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    Old 03-04-2008, 10:00 AM   #1
    diamond79
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    New ferritin results...hmmmm!!!

    I got a call from my Dr.s office this morning saying my ferritin went from 7 back in Aug. 2007 up to only 12. Only 5 stinkin' points in 6 months??!! And I even missed my period completely last month--no not pregnant had tubes tied and did get it this month. All this is making me think something more is going on..but what? Any ideas?
    The secretary said my ferritin is within range, but still on the low side--(anything above 10 is considered in range here) and said if I want to continue taking iron to do so. I am going to because I still feel like something the cat dragged in--tired, out of breath, dizzy, cold, etc.
    Anyone have any ideas why my ferritin has barely moved? I would have at least thought it would have been in the 20's

     
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    Old 03-04-2008, 03:02 PM   #2
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    Re: New ferritin results...hmmmm!!!

    diamond79--I went from a Ferritin of:

    2-9 in 6 months. That's a long time!
    9-20 in 2 months.
    20-35 in 4.5 months.

    I takes a long time to fill for some people. I had an ablation and I think that helped my stores. That is when they went from 9-20. Are you on a high or low dose iron? When I finally resumed my double dose iron supplements that is when my ferritin started to go up. ALso, this is so different for everyone. I wouldn't worry about it right now. Just keep on doing all that you can and see if it eventually starts to go up. I thought it was never going to happen for me. Hang in there! FLFLOWERGIRL

     
    Old 03-04-2008, 07:49 PM   #3
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    Re: New ferritin results...hmmmm!!!

    Thanks for the reply FLFLOWERGIRL. Puts my mind at ease. I was thinking there was some reason I haven't gone up that much. I guess it's a LOOOONG process. I am not taking anything at the moment. I am done the prescribed iron my dr. had me on. Back in Aug. 2007 I was taking 300mg ferrous gluconate twice a day for a month then my dr. switched me to 300 mg every other day for about 2 months (before even testing my levels!). I just FINALLY got in to see another dr. to have it checked and it was 12.
    Pretty frustrating in a way...just want to get back to my old self (even though I don't remember what that's like as it's been so long)
    Thanks for the kind words!

     
    Old 03-05-2008, 07:28 AM   #4
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    Re: New ferritin results...hmmmm!!!

    diamond79--Did your new doc put you back on iron? I don't think that you were on iron long enough and the right amount. Until then it will take forever. Keep us posted. FLFLOWERGIRL

     
    Old 03-06-2008, 12:20 AM   #5
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    Re: New ferritin results...hmmmm!!!

    Hi Diamond - i agree with FLFLOWERGIRL, it can take a loooooong time. It took me a whole year to get from 8 to 29, then 3 months after that i dropped to 26, then had iron injections and went up to 35 and now i'm at 61 and i've got my eye on 100. This whole process has taken 2yrs so you have to be patient.

    It can take a while to build iron stores either due to the iron you are on is too low a dose or simply b/c any iron stores you get go firstly to areas like your bone marrow and muscles. You energy levels and your hair get what's left over.......if there is any left over.

    Are you taking Lysine tablets? Lysine helps speed the delivery of iron throughout the body, helps rebuild hair shaft structure as it's one of the essential amino acids we need. You can get it through some foods, but then other foods which are high in arginine kill off the lysine. In rare cases people may have experienced a side effect, but i wont mention names

    You have to be careful with long term low iron levels as it can affect your thyroid. In my case my thyroid was a bit out and we believed it was a matter of simply raising my ferretin, but after a fresh blood test it has been found that i do have some sort of a thyroid condition. At this stage they think it's Hashimoto's, but a few more tests are required to eliminate certain other thyroid conditions. I think i've had a thyroid issue for a number of years now, but the basic thyroid tests performed never picked up on it. So just take care that all other things are eliminated and also that other key things like your vitamin D, zinc, iodine, selenium etc are at the required level as often when levels take a while to go up it might be due to something else not being right or possibly lacking.

    All the best and most definitely keep us posted on your progress

     
    Old 03-06-2008, 04:06 PM   #6
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    Re: New ferritin results...hmmmm!!!

    FLFLOWERGIRL-- I just called in my prescription today. I think they put me on 300 mg of ferrous gluconate (again). Haven't had time to pick up the RX yet today. Will do it tomorrow morn. I have an appt. with my dr. on March 17, so I will talk to him about the amount I am on and see what he says about a higher dose or possibly switching to another one.

