It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Allergies Message Board

Mystery Diagnosis: Anyone NOT get help from doctors?

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 04-26-2009, 09:51 AM   #1
Join Date: Apr 2009
Location: New York City
Posts: 2
VicFuture HB User
Question Mystery Diagnosis: Anyone NOT get help from doctors?

This is my first post, but I have been living with food intolerance/allergies since I was a child. And wanted to ask the community for some feedback.

At 35 I have had to eliminate some major food groups. It is easier to list the foods I CAN eat, rather than the ones I cannot.

Eliminating whole groups such as dairy, fish, nuts and citrus (to name a few) makes getting a balanced diet rather difficult. But I have managed to do so w/o any serious nutritional deficiencies, tons of internet & library research and a lot of painful trial and error.

Ive had 2 RAST tests, several skin pric k tests and a full blood work up looking for anything that could "prove" that more than 100 foods make me feel sick. A handful of doctors wanted to test me to be sure . My weight was plummeting and I had no energy for months. My symptoms were simple gas to not being able to get out of bed and lift my head. And although these symptoms are real, I cant prove any of it. This is where it gets tough.

Because my tests do not bear out what I am telling the physicians, at the end of the visit I am told either 1 of 2 things:
1) Sorry cant help you, you are not showing us anything to work with.
2) Its in my mind. (That one makes me cry)
And I go home to deal with this odd hand life has dealt.

So I ask, has anyone here been told something similar? That your tests are not coming back positive enough to shore up your claims of severe pain and incredible discomfort. that food and drugs make you so sick you feel like it might even be better if you fell into a coma, so you wouldn't have to deal with eating anymore. Afraid to put something in your mouth, even though it was "safe" last week, this week it could incapacitate you.

I have lost 75 lbs with out dieting due to elimination in the last 9 months. I eat like a person following a weird cult. Restaurant dining is all but gone, save for a few local places that serve Buddhist/vegan type fare. My husband has graciously forgotten how much fun it was to dine out and gets me flowers instead of chocolate for Valentines day. I guess I am lucky. I have a supportive family, enough brains to keep myself alive, but really wish there was a test or shot that could reveal the true cause of this mystery diagnosis.

Thanks for reading.
A little is better than nothing at all.

Last edited by VicFuture; 04-26-2009 at 09:54 AM.

Sponsors Lightbulb
Old 04-26-2009, 11:11 AM   #2
Junior Member
Join Date: Apr 2009
Location: VA
Posts: 41
dragonfly57 HB User
Re: Mystery Diagnosis: Anyone NOT get help from doctors?

I can understand what you are going through. I have over 25 food allergies. My allergist told me that while it was preferred not to eat anything I am allergic to, I had to decide what I could and couldn't eat based on the reaction for each item; otherwise I wouldn't be able to eat.

I'm sorry you are going through that. By the way, I had been told by another allergists I had no allergies (a couple of years ago). I knew that was wrong because I knew some foods that made me so sick. You know your body better than anyone. Also, my sister-in-law told me she went to a talk one time by an allergist who said our body's cell structure changes every 7 years and it is possible for our allergies to change - go away, increase, etc.

A lot of diagnoses
Only by the grace of God do I keep on going

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Mystery diagnosis? acute abdominal pain. NY 1009 Bowel Disorders 0 01-31-2009 09:21 AM
Multiple Back/Spine Problems - docs say I'm a mystery?? BeautifulMess37 Spinal Cord Disorders 10 01-07-2009 08:09 PM
Mystery Diagnosis-Not such a Mystery! osteoblast Thyroid Disorders 3 11-10-2008 08:46 PM
Mystery diagnosis lunabunny Rare Disorders 7 11-02-2007 11:25 AM
Mystery Diagnosis - Help! MissJessica General Health 5 05-23-2007 09:30 AM
Auto-Immune Mystery! Please help! nannie8 Immune Disorders 7 04-30-2007 09:11 AM
Mystery Diagnosis Aquaticgirl Teen Health 10 10-10-2006 03:15 PM
Autoimmune Mystery UBR Open to All Other Health Topics 0 11-12-2005 12:10 PM
5 Year Mystery hmarstall Inner Ear Disorders 8 09-26-2003 12:51 PM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 05:21 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!