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    Old 02-28-2008, 12:00 AM   #16
    Audrey-B
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    Re: Received my new results & unexpected news

    Littlebunnyfoo - so sorry to hear about your results. It does sound as though the results were false or the lab somehow screwed them up for you to drop so drastically. I too hovered in the 20's for what seemed like forever. I think if you can get out of the 20's then it's easier to begin climbing higher. It has taken me 2yrs to get to where i am now so i know how disheartening it can be. Sometimes taking the iron meds and having to not combine certain food/drinks with the meds became so restricting and frustrating that i wanted to simply throw it all in, but once i saw how much hair had gone down the plughole after washing it i thought i can't stop, i must persevere no matter what.

    FLOWERGIRL - I know it likely wasn't funny at the time, but the way you wrote about your blood test and them thinking you were a closet alcoholic really made me laugh

    Osteo - Hi and thanks so much for your informative post on hashi's. That's what i love about this board, everyone has something personal to say about their own experience so you get a good cross section of info. I have an appointment next thursday with a dr for my thyroid. The trichologist who has been treating my hair/iron issues has referred me to him and says he's the best and that i'll like him a lot so i'm not worried about getting some useless dr who isn't going to give a toss about me as a patient. I've been over the moon with my trichologist b/c he has so much passion for his field and goes overboard for his patients so i'm hoping this specialist i'll be seeing will be the same.

    I guess having Hashi's will likely explain a lot. For starters my hormones are all stuffed up and i have been on a herbal mix from a naturopath for nearly 3yrs so that my monthly cycles will be normal. Each time i go off it it's back to square one. The time my periods went all haywire was also about the time i began losing big amounts of hair, but as i had gone through huge amounts of stress in my then marriage i simply thought it was all due to that. My then gp did a thyroid test and also sent me to an endocronologist at one time, but nobody did an antibodies test, just the typical thyroid testing and they both would say, "all ok, within range" can't be your thyroid. Looking back at those figures, my current doctor thinks those figures should have been better and that especially the endocronologist should have done something back then.

    I have been wondering what's caused it and wonder whether it could have been due to the huge amounts of stress i underwent over a long period of time. I wonder now whether it could have been avoided. If i knew it was genetic i'd not worry so much as you can't do much about genetics. I suppose it doesn't matter either way now, so long as the meds work and i get my hair back and get normal monthly cycles i'll be happy. I do worry that perhaps my hair will never return to normal.

    I don't know my CRP level. I can't see anything on my test results to do with CRP. Maybe the thyroid dr will check for that. For the antibodies on my test results it says:
    (not sure whether these results will mean anything as they may use different figures/ranges in other countries)

    Anti Thyroglobulin 85 (<60) u/L
    Anti Thyroid Peroxidase >1300 (<60) u/L

    I also forgot to mention that my results came back showing that i was a 'little' gluten intolerant. Meaning 15 is the cut off figure here and i got an 18 so i'm 3 points over. I suppose even being a little intolerant could have affected my iron levels. So that is something else to try and figure out, especially as everything has the bad grains in it and if something does happen to be gluten free they triple the price tag on it. You have to read the ingredients so carefully. I bought some wraps instead of bread for lunch at work during the week and it said they were rice wraps, but only 70% is rice, the rest is wheat flour.

    I have found however that i'll sometimes get a bit bloated after even a small meal and i haven't had anything with wheat/barley/rye. I'm wondering whether i have an intolerance to something else or whether thyroid can contribute towards that too.

    I will definitely check out that book you suggested. Thanks

     
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    Old 02-28-2008, 08:23 PM   #17
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    Re: Received my new results & unexpected news

