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gemini123 02-26-2009 06:47 AM

Re: Ferritin and dizziness/balance
 
[QUOTE=tibby2;3898715]hi mac.i stop feeling dizzy at around 40 and above.tho I still have other symptoms mildly. I recently got up to 57.the highest its been,for around 18 months.i was ok there,but know I could have felt bettter.
frankly,this ferratin / period stuff is starting to get me down big time,and i wondered if anyone has the problem of their ferratin constantly going up and down due to extremely heavy & irregular periods?i have been on iron for about 18 months ,yet even with the suplimentation after every bleed,i am left pale,& ill, the change in me after yet another period is quite dramatic.does anyone else expierience similar issues?I have bled heavily for ten days,after the feratin result of 57 and feel terrible now,am breathless,anxious,(even though i am quite happy!)low energy,foggy headed,aches and pains ,wobbly , head & sinus pain,digestion stuff.
this is all so tedious,as its very disruptive to my life...i am hoping to find a salution in the merena coil soon..would so apprieciate any feed back..[/QUOTE]


Hi Tibby i am goining to have the coil fitted too in a couple of weeks, i am hoping it will stop the bleeding which the docs say is the cause of me losing iron. I only bleed heavily for 2-3 days but they say it is enough to make the difference.

tibby2 02-26-2009 07:52 AM

Re: Ferritin and dizziness/balance
 
[QUOTE=gemini123;3899390]Hi Tibby i am goining to have the coil fitted too in a couple of weeks, i am hoping it will stop the bleeding which the docs say is the cause of me losing iron. I only bleed heavily for 2-3 days but they say it is enough to make the difference.[/QUOTE]

hey gemini,thankyou for replying.yeah,i have been told by lots of women that the merena has literaly changed their lives,and that I should have one,i am soooo ready for my life to change! god luck with yours,keep me posted!

tibby2 02-26-2009 08:56 AM

Re: Ferritin and dizziness/balance
 
[QUOTE=Mac2;3899249]Hi Tibby2

Nice to hear from you. I don't know if you have picked up on my other posts but my ferritin which was tested a couple of weeks ago after taking supplements for 5 months was only up to 22! I am still feeling like c*** and have been off work for 4 weeks with terrible dizziness and balance problems. Life sucks! Can't wait to get up to a level of 50 and see if I feel any better.

I think that an attack of Labyrinthitis started all my problems. That lasted six months and occured 4 years ago. I have always, since 13 years old had heavy periods. They used to last seven days but in the last few years have only lasted 3 days but have been really heavy. So, I think my ferritin levels may have been low for years before this attack of Labyrinthitis (ear virus which actually causes dizzines, balance problems, anxiety etc.). Obviously when I got this ear stuff, my body would have tried to dip into my iron reserves to help me recover and they just weren't there. Since I was first ill, I completely changed my diet to a good healthy one with lots of veg, fruit etc. I think this is why I am not actually anaemic. So, the battle rages on - every time I get a silly little cold or something the dizzies take over my life. I also think that this is not still Labyrinthitis (which my docs insist it still is), because a) they have never found anything wrong with my ears, b) I have not suffered from anxiety since the first attack (which is classic with inner ear disorders) and c) it is very rare to keep on suffering like this with Labs (4 years now).


In answer to your question, I have seen it mentioned lots of times that ferritin levels go up and down but I don't know what causes that. I know that when I have my period I am like death warmed up and feel so tired. I'm not good at knowing when I am actually due but I can tell because the day before it comes I am so unbelievably tired. This lasts till a few days after it is over and then I start to feel normal


mac,thanks for replying .It really is such a drag this stuff isn't it..I really find it interesting the way the balance stuff goes with it,i have read a lot of that,& also expierience it..i don't think it has anything to do with ears to be honest.,another thing for the doctors to fob you off with when they just don't have a clue,and don't want to waste time & money on you.they will also say you don't have symptoms with low ferratin,but I have all the symptoms of aniemia,untill my levels come up again.,like yourself,i feel awful,during bleeds and for about a week after,how im feeling is reflected in my palid complexion.. ..my periods went wrong around the time my iron dropped to next to nothing,and I believe its the ongoing defficiency puting them out of whack.it can't be particularly good for us physicaly or mentaly to be defficient for so long.
on a lighter note!i really do think you will feel much better,when your levels get past around 40 or so,like I mentioned,at 57 I felt so much better.i think a level of 100 & over would be optimal though.seems like a long way away at the moment.!good luck with getting your levels back up mac.

