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Amyotrophic Lateral Sclerosis (ALS) Message Board

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Old 09-07-2016, 08:41 PM   #16
TimAlley
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Re: Status ...

Hello,

I think I am. I mean nothing has changed. Really same symptoms, fssciculations, cramping, burning. Atrophy, not sure.

Ready for summer to end here. How are you doing?

Take care,

James

 
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Old 09-07-2016, 10:34 PM   #17
Olifants
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Hey
Glad to hear you are fine.
Winter is going now here in spring summer is coming
Hunting season ended in Aug
Had 2 trips this year looking forward to summer but the rain is staying away very dry here.
Why do you think it is atrophy and where do you notice that?
Be good my friend

 
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Old 09-07-2016, 11:10 PM   #18
TimAlley
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Re: Status ...

I think on ankles and calves. I see my veins more prominently.

I have lost no strength. I continue to go workout each night. I know my calf measurement is same as year ago so don't know

Can you get messages here. I could send you picture.

How about you? Do u see atrophy?

Stay well,

James

 
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Old 09-08-2016, 09:02 AM   #19
Olifants
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Quote:
Originally Posted by TimAlley View Post
I think on ankles and calves. I see my veins more prominently.

I have lost no strength. I continue to go workout each night. I know my calf measurement is same as year ago so don't know

Can you get messages here. I could send you picture.

How about you? Do u see atrophy?

Stay well,

James

Yes I got a lot of clear atrophy in shoulders
Lower legs calfs hands arms
Meyer hennie

 
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Old 09-08-2016, 01:58 PM   #20
TimAlley
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You having lot of weakness?

 
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Old 09-09-2016, 08:35 AM   #21
Olifants
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Quote:
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You having lot of weakness?
Feel not as usual but stil my strenghths

 
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Old 09-09-2016, 08:56 AM   #22
TimAlley
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Re: Status ...

I also notice that my left leg ferls like nonstop popping or buzzing feeling. You feel teitching constantly? Mine never stops.

James

 
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Old 10-22-2016, 05:10 AM   #23
Olifants
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Quote:
Originally Posted by TimAlley View Post
I also notice that my left leg ferls like nonstop popping or buzzing feeling. You feel teitching constantly? Mine never stops.

James
Hope you are stil doing fine my shoulders atrophy more vissible
My hips can feel if their strength is going my are vibrating constantly
Goints in vingers is feeling stiff
Hope you are much better by now
Regards

 
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Old 10-22-2016, 06:32 AM   #24
TimAlley
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Hello Olifants,

I am doing about the same. I still have numerous muscle spasms/cramps. I feel like i see atrophy in left calf and around wrists.

I have ton of stiffness, but I have had that for a year. My left calf vibrates constantly.

Other than that gonna be a great day. Let's go live today. About to go flounder fishing.

Have a good day!

James

 
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Old 11-20-2016, 09:06 PM   #25
TimAlley
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How are you doing Olifants?

 
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Old 11-22-2016, 01:15 PM   #26
Olifants
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Quote:
Originally Posted by TimAlley View Post
How are you doing Olifants?
Hi TimAlley
Im doing fine thank you. Hope you are also!
Getting worse I think lot more atrophy in shoulders and can feel stifness an some pain in hips.
I made a follow up 6 month at the neuro Proffesor got a tentative appointment on 7 December . Hope I get it they will confirm.

Damn this is frustrating if atrophy continues then Imust at some point going to fail...

Hope You are fine?

Hennie

 
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Old 11-22-2016, 07:53 PM   #27
TimAlley
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Are you having any difficulty swallowing? Are you having any muscle failure?
Are you havibg lot of cramping?

Same pattern here. Burning/cramping here

Happy Thanksgiving,

James

 
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Old 11-23-2016, 12:34 PM   #28
Olifants
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Hi
Im not really having swollowing problems but some time my speach sound hoarse to me.
Lot of atrophy in shoulders not muscle faluar. But painfull maybe it is because of the atrophy and now I over use the muscles?
Hips are also fealing dum and a bit sore.
I do not have cramping.
Fasciculations are also less
Or Im getting use to it.
Do you have swallow difficulty?
Be good my friend

 
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Old 11-23-2016, 12:44 PM   #29
TimAlley
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I have constant sore throat. Also seems like I have to speak more slowly. Sometimes I ferlmlike csn't swallow eell, but may be because of sore throat.

Sometimes I feel like I see atrophy. Mire. Eins showing in left calf. It has been 19 mobths since first symptoms. Also since have many sensory symptoms not sure what to think.

Hsve a good holiday,

James

 
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Old 12-18-2016, 12:42 PM   #30
Olifants
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Hi Timalley
Hope you are fine my friend
Visited the Proffessor neurologist again after 6 months
My reflexes are fine
He in a way confirmed that it could not be MND ALS
but said it is a type neuropathy
Lot of atrophy wasting in shoulders clearly vissible

I gained 30kg's since last year June and need to start get that off now!!
As I need to watch my sugar levels as that can also have an impact on my nerves!
If this muscle waisting can just stop mannnn!!!
We on holiday before xmass at the sea side and I really have a rest!
Be good hope you are fine
Enjoy your holidays
Olofants

 
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