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  • Feeling Great with HGB of 5.5, No One will Listen

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    Old 10-14-2013, 08:08 PM   #1
    toobefree
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    Feeling Great with HGB of 5.5, No One will Listen

    I had blood work done for a physical at work. I had a hgb of 5.5 and himi of 21%. I am not able to return to work until my hgb is much higher. I have been anemic all my life. At 5.5 hgb, I am up at 6am every morning, put in a 9.5 hour workday, garden till dark, cook, make my own jams, pickles, can vegetables or bake bread until about 11 pm. Yes this is with a 5.5 hgb! I don't absorb iron, can take it all day long and nothing, no change, only a blood transfusion will raise that level. I had a transfusion and I feel awful, I am tired and dizzy, almost the opposite of what I should be feeling. I tried to tell them at work that this is normal for me, no such luck. I have no idea how I am going to be able to work a full day now. Can anyone else function fine with a usually low hgb?

     
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    Old 10-26-2013, 08:35 AM   #2
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    Re: Feeling Great with HGB of 5.5, No One will Listen

    Wow! Hemiglobin of 5.5? Have you had the CBC redone to make sure the first test isn't an outlier?

    Have you had a bone marrow biopsy? Although if you're doing all you describe with Hgb of 5.5, my hat's off to you.

    I'm running around with a hemiglobin of 9.8 and my hematologist is talking transfusions. B12 shots have made life much more pleasant, but a bone marrow test shows dysfunctional marrow. I don't know what to make of all this, but I'm going to dodge transfusions as long as possible.

     
    Old 10-27-2013, 11:24 AM   #3
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    Re: Feeling Great with HGB of 5.5, No One will Listen

    Oh thank you for posting a reply, I have recently been diagnosed with Thalassemia, a rare genetic disorder that causes weakening and destruction of red blood cells. I have been anemic since the day I was born and have probably learned to live with extremely low hemoglobin counts all my life. I recently had a CBC for a work physical and that's when they freaked. They called me on the phone and sounded urgent, they said I was critically ill and I needed to go to the ER right now, I was terrified until they said I was anemic and can I get out of bed. lol I was in the middle of baking half a dozen loaves of bread. I went after the bread was done and got 2 pints of blood, boy I felt terrible for a few days afterwards.

    Well, now I have to deal with this and I am not happy at all. I was wondering who else has Thalassemia and what they do that works.

     
    Old 10-27-2013, 11:26 AM   #4
    toobefree
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    Re: Feeling Great with HGB of 5.5, No One will Listen

    Oh thank you for posting a reply, I have recently been diagnosed with Thalassemia, a rare genetic disorder that causes weakening and destruction of red blood cells. I have been anemic since the day I was born and have probably learned to live with extremely low hemoglobin counts all my life. I recently had a CBC for a work physical and that's when they freaked. They called me on the phone and sounded urgent, they said I was critically ill and I needed to go to the ER right now, I was terrified until they said I was anemic and can I get out of bed. lol I was in the middle of baking half a dozen loaves of bread. I went after the bread was done and got 2 pints of blood, boy I felt terrible for a few days afterwards.

    Well, now I have to deal with this and I am not happy at all. I was wondering who else has Thalassemia and what they do that works.

     
    Old 11-29-2013, 05:43 PM   #5
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    Re: Feeling Great with HGB of 5.5, No One will Listen

    I finally had to give in and go to our ER. Low Hgb was causing severe angina, which made it difficult to move about. I have CAD, low ejection fraction, and atrial fibrillation so any loss of oxygen carrying capability seems to multiply the anginal pain.

    My hemoglobin reading at the ER was 6.8, and at that level I was immobile. Your 5.5 just floors me! The hospital transfused 4 units of blood, which is helping the situation but not altogether eliminating it.

    I know you were wanting some replies specific to your genetics, but thought I'd at least update what I had posted earlier.

    Best wishes.

     
    Old 12-16-2013, 06:18 AM   #6
    kjm44
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    Re: Feeling Great with HGB of 5.5, No One will Listen

    All I have to say is A-M-A-Z-I-N-N-G!!! I would be a train wreck with levels that low. Lol! Take care of yourself and I hope you can get back to work soon!

     
    Old 05-17-2014, 09:42 PM   #7
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    Re: Feeling Great with HGB of 5.5, No One will Listen

    Since posting about my hgb being 5.5, I started IV iron treatments, doing much better with the anemia but found out I have Bicuspid Aortic Valve disease and an aneurysm 5.1 cm. I also have low night time oxygen levels (sleep with oxygen now). The last 6 months have been round after round of specialist and tests. Reading studies and information, anemia and heart disease, not a good combo to have. Eventually will need open heart surgery, hopefully that is way down the road.

     
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