    Audrey B- My tpo antibodies are around 1200. From what I see at the thyroid board over 1,000 is really quite high.(I don't know if your lab range is the same as mine or not, the report said IU/ml) But Dr. Rubin in the dummies book doesn't get too excited about the antibody level.There is no different drug you take for antibodies. I did have an endo tell me with the tpo antibodies at that level it was unlikely that I would be one of the 20some% who find that they no longer need to take synthroid after a period. You might want to look at the selenium studies to see if you want to take selenium. Dr. Rubin talks about that too.
    Apparently as Christine has said iron is important for t4 to t3 conversion so it is good that you have worked on your ferritin level.
    It is perhaps unlikely that your endo will do the crp- it is more a gp type thing or rheum. but as celiac may be a question in your situation, I would push for the crp. It stands for C-reactive protein which at an elevated level shows inflammation in the body but the test doesn't indicate where the inflammation is.It would just give you a good read on inflammation. Inflammation is becoming the big medical focus these days.And, for those of us with auto immune disease , inflammation is very important to monitor from what I can gather.
    On the celiac there are specific blood tests , I think there are 3 and 1 is outmoded.Did you have several blood tests for the celiac? You can look at celiac organizations on the net and they talk about the tests used in diagnosis. They thought I might have celiac because one test came out positive- but apparently it was the test that they don't put much stock in now. Anyway, I had an endoscopy with biopsies that came out negative.I hope this comes out negative for you as well.
    Sorry to hear about the stress you went through and the relationship issues. I hope you are more settled and you have less stress now. With these immune conditions, the more I read, stress is a big thing. If you do not meditate , you might think about taking it up. Apparently there are indications that meditation is positive for the immune system among other documented benefits.
    I hope your endo will be to your liking. You will have alot of interaction with the doc so it would be so good to find someone you click with. It took me several docs to find one that worked for me.
    Dr. Rubin in the dummies book talks alot about cause. They really aren't sure but do think alot of it is genetic. That there is a genetic predisposition which is then triggered by???maybe stress, maybe environmental ( alot of people suspect perchlorate), maybe hormonal changes like pregnancy and menopause--there is nothing definitive.But it is familial and its usually women after meno .
    I hate to tell you that I had lustrous hair and it is not that way anymore. I don't know if it was the hashi's , menopause, or maybe sjogren's. I have not been diagnosed with sjogren's but I am highly suspicious. I am looking into this now, and will see an ENT soon.I am bummed out by this but at a point I just have to let go.
    Well, best of luck with your project to find out what is going on. Be sure to follow the celiac issue to get a clear determination. And, keep in mind that fear and stress are not going to help and could hurt. Take care

    Last edited by osteoblast; 02-28-2008 at 08:35 PM.

     
    Old 02-29-2008, 08:46 AM   #18
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    Re: Received my new results & unexpected news

    Audrey - Since you have been diagnosed with Hashi's, I feel I might just have this too. I have been suspecting it for at least a year. I've asked my doctor 2 different times to test for antibodies and he said it wasn't needed since my tsh is fine.

    Do you feel really bad as far as energy level? I feel really tired a lot of the time, but other times I feel good. I was under the impression that you had to feel bad all the time to have a thyroid problem, but the more research I do, the more it seems that isn't the case.

    Update us soon.

     
    Old 02-29-2008, 10:00 AM   #19
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    Re: Received my new results & unexpected news

    LittleBunny-Do you have anyone else in your family who is hypothyroid, or has autoimmune diseases like celiac, diabetes, rheumatoid arthritis? I don't see why your docs are refusing the thyroid antibodies testing. Have you thought of seeing an endo?

     
    Old 02-29-2008, 10:10 AM   #20
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    Re: Received my new results & unexpected news

    Osteoblast - I am seeing an endo at the end of March. I am not leaving there without a complete thyroid workup.

    My mom thinks her mom had some thyroid problems so that would be maternal grandma possibly. They are not close so I don't know much about that side of the family.

    Last edited by littlebunnyfoo; 02-29-2008 at 10:11 AM.

     
    Old 02-29-2008, 12:22 PM   #21
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    Re: Received my new results & unexpected news

    Bunny -Glad to hear that you will be seeing an endo soon! The doctor should do a physical examination of your thyroid and order a thyroid panel and test antithyroid antibodies. Then you should have some answers to your concerns. Good Luck

     
    Old 03-03-2008, 02:06 AM   #22
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    Re: Received my new results & unexpected news

    Osteo - thanks so much for your indepth response. You have covered areas in your responses which i haven't even read about in any of my reserach so thank you so much again

    The gluten test performed was a blood test, igG EIA and IgA EIA. I'm not sure how indepth or how basic this type of test is. 15 was the cut off point and i got a bit over at 18.

    I'm not menopausal and no signs of it at this stage. If i take after my mother it wont likely happen to me till i hit my late 50's. Actually she didn't have a hard time of it, just a few minor hot flushes, not serious ones and that's about it. No mood swings, no aches and pains and no dramas with her hair or skin. I'm praying i take after her.

