It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Amyotrophic Lateral Sclerosis (ALS) Message Board

  • 7 weeks with no twitching? Can this happen?

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 05-05-2003, 08:19 AM   #1
    ashtonn
    Junior Member
     
    Join Date: Sep 2002
    Location: bethlehem,pa,usa
    Posts: 16
    ashtonn HB User
    Question 7 weeks with no twitching? Can this happen?

    Hi. My 37 yaer old husband may have ALS...the doctor will not rule it out due to twitching of muscles. Tests are all negatives for other diseases except CPK always returns elevated. Resently, the twitching stopped for 7 weeks. Now Friday he began twitching all over and has SEVERE cramping all over the arms, legs, stomache as well....funny I thought we may be out of the woods. In ALS...could that happen? I mean twitching stops for 7 weeks then all of a sudden BAM ..twitching and bad cramps? (P.S. He has had cramping here and there occasionally , but in the seven weeks of no twitches minor cramping, if any)

     
    Sponsors Lightbulb
       
    Old 05-07-2003, 11:28 AM   #2
    reneeintx
    Inactive
     
    Join Date: Feb 2003
    Posts: 278
    reneeintx HB User
    Post

    ashtonn,

    I've been twitching for 5 months now.I was freaking out thinking I had ALS too. I went to the neurologist and had an emg. It was clean, no positive giant wave patterns.I was diagnosed with benign fasciculation syndrome. Has your husband had an emg? Having this test will rule out ALS. I don't believe your husband has ALS..in ALS the symtoms don't come and go. There's a board here called rare disorders. Myself and others have talked about "benign fasciculation syndrome"~bascially it's a nervous system condition. For unknown reasons our systems become hyper and our muscles twitch. They have no cure for it..except to treat the symptoms with anti-anxiety med's that curtail the twitching for 4-5 hours.

    With this syndrome some people have twitching for years, others it completely stops.

    From what I've learned over the past 5 months is that twitching can be caused by a number of things such as..thyroid, vitamin deficiencies,fibromyalgia, MS, spinal problems, medications, anxiety and quite a list of other possibilites.

    I twitch all over. Sometimes it goes away but always seems to creep back. "BFS" is diagnosed alot more than ALS. ALS is so very rare and your husband seems young to have it. I'm 39 twitch and cramp.

    Like I said mine has stopped before and started again. People with "BFS" have symptoms that wax and wane like your husbands.

    Please go to the rare disorders board here.

    Also does your husband experience weakness? Some people with "bfs" perceive weakness but when they have an emg it will show no deterioration of the muscle. So it's not ALS.

    Renee
    PS~even though I don't have ALS... My mind still worries sometimes. Like the neurologist told me, it may never go away but it's treatable and things could be alot..ALOT worse.

    Hang in there!

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Muscle Twitching & Arm/Leg Jerking! What's Causing This To Happen??? AngelOfLight82 Neuromuscular Diseases 57 04-28-2010 11:26 PM
    found the reason for the twitching hrt Neuromuscular Diseases 1 02-06-2007 05:51 AM
    Can Low Electrolytes Cause Muscle Twitching & Jerking??? AngelOfLight82 Nutritional Disorders 4 07-27-2006 04:09 PM
    Frequent Muscle Twitching!!! AngelOfLight82 Brain & Nervous System Disorders 7 05-23-2006 10:59 AM
    quite concerned 17 yr old male-twitching in various area of the body retrospective General Health 10 06-08-2005 08:36 AM
    Twitching Nerves, not just normal twitching here TradeDayDan Open to All Other Health Topics 5 05-07-2005 10:07 PM
    muscle twitching-4 months post partum..scared!!! jaeana Brain & Nervous System Disorders 4 09-09-2004 02:04 PM
    Information on twitching etc Greenman438 Neuromuscular Diseases 17 05-01-2004 03:28 AM
    muscle twitching and pins and needles feelings lately pdrq221 Open to All Other Health Topics 3 08-11-2003 12:55 AM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 12:06 AM.





    © 2019 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!