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  • When Does Fascicullation Start

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    Old 08-23-2004, 06:48 AM   #1
    Neutron
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    When Does Fascicullation Start

    Hi,

    I'm a 43 Year Old Male. THe last week of June I was playing basketball with my son, the next morning I noticed a soreness in my shoulder that still hasn't gone away. I haven't noticed any atrophy, but my left arm is a bit weaker than my right. I also have tingling in my left hand (I've had this for 6 years though, it's a bi product of elbow surgery I think). My right calf is somewhat stiff.

    A few nights ago my left thumb started twitching and moving on it's own, originating at the joint where the thumb joins the hand.

    I've also noticed muscle twitching in my calves, shoulder blade, triceps, side, and sometimes the forearms. They come and go and feel like a flutter. (The more I search on ALS the more they flutter so I do acknowledge it might be anxiety.

    No weight loss, no drooling.

    I'm getting a rotator cuff checked out this Friday.

    My question, are fascicullations a symptom of onset of ALS, or are they usually something that later occurs because of the disease?

    Thanks,

    Mike

     
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    Old 08-23-2004, 10:47 PM   #2
    slaughter17
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    Post Re: When Does Fascicullation Start

    Mike,
    Drooling and weight loss typically appears in late stage ALS. Although everyone is different, when diagnsoed with ALS it is not common to have those symptoms until very late in the disease. Your musles moving involuntarily, sounds more like Parkinsons disease or a severe vitamin efficiency. How old are you? How long has it been since you have done physial activity? If it has been a while since any activity has been done, You may just be experiencing a mucle spasm. Your muscles will responed in different ways depending on how much they work. If your symptoms continue I would see a doctor. Let me know how you are doing.
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    Old 08-24-2004, 04:16 AM   #3
    MotorNeuron
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    Re: When Does Fasciculation Start

    Hi Mike, I am not a Dr, I personally dont think you have als. You may have just pulled a muscle in your shoulder or moved it wrong when you was playing ball.

    The tingling in you arm may be caused by carpel tunnel.
    As for stiffness, did you do any stretching exercises before playing ball ?

    My partner also gets twitching now and then all over his body at different times, he does not have als he is completely healthy.

    Fasciculation normally start when weakness and waisting appear as the nerves start to fail.

    I wouldnt worry

    Quote:
    Originally Posted by Neutron
    Hi,

    I'm a 43 Year Old Male. The last week of June I was playing basketball with my son, the next morning I noticed a soreness in my shoulder that still hasn't gone away. I haven't noticed any atrophy, but my left arm is a bit weaker than my right. I also have tingling in my left hand (I've had this for 6 years though, it's a bi product of elbow surgery I think). My right calf is somewhat stiff.

    A few nights ago my left thumb started twitching and moving on it's own, originating at the joint where the thumb joins the hand.

    I've also noticed muscle twitching in my calves, shoulder blade, triceps, side, and sometimes the forearms. They come and go and feel like a flutter. (The more I search on ALS the more they flutter so I do acknowledge it might be anxiety.

    No weight loss, no drooling.

    I'm getting a rotator cuff checked out this Friday.

    My question, are fasciculations a symptom of onset of ALS, or are they usually something that later occurs because of the disease?

    Thanks,

    Mike

     
    Old 08-24-2004, 06:56 AM   #4
    Neutron
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    Re: When Does Fascicullation Start

    Thanks for your inputs

    Mike

     
    Old 08-26-2004, 01:23 PM   #5
    Carolina_Girl
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    Re: When Does Fascicullation Start

    My husband had fasciculations right away. We began noticing them in March or April, months before he was diagnosed. The doctor described his fasciculations as "sparkling" when he first started having them. He would get them in his biceps and across his chest. The were constant and still are. At first he would have one in one place, then immediately in another place, they would look like little fireworks going off in his skin.

    Today, he has more of them. They are still happening constantly. However, now they have a rolling look to them. They are more pronounced and have spread to both complete arms, his entire chest and his thighs.

    I hope this helps.

