HealthBoards

HealthBoards (https://www.healthboards.com/boards/)
-   Allergies (https://www.healthboards.com/boards/allergies/)
-   -   Sublingual Immunotherapy (https://www.healthboards.com/boards/allergies/724588-sublingual-immunotherapy.html)

Machaon 11-28-2009 05:35 AM

Sublingual Immunotherapy
 
My more serious Asthma problems and my Chronic Sinusitis and other Sinus Miseries are long gone due to sinus flooding with Peroxide, SCIT ([U]Subcutaneous Immunotherapy[/U]), Acupuncture and avoiding allergens and irritants, but I still get labored breathing and sick as a dog if I encounter allergens, irritants, pollutants, especially certain plastics, rubber, microfiber, cigarette smoke, dogs, cats and leather, etc.

And.... let's face it, there are many pollutants and pollens and irritants in our environment, foods, air and water that we can't possibly avoid, and which I often come into contact.

So, while I don't get serious Asthma attacks, and my lungs stay open, I still get labored breathing and all of the nasty debilitating malaise, heart rhythm dysfunction, Pericardial Effusion, weakness and fatigue from an encounter with an allergen/irritant.

I just read something about SLIT, otherwise known as [U]Sublingual Immunotherapy[/U], where, instead of injecting a trace amount of allergen into your arm, they put a trace amount of allergen under your tongue!

I've read that the SLIT is much safer than SCIT or RUSH, and less prone to cause a severe reaction, such as [U]Anaphylactic Shock[/U].

So...... I am thinking of trying, tomorrow, Sunday, placing a trace amount of some allergen under my tongue to see if I can immunize myself against some very common allergens. I need to find out how to use a tiny, trace amount, equal, in essence, to, like a millionth of a dose of some allergen.

Titchou 12-12-2009 08:03 AM

Re: Immunotherapy treatment for allergies: SLIT, SCIT & RUSH, do-it-yourself SLIT???
 
Have you tried inhaling Campho-Phenique for your asthma symptoms? I find it helpful for my breathing and it's very much OK to use. I use it for coughs when I sleep...just a small amount on a hanky or kleenex held to my nose while I sleep. Works really well and is very soothing.

care_berry 12-12-2009 01:31 PM

Re: Immunotherapy treatment for allergies: SLIT, SCIT & RUSH, do-it-yourself SLIT???
 
Hi Machaon, I've been following your posts here for a while, even though I didn't decide to respond until now. I think you are very brave! I personally wouldn't have the courage to do anything like that with my food allergies lol. However, I thought I would give you a tip as to something I've been researching for a while now. It's called Neuromodulation Technique (NMT) and there's apparently been success with people in getting immunity to allergens. It could be food or environmental allergies and even with people who have sensitivities to chemicals. I am really considering going for a trial to see if it helps since life is hard on such a strict diet. At least I would like to not have to be so paranoid about foods, but I would still eat well of course. Also, they've had success with all kinds of other conditions using this therapy. Well, just thought I would let you know about it! Good luck!

Machaon 12-12-2009 09:21 PM

Re: Immunotherapy treatment for allergies: SLIT, SCIT & RUSH, do-it-yourself SLIT???
 
[QUOTE=care_berry;4142095]Hi Machaon, ... I think you are very brave![/QUOTE]

That was a very nice thing for you to say. Thanks for the complement! :wave:

However....... either I am brave or dumb. :eek:

Here I sit, at midnight in South Florida, with uncomfortable breathing. No wheezing, and I can still breath OK, but my chest is a little tighter than it was earlier, and it is difficult to sleep. So..... here I sit, drinking a cup of coffee, waiting, if I have to, for morning so that my "labored" breathing will ease up. I will attempt to go back to sleep in about 20 minutes.