Mac2 02-27-2009 05:27 AM

Re: Ferritin and dizziness/balance
 
Thanks Tibby2

Yeah the period thing is ghastly. I am a blonde, with fair skin anyway so I just look like the walking dead at period time! My periods were way out of sync last year, so much so I thought I was in menopause, but now for the last few months I have been like clockwork, so just goes to show my body was starting to fall to pieces.

So, does you dizziness and balance actually feel better when you get your levels higher. Does it totally go away or is it just less for you? I've probably already asked you this question but please humour me, I need constant reassurance, lol!

Thanks

Mac2

tibby2 02-28-2009 04:26 AM

Re: Ferritin and dizziness/balance
 
[QUOTE=Mac2;3900569]Thanks Tibby2

Yeah the period thing is ghastly. I am a blonde, with fair skin anyway so I just look like the walking dead at period time! My periods were way out of sync last year, so much so I thought I was in menopause, but now for the last few months I have been like clockwork, so just goes to show my body was starting to fall to pieces.

So, does you dizziness and balance actually feel better when you get your levels higher. Does it totally go away or is it just less for you? I've probably already asked you this question but please humour me, I need constant reassurance, lol!

Thanks

Mac2[/QUOTE]

Mac,.it totaly goes away! I feel dizzy for the first time in months since that ten day heavy bleed.my ferratin dropped from 43 to 20in the space of a month recently,which gives you an indication of why its so difficult to build it up and keep it up..i am becoming more convinced now,that its the dropping prosess of the ferratin that causes the problems.especialy the sudden drops.its like your body is going into mild shock evrey time.some of the symptoms even feel like shock.
feeling spaced out etc.... Im sure its the case as I still feel awful with the drop even when my levels are a bit higher.& I can literaly feel the life draining out of me along with the blood.I was going to have the merena,but have now read loads of horror storries,since I don't get on with the pill,i just can't se how the coil could be any different. I am longing to stop these periods now,as im starting to become scared of them! anways Mac,.I really think your dizzies are down to your very iron.and they will go,as soon as you are able to get them up,!

Mac2 02-28-2009 08:02 AM

Re: Ferritin and dizziness/balance
 
Hi Tibby2

That is so encouraging. I can't wait. I have started taking a much higher dose of iron in the last few days and yesterday and today I have felt great - no dizzies!!! I know this is too much of a coincidence with taking the extra iron and it taking effect so quickly but it feels so good. I haven't actually felt as good a this for about 2 years. Long may it continue!!

I too have had serious problems with the pill and was only able to take it for about two years a very long time ago (I'M 48). As I have always been a heavy bleeder I was offered a hysterectomy a few years back which I refused to have. I was also offered the coil as a form of contraception years ago but was told I couldn't have it because my periods were so heavy. This made me wonder why you had been offered it but I don't know anything about it anyway!

To think I was told about all this ferritin stuff by chance just because I got chatting to one of our regular customers at the shop where I work. I have been told for years that it is my ears even though there is NOTHING to back that up. Ooooh, I can't wait to get these levels boosted and get back to the land of the living:)

Thanks again for your input.

Mac2

tibby2 02-28-2009 09:38 AM

Re: Ferritin and dizziness/balance
 
[QUOTE=Mac2;3901798]Hi Tibby2

That is so encouraging. I can't wait. I have started taking a much higher dose of iron in the last few days and yesterday and today I have felt great - no dizzies!!! I know this is too much of a coincidence with taking the extra iron and it taking effect so quickly but it feels so good. I haven't actually felt as good a this for about 2 years. Long may it continue!!

I too have had serious problems with the pill and was only able to take it for about two years a very long time ago (I'M 48). As I have always been a heavy bleeder I was offered a hysterectomy a few years back which I refused to have. I was also offered the coil as a form of contraception years ago but was told I couldn't have it because my periods were so heavy. This made me wonder why you had been offered it but I don't know anything about it anyway!

To think I was told about all this ferritin stuff by chance just because I got chatting to one of our regular customers at the shop where I work. I have been told for years that it is my ears even though there is NOTHING to back that up. Ooooh, I can't wait to get these levels boosted and get back to the land of the living:)

Thanks again for your input.

