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    Old 05-18-2013, 04:32 PM   #1
    b2b
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    Low ferritin

    Hi, I was wondering if anyone had same experience as me. In February I had vertigo, was put on Serc and then I started to have visual disturbances, blurred vision, flashing lights, sometimes the vision seem to be darkened. Saw opthamologist, my eyes are fine. CT scan of my head and blood test are normal, except ferritin was 20. Also have cough that I can't get rid off.My doctor put me on proferrin 11mg iron supplement, been taking for a month and not much of improvement. I have headaches, and I am tired, dizzy all the time.I saw neurologist and I am going to have MRI in July. However, my homeopathic doctor thinks I should not be taking iron, as my hemoglobin levels are fine ,and iron can be toxic, and he put me on B vitamins, magnesium and gaba for nerves. I am at my wits end, and I can't understand why this doctors can't find what is wrong with me.


     
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    Old 05-20-2013, 02:16 PM   #2
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    Re: Low ferritin

    Your ferritin is really low. Most people don't even report feeling well till their ferritin reaches 50-70. Ferritin can take months and even years to go up and you can absolutely still be anemic with normal hemoglobin/hematocrit. I'm no Dr. but I know the results of having low ferritin first hand and it's something that needs to be treated. I was lucky, my Dr. is leaving the anemia diagnosis until my ferritin reaches 100. My ferritin is at a 66 now (from a 2 last May) and he says I can plan on taking iron for a while longer. I think you need to go to a Dr/hematologist that is going to address your low ferritin.

    Symptoms of low ferritin:

    Aches and pains.
    Easy fatigue.
    Increased weakness.
    Heart palps.
    Loss of energy.
    Loss of libido.
    Increased irritability and confusion.
    Stomach Pains.
    Heartburn.
    Tingling and numbness in extremeties.
    Breathing difficulty.
    Headache.
    Dizziness.
    No appetite.
    Sore tongue.
    Picas
    and just to add vision issues, which I had as well.

    There are a lot more that can go on this list these are just a few off the top of my head.

    Last edited by Heatherx5; 05-20-2013 at 02:17 PM.

     
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    Old 05-20-2013, 03:23 PM   #3
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    Re: Low ferritin

    I had my ferritin checked last October and it was 23. My doctor said it was normal but i was losing hair, my nails were lifting...I was a mess. I've been taking 10ml of liquid ferritin a day for about 8 months.
    I am afraid to up the dose to 2x a day because I don't want to get constipated

     
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    Old 05-20-2013, 03:24 PM   #4
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    Re: Low ferritin

    I had my ferritin checked last October and it was 23. My doctor said it was normal but i was losing hair, my nails were lifting...I was a mess. I've been taking 10ml of liquid ferritin a day for about 8 months.
    I am afraid to up the dose to 2x a day because I don't want to get constipated

     
    Old 05-20-2013, 05:06 PM   #5
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    Re: Low ferritin

    Thank you so much for replying. For a while I thought I was having ms, neurologist agreed that my ferritin was low, but said if in few weeks my symptoms are still there I should have MRI. I used to have iron shots when my ferritin was low, but for some reason my doctor decided to give me iron pills this time. I feel so horrible that I don't know if I can deal with this. I also have pain around my rib cage, my whole body hurts. My last period was not heavy , I was just spotting,wondering if I am in menopause(I am 50). and this have been my life for 3 months now. Heatherx5, at what point did you start feeling better? My doctor wants my ferritin to be at 50. It is confusing, because some doctors claim (an emergency doctor for example) that if you have normal hemoglobin you should not take iron, as it could be toxic. Praying for all of us to get better.

     
    Old 05-20-2013, 07:46 PM   #6
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    Re: Low ferritin

    Do you have the actual results of all your tests so you know what was tested? I would recommend getting your lab results so you have a record. Your homeopathic Dr. is not giving you good advice about the iron. Iron is only toxic if you are overloaded with it. You are the opposite and it is better to enhance your iron stores now before you get worse and get outright anemic with low Hct and Hg levels. It could be that more than just low ferritin is going on, and knowing what tests you had done is crucial. There are 1000's of tests, some very specific to specific disorders. Most Drs only order two things initially- a blood count and chemistry panel. Do you know if your thyroid levels were checked? That is a common cause of fatigue and should be checked.

    Last edited by ladybud; 05-20-2013 at 07:48 PM. Reason: typo

     
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    Old 05-21-2013, 02:18 PM   #7
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    Re: Low ferritin

    My t.s.h is 1.04, in the normal range(0.27-4.20), hemoglobin 135 range(115-165), up from 129. Tomorrow I am going to do blood test and see where my ferritin is now. My doctor is refusing to do any other tests she said my blood test looks great and she thinks my symptoms are all due to the stress. She also is not sending me to any specialists, and without referral can't see anyone. Asked her to check me for Lyme and Mono, her answer is I don't have inflammation in my body.I am doing an ultra sound to check uterus and fibroid.I am concerned I am going to stay like this, and I don't have answer why I am feeling so sick.

     
    Old 05-24-2013, 03:18 PM   #8
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    Unhappy Re: Low ferritin

    Please help with my results!


    Results Normal range

    ferritin 21 (13-150)
    iron total 11 (7-30)
    TIBC 63 (39-65)
    % 0,17 (0.25-0.50)
    saturation
    I feel like crying, my ferritin level went up from 20 to 21, after taking iron pills for a month. No wonder I am feeling so horrible, Wondering if iron injection would be a better option at this point.