As the old say: If you've got to be dumb, you've got to be tough! :D

Actually, I am kinda happy about the reaction. It isn't bad enough to scare me, and it shows that I've gotten some kind of reaction to the SLIT. The harsher reaction was probably due to grass being high on my allergy list. I intended to select something a little milder in allergic sensitivity. Grass was too easy a target! :rolleyes:

In Acupuncture, pain often gets much worse after effective treatment, and the increased pain is a good sign. Does the same rule apply to Immunotherapy? I hope so. So little is known about SLIT, except that it has been shown to be effective at Immunizing against certain Allergens.

If SLIT just improves my sensitivities by 10%, it will be well worth the price.

[QUOTE]I personally wouldn't have the courage to do anything like that with my food allergies lol.[/QUOTE]

Lack of courage, or just a lot wiser than me! :D

[QUOTE]However, I thought I would give you a tip as to something I've been researching for a while now. It's called Neuromodulation Technique (NMT) and there's apparently been success with people in getting immunity to allergens.[/QUOTE]

Hmmmm!? I think I will look into Neuromodulation Technique starting tonight. I seem to have some extra time on my hands. :round:

[QUOTE]Good luck![/QUOTE]

Regards, and have a nice night. :wave:

fortyxevna 12-13-2009 04:13 AM

Re: Immunotherapy treatment for allergies: SLIT, SCIT & RUSH, do-it-yourself SLIT???
 
I just had to write something.

I'm not sure how the woo woo quacks have gotten to you, but you need to understand that as clumsy and seemingly uncaring the medical industry is - they do care about you and only want the best for you.

Go and do sub-lingual immunotherapy properly and you will reap the rewards. There's no sense trying to reinvent the wheel. THey know how much to give you.

By the way, acupuncture is a scam.
If you think otherwise, make google and your faculties for reason your friend.

Yours in health

Machaon 12-13-2009 04:27 AM

Re: Immunotherapy treatment for allergies: SLIT, SCIT & RUSH, do-it-yourself SLIT???
 
[QUOTE=care_berry;4142095] ... However, I thought I would give you a tip as to something I've been researching for a while now. It's called Neuromodulation Technique (NMT) and there's apparently been success with people in getting immunity to allergens. ... [/QUOTE]

I looked into Neuromodulation Technique (NMT) and I am totally, absolutely not interested in it, whatsoever.

There are all kinds of so-called, alternative "cures" which makes a lot of money, but, for which, there is not enough data regarding efficacy, IMHNPO.

Seeing that I had an uncomfortable night last night, and don't want to repeat that again tonight, I will put off do-it-yourself SLIT until tomorrow, Monday, at which time I intend to repeat the experiment, perhaps with a lower dosage.

I look back at my development of Sinus Flooding with Peroxide. The very first time that I experimented with using Peroxide in my sinuses, I made my sinuses much worse and suffered greatly for three long days. But..... like the real nutcase that I am, after I got better, I went back for more, and tried Sinus Flooding again, with a milder solution and winded up with a cure for my sinus disease, which I documented here under Allergies, titled: [B]Infrequent Sinus Flooding with Peroxide & Baking Soda halted my infection nightmare[/B].

Machaon 12-13-2009 11:14 AM

Re: Immunotherapy treatment for allergies: SLIT, SCIT & RUSH, do-it-yourself SLIT???
 
I'm nearing 70 years old, and have seen many so-called "top" doctors, from allergists, to ENTs, to Heart Specialists, to Acupuncturists and I've found most of them lacking in either professional and/or people skills. I've spent many long hours waiting in crowded waiting rooms, just to meet with a health professional for a short time, where it was obvious that he has spent very little time researching or analyzing my charts, and merely prescribes standard one-size-fits-all treatment for my unique, individual health problems.

In my opinion, most doctors are woo woo quacks.

[QUOTE]Go and do sub-lingual immunotherapy properly and you will reap the rewards. There's no sense trying to reinvent the wheel. THey know how much to give you.[/QUOTE]

In my research on SLIT, article after article states that little is known about how much allergen to give, and which allergens to mix together, and how often to give treatment, and how effective SLIT is to different age groups and different allergens, etc., etc., etc.

I am not trying to re-invent the wheel, because the SLIT wheel is still a work in progress. Any doctor who states that he has all of the SLIT answers is WRONG and is not backed by medical science.

