It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Anemia Message Board

  • B 12 Anemia

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 08-26-2007, 08:34 AM   #1
    aub
    Junior Member
    (female)
     
    aub's Avatar
     
    Join Date: Nov 2005
    Posts: 30
    aub HB User
    B 12 Anemia

    I was recently diagnosted with B 12 anemia, my level had gotten down to 101 before it was discovered. I have taken shot and the sublingal B12 tablet. My Dr. siad he would retest for the B 12 levels 3 months after the shots to see if the tablets were maintaining and building my levels. I assume if they are not I'm in for another round of shots.

    My question is how long does it take for the B 12 levels to go up? I'm still tired most of the time, but the weak, loss of appetite and some of the other symptoms have gone away so I feel like my level has gone up. But I'm just wondering how long before they will be even close to the what the Dr considers normal around 600?

    I know that low B 12 involves the red blood cells and when I was sick last week the Dr checked my red blood cell count and it was 12.7 which the normal range in 13.0 so he was not concerned since he felt like the low B 12 would cause this but since the red blood cell count it almost normal would that indicate that my B 12 level is getting back to normal?

    Also, during the whole process I lost 15 pounds, which was good for me then but at this point I just want to maintain my weight, however, my question since I lost the weight and my B 12 is low it seems my blood pressure had gone down, it was boarder line high before. Does low B12 help the blood pressure or could it be the weight loss that did that?

    Any help is greatly appericated as I tired of feeling tired.

    Thanks,

    Melissa

    Last edited by aub; 08-26-2007 at 08:42 AM.

     
    Sponsors Lightbulb
       
    Old 08-27-2007, 08:19 AM   #2
    aub
    Junior Member
    (female)
     
    aub's Avatar
     
    Join Date: Nov 2005
    Posts: 30
    aub HB User
    Re: B 12 Anemia

    Thanks for a reply. I am in the south of the US so I did receive weekly shots for a month. It has been 6 weeks since my last shot I'm still using the sublingual B12 I am to go for a blood test this week to see if the tablets are keep my levels up. I do feel better than I did and as you say I have good and bad days. I have to believe by the grace of God that the good days will out weight the bad before long.

    I have to ask did you get to a point where you had lost your appetite and that's why you lost weight? If so are you back to eating normal? As I have some good ays of eating then some days where nothing seems to be what I want to eat.

    I think the heat here in the south is making it hard for me to some days it hard to just go to work then leave for lunch and come back as the heat just seems to sap the energy level that I do have.


    Melissa

     
    Old 08-27-2007, 11:51 AM   #3
    IamUnique
    Senior Member
    (female)
     
    IamUnique's Avatar
     
    Join Date: Nov 2006
    Location: Central USA
    Posts: 152
    IamUnique HB User
    Re: B 12 Anemia

    Hello to you both.

    I do have PA along with celiac and have been on shots every two weeks since July of last year. Here is some information that I discovered in the process.

    During the final stages of B12 anemia your bone marrow is damaged and you in turn cannot produce red blood cells. During this stage the anemia show as blood loss. Good news you didn't get that symptom.

    As far as feeling better it took 6 months before I really noticed a big improvement and then around the 13th month I felt most like myself again. It seems to depend on how long you have suffered from this condition as well as how long it takes to get your numbers back up. Each cell in your body has to regenerate with the B12 vitamin before I can become healthy again. Your central nervous system takes nearly a year to recover.

    I was that small % that reacted in the 400 range. When I started my # was 337 after 6 months I was just shy of 600. I was a full year into shots before I reached almost 800, and that for me was the turning point.

    I took 4,000% of the daily requirement for 5 weeks and in just that short time the symptoms I had increased horribly - I couln't go anywhere without and escort. Since I am unable to absorb B12 my levels were dropping by about 100 points a month - had I waited the 3 months like the one doctor said I don't think I would be here today.

    I am curious as to why your doctor hasn't ordered the blood test for PA. It is very simple test and takes about 2 weeks to get the results and well worth not having the symptoms increase again.

    Good luck to you both.

     
    Old 08-27-2007, 02:42 PM   #4
    MOMOFBOYZ
    Veteran
    (female)
     
    MOMOFBOYZ's Avatar
     
    Join Date: Apr 2006
    Location: Victorville, Ca USA
    Posts: 353
    MOMOFBOYZ HB User
    Re: B 12 Anemia

    Hi IAMUNIQUE, I am having a blood test this Wed for b12 and folate. What is the name of this test specific for PA? My thyroid doctor is the one who found it and I am not sure he knows about anemia. What kind of specialist should I see? A hemotologist?

