months going back and forth with the allergy scratch tests, etc. I am also having trouble trying to conceive, so maybe it is hormonal. I am taking Clomid (an antiestrogen) for fertility purposes, so maybe it will help. I doubt it though, since on the fifth day of taking the pills my lips swelled up to 5x their natural size. (That really hinders the baby making process, who wants to kiss that, you know?) I am so freaking frustrated that no DR. can say anything but "Sometimes this happens and can last for years, and no one knows why" Well Screw you too! Can't someone figure out why?
    Anyway, here is a place to vent for all of us!

     
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    Old 01-03-2004, 05:32 AM   #2
    Hogan Grimm
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    Re: Chronic Hives

    Quote:
    Originally Posted by christie080500
    I noticed the thread concerning hives was kind of old, so I am trying to start a new one. I have had chronic hives and angioedema for a year now and am allergic to NOTHING! I spent 3 months going back and forth with the allergy scratch tests, etc. I am also having trouble trying to conceive, so maybe it is hormonal. I am taking Clomid (an antiestrogen) for fertility purposes, so maybe it will help. I doubt it though, since on the fifth day of taking the pills my lips swelled up to 5x their natural size. (That really hinders the baby making process, who wants to kiss that, you know?) I am so freaking frustrated that no DR. can say anything but "Sometimes this happens and can last for years, and no one knows why" Well Screw you too! Can't someone figure out why?
    Anyway, here is a place to vent for all of us!
    Hello christie,

    First let me say that I know exactly what you are going through, I have had chronic hives for four years now and still counting. I have seen GP's and specialists, I have had just about every test you can have except for the skin test because my skin and muscle tissue are extremely sensitive to pressure which means any kind of pressure ather than normal causes me to swell where ever I am touched so doing the skin test would give a false positive.

    Like you a cause of why this is happining to me has not been found. I, like you though, do believe there is a cause and believe it or not there are some doctors that believe that as well. The problem is finding it.

    There are so many possibilities. The enemy we are fighting is not one we can see or touch, we are at war with the microscopic world. In your case it could be hormones, mabe once you get them back in balance you might improve.
    I really hope so for your sake.

    Belive me I know the feeling of helplessness, the mental anxiety, the depression, The social isolation, and the feeling of plain hopelessness that this condition brings. What really makes things worse is how people including doctors aren't really supportive and not very simpathetic, that in itself brings on a lot of what I said earlier.

    I have done a lot of research on Urticaria over the past four years and have gained a great deal of knowledge about it. I started a thread called possible useful information concerning Urticaria, I posted a lot of information on the subject of hives, it is kinda old so you will have to look for it.

    By the way I was diognosed with chronic idiopathic urticaria.

    I wish I could have been more help, but if you would like I will share my research knowledge with you if you ask.

    Hogan Grimm
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    Old 01-03-2004, 07:43 AM   #3
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    Re: Chronic Hives

    Quote:
    Originally Posted by Hogan Grimm
    Hello christie,

    First let me say that I know exactly what you are going through, I have had chronic hives for four years now and still counting. I have seen GP's and specialists, I have had just about every test you can have except for the skin test because my skin and muscle tissue are extremely sensitive to pressure which means any kind of pressure ather than normal causes me to swell where ever I am touched so doing the skin test would give a false positive.

    Like you a cause of why this is happining to me has not been found. I, like you though, do believe there is a cause and believe it or not there are some doctors that believe that as well. The problem is finding it.

    There are so many possibilities. The enemy we are fighting is not one we can see or touch, we are at war with the microscopic world. In your case it could be hormones, mabe once you get them back in balance you might improve.
    I really hope so for your sake.

    Belive me I know the feeling of helplessness, the mental anxiety, the depression, The social isolation, and the feeling of plain hopelessness that this condition brings. What really makes things worse is how people including doctors aren't really supportive and not very simpathetic, that in itself brings on a lot of what I said earlier.

    I have done a lot of research on Urticaria over the past four years and have gained a great deal of knowledge about it. I started a thread called possible useful information concerning Urticaria, I posted a lot of information on the subject of hives, it is kinda old so you will have to look for it.

    By the way I was diognosed with chronic idiopathic urticaria.

    I wish I could have been more help, but if you would like I will share my research knowledge with you if you ask.