    My thyroid issue was most likely sitting there waiting to happen and i'd say my big amounts of stress over a too lengthy period did it. A big drop in iron, iodine and vitamin D most likely didn't help matters. The problem is that even when that stress has been eliminated from your life the body and the mind don't simply readjust over night. In some areas you can never ever revert to being who you were prior to the stress and anxiety. I often even now wake up with my teeth clenched and think that there must be something subconsciously that keeps me tense even now or is it normal to wake up with your teeth clenched? I hear what you are saying about the meditation, but i would sooner win the lottery than meditate successfully, LOL. I'm hopeless at that sort of thing. I think i have too much going on in my mind. I did try yoga for a few months, but halfway through nearly all the positions were for 'increased appetite' according to the Indian man who was teaching us. I think he was right b/c i couldn't stop eating and a few weeks after the course finished my appetite finally returned to normal. It really scared me and put me off yoga I seem to do better at something where a bit of physical energy is required eg: swimming, cycling, walking.

    Littlebunnyfoo - My energy levels are much better than they were, but i still do get bouts of tiredness for what appears to be no reason. I do however feel much better and manage to get so much more done and seem to have more motivation. I do tend to push myself though, even when tired, so that likely makes it worse. I am still, as you know, worried most about the hair loss and also would like to get to the bottom of my mixed up monthly cycles. I'm sick and tired of taking the herbal mix for my periods twice a day as it's been 3 yrs now that i've been on this herbal mix. It works while i'm on it, but not when i stop taking it, so i'm hoping this hashi's business is at the root of that and that it will correct my hormones once on thyroid meds.

     
    Old 03-04-2008, 09:03 AM   #23
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    Re: Received my new results & unexpected news

    AudreyB-glad if any of that info helped you. Most of that is from Thyroid for Dummies .Your celiac blood tests, look like what I had.Which one of yours is the out of range test??Maybe it is the same one that I had positive and it was said to be the outdated test-too many false positives. It was odd that the yoga class stimulated your appetite. I understand what you are saying about vigorous exercise. I feel the same way about needing that kind of movement , it seems to burn through tension. I know what you mean too about clenched jaws when waking up- I did this too during a very stressful time. Now I don't do it often at all. My feeling was that as I was during the day, that is how my sleep/night went. I don't think most people can just turn off stress when they get to bed. So, I had to find a way to deal with stress at some point during the day. I have tried alot over the years and understand exactly what you are saying about the difficulty of meditation. In fact, there is a term for the overactive mind it is monkey mind. It can't sit still, it swings from the branches . From what I understand, when you notice your mind jumping around from the grocery list, to some past slight, or future fear or whatever you just let go of it and go back to an awareness of breathing in and breathing out. You do this and within some time, most likely brief, you are back in your reveries and you just say thinking and go back to the breath. It is like a neutral zone. This may happen over a hundred times, but you just return to the breath. Anyway, I think some people have an easier time than others with it. But, if it doesn't work for you , you could try progressive muscle relaxation, where you start at your toes and clench the muscles for a few breaths, then let go of the tension on the out breath. Then move up to thighs by pushing your knees into the surface you are laying on.And, just proceed clenching various muscle groups as you move up to your face.. At your face, you could clench all facial muscles by scrunching up your face including tightening your jaw and then releasing on out breath after you have held the scrunch for a few breaths- This is something I generally do as I lay down to sleep. I had a phys. ther. teach me this and she said she has some people who just repeat going toe to head until they fall asleep, and some people who do it during the day as well .Maybe it would help you with getting some of the tension out of your body esp. the jaw.Good luck!

    Last edited by osteoblast; 03-04-2008 at 09:11 AM.

     
    Old 03-04-2008, 11:51 PM   #24
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    Re: Received my new results & unexpected news

    Hi Osteo - I'm not much up on gluten tests, but the IgG was the one where i got an 18 when 15 is the cut off mark. For the IgA i got a 9.

    I have experimented with gluten free meals and it seems to me that i'm no different after eating gluten than when i haven't eaten it. The BIG difference i notice for me is that when i have about 6 very small meals throughout the day that my stomach is less bloated and i feel so much better. I'm thinking that maybe my digestive system is telling me something by all this and that the small and numerous meals are the way to go for me.

    Thanks for the relaxation tips. I have taken on new repsonsibilites at work and am looking at buying my own place and i have a few other things going on so maybe while i'm asleep my subconscious is sorting through my "to do" list while i'm asleep. I go through about a month of decent sleep, then i'll go through 2 or 3 weeks of rough sleep or i'll wake during the night feeling so tired, yet can't fall asleep or will wake an hour or two prior to what i should wake up, but can't fall asleep and my eye balls are killing me. I'm now hanging out for my good phase of sleep. I have heard this can be a thyroid related issue too.

