It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Anemia Message Board

  • should I ask for a ferritin test?

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 03-28-2007, 03:18 AM   #1
    elphers
    Senior Member
    (female)
     
    elphers's Avatar
     
    Join Date: Feb 2006
    Location: PA
    Posts: 282
    elphers HB User
    should I ask for a ferritin test?

    As some of you know, I have celiac disease and have taken iron pills for the last 13 years. I now take NOTHING except monthly B-12 shots. I had an iron infusion in Dec. 2005. I just had a blood test ordered from my gastro Dr. which he never called me with the results. So when I went for my capsule endoscopy I asked for my results. My numbers are posted in my "got my numbers" thread on this board. I think that the B-12 shots are keeping my numbers in the "low normal" range. But I am still so fatigued!!! Should I ask for a ferritin blood test? I actually thought that he would recommend another iron infusion before I had the blood test because of the way that I was feeling. Can I just call his office and ask for an order sheet for the ferritin blood test? My friend is getting her first iron infusion because of her ferritin results. When he said that he was testing my blood for anemia, why wasn't the ferritin test ordered?
    Thanks!

     
    Sponsors Lightbulb
       
    Old 03-28-2007, 05:58 AM   #2
    ChristineVA
    Senior Veteran
    (female)
     
    Join Date: Sep 2006
    Location: Northern VA
    Posts: 951
    ChristineVA HB UserChristineVA HB UserChristineVA HB User
    Re: should I ask for a ferritin test?

    Yes, I think a ferritin test would be wise.

    Honestly, after all the reading I've done about this, I've come to the conclusion that most U.S. general practicitioners are kind of behind things when it comes to anemia. Also, I think that we are only beginning to address iron deficiency anemia. Personally, I am starting to believe that a ferritin test should be done every few years on women once they hit puberty.

     
    Old 03-28-2007, 11:10 AM   #3
    PBREARD
    Junior Member
    (female)
     
    PBREARD's Avatar
     
    Join Date: Feb 2007
    Location: GLENSIDE, PA
    Posts: 41
    PBREARD HB User
    Re: should I ask for a ferritin test?

    I totally agree Christine. My hemoglobin is up to 11 from 8, but I still feel crappy. I am tired, headaches and palpitations. I will get my iron workup next week and I am anxious to see my ferritin. But, I still have no real reason why I am anemic. Does anyone?

    Phyllis

     
    Old 03-28-2007, 02:42 PM   #4
    elphers
    Senior Member
    (female)
     
    elphers's Avatar
     
    Join Date: Feb 2006
    Location: PA
    Posts: 282
    elphers HB User
    Re: should I ask for a ferritin test?

    Phyllis,
    Just wanted to let you know that I called my Gastro office today to request a ferritin blood test. While talking to the nurse I mentioned the results of my capsule endoscopy. I had that done 2 weeks ago. She said that my Dr. won't be back in town until April 9 and she is not sure if he read my results or not. Needless to say, I also can't get the blood test for ferritin until then. I'm thinking about calling my general Dr. but he might make me come in, which I want to avoid. I am scheduled for a B12 shot tomorrow so maybe this one will help, even a little, with my fatigue! I have never felt so anemic but they say I'm not!!!!!!!!!!
    Mary

     
    Old 03-29-2007, 03:31 AM   #5
    PBREARD
    Junior Member
    (female)
     
    PBREARD's Avatar
     
    Join Date: Feb 2007
    Location: GLENSIDE, PA
    Posts: 41
    PBREARD HB User
    Re: should I ask for a ferritin test?

    Good Morning!

    I am sorry that your doctor is taking so long to give you the results. It just bugs me that some days I can feel pretty good and not need a nap, then other days I force myself to keep my eyes open driving home and all I can think about is taking a nap. Even though I received the iron IV, I think only until the ferritin is up will I truly feel energetic. My GI has put me in the hands of the hematologist as there is no apparent GI problem causing the anemia. Hope you get a result soon.