    I have a lot of questions for my docs. I just had a bone marrow biopsy. The copy I have is very dark and hard to read. But I can see an area that says hyper cellularity and iron being scanty. This doc just said the test was negative for cancer and let me go. Didn;t even look at this other stuff.

    Maybe I am grasping at straws. But now my endo says I have macrocytosis. Sounds like anemia to me.

    Thanks, Deena

     
    Old 08-27-2007, 03:13 PM   #5
    OWL77
    Junior Member
    (female)
     
    OWL77's Avatar
     
    Join Date: May 2007
    Location: Atlanta
    Posts: 44
    OWL77 HB User
    Re: B 12 Anemia

    Melissa,

    I lost weight for a few reasons I think. There were some days that I had no appetite, but more often I had trouble eating because either I was too nauseous or I felt like I couldn't swallow properly. Sometimes my throat and tongue are really, really dry, and sometimes I feel like I have a lump in my throat when I cough. Also, it feels like I have an electrical current in my mouth sometimes, which scares me and definitely takes away all desire to eat. My thyroid has been tested and nothing has shown up. I've been eating pretty normally for about a week (Yea!), but my pattern has been to have "relapses," so I don't know how long this will last. I am taking advantage of eating anything I want in the meantime since my doctor commented on my weight loss the last time I saw her! I already was thin to begin with. I also don't like being in the heat right now. We just went through a couple of weeks of above-100 degree temperatures in Atlanta. I was too weak to go out, though, so it didn't matter. But when I do go out in the heat, I get these "snapping" feelings in my legs. It feels like someone is snapping a rubber band against my skin. I should be on monthly shots now, but I've been having them twice a week because my symptoms come back pretty quickly it seems. There's nothing more depressing than hitting rock bottom when you've had a taste of pretty good. I'm trying to get to once a week. Anyway, thank God for message boards like this one.

    I am Unique,

    Which PA test do you mean? Intrinsic factor, parietal cell antibodies or something else? You're right; I don't think I've had those tests, but I'm not certain. I do have copies of every test that has been done except for the last tests my doctor did a few weeks ago. I'll get those copies at my next appt. in a few days. But if it's not too late to get the test or tests (Can you get them after treatment has begun?), I'll certainly request them. My doctor has no experience with treating a person with B12 deficiency. She said that to find out for sure whether or not I have PA she'd have to switch me to pills and see how I do. Neither one of us is willing to try that out. I may have said that my levels haven't been retested yet, so I don't know if my B12 has gone up or how much it has gone up from my original reading of 329.

     
    Old 08-27-2007, 04:38 PM   #6
    aub
    Junior Member
    (female)
     
    aub's Avatar
     
    Join Date: Nov 2005
    Posts: 30
    aub HB User
    Re: B 12 Anemia

    I am Unique---

    I have been searching around to try and find a diet (food, as I'm not trying to lose weight right now just maintain) that is heavy in B 12. If I'm eating I'd like to think I'm getting all the benefits of things with B 12. I did find a new health drink, Fuze, that is suppose to have all of the B vitiams so I'm trying to drink at least one of the a day. Can you recommend a site or diet that would help.

    To be honest my Dr. does not appear to be to worried about this so I'm trying not to stress myself out about this and feel blessed to at least still be able to work and get my kids from school most days.

    olwynUFO---

    Here in Auburn it has been close to 100 for the last few weeks and your right the heat will just take my energy away. Most days I come home and go to bed to rest after getting the kids from school. I do also spend alot to time resting on the weekends. I'm just ready to get back to somewhat normal so that I can do all the things I feel like I need to be doing.

    I go tommorrow for at blood test to check my levels. Here's praying that they come back better than the last time.

    Thanks for the replys as all of this is new to me and my Dr. doesn't seem to think it is a large problem.

    Melissa

     
    Old 08-28-2007, 07:02 AM   #7
    IamUnique
    Senior Member
    (female)
     
    IamUnique's Avatar
     
    Join Date: Nov 2006
    Location: Central USA
    Posts: 152
    IamUnique HB User
    Re: B 12 Anemia

    olwynUFO:

    My PA showed up with the Intrinsic Factor test. Several members here do see a hematologist but if you have a good doctor with an understanding of the illness you will get by just fine. Lucky for me the ENT doctor I went to was very aware of PA since his wife came down with it in their marriage. He was the one who noticed the symptoms right off the bat and took me very seriously. My primary doctor whom is taking care of me now has been so wonderful. I was supposed to do shots every 2 weeks for 3 months and then switch to monthly but I sat down with him and the copies of my lab work proving that my numbers without the shots dropped by 100 points and with the shots every two weeks I only gained 50 points a month. I convinced him that my concern about checking my levels every 6 months I definitely need a # over 700 as a level to make me comfortable. This would give me time to react if something god forbid happened and I couldn't hold B12. I am still giving myself the shot every two weeks because at the end of that time I do start to have an increase in symptoms. I read that with the injections right around the two-week time the B12 in your blood stream actually drops considerably. Allot of the doctors I had brushed off the lower B12 number I had telling me that I was fixating on this and it really wasn't a problem. HA HA proved them wrong...

