It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Anemia Message Board

  • Autoimmune Hemolytic Anemia

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 04-29-2003, 11:54 AM   #1
    redheadangel's Avatar
    Join Date: Apr 2003
    Location: Simpsonville SC
    Posts: 3
    redheadangel HB User
    Question Autoimmune Hemolytic Anemia

    Hi there I was just wondering if anyone else out there had Autoimmune Hemolytic Anemia. I was dignosed in Jan., since then I have been on high doses of predsione (which I hate). My docotors say I should be feeling better but I am not. I am tired all day even after getting 12 or more hours of sleep. Not just tired but like exusated, tired. I have been from Doctor to doctor to see if there could be another problem and no one knows nothing, so now I am trying to find someone out of state. Is anyone going through the same thing or know a GOOD hematologist? Thanks.

    Sponsors Lightbulb
    Old 05-31-2003, 09:56 AM   #2
    Junior Member
    teresa34's Avatar
    Join Date: May 2003
    Location: Pa, USA
    Posts: 22
    teresa34 HB User

    Red, I was looking around on these boards, I usually am at the epilepsy board but I wanted to check out the anemia board out of curiosity as I had Autoimmune Hemolytic Anemia 19 years ago. I was in my second year of nursing school and become profoundly ill. I was transferred to a large metropolitan hospital where they initially thought I had leukemia. Odd thing about mine though, was I was on steroids BEFORE the anemia to treat a recurring case of the hives. The steroids caused me to develop elevated brain pressure which caused me to lose some peripheral vision in my left eye. They diagnosed the anemia and I received four units of packed red blood cells. My hemoglobin had bottomed out at 4! I didn't require any other "treatments", I had a ton of diagnostic tests but they never could find a "cause". I slowly recovered, my appetite improved and I gained some weight back. I've been fine ever since, this was in 1984. Honestly, I was 19, I was in my second year of college, I had been diagnosed with epilepsy a few months before, my father died 7 months before, my boyfriend's dad had also just died and him and I ended up going our separate ways. To this day, I really believe it was extreme emotional stress, I had never had such a rotten time in my life before or since. It started out with these horrible hives all over my body, and there was no reason for them. They wouldn't go away without steroid treatment, and then my brain pressure went up and the anemia became very obvious. Tired was not the word,,,night of the living dead would have more accurately described how I felt! I would get chest pain taking a shower, and I could blow dry my hair without lying down to rest in the middle. I was treated at Geisinger Medical Center in Danville Pa...Good Luck

    Old 06-08-2003, 09:23 AM   #3
    Junior Member
    kymomlee's Avatar
    Join Date: May 2003
    Location: Mount Joy, PA, USA
    Posts: 29
    kymomlee HB User

    My 3 year old has hemolytic anemia since 13months old. We have been on steriods tried ivig and finally rituxan. It seems like the rituxan is working although she had to have 2 courses of it. she was initially diagnosed at University of Virginia hospital, but we moved to be closer to family. I think most university hospital have a good hematology program. What is your hemaglobin if you are still very tired you may not be responding to steriods

    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    anemia and gastric bypass sky1992 Anemia 28 03-27-2008 09:32 PM
    Autoimmune Hepatitis gjet68 Immune Disorders 6 07-30-2007 04:34 PM
    Autoimmune Hemolytic Anemia- Lots of questions? jpt240 Anemia 17 05-31-2007 07:28 PM
    Autoimmune Limbo - others? daisymum Lupus 2 01-20-2007 01:41 PM
    Schizophrenia and Autoimmune Disease kassy34 Schizophrenia 2 07-23-2006 09:23 PM
    How long ???? Autoimmune Hemolytic Anemia lpears123 Blood and Blood Vessel 112 12-23-2005 09:17 PM
    This autoimmune hemolytic anemia doesn't show up in regular bloodwork Dear Maggie Anemia 20 11-26-2004 07:54 AM
    Autoimmune hemolytic anemia kymomlee Anemia 0 06-18-2003 03:02 PM
    autoimmune hemolytic anemia mommyofalyssa Immune Disorders 2 08-07-2001 01:01 AM

    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off

    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 04:41 PM.

    © 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!