    Hogan Grimm

    Do you really think that hormones can be the cause of a rash? I woke up with a rash under my chin and some on the upper part of my neck mostly on the right side. I can't figure it out! I have never had this reaction before although I have had allergies (mild) and asthma for over 30 years. The rash doesn't itch anymore, and you can barely see it, but boy I can feel it with my hand. Any suggestions as to what I should do?

     
    Old 01-03-2004, 09:02 AM   #4
    PinkBanana
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    Re: Chronic Hives

    Quote:
    Originally Posted by singer1
    Do you really think that hormones can be the cause of a rash? I woke up with a rash under my chin and some on the upper part of my neck mostly on the right side. I can't figure it out! I have never had this reaction before although I have had allergies (mild) and asthma for over 30 years. The rash doesn't itch anymore, and you can barely see it, but boy I can feel it with my hand. Any suggestions as to what I should do?
    The fact that you have a history of allergies and asthma are enough to say it is definitly an allergic rash. My advice is to try an antihistamine(Benadryl or my favorite: Claritin), and cortisone cream. If that doesn't work, call your doctor and ask for a referral to a reputable DERMATOLOGIST. Don't waste your time with a regular doctor...you will have a much faster recovery if you see a specialist. It took me about a year of seeing my regular doctor to find a treatment for my skin allergies that "kind of" worked, and only one visit to the dermatologist to completely control it!

     
    Old 01-03-2004, 12:08 PM   #5
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    Re: Chronic Hives

    Quote:
    Originally Posted by PinkBanana
    The fact that you have a history of allergies and asthma are enough to say it is definitly an allergic rash. My advice is to try an antihistamine(Benadryl or my favorite: Claritin), and cortisone cream. If that doesn't work, call your doctor and ask for a referral to a reputable DERMATOLOGIST. Don't waste your time with a regular doctor...you will have a much faster recovery if you see a specialist. It took me about a year of seeing my regular doctor to find a treatment for my skin allergies that "kind of" worked, and only one visit to the dermatologist to completely control it!
    Thanks for your input! I do have an appt. on Monday to see a dermatologist after I called in on Friday and told them the problem and they STILL made me go through the weekend! I told them that they better hope it's not an anaphalactic (sp) reaction to something! Thanks for your reply!

     
    Old 01-03-2004, 09:39 PM   #6
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    Re: Chronic Hives

    Quote:
    Originally Posted by singer1
    Thanks for your input! I do have an appt. on Monday to see a dermatologist after I called in on Friday and told them the problem and they STILL made me go through the weekend! I told them that they better hope it's not an anaphalactic (sp) reaction to something! Thanks for your reply!
    LOL I see one of the best dermatologists in my area so usually it takes me a few months to get in...at least! If I say its an emergency, I can get in within a week or two.
    So yeah..I have chronic hives, psoriasis, seborrheic dermatitis, eczema, atopic dermatitis(skin allergies from a list of things a mile long:bandaids, dust, dry air, chlorine, etc etc). I've had these all my life, since I was born. Up until age 12 or so, my skin allergies were 100% uncontrollable, I spent every other day in the doctors office, trying new medicines each time. Finally my doctor gave up, told me to keep taking what I was and I was to be monitored every week while waiting to get into the dermatologist. After 7 months, I got in to see my new derm. and it was the best thing I've ever done. She treated every single aspect of my skin problems right away, even things I thought couldn't be treated.
    After age 12, my skin allergies calmed a lot. The outbreaks were mainly during winter's coldest and dryest months, and they became more controllable. Now(I am 17), my skin allergies are a lot better b/c I take an antihistamine daily(Clarinex), and I have steroid creams of all potencies here at home for the first sign of an outbreak. Also some environmental changes helped a lot(humidifier, wood floors in bedroom). However I have developed hay fever and asthma recently, which I'm starting to see as difficult as my skin was to control...=( Unfortunately I have this family history of skin problems and allergies so I'm kinda stuck like this! I also have a hormonal imbalance, which also runs in the family, not sure of the connection though! I wish medical science woudl stop trying to focus on treating symptoms and start treating the deep inner causes of illnesses!=(

     
    Old 01-04-2004, 07:19 AM   #7
    Hogan Grimm
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    Re: Chronic Hives

    Hello singer1,

    I guess the best way to answer your question as for the hormones causing a rash would be to say it is possible. Since I am not a doctor I recommend that you consult your doctor for more information.

