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  • I'm so scared that I have ALS

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    Old 03-18-2015, 06:26 PM   #1
    st883
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    Unhappy I'm so scared that I have ALS

    Hi my name is brandon im 25 year male My symptoms began about 2 months ago ive been have muscle twitching everywhere tripping over things like my legs feel like jello and my neck has been really stiff off and on. Also I've been feeling like I'm not breathing well all day everyday and some nights I wake up like my brain is forgetting to tell me to breathe or something really scary. Also one of my hands cramp really easy when I'm at work. I've been to the doctor he has done almost every blood test I can think of CBC cmp Lyme test rheuma panel b12 all good. I've also had MRI of my brain which was good. I just recently had an eeg done won't know the results until the 30th of this month please if anybody could give me any insight it would be great I'm so worried about it

     
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    Old 03-18-2015, 11:43 PM   #2
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    Re: I'm so scared that I have ALS

    I am sorry you are going through such a worrying time. The doctor will no doubt do all the tests possible to get to the bottom of this and, in the meantime, try to stay positive. There are many neurological conditions out there, some worse than others, and diagnosis is always difficult. I hope that you will be OK. Sera

     
    Old 03-19-2015, 03:29 AM   #3
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    Re: I'm so scared that I have ALS

    Hi there. ALS is one of the most simple diseases to diagnose. IF you are seeing a doctor, and he has run as many tests as you state, there is zero chance that you have ALS....the test is very clear on that.
    However, there are a ton of mimicracies which present like you describe. From anxiety to Multiple Sclerosis-
    MS would have been picked up on a brain MRI...so you can pretty much rule that out as well....
    Have you seen a neurologist? Thats the best place to start here.
    i hope you feel better soon!
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    Old 03-19-2015, 05:18 AM   #4
    st883
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    Yes I am seeing a neurologist on the 30th of march he says that I am not showing any clinical signs of weakness which is a good thing I guess. All I can do is hope for the best.

    And thank y'all for the replies I really appreciate it.

    Last edited by Mod-S4; 07-14-2015 at 10:24 PM. Reason: Posts merged.

     
    Old 03-28-2015, 07:44 AM   #5
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    Re: I'm so scared that I have ALS

    Hi Brandon

    I am sorry you are going through the worries. I have been there myself. Just a thought but have you had your Vitamin d checked? I have had severe muscle aches and weakness/numbness for several months. After all the possible tests that could be done. This one was over looked. I recently requested it and mine was low. I am on 2000 ius daily. Only time will tell if that is indeed my problem.

    You are your best advocate, so continue to search until you find answers. It is a two way street with you and the doctors working together for answers.

    Kristy

     
    Old 04-26-2015, 01:54 PM   #6
    st883
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    Re: I'm so scared that I have ALS

    Year my doctor did say my calcium was a little low but I've been taking supplements with no improvement I've been on als forums and everyone says my symptoms sound nothing like als so I have no clue of what's going on I wish I did though I'm tired of the constant anxiety and depression about it.....

     
    Old 04-26-2015, 11:35 PM   #7
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    Re: I'm so scared that I have ALS

    This does not sound like ALS at all. Clinical weakness is the hallmark symptom in most cases or possibly slurred speech/swallowing problems. As much as 70% of the population twitches, and ALS neurologists don't consider twitching in isolation so I wouldn't be concerned about ALS at all.

    With neck stiffness and a jello like feeling in legs I think of cervical/lumbar spine issues which can also lead to twitching (as I know from personal experience). So perhaps a cervical and/or lumbar MRI may be in order. Certainly anxiety can affect breathing and sleep and in fact can exacerbate twitching, muscle stiffness etc. I would follow up with the neurologist and see what they say. Good luck!

     
    Old 05-21-2015, 02:15 PM   #8
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    This all started like a year and a half ago when I went to my pcp about feeling bad all the time and my memory and concentration was really bad I had all kind of blood work done the he did a EKG and said it was abnormal and sent me to the hospital where I got more tests done I had a echo cardiogram a stress test and more blood work and everything came back fine. Well couple days later I find out that the doctor office's EKG machine was messed up printing out wrong readings so I pretty had all those tests for nothing. Well then I went back to the doctor and told him I was getting lightheaded spells to so he referred me to a neurologist well at this point I'm thinking this could be a tumor or als. Well he did a complete exam and said everything looked good and sent me for a MRI well it came back clean so my worries about ms and brain tumors kinda faded away and then I started worrying this could maybe be als...
    Also during this time I was worried about something being wrong with my stomach and I also had like these warts or something on my bottom and I thought I was having difficulty swallowing so my doctor referred me to a gi doctor who did endoscopy and a colonscopy and everything was good there too the only thing they said was wrong was gastritis. So then I went back to worrying about als and then began the body wide twitching. I went back to my neurologist and told him i was twitching and and still having problems with lightheadness and concentration problems and he sent me for an eeg and i havent been back and i guess the eeg was ok because i didnt get a call about it. Sorry about the long description but I just want everyone to know what I've went threw to maybe help me figure out what it is or maybe this is just anxiety idk I'm so scared though

