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Amyotrophic Lateral Sclerosis (ALS) Message Board

  • is this als ?

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    Old 07-06-2011, 02:21 PM   #1
    chrischri's Avatar
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    is this als ?

    Hello everybody !
    I believe I might have ALS but the neuros reserve the dx.
    Soo here are my symptoms:
    Difficulty walking, stiff legs, hands atrophy, stiff arms, painful shoulders (I believe some slight wasting?) and buttocks (when seated) some slight jaw problems (strange feeling at time), lower lip atrophy/numbness, slight sensitivity loss at the foot plant(not permanent and rather rare). Symptoms declared some months/yrs ago with leg stiffness mainly but got worse since 6 mths with arms stiffness and hands wasting (not too much but quite definite). 2 EMGs show neuropathy (chronic) signs at lower and upper limbs, scan of lombar and cervical are not clear so a IMR of cervicals is due soon. I have slight autoimmunity evidence (anf 160) . At times I have the feeling of voice hoarseness.
    I had once (just once) about 18 mths ago tongue fasciculation. Sometimes I've odd muscle mvts that can happen all over the body (but not too troubling and episodic)
    Any suggestions, tests to be done, hints so very much welcome .. Btw I am 56 yrs old. Thx for your precious comments Greetz

    Last edited by chrischri; 07-06-2011 at 02:27 PM.

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    Old 09-21-2011, 06:12 PM   #2
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    Re: is this als ?

    I would recommend getting a definite diagnosis before treating your condition. You are right about antibiotics possible making it worse. A lot of people insisted I had Lyme and suggested I start antibiotics....I do not have Lyme, I have MS. Taking antibiotics would exaccerbate my MS symptoms. Please don't treat until you know.

    ALS presents very specific symptoms. An ALS specialist or good neurologist should be able to diagnose it. Get a second opinion or third or get the point.

    rapid weight loss
    muscle atrophy
    muscle fasciculations (look like creepy crawlies under skin but can't feel them...also they do not stop, but continue)
    starts on one side of body but quickly is seen on both
    pain is usually cramp like - charley horses

    If you have been progressing, a good neurologist should be able to diagnose or rule out ALS....Please don't self diagnose.

    Old 09-22-2011, 05:49 AM   #3
    chrischri's Avatar
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    Re: is this als ?

    Thank you anxiousme
    You're right anxiousme, I'll consult again ..
    Self diagosing and self trt are tricky I know ...
    I have many of the symptoms in your list ...
    I'll not focuse on fascics (as you describe them had only once on the tongue 1 yr ago)
    Weight loss is not rapid
    Pain is indeed like when you have exercised the muscle too much (know what I mean ?)
    Muscle atrophy is really distressing (started in both hands at the same time and both shoulders). It's progressing and lately I had definite finger clumsiness ..
    Charley horse come and go at times .. but not too often. It's not the major picture. They can be on stomach, shoulders, neck, legs ...
    Weakness is obvious in legs and arms (don't have much power in throwing a ball for instance, or difficult to knee down/getting up, can't run, walk slowly)
    Hyper reflexes : seem not in the pattern at the present time ...
    Plus jaw uneasiness/disconfort, lips uneasiness too and voice getting lower/hoarse, cramps (2 days ago) at the right ankle but not today !
    EMG performed in may showed neuropathy, slight diminition of conduction velocity and lack of persistance of F waves on certain nerves.
    Have to redo one soon.
    Ok for now
    My thoughts are with you,

    Last edited by Administrator; 12-13-2011 at 11:56 PM.

    Old 09-28-2011, 02:23 PM   #4
    saddle creek
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    Re: is this als ?

    Hello and sorry to hear you're going through these awful symptoms. My brother was diagnosed with ALS and fought that evil disease for 4yrs and 4 months before it took his life. He left behind a wife and a 16 yr old son on top of his mother, brothers and sisters. My brother's diagnosis was difficult for the dr.s and your symptoms do not sound like his. His first initial symptom was a trip and fall at work (so they thought it was) but it was actually the first symptom that prompted him to see his dr. He then became weak using his hands and within 3 months he had what they call foot drop (his foot drug). It seemed this disease came rapidly after his diagnosis; ultimately bedridden, tracheotomy tube and basically vegetative except he was totally aware of everything going on around him and learned to talk over the trach tube. He was in and out of the hospital the last yr of his life with blood clots and pneumonia. Sadly, his fight ended in August 2011. Please keep seeking physician after physician in order to get a correct diagnosis but from what I witnessed in my brothers illness it was different then your symptoms. God Bless you and Please keep us posted.

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