    Also to calm you as for your rash on your chin and upper neck from what you discribe I don't believe it is an anaphylactic reaction. Let me explain.

    Anaphylaxis (Angioedema) doesn't present itself as a rash, when a person is having an anaphylactic reaction to something it causes swelling of the lips, tongue eyelids or genitalia, but all of these symtomes may not happen at once. Sometimes it can be mild, or it can be serious. If you have experienced this kind of reaction, I would suggest asking your doctor to prescribe an epipen and carry it with you where ever you go.

    It would buy you 30min to get to a hospital. Now i'm not trying to scare you, so I will explain further. Anaphylactic reactions are not always serious or life threatening, but it can be. Again I would urge you to consult your doctor about this.

    As for what pinkbanana said as far as treating the cause he is about half right, since in the case of chronic urticaria (hives) it is very difficult or impossible to determine or find a cause because the list of possible causes is very long, meaning it could be something simple like only being allergic to one or two things or a whole host of things.

    I think a better way to put what pinkbanana said would not be to treat the cause, but to cure it, because if we knew what was causing these allergic reactions then we could either eliminate it from our life or medical sience might be able to develope a vaccine which would make us immune.

    One last thing I would like to say as far as antihistamines are concerned, be careful not to take more than you should, because they can shut your kidneys down.

    Well I hope I have been helpful.

    Hogan Grimm
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    Old 01-04-2004, 08:13 AM   #8
    singer1
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    Re: Chronic Hives

    Quote:
    Originally Posted by Hogan Grimm
    Hello singer1,

    I guess the best way to answer your question as for the hormones causing a rash would be to say it is possible. Since I am not a doctor I recommend that you consult your doctor for more information.

    Also to calm you as for your rash on your chin and upper neck from what you discribe I don't believe it is an anaphylactic reaction. Let me explain.

    Anaphylaxis (Angioedema) doesn't present itself as a rash, when a person is having an anaphylactic reaction to something it causes swelling of the lips, tongue eyelids or genitalia, but all of these symtomes may not happen at once. Sometimes it can be mild, or it can be serious. If you have experienced this kind of reaction, I would suggest asking your doctor to prescribe an epipen and carry it with you where ever you go.

    It would buy you 30min to get to a hospital. Now i'm not trying to scare you, so I will explain further. Anaphylactic reactions are not always serious or life threatening, but it can be. Again I would urge you to consult your doctor about this.

    As for what pinkbanana said as far as treating the cause he is about half right, since in the case of chronic urticaria (hives) it is very difficult or impossible to determine or find a cause because the list of possible causes is very long, meaning it could be something simple like only being allergic to one or two things or a whole host of things.

    I think a better way to put what pinkbanana said would not be to treat the cause, but to cure it, because if we knew what was causing these allergic reactions then we could either eliminate it from our life or medical sience might be able to develope a vaccine which would make us immune.

    One last thing I would like to say as far as antihistamines are concerned, be careful not to take more than you should, because they can shut your kidneys down.

    Well I hope I have been helpful.

    Hogan Grimm
    Do rashes ever (or likely) to indicate that something serious is going on in the body?

     
    Old 01-04-2004, 11:25 AM   #9
    Hogan Grimm
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    Re: Chronic Hives

    Hey singer1,

    It is possible that rashes can be indicative of a much more serious underlying problem, but before you start getting worried I would suggest trying to remember what you were doing before you went to bed.

    I am assuming you are a woman. Here are a few things to think about. do you wear perfume? If so did you wear a paticular kind you have never worn before?
    Did you wear a scarf around you neck? Have you changed soap?

    What you are discribing sounds like you came into contact with something that touched you and caused a reaction, not from something internal. What I would do is wait and see how long it takes to go away, and see if it happens again.

    If it gets worse like spreading all over then you should see your doctor as soon as possible, Also did you change laundry detergent? Was there someone you might have hugged who was wearing a certian brand of cologen or perfume?

    Try and go through the process of elimination.

