It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Anemia Message Board

  • Ferritin level at 4

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 08-07-2010, 01:33 AM   #1
    Clare1975
    Senior Member
    (female)
     
    Clare1975's Avatar
     
    Join Date: Aug 2010
    Location: Bristol, UK
    Posts: 119
    Clare1975 HB UserClare1975 HB UserClare1975 HB UserClare1975 HB User
    Ferritin level at 4

    Hi, I have been feeling tired with aching muscles/cramps/twitches. I had my blood tested recently and results came back with blood count just over 11 and ferritin level at 4. The dr said I was mildly anemic. My hair has lost its condition being very dry and I have a sore mouth with sore corners. I have been on ferrous fumerate for 2 weeks with no improvement yet. Just wondering what other folk are going through.

     
    Sponsors Lightbulb
       
    Old 08-08-2010, 07:15 AM   #2
    payton123
    Junior Member
    (female)
     
    payton123's Avatar
     
    Join Date: Aug 2010
    Posts: 13
    payton123 HB User
    Re: Ferritin level at 4

    My numbers were the same as yours, except Ferritin was a 5. I've been on carbonyl iron for about 6 weeks now and my last blood draw showed all the numbers are rising. My Ferritin is at a 14 now.

    With me, I was extremely fatigued (not necessarily sleepy tired but worn out and my body felt heavy). I was losing a ton of hair for 6+ months, like 500-600 a day. I was really light headed/dizzy, some headaches, my heart would beat really hard, and I had a hard time catching my breath (even if I was just talking I would run out of air).

    I'm just now starting to feel better, most of the symptoms have gone away, with the exception of the fatigue, which comes and goes now. When it does come it's brutal and reminds me of how bad I felt for so long. The hairloss has lightened up but is still more than what's normal for me.

    I should mention my thyroid medication needed to be raised also, it was too low. That also adds to the fatigue. I most recently did an adrenal test and will have the results next week, which can contribute to the fatigue too.

    I hope you are feeling better soon - I know this can be a long journey! I'm right there with you! Good Luck! Payton

     
    Old 08-08-2010, 09:12 AM   #3
    Clare1975
    Senior Member
    (female)
     
    Clare1975's Avatar
     
    Join Date: Aug 2010
    Location: Bristol, UK
    Posts: 119
    Clare1975 HB UserClare1975 HB UserClare1975 HB UserClare1975 HB User
    Re: Ferritin level at 4

    Hi Payton, Thank you for your reply. Can really understand the fatigue. Something came up on the blood test I had done recently which showed an abnormal result to do with my autoimmune system. The dr said it can be abnormal with some people and re-assured me that it should be 'nothing to worry about' and it was under further investigation. There is no history of thyroid problems in my family. The only thing is anemia on my mother's side. My mum now has pernicious anemia. My B12 was checked and was in normal range. I am worried as the muscle spasms/twitches are the most debilitating at the moment.

    Quote:
    Originally Posted by payton123 View Post
    My numbers were the same as yours, except Ferritin was a 5. I've been on carbonyl iron for about 6 weeks now and my last blood draw showed all the numbers are rising. My Ferritin is at a 14 now.

    With me, I was extremely fatigued (not necessarily sleepy tired but worn out and my body felt heavy). I was losing a ton of hair for 6+ months, like 500-600 a day. I was really light headed/dizzy, some headaches, my heart would beat really hard, and I had a hard time catching my breath (even if I was just talking I would run out of air).

    I'm just now starting to feel better, most of the symptoms have gone away, with the exception of the fatigue, which comes and goes now. When it does come it's brutal and reminds me of how bad I felt for so long. The hairloss has lightened up but is still more than what's normal for me.

    I should mention my thyroid medication needed to be raised also, it was too low. That also adds to the fatigue. I most recently did an adrenal test and will have the results next week, which can contribute to the fatigue too.

