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  • Celiac, Pernicious Anemia, Symptoms.

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    Old 08-10-2012, 08:59 AM   #1
    Naturesweetie
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    Celiac, Pernicious Anemia, Symptoms.

    I am frustrated after dealing with anemia for 5 years. At first it was supplements for 6 months, then another 6. Then another year after I lost a lot of blood during a miscarriage and then started the folate and b12 deficiency. My doctor has diagnosed me with pernicious anemia and many times I've said I am going gluten free to see what happens. I have had a blood test and seen an alergist, but nobody found a gluten intolerance, meanwhile I have many symptoms of being celiac so I am going to go gluten free if it's the last thing I do.

    I've had symptoms such as:

    painful tongue/mouth
    blisters/sores in mouth/tongue/around vagina
    chronic fatigue
    dizzy spells
    foggy head
    anxiety/panic attacks
    aches in my legs
    chronic acne/rosacea
    easily lose weight and can't gain
    stomach and digestive issues
    allergies to practically everything
    contact dermatitis and eczema

    I know going gf won't cure everything, but I clearly don't absorb from food properly and my doctor won't even test my intrinsic factor. I'm at a loss.

    Has anyone had a major improvement of symptoms by cutting out gluten?

     
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    Old 08-10-2012, 10:28 AM   #2
    ladybud
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    Re: Celiac, Pernicious Anemia, Symptoms.

    YES! It is possible to have gluten intolerance without celiac disease, and have gluten allergies without it showing up on the standard (IGE) allergy tests. Did you have the antibody testing for celiac disease? In some cases, it only shows up on small bowel follow-through GI xray or scope and biopsy of small intestine, which a gastroenterologist would do. Your symptoms are suggestive of celiac disease, particularly inability to gain weight, anemia and B vitamin deficiencies likely from malabsorption. I would encourage you to see a gastroenterologist for a definitive diagnosis, as I think it will help reinforce for you the need to stay on a strict gluten free diet. This is a difficult diet for most, and it is easy to go off if you aren't really sure you need it. You should not go gluten free before more testing, as that will throw off test results. I would ask to get Vit D level measured, as you are probably deficient in that as well, which can cause osteoporosis from lack of calcium absorption. This is a serious disease, so please go to a specialist for a proper diagnosis and replacement of all vitamins/minerals in which you are deficient.

     
    Old 09-13-2012, 09:18 AM   #3
    Naturesweetie
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    Re: Celiac, Pernicious Anemia, Symptoms.

    I've been off gluten for about a month now and some of my symptoms are starting to clear up. My flaky dry sore skin isn't sore and flaky, though it is still red. My belly isn't bloated and sore either. I'm also not falling asleep midday at this point, so since my doctor refused to investigate the cause of my anemia, I'm hopeful this makes some difference in my ability to absorb. We shall see. Thanks for your reply.

     
    Old 09-13-2012, 02:32 PM   #4
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    Re: Celiac, Pernicious Anemia, Symptoms.

    Good for you! Many people think 6 months is the turning point for better absorption, so it will be interesting to see if your anemia clears up by then. The B12 is best absorbed either by injection, a prescription required, or by sublingual tablets, OTC. I hope your improvement continues, and it is encouraging some of your troubles are getting better.

     
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