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Panic attack status, fear it's ALS


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Old 10-27-2016, 07:46 AM   #1
sgtgrl
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Panic attack status, fear it's ALS

I'll try to keep this short and sweet. I'm a 33-year-old otherwise healthy female. I run and exercise on a regular basis. About three weeks ago during one of my runs I noticed that my left foot felt weird. It just felt like it was taking more effort to raise it when running than my right. It felt like my leg was going to give out underneath me. I continued running just thinking it was the way I laced my shoe and finished my run without incident. The following day same thing. Foot felt heavy like my knee was going to buckle. The other night, I started getting twitches in that leg accompanied by generalize twitching in my hands and other leg. Against my better judgment, I went to the Google machine.

I have a doctors appointment tomorrow but I am paralyzed with the fear that this is ALS. I have done some "at home" assessments such as standing on my toes standing on my heels jumping on one leg etc. and I can do all of that fine my knee just feels like it's going to buckle and my foot does feel weak. Any reassurance, personal experiences are appreciated.

 
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Old 10-27-2016, 11:38 PM   #2
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Re: Panic attack status, fear it's ALS

Hello,

Sorry to hear about your symptoms. I know ALS pretty well and you did not list any ALS symptoms. Go to your doctor's appointment and get to the bottom of your foot situation. Rest assured that you do not have ALS.

Google and the internet have created much anxiety for you. Go see your doctor and stay away from doctor google, he/she is a quack.

Take care,

James

 
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Old 10-28-2016, 05:40 AM   #3
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Re: Panic attack status, fear it's ALS

Thank you for your reply. I know that I sound really silly and it's health anxiety which I also plan on addressing at today's appointment. I just have body twitches twitches in my lips when I purse them and this is all just happened within the last week so I am hopeful that that is just attributed to anxiety.

 
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Old 10-28-2016, 06:58 AM   #4
TimAlley
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Re: Panic attack status, fear it's ALS

Your anxiety after going online is completely understandable. You just need to see what is going on with your foot.

You don't have ALS. Your doctot will tell you that as well.

Take care,

James

 
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Old 10-29-2016, 09:24 AM   #5
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Re: Panic attack status, fear it's ALS

I forgot to mention I have weakness in my right pinky and have been dropping things from time to time. Mostly noticeable in the pinky and ring finger. I also have pain in the forearm like it make my hand feel better to rub it. This is really freaking me out

Last edited by sgtgrl; 10-29-2016 at 04:44 PM.

 
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Old 10-29-2016, 09:41 PM   #6
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Re: Panic attack status, fear it's ALS

ALS is about failing...not feeling. It is about nerves dying and never able to move that muscle again.

It is not about feeling weak. It is about failing. Not sure what your ailment is. I just know it isn't ALS.

I absolutely understand your anxiety and concern.

How did your appointment go?

Take care,

James

 
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Old 10-30-2016, 02:52 AM   #7
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Re: Panic attack status, fear it's ALS

Not as I had hoped. He didn't really test anything. He asked me to lift my foot and roll my ankle. Said I would be falling down etc if ALS and I had zero risk factors (age, gender etc)

I do have weakness in my right hand localized to the pinky. After googling all day, I believe it's my ulnar nerve which makes me more terrified bc I know that can be tied to ALS. This is taking over my life. I'm a total mess and don't know what to do

 
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Old 10-30-2016, 08:55 AM   #8
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Re: Panic attack status, fear it's ALS

Ok I am going to try to help you from wasting about 6 months of your life or more worrying.

I knew the doctor would tell you that your fears were groundless. I also knew that you would not accept his conclusion. They should have a disease called "I made myself sick thinking I had ALS".

Hear me out. ALS is relentless. It moves forward constantly. It is relentless. There is. no submission or getting better.

Think back to when you first started worrying. Every day that passes and you do not lose use of a muscle add a day to your total. Slowly weeks and months will pass and you will slowly realize that you do not have it.

You just need time to pass to help with your anxiety.

Did your doctor order any tests or make referral?

Take care,

James

 
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Old 10-30-2016, 09:39 AM   #9
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Re: Panic attack status, fear it's ALS

I totally understand what you're saying. However, I can tell just in the past week that the muscles in my right hand have deteriorated greatly. I did mention to my doctor my issues with anxiety and he referred me to a counselor and I will start that next week.

Also, is it possible to have weakness in the left leg and weakness in the right hand? Like, opposite limbs? Does that sound ALS related?

You have no idea how much it means to me that you reply. It's nice to have someone to talk to

 
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Old 10-30-2016, 09:46 AM   #10
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Re: Panic attack status, fear it's ALS

Btw the best way to describe my pinky weakness is, I can't touch my palm with my pinky without straining really, really hard and holding a pen feels weird in my pinky like it's just dragging along. I'm really scared

 
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Old 10-30-2016, 11:31 AM   #11
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Re: Panic attack status, fear it's ALS

ALS symptoms often start in a distant limb.

I know you are scared. I have been there myself, that is why I come on here and listen to the symptoms rationally and offer my thoughts. I am not a doctor, but I know ALS pretty well.

ALS does not present w weakness in a finger and leg simultaneously. It most often presents with a sudden inability to use a muscle. As I am sure you have read, the inability to turn a key, etc.

BTW there is a difference between perceived weakness and vlinical weakness. You have not described clinical weakness.

One question for you. Did the doctor test your reflexes?

Take care,

James

 
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Old 10-30-2016, 11:47 AM   #12
sgtgrl
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Re: Panic attack status, fear it's ALS

No!!! He didn't. I was hoping he would but no luck. As I said, once I told him that I was having weakness and my mind took me to ALS he kind of shut me off after that. Looking back I probably should not have said that but he only examined my foot and ankle and told me I was fine

 
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Old 10-30-2016, 12:00 PM   #13
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Re: Panic attack status, fear it's ALS

Also, the weakness in my leg is attributed to my pinky toe and index toe on my left foot. It's like I can't push off of those and it's causing me to feel weak kneed in my left knee. It's like I can't press my pinky toe into the floor

 
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Old 10-30-2016, 12:12 PM   #14
TimAlley
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Re: Panic attack status, fear it's ALS

Not sure what your insurance situation is, but if you want to put your mind at ease you can make an appointment with a neurologist. They will do a quick test of your reflexes and your strength.

I absolutely do not think it is necessary, but if you have the time and money it may help ease your mind. I will tell you this. Even after you see a neurologist you will still doubt their opinion once they tell you that you do not have ALS.

It is just the way the mind works. You can go back and read my experiences and you will understand.

Let me ask you one more question. Do you have any relatives with a neuromuscular disease? Oh and are you on any anti-anxiety medicines?

Take care,

James

 
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Old 10-30-2016, 12:14 PM   #15
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Re: Panic attack status, fear it's ALS

All due respect, but after seeing your doctor and them telling you otherwise, why are you still so determined in labelling your symptoms as ALS?

By all means continue seeing your doctor to find the underlying issue and I wish you all the best, but it doesn't seem wise or healthy, especially if you have anxiety, to obsess over the condition to try and prove you have some links to it. Go on seeing your doctor, or specialists if you are referred, but keep an open mind. The symptoms you have are not telling of any specific condition as far as you and your doctor are aware, and until you know for certain, keeping calm and doing things that relax you might help you deal with your worries and prevent overthinking.

 
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