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  • To my fellow cronic urticaria sufferers

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    Old 09-08-2008, 07:53 PM   #1
    abadazzcky
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    Lightbulb To my fellow cronic urticaria sufferers

    For starters everyone has been an inspiration to me and how I feel about the situation now, knowing Iím not the only one in the world thatís facing this horrible problem. Sadly enough to hear some of you have been facing this for years. Iím going on two days!!!! I have been to the hospital twice and got shot up with everything imaginable. My symptoms started so randomly. Iíve never been allergic to any in my life. I have a sore throat and tremendous hives and rashes and itching everywhere literally! The hospital prescribed me Cimetidine 400mg, Prednisone 20mg, and Hydroxyzine Pamoate 50 mg. The only one that has really worked for me was the Hydroxyzine. I broke out horrible in rashes and took two of them and my rashes started to vanish as well as the itching. However Iím drowsy!! I thought in some way maybe this might help someone out too!.... Iím going to go see an allergen specialist soon to see if maybe Sulfastlixine will help me like many others. I donít want to spend so many years trying to figure out whatís wrong with me I have a life to live and this isnít it. Good luck to you others.

     
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    Old 09-10-2008, 07:28 PM   #2
    hopetofeelwell1
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    Re: To my fellow cronic urticaria sufferers

    Hi Aba! Welcome! I have a cousin-in-law from Aurora and they say it's gorgeous out there. By the grace of God they will get to the bottom of whatever is aggravating your system. Some of us have thyroid issues, while some are allergic to definite triggers, and then some of us have chronic idiopathic(unknown in nature) urticaria which is so frustrating. I know that getting to the allergist and if possible as many specialists as you can who deal with the other system issues that cause hives can be a good thing, also. I remember taking hydroxyzine(Atarax) and it knocked me out for a day and a half. I had the hives so badly that I had to have 100 mg. 3 or 4 times a day! Please keep everyone informed how you're making out because we all care. God bless and take care--Hopeto--

     
    Old 09-10-2008, 10:10 PM   #3
    abadazzcky
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    Re: To my fellow cronic urticaria sufferers

    Hi, Thank you for your concern..... Well lucky me i just got onto Hmo the other day and went to see a specialist i had to come out of pocket alot of money that i dont have but i need to know. He of course put me on more medication and told me that 60% of the time you wont find out what caused the reaction. However, he sent me to the lab to take some blood work to see if he can find anything else that might be the problem. I have an appointment back with him in 10 days. Well see how it goes. For now im going to calm my nerves and not try to instill in my head that death gets closer.

     
    Old 09-18-2008, 07:56 AM   #4
    letstalkpoop
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    Re: To my fellow cronic urticaria sufferers

    allergies can come on at anytime during your life--if all of a sudden your throat was sore and you have hives--just look at what you were eating last. because of pesticides in food most likely you could have been eating a peach but last week you ate one and you were fine...benadryl is the best for that---dr's will fill you up with lots of drugs like prednisone(horrible) but just stop eating the foods that bother you. also, if your skin is itchy check your laudry detergent ---get the unscented---very common to develop scent allergies overnight...hope this helps...

     
    Old 10-29-2008, 05:58 PM   #5
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    Re: To my fellow cronic urticaria sufferers

    A large percentage of chronic hives are not caused by allergies, they are idiopathic meaning doctors do not know the cause. I had chronic idiopathic urticaria (hives) for about 5 years. It was not an allergy, it was not a disease, it was not from stress. I had every test and took every medicine available. I spent a lot of money over the course of several years. I read that some studies believe it is auto-immune. Hydroxyzine was the only thing that sort of helped. Then, suddenly and mysteriously, they went away. I had them almost daily for years, anything that scratched or sometimes even touched my skin would trigger them. There was never an explanation. I didn't move, change jobs, change soaps, change foods, nothing. It has now been several years since I had them. Sometimes I wonder if it is lurking somewhere ready to strike again. For now I am itch free.

     
    Old 10-29-2008, 09:54 PM   #6
    abadazzcky
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    Re: To my fellow cronic urticaria sufferers

    hello again,
    I know its been awhile since my last posting... I shoulda kept you guys updated. Well i went to the doctors ran some tests,ect. The answer was....... Bad. My blood levels are all over the place. I have way to many red blood cells or is it white hum i forgot anyways that and thyroid. 23 years old and my doctor tells me that most likely i will be on medication for the rest of my life because its not acting the way its suppose to? i dont have to many scientific terms i just know its alot to do with that. however i did want to mention my mother she has serveral problems occuring with age and kidney failure, when i told my mother the test results they were the exact opposite but the same effect and symptoms besides my moms doctor didnt cetch it. we know she has thyroid problems and in result to many problems including caused her to have kidney failure. so i hope im not on the same path but i thought id mention it for some of you to check with your siblings. it might help you solve yours.

     
    Old 11-03-2008, 05:23 AM   #7
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    Angry Re: To my fellow cronic urticaria sufferers

    Hi there,
    I'm 26 yo female and have had hives for the past 6 weeks, so apparently now they are classified as "chronic". I gave birth to my first child approx. 6 months ago and the hives started in September 08 - about a month after I weaned off of Effexor for postpartum depression.

    I'm absolutley miserable and have had no relief since the first day my hives started - I'm so upset and frustrated, not sleeping (like having a baby isn't enough - I can't stop itching long enough to sleep). I feel like I'm at the end of my rope and the quality of life is pretty poor right now.

    Does anyone have any suggestions or have heard of dr. A. Kaplan? I'm in Canada and I'm bugging my GP to send me to an allergy specialist to be tested for autoimmune disorders - I just don't know what to do or where to start - I'm so itchy and nothing is helping... so frustrated.