    I hope you are feeling better soon - I know this can be a long journey! I'm right there with you! Good Luck! Payton

     
    Old 08-08-2010, 09:46 AM   #4
    Manda2
    Newbie
    (female)
     
    Manda2's Avatar
     
    Join Date: Aug 2010
    Posts: 3
    Manda2 HB User
    Re: Ferritin level at 4

    Quote:
    Originally Posted by Clare1975 View Post
    Hi, I have been feeling tired with aching muscles/cramps/twitches. I had my blood tested recently and results came back with blood count just over 11 and ferritin level at 4. The dr said I was mildly anemic. My hair has lost its condition being very dry and I have a sore mouth with sore corners. I have been on ferrous fumerate for 2 weeks with no improvement yet. Just wondering what other folk are going through.
    I would check your B12.

    I have had these symptoms for years... I didnt think much of it. I knew I had low B12 but not deficient...so I took supplements whenever I remembered to. until I kept getting sores at the side of my mouth... then I got a sore throat that would NOT go away. I went to my doc who said i had an ULCER on my tonsil! Ouch! She checked my b12... well I was deficient... Now I get shots monthly. At first it was weekly. I haven't had any mouth sores since.
    My level at that time was 83. My doc said that deficiency starts at 107, and 133 and over is considered normal.

    All was fine, except i was still fatigued. Ive been losing hair for YEARS so I didn't think that was abnormal. She checked my Ferratin and it was 8. I've been taking Ferrous Gluconate since April. My doc recommened to take it on an EMPTY stomach 3x a day. I tried, though it's difficult... I must eat with it because it feels like it's going to burn a hole in my stomach.. and now.. months later my level is at 17.

    It might take forever to have a normal iron level, at this rate. however my CBC was normal last time we checked it (probably back in feb/march), aside from the very low ferratin level. Weird?

    I think I should mention that I am not vegan/vegetarian. I eat red meat, chicken, fish, fortified cereals. I'm 26 and a healthy weight, not overweight. I try to exercise but as you know, being iron (and previously b12) deficient makes you kind of tired so I haven't been running as much as I used to. I was tested for celiac too, and the test was negative.

    Last edited by Manda2; 08-08-2010 at 09:49 AM.

     
    Old 08-08-2010, 10:18 AM   #5
    payton123
    Junior Member
    (female)
     
    payton123's Avatar
     
    Join Date: Aug 2010
    Posts: 13
    payton123 HB User
    Re: Ferritin level at 4

    I would definitely investage further into your autoimmune system results being abnormal. As far as the muscle spasms/twitches, I didn't have that. I did have achy legs at night. When they ache I sleep with heating pads on them. I also eat banana's a couple times a week just to get extra potassium. Are you taking any iron supplements?

     
    Old 08-08-2010, 10:23 AM   #6
    Clare1975
    Senior Member
    (female)
     
    Clare1975's Avatar
     
    Join Date: Aug 2010
    Location: Bristol, UK
    Posts: 119
    Clare1975 HB UserClare1975 HB UserClare1975 HB UserClare1975 HB User
    Re: Ferritin level at 4

    Hi, thank you both for your replies. I was a vegetarian for about 20 years until recently. The dr has had a look at my B12 level and it is apparently within the normal range. My periods are heavy for the first couple of days and then settle down. My symptoms first started when I was training for a 3 mile race. My left leg began to get tired easily and I felt a slight tremble in it. Since then I have had numbness in my limbs, lips, face and muscle spasms throughout my body. All seem to come and go throughout the day and just leave me feeling miserable.

     
    Old 08-08-2010, 10:26 AM   #7
    Clare1975
    Senior Member
    (female)
     
    Clare1975's Avatar
     
    Join Date: Aug 2010
    Location: Bristol, UK
    Posts: 119
    Clare1975 HB UserClare1975 HB UserClare1975 HB UserClare1975 HB User
    Re: Ferritin level at 4

    Hi,

    Sorry forgot to mention that I am currently taking 3 x Ferrous Fumerate a day. A 'B' vitamin supplement and just started taking a calcium supplement today. Thank you all again for kind words and support x

     
    Old 08-08-2010, 01:02 PM   #8
    payton123
    Junior Member
    (female)
     
    payton123's Avatar
     
    Join Date: Aug 2010
    Posts: 13
    payton123 HB User
    Re: Ferritin level at 4

    You probably already know this but I thought I would mention it.... Do NOT take your calcium supplement anywhere near the time you take your iron supplement. If I remember correctly the calcium binds to the iron and consequently does not absorb. Always try to take iron with OJ, Vitamin C, or vinegar; an acidic environment is ideal for optimum iron absorption (which is very little even in the best circumstances).