That is why I decided to try SLIT by myself. After I read many articles stating the SLIT is an unproven science in it's early stages and that there are more questions asked than answered, I figured, what the heck, I can experiment as well as they can! :D

[QUOTE]By the way, acupuncture is a scam.[/QUOTE]

I have met many people, especially those who had problems with pain, who have been virtually cured by Acupuncture. It is a marvelous, curative medical science. My wife suffered with 24 hour a day headaches for many years, and an Acupuncture Doctor based at a Pain Clinic housed with the University of Miami, gave her just two treatments, and the headaches have been gone for over 30 years. A scam!? Hardly! :D

Plus..... Acupuncture is covered by most health insurance policies. Give them a call and tell them that they are covering a scam. They will certainly thank you for your efforts! :D

But...... every viewpoint is welcome, whether logical or not, so I thank you for you input!

OTOH, I am still feeling kinda lousy right now. I expect to feel better by tomorrow and will try another SLIT experiment so that I can post about it and garner sympathy from others. :rolleyes:

Thanks! :wave:

care_berry 12-13-2009 02:30 PM

Re: Immunotherapy treatment for allergies: SLIT, SCIT & RUSH, do-it-yourself SLIT???
 
Hi Machaon, well I can understand the skepticism with some natural therapies, NMT does use acupuncture points on a person's back to help with treating the allergies. I wouldn't be trying it if I didn't think it was safe. The entire thing is about energy and reprogramming the reaction the immune system has to the allergen. Anyway, good luck with your SLIT treatments and sorry that they haven't been going too well. I imagine it is hard to know how much of the allergenic substance to use and all that. If you are interested, I can report back to you later on how the NMT treatment goes for me, probably sometime in the coming months when I go and try it.

Machaon 12-13-2009 03:08 PM

Re: Immunotherapy treatment for allergies: SLIT, SCIT & RUSH, do-it-yourself SLIT???
 
[QUOTE=care_berry;4142648] ... If you are interested, I can report back to you later on how the NMT treatment goes for me, probably sometime in the coming months when I go and try it.[/QUOTE]

Well...... if you wouldn't mind starting a thread that would discuss and explain Neuromodulation Technique (NMT), and document your own experience with it, on an ongoing basis, I would definitely be interested and active in the thread. :) After all, we should endeavor to keep open minds, right?

There are so many things going on in my life, right now, that I didn't really have time to thoroughly research this new technology, and probably didn't do it justice with my comment, so I apologize for casting aside your interest in NMT so casually. :(

I am certainly interested in your ongoing experiences with NMT, definitely!

I guess I should go back and research NMT in a little more depth than I've already done. Perhaps sometime this upcoming week? It would certainly help if you would better explain your understanding of it in the new thread.

Thanks for bringing up this issue! :wave:

Titchou 12-13-2009 04:00 PM

Re: Immunotherapy treatment for allergies: SLIT, SCIT & RUSH, do-it-yourself SLIT???
 
Machaon, FYI, using peroxide as a rinse for ears, mouth ulcers and sinuses is an old home remedy that my grandmothers used.

Machaon 12-14-2009 03:54 AM

Re: Immunotherapy treatment for allergies: SLIT, SCIT & RUSH, do-it-yourself SLIT???
 
[QUOTE=Titchou;4142702]Machaon, FYI, using peroxide as a rinse for ears, mouth ulcers and sinuses is an old home remedy that my grandmothers used.[/QUOTE]

I am surprised that your grandmother used peroxide in her sinuses. It is caustic and can be very painful, especially to women. Did she use it to treat chronic sinus infection problems? Did she dilute it, or use it full strength in her sinuses? Did she pass down her methodology to her grandkids?

Peroxide is one of the medical wonders of this world. I love the stuff and use it all the time, for all kinds of reasons.

I used to get sinus infections several times a year. This lasted for decades. Constant trips to the ENT. Constant prescriptions for antibiotics, only to get another sinus infection a month or two after taking the antibiotic.