     
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    Old 05-26-2013, 07:34 AM   #9
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    Re: Low ferritin

    b2b, having been anemic my whole life, I understand what you're going through. You need to see a hematologist in order to have them run tests to find out why you are not absorbing the iron. The doctor that told you if your iron level is normal even though you have low ferritin is not very knowledgeable in this matter. I've never had a doctor tell me that and I've been dealing with this my whole life. If your ferritin level is low there is no way you can overload on iron to where it becomes toxic any time soon. That takes a lot of time. Your numbers should be watched every 3 months in order to make sure it goes up, and that way they'll see if it ever gets too high. If you go see a hematologist, they can do intravenous iron for you.

    Good luck!

     
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    Old 05-26-2013, 08:45 AM   #10
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    Re: Low ferritin

    Have you considered taking liquid ferritin? I have absorbtion issues as I have Celiac disease, and Liquid ferritin is easily absorbed by my small intestine, as opposed to pills.
    the brand I know to be widely available and best tolerated is called Floradix.

     
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    Old 06-08-2013, 09:54 AM   #11
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    Re: Low ferritin

    What about ear ringing at a ferritin of 2 ???

     
    Old 06-08-2013, 01:30 PM   #12
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    Re: Low ferritin

    Quote:
    Originally Posted by b2b View Post
    Thank you so much for replying. For a while I thought I was having ms, neurologist agreed that my ferritin was low, but said if in few weeks my symptoms are still there I should have MRI. I used to have iron shots when my ferritin was low, but for some reason my doctor decided to give me iron pills this time. I feel so horrible that I don't know if I can deal with this. I also have pain around my rib cage, my whole body hurts. My last period was not heavy , I was just spotting,wondering if I am in menopause(I am 50). and this have been my life for 3 months now. Heatherx5, at what point did you start feeling better? My doctor wants my ferritin to be at 50. It is confusing, because some doctors claim (an emergency doctor for example) that if you have normal hemoglobin you should not take iron, as it could be toxic. Praying for all of us to get better.
    That is absolutely not true. I have had a normal hemoglobin for months and am still taking iron...it is possible to have normal hemoglobin and hematocrit in your blood and still have organs, tissues, and cells suffering because they aren't getting the iron they need. That is why it's crucial to continue the iron therapy (even if your just taking a smaller dose of iron through a multi-vitamin, which I am doing). Ferritin levels are a good way to detect IDA in the early stages because it's one of the first things to go. Having a low hemoglobin shows that the IDA is in a later stage. By the time your hemoglobin gets low it's time for iron, but why Dr's wait for that to happen is beyond me!

    That is why I believe Dr's should use a ferritin test more often then not because it's a very early indicator of a problem before waiting for the last stages which are hemoglobin and hematocrit dropping. Iron is not going to be toxic unless you iron overload which I don't see happening with a ferritin of 21 and iron serum of 11, it's just not going to happen. Ferritin takes months and years to raise and your body is putting the iron where it needs to be. Once your iron serum goes up it's going to start dumping back into your stores. That is why it's important to do under a Dr's care so they can monitor your labs, but quite honestly your numbers are just way to low to even worry about overloading.

    I have been taking iron for a year now and can honestly say I have days where I feel bad still. I would say I started noticing a difference about 6 months in but it was very little. It's a long hard battle and you need to find a Dr. that is going to properly care for you or your just going to keep going in circles.

    What I see happening here is you get to the end stages of anemia. Your hemoglobin and crit are going to start dropping and it's going to put you even worse off, I would hate for that to happen to get some attention from a Dr. My hemoglobin was about 2 points off from needing a blood transfusion. I was very lucky in the Dr. department, he left the anemia diagnosis till my ferritin goes back up and my OB told me to take iron for at least another year, at that was with normal hemoglobin and crit levels! I think your getting some bad advice from the people who are caring for you, it makes me angry. I see so many women here in your position talking about how their Dr's just don't take this serious.

    Last edited by Heatherx5; 06-08-2013 at 01:34 PM.

     
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    Old 06-08-2013, 01:31 PM   #13
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    Re: Low ferritin

    Quote:
    Originally Posted by Kaymarina View Post
    What about ear ringing at a ferritin of 2 ???
    Kay you can have all sorts of issues including ear ringing, your ferritin is way to low. I hope it's being treated.

     
    Old 06-09-2013, 06:42 AM   #14
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    Re: Low ferritin

    I am taking ferrograde once a day.. Drinking orange juice and iron rich foods. I also feel dizzy and blurred vision I am just laying in bed. I am supposed to work tomorrow but just feel demented. Should i see SOME improvement soon? I am so desperate for some hope! Couldn't I be transfused ? My hb is 10 ferritin 2 . X

     
    Old 06-09-2013, 06:57 AM   #15
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    Re: Low ferritin

    Transfusions are usually done when HB closer to 9. Since there is some risk with transfusions, the oral iron should work and if not, IV iron should be tried. You should get a 1.5 point rise in HB in one month (about 2-3 on HCT) on daily iron as long as you are absorbing it well. That will be enough to help you feel better gradually over next month or two. It will take a long time to get iron stores replaced to a decent level, like about a year starting so low. So when you are sure the iron is working, buy in quantity! Let us know how you progress. Things will get better!

     
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