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  • doctor has made an appt to discuss my ferritin levels

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    Old 02-05-2009, 03:13 AM   #1
    becky1
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    doctor has made an appt to discuss my ferritin levels

    I have Graves Disease and in March 2005 was told that my FE was 13. RThey have since then refused to test my FE; until last week I went to the doctors about PMS and then, I asked again for it to be tested.

    Now, I have gotten a phonecall to make an appt and go and see them to discuss the results.

    What is the chance that these results would have improved without iron supplements.

    Becky
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    Old 02-05-2009, 08:16 AM   #2
    herekittykitty
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    Re: doctor has made an appt to discuss my ferritin levels

    Quote:
    Originally Posted by becky1 View Post
    I have Graves Disease and in March 2005 was told that my FE was 13. RThey have since then refused to test my FE; until last week I went to the doctors about PMS and then, I asked again for it to be tested.

    Now, I have gotten a phonecall to make an appt and go and see them to discuss the results.

    What is the chance that these results would have improved without iron supplements.

    Becky
    XX

    Probably not a great chance of noticeable improvement without iron supplements unless what was causing the low iron in the first place has been fixed.

     
    Old 02-05-2009, 04:48 PM   #3
    FLFLOWERGIRL
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    Re: doctor has made an appt to discuss my ferritin levels

    Probably not. It sounds like they may want to discuss a low ferritin. At least that has been my own personal experience. Best of luck to you. FLFLOWERGIRL

     
    Old 02-06-2009, 01:35 AM   #4
    Audrey-B
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    Re: doctor has made an appt to discuss my ferritin levels

    becky1 - i also don't believe your stores would have gone up. Anything is possible, but more likely they've gone down.

    I have Hashimoto's myself. A lot of thyroid sufferers have issues with low ferretin and difficult to raise ferretin, just like they tend to have a low Vit D and a tendancy to be either gluten intolerant or Celiac. Gluten intolerances can cause you to not be able to absorb iron readily too.

    Do you see and Endo? if so, does he/she order and routine blood tests for you? My thyroid doctor does all the full thyroid panel, ferretin, Vit D, adrenal cortisol levels, ACTH. I do this test every 6 weeks as he's still tweaking my thyroid meds to suit my situation, so he monitors everything else along with it.

    Back in march 2005 when you were 13 and they refused to test you, you ought to have continued taking daily supplements and/or found another doctor. It's sad doctors don't take this ferretin business seriously, especially as a higher ferretin and vitamin D is healthy for the thyroid.

     
    Old 02-08-2009, 01:38 AM   #5
    becky1
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    Re: doctor has made an appt to discuss my ferritin levels

    My FE level came back as a 7 and have now been put on Iron supplements. Which I hope do help, but am not thinking its going to be a 'quick' solution!! These things take time; so I have heard.

    They are now testing me for PCOS because of irregular periods. They run from anything between 21days to 31 days and cause a myraid of physical symptoms. Had to dodge the antideppresants that they tried to disk out, when I went in and had my first appt.

    They tried to convince me that none of it was physical and that it was an anxiety thing. Apparently once I sort that out, I will be fine!! But right now, I am the best I have been in years and I really feel stablised in every area of my life!

    I have had my problems OCD and depression, but that was way about in 2002and I thank my lucky stars that I got through that and am now able to continue my life in a much more positive way!!!

    The prob is where I have anxiety on my medical notes, that tends to be the first thing that they look at when I walk in, I am sure.

    Becky

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    Old 02-08-2009, 01:45 AM   #6
    becky1
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    Re: doctor has made an appt to discuss my ferritin levels

    Yes, I am aware that thyroid sufferers very commonly have depleted iron stores.

    Because I am now at a good place with my thyroid labs, I have to get them done every six months just to keep an eye on them. Then if all is well next month, I will start doing them every year. I am happy with this, because its taken almost 18 months post op from my thyroidectomy to get here!!

    I am sorry to hear that you have Hashimotos. I do hope that they are giving you the right treatment to get you back on the straight and narrow road to recovery.

    Back when I first had my FE tested, it wasn't really spoken about and to be honest I was hesitant in starting Iron supps because I know that that would have needed close monitering also and the chances of me getting that, wouldhave been minimal.

    Thank you so much for your help!

    Becky

    XX
    Quote:
    Originally Posted by Audrey-B View Post
    becky1 - i also don't believe your stores would have gone up. Anything is possible, but more likely they've gone down.

    I have Hashimoto's myself. A lot of thyroid sufferers have issues with low ferretin and difficult to raise ferretin, just like they tend to have a low Vit D and a tendancy to be either gluten intolerant or Celiac. Gluten intolerances can cause you to not be able to absorb iron readily too.

    Do you see and Endo? if so, does he/she order and routine blood tests for you? My thyroid doctor does all the full thyroid panel, ferretin, Vit D, adrenal cortisol levels, ACTH. I do this test every 6 weeks as he's still tweaking my thyroid meds to suit my situation, so he monitors everything else along with it.

    Back in march 2005 when you were 13 and they refused to test you, you ought to have continued taking daily supplements and/or found another doctor. It's sad doctors don't take this ferretin business seriously, especially as a higher ferretin and vitamin D is healthy for the thyroid.

     
    Old 02-08-2009, 01:46 AM   #7
    becky1
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    Re: doctor has made an appt to discuss my ferritin levels

    Quote:
    Originally Posted by FLFLOWERGIRL View Post
    Probably not. It sounds like they may want to discuss a low ferritin. At least that has been my own personal experience. Best of luck to you. FLFLOWERGIRL
    Thank you for your well wishes

    Hope to chat soon

    Becky

    XX

     
    Old 02-08-2009, 01:48 AM   #8
    becky1
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    Re: doctor has made an appt to discuss my ferritin levels

    Quote:
    Originally Posted by herekittykitty View Post
    Probably not a great chance of noticeable improvement without iron supplements unless what was causing the low iron in the first place has been fixed.
    Hi

    Thank you for your opinion on this. As you can see from my other posting, I have now got an FE of 7. But am not anemic so the doctor thinks. My range is 11-107.

    Do you think 7 is anemic or borderline?? I know that seems a silly question, but do you have to have no iron stores, inorder to be anemic or just low iron stores??

    Thank you

    Becky

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    Old 02-09-2009, 01:58 AM   #9
    Audrey-B
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    Re: doctor has made an appt to discuss my ferritin levels

    when your hemoglobin falls below a certain figure they will pronounce you to be anemic, so you need to look at your hemoglobin levels, not just ferretin.

    Regardless, ferretin of 7 is very low. The higher you can get your iron the better. Both my current thyroid doctor and my previous doctor want my ferretin up to 125 minimum, but up to 150 is their goal. If you want to understand just how important ferretin is you can read what my previous doctor has written about it. He is a Trichologist (hair/scalp specialist) as i was shedding hair from a combo of low ferretin and my undiagnosed thyroid condition. His name is Dr Tony Pearce and you can read about him on the net.

    If you ferretin moves as slowly as yours does, you would only need a recheck every 3 - 4 months. In hindsight i believe i could have done a recheck every 6 months as mine was moving so slow.

     
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