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Amyotrophic Lateral Sclerosis (ALS) Message Board

I'm worried I might have ALS?

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Old 01-26-2012, 09:10 PM   #1
Join Date: Jan 2012
Location: California
Posts: 2
laina20 HB User
I'm worried I might have ALS?

First I noticed very fine twitches in my face whenever I smile
in the muscles around my mouth, cheeks, and eyes. (i can't feel them)
if I try to hold a smile, my mouth shakes/quivers.
At this time I also started getting pulsating twitches in my foot,
and random twitches throughout my body.
they've gone away for the most part and return occasionally

What worries me the most:
My tongue is twitching without me being aware of it.
I stuck it out one day and it was moving all over the place, it's like there are waves on it.
It also moves when it's at rest. This part really concerns me.
Lastly, I've noticed in the middle of my tongue, there's cracks developing,
there's a crack in the middle along with other tiny ones, it looks like a tree branch.
The underside of my tongue looks very shriveled up and wrinkly.

I haven't had speech problems, though I did bite my tongue a couple times.
My muscles are ok, even though they tire quickly, my arms burn whenever i have to raise them up above my head for more than a few seconds.
I can see the muscles in my hands and wrists. When I contract them, they stick out.. I can't tell if it could be a sign of atrophy or if it is due to me being underweight.

Also, I forgot to mention that I got botox done to the lower part of my face, and the twitching started around the time the botox wore off, could that have something to do with it? But it doesn't explain the tongue twitching.

It's been 2 months since I've noticed these symptoms, I feel ok, but the twitching scares me. Also i'm young, in my 20s.
Do you think it is likely I have bulbar, and if I do, would I have noticed it progressing in the past 2 months?
And can tongue fasciculations occur before speech/swallowing problems develop?

Thank you for taking the time to read this.

Last edited by laina20; 01-27-2012 at 09:06 AM.

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Old 01-31-2012, 03:34 PM   #2
Join Date: Jan 2012
Location: California
Posts: 2
laina20 HB User
Re: I'm worried I might have ALS?

i'd be thankful if anyone told me what they think.

Old 02-01-2012, 04:54 PM   #3
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Join Date: Nov 2011
Location: Portland, Maine USA
Posts: 23
Jenny1267 HB UserJenny1267 HB UserJenny1267 HB User
Re: I'm worried I might have ALS?

Hi Lania-

I am sorry you are so worried... First of all, twitches in your body can happen at any time.. and when we become aware of them, then we notice them all the time.. and sometimes anxiety can cause them. As far as your tongue having cracks... it sounds like you may be dehydrated? I have some cracks in mine too.... but was not aware until I looked in the mirror. The good thing is that you are young, and although ALS sometimes affects young people it is very rare to be in your 20's unless it is familial (about 10% of ALS cases have a genetic component and it runs in families). I believe about 90% of cases are termed sporadic.. which means anyone, anywhere, no rhyme or reason. But.. onset is usually in your early 50's.

I am not trying to minimize your worrying, but I would go see your doctor, there are some simple blood tests she/he can run to rule out problems that are not as dire as ALS. I know my husband did not have muscle burning at all. hormone imbalances, viruses etc. can cause all the symptoms you now have. Good Luck and let us know how you are doing. I will pray for you in the meantime.

Old 03-12-2013, 03:12 PM   #4
Join Date: Feb 2012
Location: WV
Posts: 7
WVUgrl09 HB User
Re: I'm worried I might have ALS?

Hi Lania,

I was wondering if you ever figured anything out? I am having the SAME exact symptoms and I am worried sick! On top of that my left eye is swelling all the time and they can't figure out why? Ugggh :0(. Any thoughts are greatly appreciated! Thanks in advance!!!

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