However........ since I developed a method for using Hydrogen Peroxide in my sinuses to cure my constant sinus infection problems, I have not had another sinus infection. That's about seven long, wonderful years, free of sinus infections! I love it! :blob_fire

For those interested in reading more about how I cured my chronic sinus infection problems, read the thread [B][COLOR="Blue"]Infrequent Sinus Flooding with Peroxide & Baking Soda halted my infection nightmare[/COLOR][/B] at the top of this Allergies Board.

So...... what else can I say. Grandmothers can never be wrong, can they! :D

Titchou 12-14-2009 04:17 AM

Re: Immunotherapy treatment for allergies: SLIT, SCIT & RUSH, do-it-yourself SLIT???
 
I have no idea about the mix or anything...just remember that was a home remedy often used by the "old folks." Also, Vick's for toe fungus, canned tart pie cherries for gout, poltices for chest colds, etc, etc, etc.....

Machaon 12-14-2009 07:08 AM

Re: Immunotherapy treatment for allergies: SLIT, SCIT & RUSH, do-it-yourself SLIT???
 
SLIT Rapid Desensitization Treatment (RUSH) #3 @ 10am.

The RUSH protocol calls for several immunizations in a 3-4 hour window. So far.... so good. No significant increase in symptoms during these multiple exposures to grass pollens! :bouncing:

I can't believe that the reactions and symptoms are not compounding, or getting worse!

I intend to do it again at 10:30am, 11am, 11:30am and 12 noon. So that I don't over-do the posting :rolleyes:, I will refrain from any other posts unless I get a response, or unless I get into trouble. :eek: I know that tonight is going to be bad, but I figure that I will be up all night with a tight chest, so I'll just have to get through it. If I can't sleep that means that I might be gagging and posting, and looking for sympathy here on Healthboards in the middle of the night!

To all those who suffer the daily miseries of asthma, sinusitis and our non-caring, expensive and broken health care system, wish me luck and I wish you luck! :D

Machaon 12-22-2009 03:43 PM

Re: Sublingual Immunotherapy
 
Because I am getting encouraging results, I intend to continue with my SLIT Immunotherapy experimental treatments to lessen the sensitivity of my numerous allergies.

I intend, at this point, to continue my experiments with Grass and Leather and also target Dust, Latex and certain Plastics.

Although initially I had some uncomfortable reactions to my at-home SLIT experimental treatments, the uncomfortable reactions did not reoccur and the mild reactions seems to be getting milder and I continue the SLIT on a daily basis.

I will continue to experiment with SLIT on an extended basis, over the next few months, but I will only post progress, reactions or results when I get something definitive. So...... this might be my last post on this thread for quite a while.

One rather exciting development is that, during this month, December 2009, new SLIT guidelines have been published. It is 49 pages long, and will take me a long, LONG time to read through and try to understand, and then try to conform to the new guidelines.

Wish me luck! :D

Machaon 12-23-2009 05:22 AM

Re: Sublingual Immunotherapy
 
[QUOTE=Machaon;4148322]Because I am getting encouraging results, I intend to continue with my SLIT Immunotherapy experimental treatments to lessen the sensitivity of my numerous allergies.[/QUOTE]

Did not expect to post an update this soon, but things are happening.

On the positive side, I am having much milder reactions to the Grass-SLIT experimental treatments. No chest pains. Slight nausea, dizziness and wooziness, where at first the chest pains, nausea, wooziness and dizziness were noticeably worse! :D

On the negative side, last night I had increased slight chest pains and increased heart palpitations! :eek: I also suffered from some slight sob and some slight wheezing. I haven't wheezed from my Asthma in YEARS!!! :confused:

But, it is all good. I want to know that the SLIT is doing something, and the feedback I am getting from my body is saying that things are happening within my body.

Mind you that, with Heart Failure, Atrial Fibrillation and Immune Dysfunction, my heart NEVER beats correctly, and chest pain and breathing problems are old friends of mine, whom I've had around for over 22 years. They are unwanted friends, but what the hell, they are here to stay anyway!