    Audrey-B-- I am pretty sure I have had low iron for a while. I remember my mother telling me that I had to have a blood transfusion when I was a baby--not sure what for though. I also had to take iron when I was preggo with my middle daughter. After my son was born (almost 4 years ago) I started having symptoms of low iron, but at that point nothing in my bloodwork was coming back abnormal (they didn't check ferritin). Even had my thyroid checked (as my grandmother is Hypothyroid) and TSH came back at 2.7 (range is 0.35-5.00) and free T4 was 16 (range 9-23) so looked to be smack dab in the middle of range (these levels are from back in Oct. 2005). I had it tested again last week but didn't get the results yet. Was just told my Ferritin is still on the low side. I honestly did not know that having low iron long term can affect the thyroid...learn something new everyday. I do have gastritis, which is inflammation of the stomach lining, and wonder if that could be a reason that it is not going up all that much--stomach being inflammed causing iron not to be absorbed as well? I did have my b12 checked along with my ferritin and it was in range. Had it checked due to tingling/burning in hands and feet at night when sleeping. Is there a blood test to check vitamin levels or is it a bunch of different ones?
    The only medication/vitamins I am on right now are Pariet (Aciphex) for the gastritis and acid reflux and was on Ferrous Gluconate.
    I read somewhere that Vitamin C helps with iron absorbtion..is this true? Would orange juice count as that or does it have to be in pill form?
    Sorry this is so long just trying to figure out ways to get better!!

     
    Old 03-06-2008, 08:20 PM   #7
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    Re: New ferritin results...hmmmm!!!

    diamond79--You will start to feel better being back on the iron. Just stick with it. I know you said that your B-12 was in range, I'm curious if it was real high or just in the middle of the range, especially if you had symptoms.

    Also, when taking the iron and PPI did you space them apart as well?

    I would add a Vit-C tablet just to get a good dose to be sure that you are absorbing all that you can. And then with meals combine vit-c foods with iron foods for absorption.

    My mom had blood loss from gastritis. That is all that they could figure out that caused her Hgb to lower. Be well. FLFLOWERGIRL

     
    Old 03-06-2008, 11:01 PM   #8
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    Re: New ferritin results...hmmmm!!!

    Diamond - the range on my thyroid results is a different range to the one on your results so i can't comment (ranges on test results will vary from country to country). I can say that my TSH, T3 and T4 all came back within range and if i had gone to an ordinary gp he would most likely have said all was ok, just like they have for the last 10yrs. I was fortunate that the specialist i see doesn't believe a lot of this "within range" business. It was only after the thyroid antibodies test that it was discovered that there was most definitely a thyroid problem.

    To get your vitamin levels tested it is simply a blood test. For my Iodine level he got me to do a urine test as it's most accurate.

    Your stomach issue could very well be linked to your low iron levels. I too think taking vitamin c tablets might be the way to go as orange juice might cause more problems for the inflammation in your stomach. I would definitely see what can be done for your stomach.

    Do you still have the tingling in your hands and feet? or was that only short term? I don't mean to blame every symptom on the poor old thyroid but i could swear i read somewhere that that was a symptom. Then again, i'm sure i've read of other conditions where tingling hands/feet are a symptom.

    The thing is that you have to do so much research to get to the bottom of everything to locate the underlying cause of everything that is going on. When i found out that i was so low in iron, i was so happy to find out what was wrong with me, but even though my ferretin is up to 61, all didn't seem right. Now after speaking to me, the thyroid dr thinks my issues could stem from the bowel department, but further tests will give more clues. That is why it's not too good to get 100% fixated on one thing, when it could very well be linked to something else.

    I hope you love doing jigsaw puzzles as it's something like that i think

     
    Old 03-07-2008, 06:24 AM   #9
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    Re: New ferritin results...hmmmm!!!