    Phyllis

     
    Old 05-13-2007, 06:59 PM   #6
    fjones1
    Member
    (female)
     
    fjones1's Avatar
     
    Join Date: Aug 2006
    Location: Washington, DC
    Posts: 96
    fjones1 HB User
    Re: should I ask for a ferritin test?

    Hi. I have a couple of question for elphers. Did you ever get the results from your latest ferritin test? Also, when you had your IV iron back in December 2005, how long did it take to infuse you? Did you feel better after your infusion? Did your doctor check your iron levels around the time you had your infusion? Sorry to ask all these questions, but your situation seems similar to mine.

     
    Old 05-14-2007, 02:44 AM   #7
    elphers
    Senior Member
    (female)
     
    elphers's Avatar
     
    Join Date: Feb 2006
    Location: PA
    Posts: 282
    elphers HB User
    Re: should I ask for a ferritin test?

    Quote:
    Originally Posted by fjones1 View Post
    Hi. I have a couple of question for elphers. Did you ever get the results from your latest ferritin test? Also, when you had your IV iron back in December 2005, how long did it take to infuse you? Did you feel better after your infusion? Did your doctor check your iron levels around the time you had your infusion? Sorry to ask all these questions, but your situation seems similar to mine.
    Fjones,
    I still have not had a ferritin test. My gastro Dr. that did my last iron studies STILL has not read my capsule endoscopy, which tomorrow it will be 2 months now. The nurse said that when and if ever I go in for those results then I can ask for a ferritin test. I have my hemotologist appointment June 4 so I'm trying to trudge through until then and hopefully she will test my ferritin!
    I had the IV iron while I was in the hospital for high platelets, so I was just "laying" there anyways! It took a good 8 hours! I thought that I felt better after, but still can't believe that I haven't had another one since! I don't remember having my iron levels checked after the infusion though. A girl I work with goes every Dec. for IV iron. Wish it was me!
    What is your ferritin level?
    Good luck!
    elphers (Mary)

     
    Old 05-14-2007, 09:16 AM   #8
    sparkles916
    Veteran
    (female)
     
    sparkles916's Avatar
     
    Join Date: Apr 2005
    Location: FL
    Posts: 389
    sparkles916 HB User
    Re: should I ask for a ferritin test?

    I had a quick look at the titles of your older posts, so I don't know that I have the whole picture....

    On the b12, ask if you can try a shot every three weeks, I know my dad who has PA is feeling a bit tired lately, and asked his dr if he could try a three week injeciton schedule. His Hgb was a little below range.

    On the ferritin, it is ridiculous the way you have been treated! I have low ferritin and decided to look up some med lit on the subject, becasue I am tired of being tired, and also being told by disinterested drs I am "ok" and my fatigue is imaginary.

    Check out my reply in thread
    [url]http://www.healthboards.com/boards/showthread.php?t=496381[/url]
    Hemoglobin v ferritin.

    From what I gather, you are not anemic? Well, you could certainly be 'iron deficient without anemia', i.e, have a clinical iron deficiency. You need the ferritin to see if you are What is wrong with drs?

    Anyway, I also saw you are hypo? So am I. I recently went back to look through all my recent bloodwork (sometimes things formerly unnoticed, make sense in the pattern of illness) and saw that my platelets were near the high end of the range. 358 (150-400THO/uL). I know it is not serious, but likely a sign of something going on in my body. I read something about Iron deficiency anemia and the inflammatory process, I also saw some connection with autoimmune and thyroid. I just wondered what your cause was?

    BTW, my ferritin was 18 last month, now this month 20


    Quote:
    Originally Posted by elphers View Post
    I had the IV iron while I was in the hospital for high platelets(Mary)

     
    Old 05-14-2007, 04:47 PM   #9
    fjones1
    Member
    (female)
     
    fjones1's Avatar
     
    Join Date: Aug 2006
    Location: Washington, DC
    Posts: 96
    fjones1 HB User
    Re: should I ask for a ferritin test?