Just thought that this feedback would be of interest to other allergy/Asthma sufferers.

Think about it! At home SLIT to treat allergies in the privacy of my own home, without having to pay anything! :D I just walk outside, pluck a blade of grass, say thank you to my beautiful lawn; hop, skip and jump back into my home; and do a relatively safe SLIT experimental treatment. No forms. No interviews. No waiting for hours in waiting rooms. No uncaring, unfeeling, impatient doctors and nurses. And.... best of all, not having to pay out $100 a visit! Just me and my blade of grass and a QTip! It doesn't get any better than that! :D

ps: I have just finished my fourth out of seven SLIT experimental treatments this morning. I LOVE IT!!!!!! :)

Machaon 12-23-2009 02:25 PM

Re: Sublingual Immunotherapy
 
[QUOTE=Machaon;4148322]One rather exciting development is that, during this month, December 2009, new SLIT guidelines have been published. It is 49 pages long, and will take me a long, LONG time to read through and try to understand, and then try to conform to the new guidelines.

Wish me luck! :D[/QUOTE]

The SLIT guidelines are exciting but very slow, difficult reading, deciphering and understanding. :dizzy:

If I am reading and understanding them correctly, the SLIT Guidelines state that, not only is SLIT effective for providing relief to allergy sufferers but it does much more than just initiate Immune System and NeuroHormonal System reactions, SLIT also causes desensitization and prevents new sensitizations!

That is what I had hoped for! I don't want SLIT to cause any more Immune System and NeuroHormonal System reactions to specific allergen, I want to be desensitized so that my body doesn't go nuts when I encounter dust, or cats, or dogs, or grass, or leather, or plastic, or rubber, or chemicals, etc., etc., etc.

I did seven treatments today and will do seven more tomorrow and so on and so on and so on. I will vary the allergens used and cross my fingers. I am getting extremely excited and encouraged about at-home SLIT protocol! It is damn easy to do, safe and also effective, in my humble, non-professional opinion. Give me six months and hopefully, I will say goodbye FOREVER to my allergies.

[SIZE="6"][B][COLOR="Blue"]Charge!!!!!!![/COLOR][/B][/SIZE]

Machaon 12-29-2009 02:58 AM

Re: Sublingual Immunotherapy
 
[QUOTE=Machaon;4148886]The SLIT guidelines are exciting but very slow, difficult reading, deciphering and understanding. :dizzy:

If I am reading and understanding them correctly, the SLIT Guidelines state that, not only is SLIT effective for providing relief to allergy sufferers but it does much more than just initiate Immune System and NeuroHormonal System reactions, SLIT also causes desensitization and prevents new sensitizations! [/QUOTE]

Still reading and digesting the newly published SLIT guidelines.

There are some interesting findings, from reading the SLIT guidelines, as follows:
[LIST][COLOR="Navy"][b][*]The Medical World does not know how much allergen to use to make SLIT most effective.[/B] :confused:[*][B]The Medical World does not know how long to continue SLIT treatment. [/B]:confused:[*][B]The Medical World does not know how long the improvement in Asthma or Sinus Allergic Rhinitis lasts, after SLIT treatments.[/B] :confused:[INDENT][U][B]A small study seemed to show that the benefits were long lasting for Asthmatic patients![/B][/U] :D[/INDENT][*][B]So far, the Medical World thinks that it is best to treat with a single allergen under the tongue rather than multiple allergens under the tongue at the same time.[/B] :)[*][B]SLIT (under the tongue allergy desensitization) is used throughout Europe, especially in France and Italy, where SLIT is the number one protocol for new allergy desensitizations! :) [/COLOR][/B] [/LIST]

Anyways...... I plan to continue doing SLIT experiments on a continuing basis. At this point I cannot say definitively that SLIT is helping to desensitize my Asthma. The reason why? I have not gotten up the courage, yet, to test my reactions to certain known allergens, which I am still avoiding like the plague. Sooner or later, I know that I will need to test contact with one of these allergens, but I am not ready yet. :(

On the other hand, I have not had any more serious or uncomfortable reactions to my SLIT experiments, and have only had mild reactions to placing allergen under my tongue. So...... that is encouraging to me. :)

For the next few months, I will continue my experiments and tests on a variety of allergens. If I experience anything definitive that shows that my SLIT experiments are improving or desensitizing my Asthma, I will certainly post about it.