    The first thing when anemic is to check the B-12 and Folate because it causes Neuro symptoms. Night is a hard time for people with B-12 deficiency it causes RLS, cramps etc. My B-12 was at the high end of the range. I too had tingling and numbness in my hands, arm, feet and bilateral in my face with the anemia for 6 about months. I was also told that this was anxiety, NOT! I did however, take Xanax and it helped a lot. I had many tests for MS, Lupus 3 pages of AI diseases ruled out, and nothing was ever found then it went away finally, sometimes I can still feel it in my face, but I can't think about it anymore. I do get Hypo but I was fine at a TSH number that was normal for me without symptoms before for years. I am leaning towards the thyroid as a cause of my symptoms, that is my DX anyway LOL. Audrey is right, it is a giant Jigsaw. My doc told me that I may never know what happened to me because I had some really strange things going on but I think that were all deficiency related. FLFLOWERGIRL

     
    Old 03-08-2008, 12:15 PM   #10
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    Re: New ferritin results...hmmmm!!!

    FLFLOWERGIRL--I am not too sure what my B12 was just that it was in range as the dr. said. I will ask when I go see him. I do still get the tingling/burning feeling esp. at night or when my hands and feet have been cold and start to warm up. I noticed yesterday under the light the skin under my fingernails (nail beds I guess you would call them?) were blue!!?? I am assuming my circulation is very poor in my hands and feet! I also have real bad fingernails that have lines and craters in them which I showed my dr. and he asked me if I slammed them in a door or something! (I didn't by the way).
    I do space out my PPI and Iron. I usually take my PPI about 7 am and then the iron at about noon and again before bed. I asked my pharmacist about that because I wasn't too sure myself.
    I have never been tested for AI diseases, but know they do run in the family (grandmother is Hypothyroid).
    I did get my RX and I am back on 300mg twice a day. Hopefully this will bump me up further!

    Audrey-B--I did find out my TSH that I had tested last week was 2.4, so still within range(according to my dr.)--well actually went down from 2.7 in 2005.
    I do still have the tingling hands and feet (see reply above to FLFLOWERGIRL).
    I also get alot of muscle twitches and joint pain as well.
    I have a feeling there is more going on than just my iron, I have alot of symptoms that I don't think are iron related (bowel issues, stomach issues, etc...) I have been researching like crazy but the symptoms are so vague that it is hard to pinpoint one particular thing!!
    Oh and I do love doing jigsaw puzzles just not the 1000 piece ones

    Thanks ladies for all your help, you have been WAY more helpful than my dr.

     
    Old 03-08-2008, 12:20 PM   #11
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    Re: New ferritin results...hmmmm!!!

    Quote:
    Originally Posted by diamond79 View Post
    FLFLOWERGIRL--I am not too sure what my B12 was just that it was in range as the dr. said. I will ask when I go see him. I do still get the tingling/burning feeling esp. at night or when my hands and feet have been cold and start to warm up. I noticed yesterday under the light the skin under my fingernails (nail beds I guess you would call them?) were blue!!?? I am assuming my circulation is very poor in my hands and feet! I also have real bad fingernails that have lines and craters in them which I showed my dr. and he asked me if I slammed them in a door or something! (I didn't by the way).
    I do space out my PPI and Iron. I usually take my PPI about 7 am and then the iron at about noon and again before bed. I asked my pharmacist about that because I wasn't too sure myself.
    I have never been tested for AI diseases, but know they do run in the family (grandmother is Hypothyroid).
    I did get my RX and I am back on 300mg twice a day. Hopefully this will bump me up further!

    Audrey-B--I did find out my TSH that I had tested last week was 2.4, so still within range(according to my dr.)--well actually went down from 2.7 in 2005.
    I do still have the tingling hands and feet (see reply above to FLFLOWERGIRL).
    I also get alot of muscle twitches and joint pain as well.
    I have a feeling there is more going on than just my iron, I have alot of symptoms that I don't think are iron related (bowel issues, stomach issues, etc...) I have been researching like crazy but the symptoms are so vague that it is hard to pinpoint one particular thing!!
    Oh and I do love doing jigsaw puzzles just not the 1000 piece ones

    Thanks ladies for all your help, you have been WAY more helpful than my dr.
    Just for info: blue nail beds are really not a problem. Remember, before blood goes outside the body (and hits oxygen) it is bluish in color. If you are seeing blue in your nail beds it is because you are getting circulationg to that area. Like me, you probably just have thin fingernails and, because of that, your blue blood shows up more easily than others. I have had thin, peeling fingernails all my life. They get no better when my anemia gets better. I was born with them. My kids have it too. Poor things.

    Anyway, when your doctor ever does a check of your nails, he is looking for specific disfigurements (spooning or clubbing) and he is also checking the nail beds for color. They don't like to see pale nail beds. They will look at those and your gums (for color) to give a clue to anemia.

