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    Old 04-04-2009, 03:59 AM   #1
    Mac2
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    dizziness worse

    Hi

    Tibby2 - are you still around or anyone else who has an answer!

    I have been taking iron supplements for appx 6 months now and don't know what my ferritin levels are at the moment but when last tested appx 2 months back they were at 22.

    I am still having awful dizzy spells and have been unable to work for a couple of months because of the dizziness and balance problems. My period was due last weekend and has not appeared as yet but the dizzy spells have multipled over the last three days and I feel like cr*p. Also, fatigue has worsened.

    Tibby, I know you have had the same problems as me but I just wanted to ask - did you have good days and bad days like this. Some days I can be almost symptom free and other days I can hardly bear to stand, I get so dizzy.

    Feeling a bit sorry for myself at the moment though the sunshine is helping a little

    Mac2

     
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    Old 04-07-2009, 05:54 AM   #2
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    Re: dizziness worse

    If you have been in the iron supplements for 6 months you ought to get retested. by the sounds of your symptoms it doesn't sound as though your iron has risen much, but then again the symptoms could be part of something else entirely different.

    I would go to the doctor and mention your symptoms and ask for a retest.

     
    Old 04-07-2009, 08:08 AM   #3
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    Re: dizziness worse

    Thanks Audrey

    I do have a few things going on - I have been told it is my ears causing the dizziness etc but have not been given a definite diagnosis even after many visits to ENT. Also I have severe allergenic rhinitis and my nasal passages are very swollen. If it is my ears causing these symptoms then this would have an effect. I am just clinging to the hope that it is being caused by the low ferritin so I can see some light at the end of the tunnel! I should be seeing a GP next week with regard to the ferritin so maybe I shall get a test then.

    Mac2

     
    Old 04-07-2009, 08:55 PM   #4
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    Re: dizziness worse

    Mac2--Not Tibby2 here but would like to say hello.

    When you see your GP you should also ask about Vertigo, it kind of sounds like you may be experiencing this. If so, there are meds that you can take to stop it and there are even PT exerices that you can also do. If you do a search you can read about it.

    I think that the ferritin symptoms are mostly fatigue, but again, this is different for everyone. Although many doctors think that there are no symptoms with a low ferritin. I wonder if any of them have ever had no/low ferritin. Perhaps it is the low iron for you that is giving so many symptoms. I know I had many of your same symptoms, and I too would have good days and bad days. The worst were the days with excess iron loss due to heavy periods. Even my leg muscles would get weak. Feel better and keep us posted. FLFG
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    Old 04-08-2009, 05:55 AM   #5
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    Re: dizziness worse

    Mac2 - do you suffer seasonal allergies? I get that in the spring and badly if i don't take a prescription nasal spray. I have never experienced the dizzyness though. The only times i've had dizzyness is when i've had slightly elevated blood pressure due to my adrenal fatigue medication. I personally never even had dizzyness when my ferritin was very low.

    I think best thing is to get a retest and see exactly where your ferritin is at. Your doctor could be right and it could be your ears as a result of your allergies, but it just might have something to do with low ferritin. Until some testing is done we are only guessing.

     
    Old 04-08-2009, 11:16 AM   #6
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    Re: dizziness worse

    Hi

    FlFlowergirl - I've had the dizziness and yes I do suffer from vertigo too, for 4 years now and have been to the ENT many times and been given all the exercises to do and all to no avail. I also have medication for the vertigo and balance problems I have but they have serious side effects if taken for too long, so I try not to take them as all they really do is mask the problem as they dull the brain. There's really not much I don't know about all this stuff when related to the inner ear!

    Audrey - I do suffer allergies but not seasonal - mine are all year round. My nasal passages are seriously swollen and as we know the ear nose and throat are all connected so this could be the reason my dizziness etc gets worse - because of what is going on in my head. I am using a nasal spray at the moment then will probabaly move to steroids once seen (again) by the ENT.

    My ferritin was tested only 6 weeks ago and was at 22. I will be seeing my doctor next week and see what she says. She was loth to give me any more iron pills at my last appointment so maybe she will put me in for another test. In my practice, the doctors do not seem to think that having low ferritin is a bad thing.