    I found baby clams at Whole Foods that have 130% of daily recommended iron (I would guess that means around 23 mg per serving). They come in a can that you peel back, like sardines. In addition to my iron supplement (30 mg of carbonyl iron 3 times a day); I've started eating a can a day of the baby clams. From what I've read heme iron (found in animal products) is better absorbed, compared to supplements or non-heme. The baby clams in a can are convenient to have on hand, not to mention they have more iron than liver too.

     
    Old 08-08-2010, 02:52 PM   #9
    Clare1975
    Senior Member
    (female)
     
    Clare1975's Avatar
     
    Join Date: Aug 2010
    Location: Bristol, UK
    Posts: 119
    Clare1975 HB UserClare1975 HB UserClare1975 HB UserClare1975 HB User
    Re: Ferritin level at 4

    Hi Payton,

    Thank you for your help. I didn't realise calcium is best not taken with iron supplements so that's a big help x Interesting about clams, not a big fan of seafood but worth knowing. Have started to eat meat again to see if this will help.

    Clare x

     
    Old 08-16-2010, 01:26 AM   #10
    Clare1975
    Senior Member
    (female)
     
    Clare1975's Avatar
     
    Join Date: Aug 2010
    Location: Bristol, UK
    Posts: 119
    Clare1975 HB UserClare1975 HB UserClare1975 HB UserClare1975 HB User
    Re: Ferritin level at 4

    Hi, thanks for reply PlasticPetal. No know bleeding internally. My periods are heavy for the first couple of days then settle (last period was very heavy which has probably delayed getting better). Good to know you are improving. I have had missed/extra heartbeats for about 4 years which have been checked out and thought to be harmless. I also have asthma which is under control. Like so many other people on these boards I have GERD and was on Nexium for just over a year. Could be a link between malabsorbtion of iron and Nexium? My dr has told me not to take any more Nexium and I have only taken a couple since starting the Ferrous Fumerate. My heartburn seems to have settled which is a positive point!

    Keep in contact. Clare x

     
    Old 08-16-2010, 05:19 PM   #11
    happyfeet77
    Junior Member
    (female)
     
    happyfeet77's Avatar
     
    Join Date: Jul 2010
    Location: Florida
    Posts: 36
    happyfeet77 HB User
    Re: Ferritin level at 4

    Definitely a link between Nexium and trouble absorbing iron. < edited >

    Last edited by hb-mod; 08-17-2010 at 01:59 AM. Reason: Please don't post from unapproved websites, or copy and paste per Posting Policy. Thanks!

     
    Old 08-17-2010, 12:42 PM   #12
    tchamberlain
    Newbie
    (female)
     
    tchamberlain's Avatar
     
    Join Date: Aug 2010
    Location: Montana
    Posts: 4
    tchamberlain HB User
    Re: Ferritin level at 4

    My numbers are the same as yours. I had heavy periods last year that would last 3 weeks, then no bleeding for 6 weeks, then heavy again on and off for 9 months. I had an ablation in November that took care of the bleeding but it's since then that I've become anemic.

    I had an iron infustion two weeks ago but I don't feel much better. I'll go back in 10 days for bloodwork and follow up with my hemotologist. I hope my numbers start to go up.

    Hang in there!

     
    Old 08-18-2010, 05:29 AM   #13
    japlopper
    Senior Veteran
    (female)
     
    japlopper's Avatar
     
    Join Date: Aug 2006
    Location: Carmel IN
    Posts: 581
    japlopper HB Userjaplopper HB Userjaplopper HB Userjaplopper HB User
    Re: Ferritin level at 4

    It's been said before here on these boards, but it bears repeating. It takes 3 months to produce new good healthy red blood cells. So if you start taking iron pills, it will take 3 months to start feeling better.