    Hey thanks for all the info. You said your infusion was 8 hours, you probably did feel better for a while. That sounds like a full infusion. My problem is that I had one recently but it was only 2 hours of the infed. I don't think that was enough to make a difference in my levels. My last hematologist, for some strange reason, does not want to do any kind of iron work up after my infusion, which was on April 9. That really concerns me. He did give me the CBC results a month later, and I was really concerned about it because several of the numbers dropped a couple of points. Also I went to the emergency room because of the symptoms I've been having recently (I feel like I am literally going to pass out from the fatigue), and it looks like my hemaglobin and RBC have decreased slightly, which really concerns me. Hemaglobin went from 12.5 to 12.2 and RBC went from 4.41 to 4.13. Thanfully the ER doctors sent out for a ferritin test and the other iron levels, so I will have something to work with. I am seeing a new doctor, a GP, so hopefully he may be able to FINALLY get this iron situation right. I'm trying to hold on until then, which is June 4, because that's when my insurance kicks in at my new job. So I'm trying to drag myself to work until then. It's comforting to know other people are going through the same problems. I hope others have better luck with doctors eventually.

     
    Old 05-15-2007, 03:19 AM   #10
    elphers
    Senior Member
    (female)
     
    elphers's Avatar
     
    Join Date: Feb 2006
    Location: PA
    Posts: 282
    elphers HB User
    Re: should I ask for a ferritin test?

    Sparkles,
    I have also never been diagnosed with hypothyroidism. Previously my TSH was 5.14 and the last one (taken in the afternoon) was 4.106. If you have seen some of my posts on the thyroid boards, I have NUMEROUS symptoms of being hypo! Both of my doctors go by the OLD range that 3.0 is the highest, so I never get treated, even though Midwest and many others on the thyroid board say that I am definitely hypo! My T3 and especially T4 are very low also!
    Fjones,
    I'm like you-- trudging through until June 4 also! My husband got a new job, so I too have to wait for the insurance to kick in! I'm not saying that the hemo will order a ferritin test, but I am going to INSIST! I am also so "tired of being tired!!!!"
    I have been getting monthly B-12 shots, but I don't notice any difference. I was not scheduled for one in April, because my previous appointment was May 3, which I had to cancel because of the insurance.
    I have celiac disease, so I do have an absorption problem. That is why I had the camera endoscopy, to check for small bowel lymphoma. I called AGAIN last Friday to see if my gastro Dr. read my results yet, which he didn't. What if something was seriously wrong? Two months of waiting and I could have been getting treatment!!!
    I have lower stomach pains all of the time, but my bladder is dropped and I was supposed to have surgery last Sept. Haven't yet because I am taking care of both of my very ill parents. So the pains could be pressure. But I will feel better if I ever get the results from that test!
    Thanks guys for the replies and info!
    Let's keep in touch!
    elphers

     
    Old 05-15-2007, 03:40 AM   #11
    elphers
    Senior Member
    (female)
     
    elphers's Avatar
     
    Join Date: Feb 2006
    Location: PA
    Posts: 282
    elphers HB User
    Re: should I ask for a ferritin test?

    Sparkles,
    One more thing-- My platelets were almost 700 when they put me in the hospital. I was also having chest "angina" which I have still all of the time, but nothing was heart related. While in the hospital my GP wanted the hemo to do a bone marrow biopsy, but the hemo didn't think that it was necessary. Do you think that it might have given me an answer? My last platelet blood test in March was 522, marked H for high on the result paper. Nobody seems too concerned though. My RDW was high and my lymphs and lymphocytes were marked Low, whatever that might mean!!!!!
    Are you being treated for your hypothyroidism?
    Also what is the normal range for ferritin?
    Thanks!
    elphers

     
    Old 05-15-2007, 02:43 PM   #12
    japlopper
    Senior Veteran
    (female)
     
    japlopper's Avatar
     
    Join Date: Aug 2006
    Location: Carmel IN
    Posts: 581
    japlopper HB Userjaplopper HB Userjaplopper HB Userjaplopper HB User
    Re: should I ask for a ferritin test?

