It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Anemia Message Board

  • Low Iron & Ferritin - what to do???

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 04-14-2010, 01:15 AM   #31
    niknak71
    Junior Member
    (female)
     
    niknak71's Avatar
     
    Join Date: Feb 2010
    Posts: 14
    niknak71 HB User
    Re: Low Iron & Ferritin - what to do???

    Quote:
    Originally Posted by ngnancy123 View Post
    where do you buy yellow dock tincture? i went looking at whole foods and couldn't find them.

    I bought my yellow dock from the suppliers below. They specialise in herbal tinctures. What may work for some people may not work for others but all I can say is this seems to have helped with me along with my tablets, drinking orange juice for absorption and blackstrap molasses, also liver twice a week!

    G Baldwin & Co
    < edited >

    Hope this helps!

    Last edited by hb-mod; 04-14-2010 at 05:29 AM. Reason: Please do not supply contact information for a commercial business

     
    Sponsors Lightbulb
       
    Old 04-14-2010, 03:10 PM   #32
    ngnancy123
    Newbie
    (female)
     
    ngnancy123's Avatar
     
    Join Date: Apr 2010
    Posts: 2
    ngnancy123 HB User
    Re: Low Iron & Ferritin - what to do???

    Thanks for your reply. I'll give it a try.

     
    Old 05-10-2010, 04:09 PM   #33
    Numpy
    Junior Member
    (female)
     
    Numpy's Avatar
     
    Join Date: Feb 2010
    Location: Michigan
    Posts: 38
    Numpy HB User
    Re: Low Iron & Ferritin - what to do???

    Well, I had my blood tested again a couple of weeks ago and finally got the results today and I'm not encouraged at all. My iron is 12.6 and my ferritin stayed a 6 and this is after taking 3 of the "super" iron pills/day (Bifera). These pills are supposed to be the equivalent of transfusions and people normally respond when taking one pill/day. I just don't understand why nothing is changing for me. I honestly thought my levels would have soared by now!!

    My gastro doc isn't concerned at all, which really ticked me off!! I want to know WHY this is happening. Where is the blood going? Why am I losing it?? The nurse said the doc thinks it's because of my monthly period that this is happening and my OB/GNY doc said no, she doesn't think so..... She encouraged me to go to a hematologist to get to the bottom of this, the cardiologist I saw early April told me to see one and my GP doc told me I need to see one, too, so I am finally taking their advice. I asked the nurse if my gastro doc would give me a referral to a hematologist and she said she would check with him and let me know but she didn't think it would be a problem. It better NOT be!! I'm tired of dealing with this!

    Sorry to vent--I'n sure others have been in this situation. I just wonder why a doctor wouldn't want to get to the bottom of it! I know my iron isn't really that bad, but my ferritin IS and I'm starting to really see the results. My hair is getting pretty thin in places.

    For those of you that have seen a hematologist, please tell me they were finally able to get the answers you needed?!? That's my prayer--that someone can figure this out and get me back to normal.

    -Wendy

     
    Old 05-11-2010, 02:10 AM   #34
    niknak71
    Junior Member
    (female)
     
    niknak71's Avatar
     
    Join Date: Feb 2010
    Posts: 14
    niknak71 HB User
    Re: Low Iron & Ferritin - what to do???

    I know exactly how you feel, I was diagnosed with low ferritin on 26 Jan (4) together with low iron (6) and low hemoglobin (113). I started taking 325mg of ferrous fumerate, floradix, blackstrap molasses and an iron rich diet and on 1 April had another test and my ferritin was (23), serum iron (16.7) which is within the normal range) and hemoglobin of (132) again which is in the normal range. The doctor said that basically the hemoglobin goes up first, then the serum iron which is in your blood then you start building up your stores.

    I'm not saying that all supplements work for everyone but its worth a try. I know my hair is thinning and so I'm pressing on with the tablets, blackstrap and floradix to see what happens at the next blood test in June.

    Fingers crossed,

     
    Old 05-12-2010, 05:26 PM   #35
    Numpy
    Junior Member
    (female)
     
    Numpy's Avatar
     
    Join Date: Feb 2010
    Location: Michigan
    Posts: 38
    Numpy HB User
    Re: Low Iron & Ferritin - what to do???

    Quote:
    Originally Posted by niknak71 View Post
    I know exactly how you feel, I was diagnosed with low ferritin on 26 Jan (4) together with low iron (6) and low hemoglobin (113). I started taking 325mg of ferrous fumerate, floradix, blackstrap molasses and an iron rich diet and on 1 April had another test and my ferritin was (23), serum iron (16.7) which is within the normal range) and hemoglobin of (132) again which is in the normal range. The doctor said that basically the hemoglobin goes up first, then the serum iron which is in your blood then you start building up your stores.