    I have hemolytic anemia which causes my B12 to go low. When I was dxed, I was having muscle spasms so bad that I thought I had a bad disease. It was awful - major twitches. My B12 level was 386. Most drs would consider 386 normal and dismiss the B12. Hema put me on B12 shots and the twitches went away in a couple of weeks. Many people get terrible side effects with B12 levels below 500.

    My advice would be to get copies of your CBC results, don't just be satisfied with "Oh, your levels are fine." They may be fine by the numbers they use, but not fine for you.

     
    Old 08-18-2010, 02:10 PM   #14
    Clare1975
    Senior Member
    (female)
     
    Clare1975's Avatar
     
    Join Date: Aug 2010
    Location: Bristol, UK
    Posts: 119
    Clare1975 HB UserClare1975 HB UserClare1975 HB UserClare1975 HB User
    Re: Ferritin level at 4

    Quote:
    Originally Posted by japlopper View Post
    It's been said before here on these boards, but it bears repeating. It takes 3 months to produce new good healthy red blood cells. So if you start taking iron pills, it will take 3 months to start feeling better.

    I have hemolytic anemia which causes my B12 to go low. When I was dxed, I was having muscle spasms so bad that I thought I had a bad disease. It was awful - major twitches. My B12 level was 386. Most drs would consider 386 normal and dismiss the B12. Hema put me on B12 shots and the twitches went away in a couple of weeks. Many people get terrible side effects with B12 levels below 500.

    My advice would be to get copies of your CBC results, don't just be satisfied with "Oh, your levels are fine." They may be fine by the numbers they use, but not fine for you.
    Hi, thank you for the interesting reply. The dr quickly went through the blood test results on a computer screen and it was difficult to see the results. I am trying to see the dr again but she is away for the next couple of weeks. The numbness/muscle spasms which come and go are scaring me. Everyday is painful.

    Hope you are doing ok now.

    Clare x

     
    Old 08-20-2010, 06:09 AM   #15
    Manda2
    Newbie
    (female)
     
    Manda2's Avatar
     
    Join Date: Aug 2010
    Posts: 3
    Manda2 HB User
    Re: Ferritin level at 4

    Quote:
    Originally Posted by japlopper View Post
    It's been said before here on these boards, but it bears repeating. It takes 3 months to produce new good healthy red blood cells. So if you start taking iron pills, it will take 3 months to start feeling better.

    I have hemolytic anemia which causes my B12 to go low. When I was dxed, I was having muscle spasms so bad that I thought I had a bad disease. It was awful - major twitches. My B12 level was 386. Most drs would consider 386 normal and dismiss the B12. Hema put me on B12 shots and the twitches went away in a couple of weeks. Many people get terrible side effects with B12 levels below 500.

    My advice would be to get copies of your CBC results, don't just be satisfied with "Oh, your levels are fine." They may be fine by the numbers they use, but not fine for you.

    wow.. mine was reading at 80... my symptoms were only ulcers in the mouth and fatigue. my level is now at around 300 i think and i am feeling much better... though still tired with iron level of 8.

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    ferritin questions robinhy Anemia 2 08-29-2010 12:31 PM
    Ferritin Results 22 THS - 0.32 roseenglish Anemia 6 06-25-2009 05:27 PM
    Ferritin level is very low - 8 judyroy Anemia 3 12-01-2008 03:05 PM
    What's Healthy Ferritin? ElleDi Anemia 4 06-03-2008 06:12 PM
    Low ferritin, normal cbc?? trmitche Anemia 7 01-16-2008 05:33 AM
    Low ferritin can cause RLS GCC Restless Leg Syndrome 4 09-02-2007 09:04 AM
    Low ferritin can cause infertility GCC Infertility 10 08-17-2007 07:14 AM
    I Did The Ferritin Test Like Some People Here Suggested I Get-Lab Results Tifferzz Thyroid Disorders 18 08-11-2007 07:30 PM
    For the people who know ferritin sahaira Anemia 21 05-02-2007 06:13 AM
    My Anemia sypmtoms...ferritin questions??? dona129 Anemia 12 12-13-2004 12:23 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 10:48 AM.





    © 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!