    Hogan Grimm
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    Old 04-12-2005, 08:15 AM   #10
    diane_peaches
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    Re: Chronic Hives

    Quote:
    Originally Posted by christie080500
    I noticed the thread concerning hives was kind of old, so I am trying to start a new one. I have had chronic hives and angioedema for a year now and am allergic to NOTHING! I spent 3 months going back and forth with the allergy scratch tests, etc. I am also having trouble trying to conceive, so maybe it is hormonal. I am taking Clomid (an antiestrogen) for fertility purposes, so maybe it will help. I doubt it though, since on the fifth day of taking the pills my lips swelled up to 5x their natural size. (That really hinders the baby making process, who wants to kiss that, you know?) I am so freaking frustrated that no DR. can say anything but "Sometimes this happens and can last for years, and no one knows why" Well Screw you too! Can't someone figure out why?
    Anyway, here is a place to vent for all of us!
    Hey christie

    I know exactly what you mean I've had hives for over 2 years and its very embarassing I've been trying to get preganant to and its just not happening its really depressing. I woke up this morning with my finger the size of a cucumber and my engagement ring is cutting the circulation in my finger it really hurts, so I'm just waiting to see if it will go down or get worse. I get them so bad that its covering my whole body. I've been to docter after docter after specialist and nothing but medications that dont work and cost lots of money its getting so depressing that I dont even want to go outside with shorts on I have to be covered. I'm only 22 years old and I'm afraid of wairing shorts and dresses. I really feel for you and hope that somebody comes up with something for us all to help get rid of them or at least get them under control. Hope you do get pregnant soon and be happy as we all deserve to be.
    Sincerely Diane

     
    Old 04-23-2005, 02:08 PM   #11
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    Re: Chronic Hives

    Diane-
    I have been going through the same thing. I have been dealing with hives for about 10 years now and my DH and i are tryin to get pregnant now for 3 years. I have found that i can tie the hives to 2 times of the month...ovulation and menstration. not to be personal or anythin but do u have kids or ever been pregnant? I noticed that my hives started after i had a miscarriage in '96 but all my drs so far have pretty much laughed at me when i tell them my THEORY but i go see a specialist next week so hopefully!!! I have my fingers crossed that they will find something soon!!! I feel for you both with the hives and the fertility issues. Hope to keep in touch! Bye for now!

     
    Old 04-26-2005, 06:52 AM   #12
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    Post Re: Chronic Hives

    dndrux......I have the same theory. It is deffinatly worse at certan times a month for me too.
    Are you the one who is going to mayo clinic this month. Just wondering who you are going to see and where. Also have you heard of Dr. Allen Kaplan. He is one expert in hives treatment and I have read alot about him.
    I have done all the meds that everyone else has and only got temperary relief so the next step for me will probasbly be plasmpheresis with the cyclosporin. Still checking into all of that stuff. I don't want to have to travel to S. Carolina to see that Dr. if I don't have to but will do what I have to I guess. Not living like this the rest of my life!
    Thanks for the info!!

     
    Old 04-26-2005, 07:36 PM   #13
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    Re: Chronic Hives

    hairdoer-
    yes i am the onw who went to mayo... i saw dr volcheck at rochester, mn mayo clinic. he's trying me on doxepin and colchicine for 6 weeks. so we'll see how it goes. i hope i dont get it trouble for saying where i had been but they r really good and they do listen to u there! If at all possible go to a mayo clinic...check it out at mayoclinic.org GOOD LUCK!! i just hope these meds work!

     
    Old 04-27-2005, 01:06 PM   #14
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    Re: Chronic Hives

    I've had hives for so long I forgot how it was not to itch. I've had it for 16 years..what a nightmare! I gave up on the doctors as they did me..I just try not to itch..its tough..I know if I was a doctor..and I studied to be a doctor for all of those years I would want to achieve something that has not been done. So if that Dr. Kaplan FINDS A CURE for hives he would have accomplished something so great. He would be remembered in history and medical books forever.

     
    Old 04-27-2005, 03:20 PM   #15
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    Re: Chronic Hives

    Hi, it's been several weeks since I've visited this board. For the ladies who have posted about hives + hormones + pregnancy or conception, I'll add my 2 cents FWIW:

    My chronic urt./ang. started a year and a half after my son was born. (He'll be 5 years old in June.) I started trying to conceive a second child last summer, and here I am still not pregnant. (It was very quick and easy the first time! ) It could be my age (mid-thirties), but it could also be the hives. My allergist/immunoligist (sp?) believes my major hives/swelling outbreak last fall could have disrupted my fertility - seems logical. I finally started feeling 100% normal again a couple of months ago, so hopefully my reproductive system is firing on all 8 cylinders again - it feels like it is

    HTH - good luck to all.

    Kristi

     
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