    I'm not saying that all supplements work for everyone but its worth a try. I know my hair is thinning and so I'm pressing on with the tablets, blackstrap and floradix to see what happens at the next blood test in June.

    Fingers crossed,
    Gosh, it sounds like you are doing all the right things!! That is awesome! I hope your numbers continue to climb!! I hope I have the same results as you once I see a hematologist and he gives me some idea of where to go next. Your post really inspired me and gives me hope that there is light at the end of this tunnel!! Thanks so much!!

     
    Old 05-13-2010, 02:21 AM   #36
    niknak71
    Junior Member
    (female)
     
    niknak71's Avatar
     
    Join Date: Feb 2010
    Posts: 14
    niknak71 HB User
    Re: Low Iron & Ferritin - what to do???

    I'm glad I've given you some hope. I also tried yellow dock tincture which is supposed to really increase ferritin levels taken with dandelion tablets. I can only say that this seemed to work for me. I know some people dont like liver but it is really high in iron and I force myself to eat it. I have my next blood test on 1 July so I'm hoping its gone up again but have just had a nasty breakup so I'm hoping all my levels stay the same as I am a bit run down at the moment.

    Organic blackstrap mollases is a must, VERY high in iron. Tastes awful but again I think this contributed to my increase in levels.

    Let me know how you get on

     
    Old 05-27-2010, 08:04 PM   #37
    Numpy
    Junior Member
    (female)
     
    Numpy's Avatar
     
    Join Date: Feb 2010
    Location: Michigan
    Posts: 38
    Numpy HB User
    Re: Low Iron & Ferritin - what to do???

    Well, I didn't go back and re-read my earlier posts, so I don't know if I wrote this earlier, but I FINALLY got referred to a hematologist! I went to my appointment yesterday and I am thrilled that someone is finally going to look at my information and try to find the answers to my iron deficiency anemia!

    Right away the doc (she's actually a PA) asked me lots of questions about my overall health. One of the things that stood out to me during the course of my hour long visit, was that she believes that Nexium can be a cause of iron deficiency anemia! I was really happy to hear that after reading about that HERE (I really love these message boards), but when I mentioned it to my gastro doctor he told me no, that really wouldn't cause me to be low in iron. I feel like everyone on these boards really researches these things and everything I brought up to my gastro doc he poo poohed... So, anyway, that will be something we'll eventually get to the bottom of and either be able to say, yes, the daily Nexium I take IS the cause (or part of it) of my anemia or we'll be able to rule it out as a cause. Same with the PVCs I've been having--if the anemia is the cause or not.

    She drew lots of blood (7 or 8 vials) and is having it tested for many different things that she didn't even really go into. She tested my iron right away while I waited in the office and it still came back low, even though I've been taking 3 "super" iron pills daily (Bifera). She said the Nexium may not be letting my body absorb the iron or that my own body itself just can't absorb iron. Either way, the result right now is that my iron and ferritin are low enough that she wants me to start IV iron transfusions. On June 7th, I'll be going to my first one. Apparently I have to plan on being there for 5 hours! I was a little surprised at that, but once I got time to get back here on the message boards I discovered that's pretty normal! I've also read pros and cons about these transfusions, but I'm really praying these work for me. I've read sometimes that people feel better right away, so I'm hoping. Anyone have that where they feel better almost instantly?

    Thanks everyone for all your great information and suggestions--I feel like you've really helped me!!

     
    Old 05-28-2010, 06:47 AM   #38
    wanglin
    Newbie
    (female)
     
    wanglin's Avatar
     
    Join Date: Mar 2010
    Posts: 5
    wanglin HB User
    Wink Re: Low Iron & Ferritin - what to do???

    I have had 2 iron IV infusions (don't get confused with transfusion) and am set up to have my 3rd in about three weeks. This has been over a 3 year course. My Ferritin levels went from 165 last August to 32 a week ago, so my body is still not naturally absorbing iron even thought I take 1 Icar tablet each day. My white blood and red cells are below normal levels and my hemaglobin is low as well. I am still very frustrated about the hematologist not knowing why I can not absorb iron after every test inthe book(Bone Marrow, Pill cam, endoscopy, colonoscopy, smear tests). The PA last visit said, " I guess we'll just write it off to your cycle as the issue" and I immediately told her NO Way as my cycles are not heavy. I truly think it is a heriditary auto immune disease since my sister appears to be anemic as well without answers. I hope that maybe something will stand out in your blood work to give your doctor a direction to take.

    On the first visit you can expect a great nap as they feed you benedryl in case your body reacts to the iron in a allergic way. I have not had an allergic reaction and feel pretty normal afterwards, just groggy fromt he benedryl. The only other thing to watch out for is bad headaches, and lower back pain or joint pain because your body is trying to absorb a large quantity of iron all at once. Cheers to IV Iron!

