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  • Groaning, Whimpering & Other Noises in Dementia

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    Old 08-14-2019, 11:21 AM   #1
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    Join Date: Nov 2018
    Location: Ohio, USA
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    KateH2b1 HB User
    Question Groaning, Whimpering & Other Noises in Dementia

    My grandmother recently received a diagnosis of dementia from a neurologist. I was trying to explain about these noises she makes that are concerning. I suppose in retrospect I used the wrong words to describe it and ended up with a diagnosis of Pseudobulbar Affect (PBA), even though I know she doesn't have that. The definition of it is: a type of emotional disturbance characterized by uncontrollable episodes of crying and/or laughing, or other emotional displays. PBA occurs secondary to a neurologic disorder or brain injury."

    I used the words "moaning and crying" when I probably should have just said groaning, whimpering, and "aahh" sounds. I explained that she makes these sounds primarily when she's getting up out of her chair and moving around. She usually doesn't just make the noises randomly. Other times she makes them when she's hungry or has leg pain because she can't raise the footrest on her chair. There's almost always a reason for these vocalizations, I just don't always know exactly what's going on - I have to do detective work.

    She says she doesn't know why she makes the noises and it's unclear how much she can control it. I've gotten very stern with her about not making them in bed (because it wakes me up) and she stopped by 98%, so she can control it. The other 2% are times when I think she forgets not to make them.

    I know these types of noises are fairly common in dementia. I guess I'm wondering if anyone has ever come across a neurologist who completely misdiagnosed these noises as PBA? This diagnosis is now in my grandma's medical records, should I tell the doctor she doesn't have PBA and get it taken out?

    Or, does every person with dementia/Alzheimer's who makes these noises also have PBA?

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