    Elphers,
    I have had a higher than usual platelet count for the last few months. Now, that is partly because I had my spleen removed years ago, but my hema thinks that it's even higher than usual (700K) because my immune system is kinda running amok. I have both Immune thrombocytopenia and hemolytic anemia - and I'm told it's like a see saw. When my immune system is attacking my red cells, my platelets rise, and vice versa.

    So my platelets rising means my body is fighting something - in my case, my own system. But it could be a virus or infection. What's your white count like these days? Are you dissatisfied with your dr? 2 months for results seem, well, it seems irresponsible on his part.

    Do you have other symptoms? Like numb hands or racing heart? Hopefully when you go see the hematologist they'll take a CBC and be able to report the results to you that day. Make sure they have your previous numbers - sometimes the dr offices don't communicate unless you push.

    I hope you get some answers soon.

    Take care,
    Jill

     
    Old 05-15-2007, 03:43 PM   #13
    elphers
    Senior Member
    (female)
     
    elphers's Avatar
     
    Join Date: Feb 2006
    Location: PA
    Posts: 282
    elphers HB User
    Re: should I ask for a ferritin test?

    Jill,
    My WBC in March was kinda low, I think. It was 4.4 with the range being 3.5-11.0. My hands are always numb during the night. What does that mean? What about my "angina" pains? Is that a symptom of something?
    I am dissatified with my gastro Dr., but I have been going to him for 15 years and don't really want to change. I just can't believe that it takes over 2 months to get test results!
    Thanks!
    Mary (elphers)

     
    Old 05-15-2007, 06:07 PM   #14
    sparkles916
    Veteran
    (female)
     
    sparkles916's Avatar
     
    Join Date: Apr 2005
    Location: FL
    Posts: 389
    sparkles916 HB User
    Re: should I ask for a ferritin test?

    Quote:
    Originally Posted by elphers View Post
    Are you being treated for your hypothyroidism?
    Also what is the normal range for ferritin?
    I don't know enough about high platelets to comment as yet...still working on my research. It's just that I decided to re-evaluate all my near high-end and near low-end range values on my cbc, etc. and see if they indicated anything about my iron and b12 deficiencies, my hypo condition, or were indicative of something else. I think I mentioned I found something about iron deficiency anemia and the inflammatory process elevating the platelets, I also saw the autoimmune process connected with thyroid disease may have some relation to elevated platelets. My general feeling is that dr these days are concerned with not giving tests in order to save money (insurance dictates for most of us) and therefore, offering a bone marrow test and then taking it away would raise my suspicion antenna...

    Next you are at the hemo, ask why you got no bone marrow test, and what his original intent was in considering it. Apparently, a bone marrow aspiration was the best way to look at iron stores in the body, and has now largely been replaced by the serum ferritin test. As to its diagnostic use re platelets, I am not certain. Also ask about these connections I have found to elevated platelets and IDA and autoimmune thyroid disease.

    On ferritin, I have searched high and low, and have found no satisfactory answer on the "best" number. Re my own concern, my low but not "on the lab test low" (ie below range), ferritin (of 18), I found that 12-15 is the lowest range many hemo studies use as a baseline. I found that 20 is the lowest clinical nutrition studies use. I found that there are multiple studies on fatigue without anemia, that suggest that anything below 50 can cause fatigue. I found that ferritin as it relates to hair loss needs to be above 70 to stop iron deficiency-related hair loss, according to dematolgist medical literature.

    Ok. That given, I am trying to reach 70 ferritin. The only negatives I have come across are some articles concerned with iron overload and pre iron overload that discuss arterial or some kind of cardio-vascular concerns in people with "high" ferritin.

    On the hypothyroid side of things, it can be a major cause for your fatigue. I am being treated, but treatment is a whole other struggle for some, following the struggle to get diagnosed. The thyroid hormone levels have to be optimum in order for the fatigue and other hypo symptoms to resolve. I myself was being undertreated with the thyroid hormone replacement.