    My thinking is that once I get my nose sorted out and get my ferritin up then my ears may have a chance of recovering! Maybe I have just not been able to recover fully from the first attack of Labyrinthitis (inner ear virus), because my body has been so run down.

    Thanks ladies

    Mac2

     
    Old 04-09-2009, 11:03 AM   #7
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    Re: dizziness worse

    Hi Mac2,
    This is still new to me, but I didn't have dizziness and my iron was 1 and Hgb was 6.5.
    Everyone is different.

    I also have low thryoid.

    So far that is all that I have, except for acid reflux. Which I didn't know I had.Knew I had indigestion, but didn't know it was that.

    Keep us posted, would like to know out come.

    Be praying for you.
    Hugs, DianaRo4

     
    Old 04-10-2009, 06:54 AM   #8
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    Re: dizziness worse

    Hi Diana

    Thanks for your reply.

    I know that mostly the symptoms of low iron are fatigue and hair loss which I do have. But, I know personally a lady who had the exact same symptoms as me and found out she had low ferritin. She then took a course of iron pills and her dizziness went away. Also, if you type 'low ferritin and dizziness' into one of the search engines, loads of stuff comes up saying that dizziness is a symptom and lots of people post on different messageboards with similar symptoms as me.

    I am just keeping my fingers and everything else crossed that this is what is wrong with me because I am so sick of being dizzy and off balance. My quality of life is severely affected by all this. My sister has been visiting with the kids over easter and I haven't been able to do anything with her. It rules my life.

    One thing I am noticing while taking the iron is that my nails are now not as hard as they used to be - they seem softer.

    I am also hoping that if this dizziness is not a symptom of low ferritin, then as my levels get higher it might just cure whatever it is that is causing it!!! Oh, that would be so nice - a life

    Take care everyone.

    Mac2

     
    Old 04-13-2009, 05:21 AM   #9
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    Re: dizziness worse

    Mac2 - re your all year round allergies......... my mother had that for a few years, she did all manner of testing for allergies and the only thing they could come up with was 'mould'. Now my mum is extremely house proud and her home is spotless, she keeps it clean, airs it out etc etc, but she had this weird allergy. I got her to wash her nasal passages out each morning with salt and water. This was something i learnt in a yoga class. This helped her a lot.

    I then told her to go back to basics and only eat what she cooked herself, which she does anyway, but this time i got her to cut out all gluten products for a month or so, then introduce gluten, but cut out all dairy, then reintroduce that and cut out all caffeine etc etc etc.

    In the end she found out that a natural form of coffee she was drinking, made from barley, rye, chicory, malt and figs, was a BIG culprit. She was drinking this coffee as she felt it was better than caffeine type coffee. Well her runny, blocked nose and sneezing stopped. She went back to this coffee and it came back.

    She has also noticed that when she drinks even a little of commercially made wines that the nose issue comes back a bit.

    She has found out the long and hard way that she is most likely allergic to rye. She is possibly allergic to the preservative they put in commercially made wines too.

    So by doing food 'elimination' bit by bit to work out what she's eating on a daily basis is causing her problems she has worked it out for herself. Fancy that, after spending oodles of $$$'s on doctors and specialists she has cured herself!!!! The salt water nasal wash in the mornings was a big help too.

    At the time they diagnosed her with 'mould' issues, i took a look at the allergy section of the boards and there was some pretty good information over there. Some of those poor people were going through some awful times with their allergies and i did find out some interesting information on mould and it can be a tricky customer. Your house can seem clear of mould, but just one little constantly damp area, which you don't necessaryily even notice, can be causing all the problems.

    Regarding your iron, if your doctor wont give you anymore pills, can you buy some iron supplements yourself and go it alone without her say so??? ferritin of 22 is still low. May be not anemic, but at the very bottom of the range. You do need to be up higher.

    Hang in there, these things take time and i know how wearing it can get. I wanted to give up so many times and simply just give in, but seeing how much hair i was shedding forced me to not quit just as much as the great help and support i got from posters on here. You will get there, we'll make sure of it

    Last edited by Audrey-B; 04-13-2009 at 05:26 AM.