     
    Old 03-08-2008, 10:27 PM   #12
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    Re: New ferritin results...hmmmm!!!

    Quote:
    Originally Posted by diamond79 View Post
    I do still get the tingling/burning feeling esp. at night or when my hands and feet have been cold and start to warm up. I noticed yesterday under the light the skin under my fingernails (nail beds I guess you would call them?) were blue!!?? I am assuming my circulation is very poor in my hands and feet! I also have real bad fingernails that have lines and craters in them which I showed my dr. and he asked me if I slammed them in a door or something! (I didn't by the way).
    diamond79-Hi! I have tingling/burning sensations in my hands and feet (and sometimes the tip of my nose and ears), particularly when they get cold. While I am severely anemic, those symptoms are not from it, they are because I have Raynaud's Phenomenon which the anemia happens to worsen at the moment. Raynaud's Phenomenon can occur in 2 varieties, primary (you don't have any underlying condition causing it so it is occurring on its own) and secondary (normally caused by an underlying autoimmune disease like arthritis, scleroderma, or lupus, or other diseases like thyroid problems)

    I have the secondary type, caused by some sort of arthritis (we can't figure out which one). My nail beds often have this purplish color to them and my hands are cool to the touch most of the time. When they get cold (either from the weather, or sticking them in the freezer to get ice) or I get anxious or upset(which makes my hands turn clammy and cold), my fingertips go through the following changes:

    1.They turn pale or white and start to feel numb (as the blood vessels in them constrict and blood flow is reduced).

    2.The purple tone deepens, sometimes to blue (this is because of prolonged oxygen deprivation from lack of blood flow). At this point sometimes they go completely numb, depends on how cold they are. They will stay that at this stage until I warm them up.

    3.When they warm up they start to tingle/burn as the blood rushes back into the them and the skin turns red/pink.

    The white/blue/red 3 phase changes are very characteristic of Raynaud's. Both my fingers and toes do this...I have a hard time keeping them warm!

    My Rheumatologist told me that sometimes Raynaud's Phenomenon will show up before the underlying autoimmune/rheumatic disease shows up in blood work. It's not anything dangerous (the secondary form is usually milder than the primary form), just a sign that you might want to be checked out for an autoimmune or thyroid disease...especially if you have joint/muscle pain that doesn't go away when your anemia is improved.

     
    Old 03-09-2008, 10:30 AM   #13
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    Re: New ferritin results...hmmmm!!!

    corgee21--You explained my hands to a T! Whenever they get cold (which is like 95% of the time) they go through all those stages you mentioned. I went snowmobiling with hubby about a month ago and BOY did they hurt like mad. I took my gloves off (I was wearing 2 pairs) when I got home (by this time they were completely numb) and tried to warm them up. Once they started to they began to tingle/burn and then turned bright red. Same thing happens when I step out of the shower, feet tingle/burn and are bright red. If I take anything out of the freezer--just walking from freezer to counter it is painful.
    I have never heard of Raynaud's Phenomenon before. Very interesting. I thought I just had poor circulation. I was checked for Thyroid problems like I mentioned before, other than that I have not been checked for any other AI diseases. Maybe that will be next on my list. Thank-you so much for that info, will have to read up on that.

     
    Old 03-10-2008, 10:40 PM   #14
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    Re: New ferritin results...hmmmm!!!

    Quote:
    Originally Posted by diamond79 View Post
    corgee21--You explained my hands to a T! Whenever they get cold (which is like 95% of the time) they go through all those stages you mentioned. I went snowmobiling with hubby about a month ago and BOY did they hurt like mad. I took my gloves off (I was wearing 2 pairs) when I got home (by this time they were completely numb) and tried to warm them up. Once they started to they began to tingle/burn and then turned bright red.
    Yes, I've read that people with Raynaud's Phenomenon are at a higher risk for frostbite because the blood flow to their digits stops sooner than in other people, so the tissues start to become damaged from the cold faster. Next time try carrying those hand warmers in your pocket to help warm up your hands. Won't help the pain, but may keep them from getting too cold too fast.

    Cheers!

     
    Old 03-11-2008, 04:58 AM   #15
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    Re: New ferritin results...hmmmm!!!

    corgee? do you own a corgi? that happens to my hands too..extremely painful..what do you do for relief?

     
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