    Anyway, you might be one of the successful cases. You absolutely need to be treated for hypo. There is even treatment being suggested for subclinical hypo people - a much discussed topic. I just recently came across a number of articles talking about the fact that even in subclinical cases, there can be risks of early coronary heart disease and diabetes, among other things

    The study I just found says that subclinical hypo patients have higher insulin, total and LDL-cholesterol levels than healthy subjects. The article says that if these subjects can have high C reactive protein ( a marker for systemic inflammation and higher in hypo people) and therefore, low grade inflammation, which may be associated with fasting hyperinsulinemia before insulin resistance becomes evident.

    See: Subclinical hypothyroidism may be associated with elevated high-sensitive c-reactive protein (low grade inflammation) and fasting hyperinsulinemia.Endocr J. 2005 Feb;52(1):89-94.

    Just imagine the havoc being clinically hypo wreaks on the body!

    Now, you are, by American Assoc of Clinical Endos, hypothyroi. But, in the event that is not enough for your dr, you could discuss the advantages to being treated as a "subclinical" patient, even though you really are not, since you are definately clinical.

    If you can persuade your dr, ask for the following tests: TSH (go in the morning, TSH is lowest at 12-2PM), free t4, and thyroid anti bodies (anti TPO and TgAB). You should expect to see a high TSH (above 3.0 or above 4 or 5 in the "old" values) and a low free t4. Most people have elevated anti bodies, since most hypo is caused by an autoimmune process. Even if your TSH and T4 is "borderline", the presence of anti bodies is sufficient for even the most stubborn dr to give a trial of thyroxine.

    I would really urge you to try again. I am still tired because I have low iron and b12 in addition to being hypo, which is quite common. I am working on all three and having some success. I'll be happy to answer any more quesitons if I can!

     
    Old 05-16-2007, 08:18 AM   #15
    japlopper
    Senior Veteran
    (female)
     
    japlopper's Avatar
     
    Join Date: Aug 2006
    Location: Carmel IN
    Posts: 581
    japlopper HB Userjaplopper HB Userjaplopper HB Userjaplopper HB User
    Re: should I ask for a ferritin test?

    Elphers,
    Numb hands and chest pain are definitely signs of low B12. When my B12 got low, my heart raced terribly and when it was really low, I had chest pain, and oh my gosh - severe shortness of breath - I couldn't climb a flight of stairs without gasping. Even phone conversations were a challenge.

    But numb hands without a doubt is a big sign of low B12. I'm wondering if you need to have the shots more often. I know when my B12 was really low, I could barely get out of bed - and I had daily naps.

    Can you get your GP to start giving you B12 shots weekly for awhile? I bet that would help your hands and the chest pain. I know B12 is the hardest vitamin to replenish and keep there. After I started getting the shots, my B12 went up considerably, but I knew that I couldn't stop the shots or it wouldn't stay there.

    Jill

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    ferritin questions robinhy Anemia 2 08-29-2010 12:31 PM
    Low ferritin...should I take a supplement??? jayer Anemia 1 09-04-2009 06:16 PM
    Should I fire my doctor (cbc, iron, ferritin testing) littlebunnyfoo Anemia 3 01-19-2009 01:27 PM
    Should I be on meds? skays Thyroid Disorders 2 11-11-2008 06:33 PM
    High iron, High tsat, High tibc, Low ferritin ... huh? juice82 Blood and Blood Vessel 16 01-13-2008 06:26 PM
    What's the difference between a ferritin test and a CBC? Starfish564 Thyroid Disorders 3 01-13-2008 07:29 AM
    Low ferritin can cause infertility GCC Infertility 10 08-17-2007 07:14 AM
    how often should I have tsh checked? knitbebe Thyroid Disorders 3 02-28-2006 06:22 AM
    hypo & ferritin robinhy Thyroid Disorders 11 10-25-2005 04:34 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 10:08 AM.





    © 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!