     
    Old 08-30-2004, 07:54 PM   #6
    Neutron
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    Re: When Does Fascicullation Start

    Thank you CG Basically mine aren't all in the same place. I'll get them in my calves, then a few days later in my biceps but they only last a matter of seconds, no more than a minute at the most.

    Mike

     
    Old 08-31-2004, 10:02 AM   #7
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    Re: When Does Fascicullation Start

    hi mike
    i was going thru the same things you are in 2001. i am 44 in ohio. i was told i had alsin april by a reputable nerologists and a dr at osu hospital in may 2002. both of these drs are on the als recomended dr list. i had a tick imbed in my scalp in dec 2000 and thought nothing of it. i went to an expert in colmar pa in july 2002 and dx with late stage lyme. i have been to 3 expert lyme drs and all together have seen over 100 others with als who were all positive with lyme! in my opinion lou gehrig died from untreated lyme. also it is not just ticks that spread lyme! any blood feeding insect WILL spread lyme.
    good luck finding an expert lyme doctor.

     
    Old 09-01-2004, 07:36 AM   #8
    Neutron
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    Re: When Does Fascicullation Start

    With all Due respect.. You're exagerrating. Out of curiousity I called a couple Lyme Specialist at various locations throughout the country. They all told me at the most maybe 10 to 15 diagnosis of ALS were eventually turned out to be Lymes. Out of those 10 to 15 about half weren't even confirmed cases of ALS. Just because it happened to you does not make it as prevalent as you're trying to make it out to be. I no longer believe I have ALS, but I do frequent this board because I am very touched by the stories and the obvious respect people here have for each other. Frankly, I'm offended at the way you constantly harp about Lymes and refute the symptoms people here have or believe they have. It does them no service, and minimizes what they and their relatives are going through.

    I also specifically asked about Lou Gehrig, EVERY Lyme Specialist I asked stated Gehrig died of ALS, and Lymes had nothing to do with it.

    Mike

     
    Old 09-01-2004, 10:13 AM   #9
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    Re: When Does Fascicullation Start

    hi mike
    i'm sorry to have offended you or anyone. i only want to offer hope of improvement rather then an early funeral. i am not exagerating, the drs i spoke with in person told this to me. they feel they are on to something that need serious consideration, not passivs sceptisim. another source i used was the health crusaders in canada. they went on to state that all als has been found to have mycoplasma fermentin present and not just with als but ms, md and golf war syndrom and still others. there are over 300 different diseases that have been listed as being confused with lyme on other sorces of information.
    i am curious to know how you could have one of lou gehrig drs to tell you lou unqustionably died of als when the drs in the usa didn't even discover it's presence here until 1974. what tests were performed on him to prove this?
    i have not belittled anyone here at all, i only want raise awairness to the likelyhood of the depth of the confusion with lyme! i personally was estatic to find the lyme and start the abx and potential return to normal life again. my family and freinds all encourage my mission.
    i am interested in knowing about your situation, if you do not feel you have als then what are you dealing with, how are you treating it and are you improving?
    respectivly,
    jon

     
    Old 09-01-2004, 10:22 AM   #10
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    Re: When Does Fascicullation Start

    ps i left out "lyme" as what was found in 1974.

     
    Old 09-02-2004, 07:30 AM   #11
    Deena_26
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    my fasiculations

    Regarding fasiculations, i am a 31 year old female who has had fasics for five years now. they are mostly daily from head to toe, sometimes are much worse tham others.i get occasional numbness in my face, lack of feeling in my arms, tiredness and other slight symptoms that have haunted me into beilieving i could have als. recently i became aware of a thyroid condition. i was treated with low dose synthroid and the fasics continued and seemed to be worsening. then my doctor upped my dosage for other reasons and it's been one week and i feel the fasics have almost haulted. they seem to be becoming surpressed.it's like i'll feel one starting and it just goes away. so i'm beginning to beilieve it was my thyroid the whole time. i just wanted to share with others who have had the fasics that have been present for a long time- there may be an answer for someone else. i can't say for sure that was the cause but i am feeling some relief in my condition. good luck to everyone out there on finding the cause of theyre symptoms.

     
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