Mac2[/QUOTE]
trust me,doctors use the ear crap for everything!.i did a rapid withdrawal from benzodiazepines 3 years ago,and one of the many terrible symptoms I had were vertigo attacks,of course it was all to do with my ears & nothing to do with the nuero damage the drugs did..or the damage they did messing up my cycle,causing me to become deficient of iron.
I am 34 btw,and nowhere near menapause.always been regular on the dot,tho heavey untill about 18 months ago. when everything suddenly went hay wire.and was diagnosed with this defficiency..nothing to do with ears!lol.that's really great,about how your feeling..we are not ever gona overdose on iron till we stop having periods,so we may as well get it down us!..

Mac2 03-01-2009 03:26 AM

Re: Ferritin and dizziness/balance
 
Hi Tibby2

Feeling slightly off today but maybe I overdid it yesterday. I went for a 4 mile walk and I think I feel a bit tired today so maybe that's it. Using up my ferritin, lol! But, I do only feel slightly off - nothing major so that's good. It was such a nice day yesterday I had to get out and get some air, I have been stuck indoors for nearly six weeks battling this latest onslaught of dizziness/balance it sends me stir crazy.

Also, I have been a little cautious about taking too much iron and have not been taking nearly enough, lots of the ladies on here told me so. But now that I have had a test and only gone up by 12 points, I know I can safely take more.

Mac2

tibby2 03-01-2009 07:13 AM

Re: Ferritin and dizziness/balance
 
[QUOTE=Mac2;3902708]Hi Tibby2

Feeling slightly off today but maybe I overdid it yesterday. I went for a 4 mile walk and I think I feel a bit tired today so maybe that's it. Using up my ferritin, lol! But, I do only feel slightly off - nothing major so that's good. It was such a nice day yesterday I had to get out and get some air, I have been stuck indoors for nearly six weeks battling this latest onslaught of dizziness/balance it sends me stir crazy.

Also, I have been a little cautious about taking too much iron and have not been taking nearly enough, lots of the ladies on here told me so. But now that I have had a test and only gone up by 12 points, I know I can safely take more..

Mac2[/QUOTE]

it will be perfectly safe to take the highest dose you can.overdose is extremely unlikely .as you are still bleeding. don't forget the range is anything from 10-200 so you have plenty of leeway. that's teribble you've been stuck indoors with that stuff,i do know how it feels.!.I am in bed myself today because of it..also bad headache. & sinus type pain.,do you get any other symptoms apart from the dizziness mac?

Mac2 03-02-2009 08:00 AM

Re: Ferritin and dizziness/balance
 
Hi Tibby2

I felt really off again this morning but better this afternoon. My symptoms are as follows

1. Dizziness
2. Balance problems where I feel I am going to fall over
3. Fatigue
4. Palpitations on and off
5. Brain fog
6. Headaches
7. Itchy skin
8. allergies - I don't know if this is connected
9. asthma worse

I think that might be it for now!!

Sorry to hear you are in bed today. Hope you feel better soon. Did you ever suffer from the balance problems?

Mac2

tibby2 03-02-2009 09:34 AM

Re: Ferritin and dizziness/balance
 
[QUOTE=Mac2;3903999]Hi Tibby2

I felt really off again this morning but better this afternoon. My symptoms are as follows

1. Dizziness
2. Balance problems where I feel I am going to fall over
3. Fatigue
4. Palpitations on and off
5. Brain fog
6. Headaches
7. Itchy skin
8. allergies - I don't know if this is connected
9. asthma worse



yes,Mac,.severely. but i think it started from the drug withdrawal.I was so bad I had to shuffle along the walls to get from one room to the other .couldn't go out some days etc.. I have the double whammy of that & the low iron.. these days I feel fine except for around & on my period,since I began the iron. I rarely get particularly dizzy now...but have noticed it slightly the last few days. because of rediculas bleeding. I know for sure its down to that .i get all your symptoms apart from the asma
even itchy scalp sometimes. I also go really pale on & around my period ,& breathless,anxious,bloating,& spaced out,oh also blood sgar issues... its a joy eh mac.! I am feling a bit better today...oh & don't know about you,but my body seems to respond to the iron better if I take it at the same times evey day & always with some form of vitality c....

Mac2 03-03-2009 08:32 AM

Re: Ferritin and dizziness/balance
 
Hi Tibby2

Isn't this just amazing. That's exactly what I am like, need support when walking outside and grabbing onto stuff at my worst times. It's quite funny really when you have a 'turn' and have to grab onto someone and they are not expecting it!
Funny you should say about the blood sugars as well. I don't have a problem with my sugars, you know when you do the test, mine are always perfectly normal, but I do need to eat at certain times of the day. I need something at about 10.30, (piece off fruit or a couple of crackers), and then I have to have an early lunch otherwise I feel like I am going to pass out. So, there is definitely something going on there. Got the dreaded period today, heads totally gone. Will bump the iron up over the next fews days, don't want my precious ferritin draining away - lol!