    Currently I take 2 reactin tabs in the a.m. upon waking up, about 2 - 4 benadryls throughout the day, 2 more around 8p.m. and 2 more at bed time along with a Singulair. I don't know what to do anymore - nothing is providing relief.

    Any suggestions?

    Kay

     
    Old 11-05-2008, 10:12 AM   #8
    abadazzcky
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    Re: To my fellow cronic urticaria sufferers

    hey sweety im so sorry to hear about what your going through, especially with a baby. Nothing really got rid of my hives and the itchiness besides Hydroxyzine, it made all the rashes go away and stopped the itching for atleast a couple hours sometimes more but it let me sleep you know. my symptoms are a lil different however i only had the hives a couple times for a day or or more and then they went away however the doctor my alergy specialist said that they will be back, i go for another blood test in the middle of november hopefully it will tell me then whats going on. so far again its because of my thyroid so im pretty sure that this will be the result how i know this is because my mother is being tested for the same thing aswell besides no one told her in time what was happening and probually over a number of years it then started taking a tole and now she has kidney failure. Everyone please keep trying to find out whats wrong. Your not crazy the doctors are. no one knows your body better then YOU!

     
    Old 03-01-2009, 11:41 AM   #9
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    Re: To my fellow cronic urticaria sufferers

    I'm back and I'm miserable. There are days I think that I am going to go insane if the itching doesn't stop. I have had a couple of days/nights like that this past week. My hives actually let up quite a bit from the first of October through early January. Unfortunately they have reappeared! I am considering starting a local support group to meet face-to-face with other people who are dealing with this debilitating condition. I want to compare diagnoses, meds, symptoms, and doctor information. Anyone in the northern Indiana area who would be interested in this? Also, I'm beginning to wonder whether anyone has ever been able to collect disability for chronic urticaria. I sometimes wonder if I will ever be able to live/work normally again. There has to be an answer out there somewhere.

    Last edited by luv2cruise59; 03-01-2009 at 11:42 AM.

     
    Old 03-09-2009, 06:05 AM   #10
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    Re: To my fellow cronic urticaria sufferers

    dear kay,I hope this is of some assistance my heart went out to you, this is a very old remedy to relieve the itching of hives,I had them badly as a child and my mother put calamine lotion on them and I recall I got relief from the itch.

     
    Old 03-15-2009, 04:32 PM   #11
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    Re: To my fellow cronic urticaria sufferers

    Hi, I'm new and a CHronic Urticaria/Angioedema sufferer. Mine is autoimmune. I currently take 4 clarinex, 1 Singulair and 2 Zantac. I have been suffering with it for 5 years. If anyone has any questions I would be happy to share what I have learned about this disease over the years.
    Jeannie

     
    Old 03-15-2009, 04:34 PM   #12
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    Re: To my fellow cronic urticaria sufferers

    Hi, Dr. Kaplan is supposed to be the top specialist for CU. If you can manage to make the trip, its worth it.

    Jeannie

     
    Old 03-16-2009, 07:13 AM   #13
    Kay26
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    Re: To my fellow cronic urticaria sufferers

    Quote:
    Originally Posted by Jeannie243 View Post
    Hi, I'm new and a CHronic Urticaria/Angioedema sufferer. Mine is autoimmune. I currently take 4 clarinex, 1 Singulair and 2 Zantac. I have been suffering with it for 5 years. If anyone has any questions I would be happy to share what I have learned about this disease over the years.
    Jeannie
    Hi Jeannie,

    I've been dealing with chronic urticaria for 6 months now (and am totally frustrated). What type of autoimmune is yours and how did you figure that out? I've had my thyroid tested and have since been put on eltroxin, it has helped the hives and at one point they were gone for about 2 weeks, but have since came back. Thankfully not as bad as they were in September but I think that's because I can control them a bit better now after finding antihistamines that seem to work.

    What have yours been like for the past 5 years? constant and always the same or do you go through stages of flare ups then remission? My biggest concern is that my husband and I would like to try for our second child in Dec 09 / Jan 10 and I'm concerned that if I'm still on so many antihistamines (180 mg of allegra and 20 mg of reactine daily) that I'll risk harm to the fetus if I do concieve.

    I feel like this is controlling my life - not only can I not sleep most nights, now I'm worried that I won't be able to have another child because of the amount of drugs I'm on to controll the itching.

    My hives flare up at around 8:00 p.m. - I can go all day with nothing then around 8 my scalp may start to itch. Right now they're localized to my thighs and sometimes my hips (which is 100 times better than before when they were all over my body). I find that when I'm in bed, the creases that the sheets / PJ's make on my skin will turn into long hives/welts that are a purplish red colour and burn/itch. I'm thinking it's pressure related.

    What types of alternative therapies have you tried (any?) and has anything helped?

    Kay

     
    Old 03-16-2009, 07:17 AM   #14
    Kay26
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    Re: To my fellow cronic urticaria sufferers

    Plaquenil (sp?)
    Has anyone used this drug to help with chronic urticaria? I believe it's used for RA/lupus and is an anti-malaria drug. I'm considering going on it - any one have experience with it?

     
    Old 03-17-2009, 03:54 AM   #15
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    Re: To my fellow cronic urticaria sufferers

    Quote:
    Originally Posted by Kay26 View Post
    Plaquenil (sp?)
    Has anyone used this drug to help with chronic urticaria? I believe it's used for RA/lupus and is an anti-malaria drug. I'm considering going on it - any one have experience with it?

     
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