     
    Old 04-13-2009, 09:51 AM   #10
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    Re: dizziness worse

    Hi Audrey

    Talking about the hair shedding - oh, it's awful

    Everyone I mention it to has said they don't even notice it - even my husband!!! But - I DO! Every morning there is a nice lump in the plughole (I wash my hair daily). My little girl has been taking photos of me all day today with her mobile phone and I make her delete them all because of the thinning hair! Vain or what!

    Anyway, as for the mould in the house - I don't have a problem with that as my house is a new build and is very well aired evey day. I don't even have severe physical symptoms. My nose runs in the morning when I wake up and my eyes sting. I take my antihistamines and I am fine for the rest of the day. Although today, we have had beautiful sunshine and my eyes have stung a little, but, they have not really bothered me. This is the confusing thing for me, my GP says I have severe swelling of the nasal passages and nothing has pointed towards that for me in the past - i.e. lack of symptoms. The nasal spray she has prescribed for me which is just Beconase has helped in that my asthma symptoms have subsided and I am not using my inhaler as much. She said I was suffering from post nasal drip which causes the airways to tighten and bring on an asthma attack because of the phlegm blocking the airways.

    I also cook all my own food which is all organic and I don't eat fancy stuff. I just like plain food and I don't drink tea or coffee. And, I don't drink alcohol. God, I am sooooo boring!


    I have being reading a lot about this saline nasal wash and it seems to be having good results so that is one to watch.

    I am due at the doctors on Wednesday, mainly for the asthma but she said she will decide whether I can have more iron pills. I don't know what her problem is because I have only had two packs of the new higher strength ones (2 mths supply). I certainly can and will purchase my own if she refuses to give them to me.

    Dizzywise I have had a good couple of days as my period has come and I always feel better when it has actually come. So strange. Maybe it's just my hormones causing turmoil and making me dizzy for the rest of the month.

    Thanks for your support

    Mac2

     
    Old 04-16-2009, 04:59 AM   #11
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    Re: dizziness worse

    How long have you been using Beconase? I used to use that and then i began to get very slight amounts of blood when i blew my nose. My doctor then put me on one called Nasonex as it was supposed to be the "best of the best" in regards to not damaging the nasal membranes, which a lot of nasal sprays can do in the short/long term.

    Hmmm, that's odd that the dizzy spells go once you get your period. The PMS symptoms are many and varied and it could be linked to that.

    I'm really not sure what to suggest for your runny nose. Have you had allergy testing? I know my mum was allergic to a climbing jasmine which grew outside her house. Each time it flowered she'd get an allergic reaction. She chopped it all down and never had any problems up until the recent issues where she found out she had developed an allergic reaction to rye. There is a grass called rye grass which affects people too. Maybe your reaction could be due to a plant or grass. You only have to go outside for a moment and inhale the air to become affected.

    Hoping you find out what it is as it's very uncomfortable having to put up with something like that constantly.

     
    Old 04-16-2009, 10:24 AM   #12
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    Re: dizziness worse

    Hi Audrey

    I have only been using the beconase for a month and 2 weeks ago did have a very small amount of blood. I will definitely look into the Nasonex and will use that instead as I don't want to do any more damage up there!

    Where I live now and the house I lived in before this one are both surrounded by fields (in this house I back onto a field), so I can't really get away from that kind of stuff if it is causing my allergies. I haven't had any allergy testing but I am waiting for an appointment with the ENT - maybe they will do that.

    How long did you actually use your nasal sprays for?

    As for the dizzies, my period is over and they are back big time. I have been out shopping today and even though I felt great before I went, I felt awful while shopping.

    Mac2

     
    Old 04-17-2009, 04:29 AM   #13
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    Re: dizziness worse

    Hi Mac2 - having allergy testing might be a big help and shed some light on your allergy problem. Rye grass is a common offendor.

    I'm only affected during spring and early summer. Here in Australia it's the wattle trees which do it for me, while they are in flower i've got dramas. The problem is that there are so many varieties of wattle.

    I find i can often get away with only using the nasal spray once a week, but when it's really bad then i might take it every 2 days. I try not to overdo it as i don't trust these things. Like you said, i don't wish to cause additional problems.

    I first began using the Nasonex a few years ago when i heard it was the best thing on the market in regard to the nasal membranes. Who knows, there might be something even better available nowadays.

    Can't help you with the dizzyness issue, but it is most interesting how it comes and goes and is absent during your period.

     
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