    And now I'm worried about it being bulbar it seems like I slur my words but my girlfriend said she has not ever heard me slurr. Also sometimes I get this nauseous feeling in my throat when trying to swallow. And the muscle between my chin and throat feels strained or pulled all the time

    Last edited by Mod-S4; 07-14-2015 at 10:25 PM. Reason: Posts merged.

     
    Old 05-22-2015, 11:08 AM   #9
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    Re: I'm so scared that I have ALS

    Hi Brandon, try to relax until you get your results - you've done everything you can to find out what this is so you will get there in the end. If still in doubt about ALS or muscular weakness, talk to your doctor about a spinal tap and an EMG test, both can be helpful in figuring out whether there's actually anything going on regarding muscle function/coordination.

     
    Old 05-22-2015, 11:44 AM   #10
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    Re: I'm so scared that I have ALS

    I guess my neurologist didn't see a need for an emg I've told him my concerns but he didn't seem very concerned with me.

     
    Old 05-22-2015, 01:57 PM   #11
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    Re: I'm so scared that I have ALS

    Quote:
    Originally Posted by stroud5393 View Post
    And now I'm worried about it being bulbar it seems like I slur my words but my girlfriend said she has not ever heard me slurr. Also sometimes I get this nauseous feeling in my throat when trying to swallow. And the muscle between my chin and throat feels strained or pulled all the time
    This is classic anxiety. Know the feeling well, I used to get it all the time. I finally learned that it wasn't going to kill me, so I could talk myself down from it. Whatever else is going on with you, it is clear that you are very anxious and this will make everything feel worse. Once you work out what part of it all is anxiety, then you will calm down send feel more able to cope.
    That said, my son has MND and his symptoms are nothing at all like yours. Mentally he is sharp, tho depressed, he never had any memory or cognitive problems. Basically his hands and legs pretty much stopped working, then his speech and swallowing became affected. This all happened over a period of a year, from falling over to needing a wheelchair. The disease has slowed for the moment, hopefully he can hang on to his remaining independence for a bit longer. I also know two other men through him who had it and their symptoms were far more specific from an early stage than yours are. It takes you down relentlessly and there is not much room for 'maybe'. After a year and a half, you would have a bit more going on than the vague and intermittent things that you are experiencing now. Take each day as it comes, and keep busy. Sera

     
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    Old 05-22-2015, 02:14 PM   #12
    st883
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    I'm really sorry to hear about your son, Seraph... Does mnd run in the family and how old is your son? And yea hopefully it is just anxiety I haven't been feeling right for at least a little over 3 years ever since one night I felt like I was gonna pass out heart started racing and my vision started to go black. Its just gotten worse this past year and a half with lightheadedness feeling spaces out all the time can't seem to think of the right words when I'm in a conversation and I feel like I'm in a fog all the time like everything seems unreal.... Idk hopefully it is just mental like NY doctor says.


    So it doesn't sound like als at all? What about Lyme disease? I've heard it can cause a lot of different symptoms but I've had basic Lyme test and they are negative but I've heard they aren't that accurate.

    Last edited by Mod-S4; 07-14-2015 at 10:28 PM. Reason: Posts merged.

     
    Old 07-09-2015, 08:13 PM   #13
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    Re: I'm so scared that I have ALS

    It took 10 years to DX my MS. It was not showing up on the MRI or the spinal tap which I havd 4 of. So you can show up negative and still have MS. I did finally start having the gray matter and lots of positive symptoms. I just don't want you to rule it out yet.

     
    Old 07-28-2015, 10:40 PM   #14
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    Re: I'm so scared that I have ALS

    Brandon-Like I was telling you I had the exact same symptoms as you. I was tired of fighting doctors..so I went to a very well known chiropractor/wellness specialist in town. He said my atlas (c1 cervical vert) was way out of alignment. In return..it causes a world of problems. Fatique..muscle cramps..balance problems..stiff neck..like you..my legs felt like Jello. The misalignment was causing arthritis in my neck, impaired nerve function in my thoracic spine, misaligning my hip by inches, and causing my leg cramps. EVERYTHING you're experiencing is hallmark for Atlas misalignment. After a few adjustments I'm feeling better. Visit a wellness center that also does chiropractic procedures.

    Last edited by VHDud78; 07-28-2015 at 10:45 PM.

     
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