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  • Have I got als??

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    Old 06-13-2015, 10:47 AM   #1
    Tony4431
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    Have I got als??

    Hi there, for the last 4 years I've been under constant worry about als! 4 years ago I used to be a boxer, and while I was not training for a fight I used to do a lot of weights, it was this period in 2011 that I noticed my left shoulder had dropped slightly! I went to my physio and she said she was concerned as I had a winged scapula, and that my back muscles had atrophy too, I was sent to see a shoulder specialist and he said after examination that my shoulder was ok, there was a few tares from my boxing training but couldn't explain the atrophy, I was then sent for an Mri for my neck, and it showed up with a dengenrative disc problem, in my upper back, lower neck, and it was put down to that, I fought later that year and started to notice it get worse, when my physio told me what her concerns were earlier in that year, and what she was worried about I was sent to see a neurologist, I was no aware of a disease called als, I couldn't sleep at night because I was reading far too much on the Internet, I had an emg and another MRI, and was told that I didn't have als, but even tho I had been getting fasculiations for a year, and they was even happening in front of the specialist I was told that there was nothing up with me, I went away for over a year and got on with my life, my shoulder never got any better, and the. Over the next 18 months I started to see many other problems, but was not suffering with a weekness that effected my life, now my right bi cep had started to shrink, my right hand and my left hand side of my face started to droop slightly, so I went to my doctors and he sent me to see a consultant at a neurology department, It was here I was told I didn't need another emg and that I have health anxiety! I have never been back since, now in 2015 I have one hand that is starting to lose grip and a wrist that has lost that much muscle I now we're my watch on my left hand, my face seams to of changed shape; my neck on my left side has gone to looking different to me actually feeling week on it, my left hand side of my chest, and my voice sounds a lot weaker, my tounge on one side has shrunk, and my left hand side of my stomach has lost muscle, last year I tried to train for another fight, one last time, I didn't struggle like I thought! But it was clear to everyone that my right hand side of my stomach and ribs had defined muscle but the left was like jelly, but I could still run 10 miles every day and was strong enough to spar in the ring 10 rounds, this was 3 years on from my symptoms, I now struggle a lot to talk and my neck feels uncomfortable and I find my self slumping to one side when I sit to watch telly, my right hand has shrunk visabally and feels really weak! But I feel pain! Not bad pain but like an tingle, now I know from the onset of als 50% of ppl die within 4 years, and I know you don't get pain with als, and I really want to know what is up with me, but all I see is over the last 4 years my body has progressed badly! It scares me! And I just want to be normal again, I'm not sure I can face going back to the neurologist untill I lose the use of a limb! They don't seam to like diagnosing ppl with als untill they have too! So in the mean time I feel isolated and alone and not sure what is going on! Please someone tell me that I havmt got it and these symptoms are recognisable, I'm in hell x tony

    Last edited by Tony4431; 06-13-2015 at 10:49 AM. Reason: To change tags

     
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    Old 06-13-2015, 01:05 PM   #2
    Seraph
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    Re: Have I got als??

    It sounds more like inflammatory myositis, which is an auto immune disorder. That progresses with symptoms like yours. You would probably be better to see a rheumatologist to get this sorted, as it is not a neurological illness. Good luck, Sera

     
    Old 06-16-2015, 04:53 AM   #3
    Olifants
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    Re: Have I got als??

    Hi I hope you will be back in shape soon ... In the ring
    That is good nees I would appreciate if you could maybe look at my post also all the symptoms ...
    Sorry if I couldn't ask it on this threat then I appologise
    Have a great day
    Olifants

     
    Old 06-21-2015, 06:13 PM   #4
    Tony4431
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    Re: Have I got als??

    Quote:
    Originally Posted by Seraph View Post
    It sounds more like inflammatory myositis, which is an auto immune disorder. That progresses with symptoms like yours. You would probably be better to see a rheumatologist to get this sorted, as it is not a neurological illness. Good luck, Sera
    Thank you very much, I'm going to mention it to my doctor in my next app, what is it that sounds like inflammatory myosotis if you don't mind me asking?
    Thanks tony

     
    Old 07-03-2015, 12:02 AM   #5
    ChuckStr
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    Re: Have I got als??

    The apparently clean EMG, long timeframe, and sensory symptoms such as pain and tingling makes ALS extremely unlikely.

    Myositis, MMM, and Myasthenia Gravis, and Lyme's disease are all possible differentials. Some of the issues could also be due to the disc problems you've seen. Face drooping, particularly, is common in Myasthenia Gravis.

     
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