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  • Anaphylaxis: post shock ongoing issues. Help!

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    Old 09-25-2014, 09:15 AM   #1
    anaphylxissucks
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    Anaphylaxis: post shock ongoing issues. Help!

    Hi everyone,
    My 23-year old sister had an anaphylactic shock on 8/21 for the first time ever in her life after having a piece of maple fudge with walnuts/nuts. She was seen at the ER. She went home and everything was pretty normal until about 2 weeks after her lower jaw/neck area became swollen and she was dizzy. It's been about a week and a half with similar symptoms: throat feels like it's closing, like in the original shock, dizziness, nausea, shortness of breath, and most recently throbbing headaches and back pain. They have tested for everything, meningitis, strep throat, Lyme disease, mononucleosis and everything in between, and nothing. Two CT-Scans and many, many blood draws, and nothing.

    Has anyone experienced ongoing post-anaphylactic shock issues similar to this? It seems the doctors do not know what to do and when I ask about the possibility of it being related to the anaphylaxis they brush it off. If anyone has experienced this, I would like to know how it was dealt with. Thanks!

     
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    Old 09-25-2014, 02:22 PM   #2
    Titchou
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    Re: Anaphylaxis: post shock ongoing issues. Help!

    She may have become sensitive to other things. Has she had allergy testing - blood for food ones and skin scratch for environmetal? Has anyone mentioned OAS?

     
    Old 09-25-2014, 08:07 PM   #3
    MountainReader
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    Re: Anaphylaxis: post shock ongoing issues. Help!

    I agree that she should explore any potential environmental or food allergies.

    Another thing you might want to research is Mast Cell Activation Disorder (MCAD) or Mastocytosis. All of the symptoms, including the anaphylaxis could be attributed. It is not a common diagnosis and is difficult to diagnose, but is on the rise in population. Basically there can be too many mast cells in different areas of the body which can result in releasing of a flood of histamines. If it does turn out to be something like this, it is often treated with a combination of anti-histamines and H2 blockers.
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