Wish me luck! :wave:

Machaon 12-30-2009 08:57 AM

Re: Sublingual Immunotherapy
 
[QUOTE=Machaon;4151464]For the next few months, I will continue my experiments and tests on a variety of allergens. If I experience anything definitive that shows that my SLIT experiments are improving or desensitizing my Asthma, I will certainly post about it.

Wish me luck! :wave:[/QUOTE]

For those who are interested, I am going to keep updating this thread, more frequently with results and experiments, but mostly on my HealthBoards blog, which has my first post from this morning's SLIT experiment.

Machaon 01-03-2010 05:43 AM

Re: Sublingual Immunotherapy
 
[QUOTE=Machaon;4151464]Still reading and digesting the newly published SLIT guidelines.

I plan to continue doing SLIT experiments on a continuing basis. At this point I cannot say definitively that SLIT is helping to desensitize my Asthma.[/QUOTE]

I'm reading the guidelines over and over and over again. Each time I read portions of the SLIT Guidelines I pick up on some points that, somehow, I had overlooked before. At my age, everything absorbs slowly and takes a while to sink in! :round:

Regarding my ongoing, long term safe, at-home SLIT experimental treatment effectiveness? Well.... in the past, when I have found and removed a major allergy trigger from my home, I have noticed an increase in energy, an over improvement in feeling better, less anxiety and tension and reduced Asthma and allergy symptoms.

On January 1st, 2010, after five treatments of RUSH-SLIT Grass Allergens, I did suffer from increased Asthma problems which lasted all night. Yesterday, the 2nd, I had slight "labored breathing" problems all day long.

Today, Sunday the 3rd, I am really REALLY feeling good! I have more energy than normal. I feel better in the pit of my stomach. I am able to do more weight lifting and exercises than normal. I have a much greater appetite. In fact, I have been craving food all morning, no matter how much I eat. I have noticed in the past that, the better I get, the stronger my appetite. This has caused me quite a problem, and is resulting in my eating more and gaining some weight! :eek:

I am not going to say definitively that my improved overall health is due to my at-home SLIT treatments, but, if not, then what is the explanation for my improved wellbeing? Only time will tell if this is a fluke, or a legitimate result of the at-home SLIT treatments. :D :confused:

Anyway..... I post the day to day details of my SLIT experiment in my Blog.

Wish me luck! :wave:

Machaon 04-29-2011 04:55 AM

Re: Sublingual Immunotherapy
 
[QUOTE=Machaon;4154726]I am not going to say definitively that my improved overall health is due to my at-home SLIT treatments, but, if not, then what is the explanation for my improved wellbeing? Only time will tell if this is a fluke, or a legitimate result of the at-home SLIT treatments. :D :confused:[/QUOTE]

It's now about 1 years after I first started experimenting with doing my own SLIT treatments at home, using a variety of allergens, starting with grass. I moved onto other allergens that have a more serious and debilitating impact on my life.

After many more SLIT treatments, and about 1 years, my lifestyle is still very restricted because of having to survive Heart Failure and Permanent Atrial Fibrillation and Insulin Resistance with a good quality of life.

Asthma and Allergies worsens my more serious health problems. So..... if I can lessen the effects of my allergies, it significantly improves my struggles with my other more threatening health problems.

My sensitivities to the main target of my SLIT experiments have improved substantially and I stopped my SLIT experiments quite a while ago! I can now come more into contact with one of my most debilitating allergy triggers, and not suffer from any significant allergic reactions. This specific allergy is not totally "cured" but has improved to the point that my quality of life has greatly improved. I cannot believe what has happened! I am overjoyed! :blob_fire


All times are GMT -7. The time now is 05:37 PM.