Can I just ask - in an earlier post you said that your ferritin dropped from 43 to 20 in the space of a month. Why do you think that was? Was there a reason why you had two ferritin tests within the month?

Glad to hear you are feeling better today :)

Mac2

tibby2 03-03-2009 10:57 AM

Re: Ferritin and dizziness/balance
 
[QUOTE=Mac2;3905325]Hi Tibby2

Isn't this just amazing. That's exactly what I am like, need support when walking outside and grabbing onto stuff at my worst times. It's quite funny really when you have a 'turn' and have to grab onto someone and they are not expecting it!
Funny you should say about the blood sugars as well. I don't have a problem with my sugars, you know when you do the test, mine are always perfectly normal, but I do need to eat at certain times of the day. I need something at about 10.30, (piece off fruit or a couple of crackers), and then I have to have an early lunch otherwise I feel like I am going to pass out. So, there is definitely something going on there. Got the dreaded period today, heads totally gone. Will bump the iron up over the next fews days, don't want my precious ferritin draining away - lol!



Can I just ask - in an earlier post you said that your ferritin dropped from 43 to 20 in the space of a month. Why do you think that was? Was there a reason why you had two ferritin tests within the month?

Glad to hear you are feeling better today :)



well hello mac!. i had the test as i routinely moniteri my ferratin levels occasionaly. at that point it was on 43 ,high for me,because i had been treating myself properly & regularly with iron, & vitamin c for once! lol.anyway,after i had that test ,i had a period.. my periods are never just periods,they are heamorrages .& low & behold became inreasingly ill,it just crept up on me.. i felt like a mess ,shaky,pale,sweaty ,sleeping all the time .was even told i had m.e! i asked them to test my ferratin on advice of a friend who knows about my iron thing. & it had droped by 23 units ,within four weeks of the first test.,the cause was the one period.It took a couple of weeks or more to build it back up again... this is an ongoing issue for me,which is sometimes made worse by me being lax with the pills,running out etc. i would be dead without a doubt if i didnt just have that iron holding me through bleeds.but thats all it does really. getting the levels up & staying up will be impossable,while im still having periods like i do.!
anyways, keep getting your levels up & I bet your dizzeness will start to trail off .!will be interested to see how you go mac !
Mac2[/QUOTE]

Mac2 03-04-2009 08:27 AM

Re: Ferritin and dizziness/balance
 
Tibby2

You are naughty aren't you - you must take better care of yourself!!

It is like a regime for me now taking this iron all the time. My hubby is always on my back, making sure I have taken it.

I have been extra dizzy today but managed to do my main shop in asda, that's a nightmare in itself even for normal people! But, this is the worst day of my period when I am really flooded, so I feel more dizzy. Also been to the hospital with my youngest daughter, and I usually do not feel good at all in there - children's ward, hot and stuffy, kids crying - but I was OK.

Take care and take that iron:)

Mac2

Fatigue 03-17-2009 07:50 AM

Re: Ferritin and dizziness/balance
 
Hi,

What kind of specialist can I see for fatigue? This has been going on for years. I have been to:
1) My family Dr who is also a GYN. She did blood tests and said Im fine.
2) Went to a diet center Oct. 2008 to find relief with b12 shots. They did blood test and gave me the iron supplement Repliva 21/7. I feel alot better BUT, there is this underlying fatigue. I took the iron for 3 months and they took me off. I crashed a week later. Very short of breath. No energy. It even seemed to trigger feelings of anxiety. Maybe because I was so short of breath! So the diet center put me back on Repliva and I feel much better! The recommended a Hematologist.
2) I went to a Hematologist March 6 2009: She drew 7 vials of blood. Checked hormones, Thyroid, iron and more i guess. She said my iron was good but on the low side and to keep taking Repliva. And that is all the knowledge that she had! DID NOT MENTION FERRITIN UNTILL I ASKED! She said it was low.

I need a specialist that helps people specifically with low Ferritan OR at least Fatigue. I mean, I am just guessing the FERRITAN is the problem.

ANY knowledge that you have would be helpful. Thank You


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