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Amyotrophic Lateral Sclerosis (ALS) Message Board

  • Update Status after 3 1/2 years update ...

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    Old 08-17-2018, 08:52 AM   #1
    TimAlley
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    Join Date: Jun 2015
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    TimAlley HB UserTimAlley HB User
    Update Status after 3 1/2 years update ...

    In April 2015 i had burning feeling in my legs as well as fasciculations. Over the next 6 months I saw several neurologists and finally a neuromuscular specialist. After countless tests including a clean EMG they diagnosed w idiopathic neuropathy.

    Diring last three years have had progression of fasciculations, cramping/spasms 24/7, slight speech difficulty later in day and tightness/soreness in joints, tendons, muscles and bones.

    Each yeari I see neurologist. She tests my reflexes, does a few obsevational tests and renews my prescriptions.

    Currently I have total mobility and can still exercise, but with much physical discomfort.

    Just wanted to give update.

    Thanks,

    Tim

     
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