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  • Ferritin Drop after Iron Infusion

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    Old 08-01-2010, 05:27 PM   #1
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    Ferritin Drop after Iron Infusion

    Hi Dear Freinds
    I am finally back on the site BUT have some new issues regarding iron infusion side effects & non absorbtion.
    I still go weelky for these treatments as I can only take 1/5 the dose at a visit & get very ill with side effects for 3-4 days after & had to be hosptalized a few times at first-when given the larger dose thus the change.
    I have been doing this for almost 32 months now.

    The Doctor ar Dana Farber fianally gave me a 4 week break this summer & then one small dose again & another 3 week break~~thank heavens! At this last lab test my Ferritin dropped 50 points in those 4 weeks.

    Twice before, when I was given a 6 week break, I got completely depleted & so ill....never again! Now he brings the Ferretin level up above 100 so it will not happen-he wanted 200 BUT it did not get there!.

    My body will not absorb the iron-WHY??? He has no answers~~ I just want to LIVE now.
    I have had a bone marrow test done almost 3 years cancer-thank God .
    I know there are others out there, as when I was able to go on line, you shared with me & it gave me help & hope.
    How are you doing~any hope in site?

    I am still weak & no energy~mostly housebound & not working only from a computer at home.

    My groceries are delivered, cleaning girl to help each week only when I am fully "good" day but not able to handle the stores shopping & walking etc. I make a meal when I am up to it...simple things.

    Thank heavens for the computer & ordering anything I need & drive thru at bank etc.

    Have any of you gone this long on infusions? Do you get any better?
    I am wondering if I should get another opinion but I like & trust this great doctor.

    Any help you share will be most appreciated.

    Thanks, Seamist

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    Old 08-04-2010, 03:22 PM   #2
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    Re: Ferritin Drop after Iron Infusion

    I am so sorry you are going through this! I cannot imagine feeling so badly. I've had very low ferritin but have always been able to function, work etc. What are you other numbers like? Do they know the underlying reason why you run out of ferritin so fast? (gastro issues? gyn? bypass surgery?)

    It cannot hurt to see another doctor for their opinion too. No doctor knows everything...

    My heart goes out to you! I am getting infusions but I do not need them all the time. Will probably get them every year or two.

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