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  • Ankles Swelling with Anemia

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    Old 06-14-2011, 09:14 AM   #1
    Daisy53
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    Ankles Swelling with Anemia

    Hi,
    I am currently on disability due to a combination of Mitral Valve Prolapse and Severe Anemia.

    My last blood work:

    WBC - 5.9
    RBC - 3.29
    Hemoglobin - 69
    Hematocrit-HCT - 0.24
    MCV - 20.5
    RDW - 20.5
    Ferretin: 4

    My concern is that when my counts get low, I have severe swelling of my ankles. My Hemotologist is "keeping any eye on this" but has yet to do anything about it. I had 3 units of blood a couple of weeks ago, and this time the swelling is not going away. The skin is red, warm and tender. Anyone else having this problem & if so, what are you doing for it?
    Thanks for any suggestions.
    Dar

     
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    Old 06-18-2011, 04:50 PM   #2
    jonnstar
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    Re: Ankles Swelling with Anemia

    What is the cause of your anemia, and what treatment are you on for it?
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    Old 07-06-2011, 01:51 AM   #3
    Daisy53
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    Re: Ankles Swelling with Anemia

    Quote:
    Originally Posted by jonnstar View Post
    What is the cause of your anemia, and what treatment are you on for it?
    Hi Jonnstar,
    My anemia is of unknown origin - I have had all the tests (scoped at both ends), bone marrow biopsy, etc and all have been ok. I had a couple of small intestinal polyps which were removed, but the anemia has persisted. I am currently being tested for genetic abnormalities to see if that is the cause.
    In the meantime I am having the blood transfusions as needed (3 in the past 6 months) and am taking Proferin 3 times/day.
    I had an iron transfusion and had a very bad allergic reaction to it and my hematologist refuses to give me another. I had bad swelling all over and passed out - ended up back in the hospital for treatment.
    This ankle swelling is my most annoying symptom that I am trying to understand. Any input you can provide would be greatly appreciated.

     
    Old 08-01-2011, 03:46 AM   #4
    krazy2day
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    Re: Ankles Swelling with Anemia

    Have they ever dx you with 'regurgitation' or ruled out your swelling from the MVP? Those are closely related.. I would def check this with your cardiologist.

     
    Old 08-01-2011, 08:09 AM   #5
    Ironless
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    Re: Ankles Swelling with Anemia

    I, too, get swollen ankles when my hemoglobin and crit get very low. The Venofer treatments have definitely helped; has your doc ever suggested this to get your iron (and thus, red blood cell count) up?

     
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