It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Anemia Message Board

  • What kind of anemia is this?

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 02-27-2006, 07:16 AM   #1
    BrittleBones
    Senior Veteran
    (female)
     
    Join Date: Jan 2005
    Location: Central Maryland
    Posts: 908
    BrittleBones HB UserBrittleBones HB UserBrittleBones HB UserBrittleBones HB UserBrittleBones HB User
    What kind of anemia is this?

    Hi everyone. In the past few years I have experienced extremely low hemoglobyn (sp?) and hematocryt (sp?) levels. I do have an undetermined autoimmune disease that is looking mostly like lupus and I'm on prednisone 5mg a day for lung problems. I've had major surgery to repair broken bones due to my severe osteoporosis and have always needed transfusions. I've got another one coming up in 2 weeks to get a hip replacement. I broke my right hip last May and I've been without one since then. I've had so many surgeries that I'm considered a "super transfuser" with antibodies. The hospital often finds it very difficult to find donor blood for me during surgery. Anyway, considering that background, my primary care physician sent me to a hematologyst. She said that I don't have anemia that is caused by iron deficiency and that I shouldn't take iron supplements at all. She could only explain my anemia as my body's inability to make enough red blood cells. She put me on Procrit and it has helped me as long as I take my shot about every 2 to 3 weeks. Thank goodness for my pharmacy insurance!! Procrit is very, very expensive. I'll go to the lab every 2 weeks for a blood test and then I call to get my results. The nurse then tells me if I shoud take my Procrit or not. Sometimes I can go 3 weeks between shots. This month I needed 2 shots in a row. When my numbers (H&H) are low my symptoms include extreme fatigue, feeling faint when I stand up suddenly and everything in the middle of my sight line goes black - like a total eclipse of the sun. This also happens when I'm on the toilet and I'm contracting my muscles to have a bowel movement. Not all the time, but if I have to give anything other than just mild pushing, I get the same feeling of being faint and seeing the "blackout" in my vision. Also, when my numbers are low I always feel cold. Can anybody relate to my symptoms and, if so, what kind of anemia could this be? Thanks for any information you can provide. I absolutely hate feeling like this! KathyMac

     
    Sponsors Lightbulb
       
    Old 02-27-2006, 09:15 AM   #2
    Merimac
    Senior Veteran
    (female)
     
    Merimac's Avatar
     
    Join Date: Apr 2005
    Posts: 532
    Merimac HB UserMerimac HB User
    Re: What kind of anemia is this?

    The symptoms you describe sound like low blood volume and dehydration. The iron problem sounds like hemolytic anemia, or anemia of chronic disease, with the osteoporosis being so severe. I don't know why your hematologist would not have told you this information unless they were not sure of the diagnosis. I am not a doctor and am only going on the information you have given here.

     
    Old 02-27-2006, 09:44 AM   #3
    Les44
    Senior Member
    (female)
     
    Les44's Avatar
     
    Join Date: Mar 2005
    Location: Calgary
    Posts: 159
    Les44 HB User
    Re: What kind of anemia is this?

    I agree with Merimac. I suffer from Hemolytic Anemia and although your symptoms sound familiar there's just so many different reasons for anemia and just as many types. Suggest you go to the blood disorders thread as there are many chronic anemia sufferers there. Be careful not to try to diagnose yourself. Blood tests have to be evaluated by a qualified doctor as no one test result tells the whole story. Your hematologist should run all the necessary blood tests though and be able to tell you exactly what's wrong. I would ask your hemo doc exactly what's wrong with you and for a prognosis. If you don't get the answers you're looking for you may want to try another hemo doc. I don't like my hemotologist at all, but he's a brilliant doctor and he does tell me the facts and that's what I rely on.
    I hope you're feeling better soon.

    Les

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    What to do now? bmm5846 Anemia 2 03-04-2010 08:27 AM
    I'm confused- what kind of anemia is it? mysixpack Anemia 9 02-02-2009 11:26 AM
    What to do for heavy periods (pre-menopause) plant Anemia 10 07-01-2008 05:02 PM
    what kind of doctor should treat pernicious anemia terri65 Anemia 1 01-16-2008 06:01 PM
    what are the symptoms of low iron kittykitty2u Anemia 4 12-02-2007 05:19 AM
    what kind of anemia can it be janjana Anemia 6 04-19-2007 07:35 PM
    What is the cause of your anemia? littlebunnyfoo Anemia 29 04-14-2007 05:59 PM
    Can anemia cause brain damage or any kind of permanent damage? ahuseman Anemia 3 04-22-2005 08:20 AM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 03:00 AM.





    © 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!