    MOMOFBOYZ: They won't run the Instric factor until they know if your B12 is low or not. I was able to prove that I ate more than the daily requirement that worked in my favor. In addition I demanded the neurologist give me a B12 shot along with the 4,000% (that's not a mistake) of the daily requirement I was taking for over a month. The ENT tested my B12 approximately 1 week after the shot and my numbers went from 337 to 373 (alarm bells went off in my head and also alarmed my primary doctor).

    There are several things that can stop the absorption of B12 - I was tested for crones (neg) celiac (pos) ulcers and several more I can't even remember. If you’re a vegetarian you won't get enough in your diet to even matter and you must supplement with vitamins.

    I had the opposite problem as each of you I gained nearly 50 pounds partly because I spent some 14-16 hours sleeping each day and when I wasn’t sleeping my butt was on the couch. And I always felt horribly hungry so even though I didn’t enjoy eating I always craved something that I just couldn’t seem to satisfy.

    A good reference for why labs are ordered and what each of them means:
    [url]http://www.**************.org[/url]

     
    Old 08-28-2007, 07:26 AM   #8
    IamUnique
    Senior Member
    (female)
     
    IamUnique's Avatar
     
    Join Date: Nov 2006
    Location: Central USA
    Posts: 152
    IamUnique HB User
    Re: B 12 Anemia

    Sorry for the length I am attempting to answer as many of your questions as I can. I hope that you find something in here that helps.

    Macrocytosis - If memory serves my mine was at 25 and now at 9 - quite a difference in size, but honestly this didn't alarm any of my doctors and I had 8 specialists working with me. When I did the blood test for celiac my inflammation factor was nearly triple the norm. No wonder why I looked like a very plump grape about to burst.

    OlwynUFO – you said you were diagnosed with B12 deficiency but to you know why you have it yet? At your level I was seriously impaired I even had strangers come up to me and preach to me about the dangers of drugs and that I needed to get help before they killed me. One problem I WASN’T nor have I ever done drugs.

    TO ALL OF YOU – The good and bad days are very common for a long time. I still get them on occasion now but they are controlled much easier and recovered from much faster. I also feel the heat and notice considerable differences. In addition to that with out looking at the calendar I can tell you when the moon will be full. My head actually fogs and aches for 3-5 days prior and then the day after the full moon all is normal again. Let’s all howl at the moon tonight.

    Regarding diet be sure to eat a balanced one. I myself have quite the difficult time with this since I have celiac as well. I noticed that if I drink at least one Slim Fast (gluten free) each day and eat as healthy as I can from there I fair much better. Drink plenty of water and be careful not to dehydrate your self. If you have PA it makes no difference how much B12 you get into your diet the body just wont be able to absorb enough to matter. If you have some other cause I would suggest several options for quick fixes – Slim Fast 35% daily requirement – VitaminEnergy by Glaceau (fruit punch) 100% - There’s a cold milk coffee drink that gives 100% as well but for the life of me I can’t remember the name. I would avoid those energy drinks that contain lots of caffeine it will have ill affects. The caffeine will tax your nervous system causing you to burn excess amounts of B12. Think of it this way every cell in your body needs B12 – each thought you make – each movement you do all require B12. It is the gas to the body.

    Again good luck and I will continue to keep you all in my prayers. Keep me posted on your progress I look forward to hearing from you.

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Anemia of chronic disease/(chronic) inflammation flowergirl2day Anemia 8 06-24-2009 09:24 PM
    what does being 10 on the anemia scale mean deltalicious Anemia 10 10-30-2008 05:25 PM
    New here, and new to anemia, too LinuxRocks Anemia 11 05-15-2008 03:06 PM
    Nexium and Anemia JJ1 Acid Reflux / GERD 7 02-28-2008 03:13 PM
    Am I Anemia or not really? efang Anemia 5 08-24-2007 06:30 AM
    Anemia with few symtoms...Scared & confused MissKris75 Anemia 22 05-19-2007 05:49 AM
    anemia or not?...help marjs_life Anemia 5 07-29-2004 08:58 PM
    Anemia from heavy menstrual flow fairchild Women's Health 31 04-26-2004 09:18 AM
    Iron vs. B12 anemia? wideawakeinaz Anemia 17 03-26-2004 06:31 PM
    How long does it take to recover from anemia? wideawakeinaz Anemia 5 01-31-2004 07:43 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 05:45 AM.





    © 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!