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    Old 12-12-2007, 04:17 PM   #61
    donnacalgary
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    Re: interveous Iron side effects

    I am in Calgary and am having an extremely difficult time trying to find a doctor who will give an iron infusion. I have had low levels for years and now have Restless Leg Syndrome. I am so tired I can hardly function anymore. What kind of specialist did you see and what did you have to do to get the infusion? Thanks in advance.

     
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    Old 12-13-2007, 02:47 PM   #62
    genie68LVA
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    Re: interveous Iron side effects

    So sorry to hear you are having such a rough time. I started out with my family doctor who finally ended up sending me to an oncologist/hematogogist. In my area all the hematologists are also the oncology doctors. After months of checking my blood counts and iron levels, she gave me IV iron in the chemo lab...6 1/2 hours. I do not know what to tell you to do, but hope you can find the proper doctor to see you through your ordeal with being so tired. Maybe in Canaga the hematologists are separate from oncology...that would be nice. Hope you get to feeling better soon.....I will be thinking of you

     
    Old 01-17-2008, 02:05 PM   #63
    leesaleesa45
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    Re: interveous Iron side effects

    I have been getting iron infusion for about 4 years now. Every 3-5 months my ferritin level drops very low and then my hemoglobin drops.! The Dr's have checked me for everything to see were I am loosing the blood. They can't find any reason for the cause of the anemia..... But I can tell you when I get the infusion what is suppose to take a few hours they have to do over a 8 hour process that I get once a week for about 5 weeks or I have reactions. Like Severe bone pain, blood pressure drops,and itching. Those seem to be the most common. What seems to be working is before the infusion starts I am given 50mg Benedryl and something for pain. Start the IV very slow for 30 min and then raise it slowly. The Dr writes the order this way and then I am given repeat doses of Benedryl 25mg every 3-4 hours. I do have to be picked up afterwards because I am a little woozie...
    The bone pain is never the same..it can be moderate to severe bone pain during or a few days after the treatment. Sometime so bad I hurt all over deep in my bones!
    The pain has been so bad I have had to have morphine a couple of times. There are many preparations of the Iron ifusion some are worse than others . After the treatments are done and am about a month out I feel great for a few months then when the feritin starts to drop I too get like restless leg. I now take a very low dose of Klonapine every night before bed that has mad a huge difference. My hematologist is great I would highly recommend seeing one. It seems a vicious cycle at times and I can get down but I just keep on hanging in there.

    Last edited by leesaleesa45; 01-17-2008 at 02:14 PM. Reason: to add something

     
    Old 01-26-2008, 07:22 PM   #64
    donnacalgary
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    Re: interveous Iron side effects

    I have finally got an appointment with a hematologist in a couple of weeks. I am really hoping that I can convince him to give me an iron infusion. I am SO sick and tired of being sick and TIRED. Any advice as to how to prepare for the appointment. I have heard that this particular doc can be a bit testy. Thanks in advance.

     
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