     
    Old 05-28-2010, 04:51 PM   #39
    jonnstar
    Senior Veteran
    (male)
     
    jonnstar's Avatar
     
    Join Date: Mar 2010
    Posts: 1,870
    jonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB User
    Re: Low Iron & Ferritin - what to do???

    Remember to take a multivitamin every day as well - when the IV iron gets into your system, your body is going to be madly producing blood cells, and so will need extra B12, folate and many other vitamins and minerals. A daily Centrum could make a big difference!

     
    Old 05-30-2010, 12:13 PM   #40
    Numpy
    Junior Member
    (female)
     
    Numpy's Avatar
     
    Join Date: Feb 2010
    Location: Michigan
    Posts: 38
    Numpy HB User
    Re: Low Iron & Ferritin - what to do???

    Quote:
    Originally Posted by wanglin View Post
    I have had 2 iron IV infusions (don't get confused with transfusion) and am set up to have my 3rd in about three weeks. This has been over a 3 year course. My Ferritin levels went from 165 last August to 32 a week ago, so my body is still not naturally absorbing iron even thought I take 1 Icar tablet each day. My white blood and red cells are below normal levels and my hemaglobin is low as well. I am still very frustrated about the hematologist not knowing why I can not absorb iron after every test inthe book(Bone Marrow, Pill cam, endoscopy, colonoscopy, smear tests). The PA last visit said, " I guess we'll just write it off to your cycle as the issue" and I immediately told her NO Way as my cycles are not heavy. I truly think it is a heriditary auto immune disease since my sister appears to be anemic as well without answers. I hope that maybe something will stand out in your blood work to give your doctor a direction to take.

    On the first visit you can expect a great nap as they feed you benedryl in case your body reacts to the iron in a allergic way. I have not had an allergic reaction and feel pretty normal afterwards, just groggy fromt he benedryl. The only other thing to watch out for is bad headaches, and lower back pain or joint pain because your body is trying to absorb a large quantity of iron all at once. Cheers to IV Iron!
    Thanks for the response and for the correction about infusion rather than transfusion! Rookie mistake!! LOL! The info you gave me was REALLY helpful. I have a couple of questions, tho, other than the headaches and back/joint pain, did you notice that overall you felt better right away? Honestly, I don't feel ALL that bad. Tired, yes--but I think I've been this way for so long it doesn't really slow me down or stop me from doing what I've always done as far as chasing after my family. BUT once I get home, I see that I am TIRED and it's not a normal tired... I really, REALLY tired, but I don't sleep well, it is really strange. So there's not a ton of motivation to get out and exercise and that's what I'm hoping this iron will do for me. Help me to feel better all around that I WANT to exercise and feel better!

    I am so sorry that they're not able to get to the bottom of your iron problems; that IS so frustrating. My gastro doc did the same thing--"it's because of your period" and "you're cold all the time because you're a woman, women are generally colder than men; it's not anemia related". Frustrating. I hope they can get it figured out for you. Do you by any chance take Nexium? I am really hoping that's the main cause of my anemia and this will just "go away" if I am able to stop taking it.

    I hope to hear back from you and thanks again for taking the time to post an answer! You don't know how much I appreciate it!

    **Jonnstar--I will look into this! Thanks for your responses, also! So helpful.

    -Wendy

    Last edited by Numpy; 05-30-2010 at 12:14 PM.

     
    Old 05-30-2010, 05:17 PM   #41
    jonnstar
    Senior Veteran
    (male)
     
    jonnstar's Avatar
     
    Join Date: Mar 2010
    Posts: 1,870
    jonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB User
    Re: Low Iron & Ferritin - what to do???

    I look at it like building a house - the main thing you need to build a house is bricks, this is the iron, but the bricks arnt any use without cement and nails and a hundered and one other things - these are the other vitamins and minerals, which a multivitamin will give you.

    Best of luck!

     
    Old 06-01-2010, 06:12 AM   #42
    wanglin
    Newbie
    (female)
     
    wanglin's Avatar
     
    Join Date: Mar 2010
    Posts: 5
    wanglin HB User
    Re: Low Iron & Ferritin - what to do???

    I think the reason behind you not sleeping well even though you are so tired is because of the insomnia that anemia causes. Your body can not rest well even though you are tired. Sometimes, it takes me 2 nights of major insomnia to finally pass out on the 4th night and finally sleep the whole night. I personally feel that hormones probably play a factor in that as well.

    I too, do not typically feel bad on a day -to-day basis. I am just so exhausted by the end of the day and don't have much energy. I would not say that the infusions have changed that. After getting the infusions I do feel like I cn exercise a little more without the muscle soreness and lack of oxygen.