    The yoga people still send an email each time a new class is starting and i'm worried about my appetite I was pretty crappy at the lotus position and a couple of others as i'm not flexible as i've never, not even in school, done any sort of gymnastics. There were 70yr old ladies there doing the lotus position without a problem. I was so embarrassed that i couldn't master it!! I do get amazing bouts of energy at times, sort of like excess energy and i really feel like walking up hills, something to totally burn off the energy and give that relaxed/achieved feeling at the end of it.

    Oh well, guess it will all get sorted out in time, maybe once i start the thyroid meds. Thanks again

     
    Old 03-09-2008, 12:35 AM   #25
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    Re: Received my new results & unexpected news

    Littlebunnyfoo - you mentioned that you just found out that a couple of people in your family had thyroid problems. I too have just found out this weekend that my dad's thyroid is double the size it should be. He has only had a check to see whether it was cancerous and it's not, but he isn't on any meds as they told him his test resutls were ok. My dad's brother had his thyroid removed and that's all we know about his thyroid situation as he lives overseas.

    Would have helped if my dad had voluntered this info a little earlier!!

    I'm still taking 100mg of the iron supplement daily. I have seen my new doctor and i really like him as he appears very clue in. He is not jumping right in with meds as he wants to eliminate all other possibilities (eg: graves disease). From the info he has gathered so far he thinks my whole situation of not getting sufficient nutrients is to do with my bowel. He is getting me to do a saliva test, a stool test, a thyroid ultrasound and he is going to measure my metabolism. He was also going to send my DNA overseas to check whether there is a family link, but guess he wont need to now. A couple of the tests are a bit more expensive than i expected, but if it helps to get to the bottom of it all then i'll be happy.

    He did feel that the hair loss is related to a lack of nutrients, just has to find out where/why it's happening.

    I took old test results to him from 1998 and right up to 2008. Some of the things the pathology had put an asterisk next too, my previous doctor didn't even bother bringing up with me. This thyroid doctor says that by looking at those test he can automatically see that i lacked zinc and iron in paritcular and that i had a low immune system. He said 99% of gp's don't even look at the results properly and so long as things are 'within range' they simply give you your copy of the results if you are fortunate enough and that that. He didn't even mind me mentioned the INTERNET and seemed happy that i had done a heap of research first.

    Anyway that's the stage i'm up to now and it will take a month for a couple of the main tests to come back so will know more then.

     
    Old 03-09-2008, 10:04 AM   #26
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    Re: Received my new results & unexpected news

    Hi Audrey, Isn't that crazy that you do have a family history?!?

    I'm glad you like your new doctor - I think that is so important. And he didn't mind you saying ,"internet" --all the better!!

    You will not believe this...well, you probably will. I posted about how I called my doctor's office and requested the T4, T3, and antibodies. (I had called in the fall and asked for these tests and he ran tsh again) So, I get up and out early because I heard they are more accurate in the morning, snowy, bad roads, 2 kids (ages 6 & 4), get to the lab and the tests weren't even ordered. I was so mad.

    Lab tech called over to get them in the system. So, before I got my blood drawn, I asked what labs he ordered (not trusting him) and she said T4 and T3. I was so mad that AGAIN, he did not honor my request and test antibodies. Anyway, he's fired and I have a new doctor lined up for the end of the month as well as a visit to an endocrinologist.

    These are my latest thyroid labs...all within range.

    tsh 2.73
    Free T 1.4
    T3 125

     
    Old 03-16-2008, 03:40 AM   #27
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    Re: Received my new results & unexpected news

    Littlebunnyfoo - i can't really comment on your thyroid figures as they use different lab ranges here. Sorry to heart they didn't order the correct tests, but you knew they wouldn't do the antobodies test. Still, it's frustrating. I hope one day the medical community will realise that 'within range' means absolutely nothing and that this forces them to make drastic changes when it comes to potential thyroid patients.

    I did go for my ultrasound last week and the doctor at that clinic also said that looking at the picture of my thyroid on the screen he would have to agree that it's hashimotos. Not sure how they can tell the difference just by looking at the diagram. I guess the doctors report will give more information.

    I think it will be another 3 weeks before i get the other test results back. I'm getting a bit impatient to get the ball rolling.

    I hope you have better luck with your endo's appointment

     
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