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New here ALS?

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Old 08-02-2011, 09:10 PM   #1
Join Date: Jul 2011
Location: United States
Posts: 1
stepinsideout HB User
Question New here ALS?

Hello, I've been having problems for year and 1/2 symtoms: 1st muscle cramping, stiffness, all on left leg, then arm, hand. Also back stiffness and unabe to relax muscles. Now I have "footdrop" and can bearly move my leg upward from laying down position or standing. I dropthings frequently and have a hard time with just about any fine motor functions. a bit off balance and feel like i can't stand sometimes. I've had mri of brain came back normal somewhat with 7mm cyst, mri of neck normal, mri of lower back have degenerative discs and have had pinched nerves from old accident(always had back trouble) Blood work shows normal liver, kidney functions, low vitamin b12 and D. All other blood work normal from what I know. Scheduled for a spinal tap thursday. Doctors wants to rule out MS so whats left?? Please any thoughts or just support - don't know what to think anymore. Oh and have been taking b12 shots for month now - not seeing any difference yet. Yes had 2 lymes tests neg (stil think maybe lymes? tricky little disease) Also had Emg which came back normal for arm but not for leg.

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Old 08-03-2011, 05:31 PM   #2
Join Date: Jun 2003
Location: chico, ca, usa
Posts: 479
anxiousme HB Useranxiousme HB Useranxiousme HB User
Re: New here ALS?

Your doctors sound like they are on the right track. What did the emg point to in your leg. ALS results are characterized by denervation present. Some other signs of ALS are rapid weight loss, severe fatigue, hyper reflexes, later in the course muscle fasciculations (twitching) that are constant. If yo are not comfortable with the answers you are getting, seek an ALS specialist. Best wishes!

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