    I saw the post about a multivitamin and just want to make you aware that after the infusion, your doctor will point out that you can not take a multivitamin that contains any iron because your body will overdose and cause problems for your organs. Read the labels on the multivitamins very carefully.

     
    Old 06-01-2010, 07:05 AM   #43
    jonnstar
    Senior Veteran
    (male)
     
    jonnstar's Avatar
     
    Join Date: Mar 2010
    Posts: 1,870
    jonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB User
    Re: Low Iron & Ferritin - what to do???

    Thats a good point - during the course of injections, take Centrum Silver, which has no iron

    However, after the injections are over and done with, a supplement with iron would be wise, to help prevent you slipping slowly back to anemia - regular Centrum for example, which contains 18mg of iron.

    Of course, discuss it with yor doctor!

    Last edited by jonnstar; 06-01-2010 at 05:43 PM.

     
    Old 06-02-2010, 02:51 PM   #44
    Numpy
    Junior Member
    (female)
     
    Numpy's Avatar
     
    Join Date: Feb 2010
    Location: Michigan
    Posts: 38
    Numpy HB User
    Re: Low Iron & Ferritin - what to do???

    Quote:
    Originally Posted by wanglin View Post
    I think the reason behind you not sleeping well even though you are so tired is because of the insomnia that anemia causes. Your body can not rest well even though you are tired. Sometimes, it takes me 2 nights of major insomnia to finally pass out on the 4th night and finally sleep the whole night. I personally feel that hormones probably play a factor in that as well.

    I too, do not typically feel bad on a day -to-day basis. I am just so exhausted by the end of the day and don't have much energy. I would not say that the infusions have changed that. After getting the infusions I do feel like I cn exercise a little more without the muscle soreness and lack of oxygen.

    I saw the post about a multivitamin and just want to make you aware that after the infusion, your doctor will point out that you can not take a multivitamin that contains any iron because your body will overdose and cause problems for your organs. Read the labels on the multivitamins very carefully.
    Thanks, Wanglin, for this post--I'm sure hoping that I have some good results and can get back to exercising. If I don't, I guess I'm just going to have to push my self to exercise harder than I'm pushing myself right now. I can't remember if I heard that anemia causes insomnia, but that is good to know. Hopefully I'll be able to sleep after I get my infusions--my nights of watching Roseanne re-runs will be over!! LOL

    Also, thanks to both you and Jonnstar for the info on the multi-vitamin. I'll be sure to ask my doc about it.

    Everyone on this message board has been just amazing and I can't thank you all enough! You put my questions and fears to rest!

     
    Old 06-07-2010, 03:08 PM   #45
    Numpy
    Junior Member
    (female)
     
    Numpy's Avatar
     
    Join Date: Feb 2010
    Location: Michigan
    Posts: 38
    Numpy HB User
    Re: Low Iron & Ferritin - what to do???

    Well, I went for IV iron infusion today and had an allergic reaction to the iron! I can't believe it! The nurse said she hadn't had a patient have the type of reaction I did for 6 years. I am so depressed that I just feel like crying!! I was so hoping to have the IV iron work for me so that I could start to feel better and be on my way to no longer being anemic. Has anyone else had an allergic reaction to this type of iron and if so, what did they do for you? All I am able to do is wait the 6 weeks and go back for my next scheduled appointment and then what?!? I have no idea.... The nurse was really nice and told me the best way to build iron up in your system is to eat iron rich foods and to really read labels and eat foods high in iron. I went right to the store and bough blackstrap molasses and am going to try and take that. It really smells disgusting, but I am desperate!

    Anyway, if you've had an allergic reaction to IV iron, please post what your doctor did to try and increase your iron and iron stores.

    Thanks in advance.

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Taking Spironolactone & iron for hair loss luv2beamom Hair Loss / Alopecia 1 07-13-2009 05:52 PM
    B Complex w/iron & folic acid delia Vitamins & Supplements 1 04-26-2009 03:42 AM
    Hemoglobin up & dwn While on Oral Iron? tricia906 Anemia 2 04-25-2009 07:08 AM
    Low ferritin & just given iron tablets shannon2009 Anemia 5 02-26-2009 08:57 AM
    Up & Down IRON glg13luna Blood and Blood Vessel 3 12-02-2008 11:02 AM
    Low Serum Iron, TIBC &Ferritin, what's wrong? cutejenny77 Anemia 12 10-14-2008 10:27 PM
    Low Serum Iron, TIBC & Ferritin, what's wrong? cutejenny77 Thyroid Disorders 8 10-11-2008 06:08 PM
    How do you Prevent Low Ferretin & Low Iron Saturation? StephieK Anemia 4 04-08-2008 08:15 PM
    high hgb & hct is anemia or iron deficiency still possible? mmbst16 Anemia 2 09-01-2006 06:14 AM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 06:23 PM.





    © 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!