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Just diagnosed with aneurysm

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Old 03-21-2009, 09:52 AM   #1
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Just diagnosed with aneurysm

I'm a healthy 29 yr old female just diagnosed with a 5mm non-ruptured aneurysm in the internal left carotid artery. I went to the dr after a continuous 8 day headache. Did MRI/MRA and found the aneurysm. Calling it an incidental finding and say it has nothing to do with my headache. Saying I may have had it since birth. But I have a history of migraines and had MRI (unsure if MRA) 10 yrs ago that was normal. Seeing neurosurgeon Tuesday to discuss treatments vs no treatments. Just wondering if anyone else is/has dealt with this. What should I expect?

I'm currently in a constant state of fear afraid that any minute it's going to rupture, even though they tell me that's not likely. I'd love to hear your experiences with this! Thank you.
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Old 03-22-2009, 08:17 AM   #2
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Re: Just diagnosed with aneurysm

its really interesting that they told you this has been there since birth. most of the congenital(just born with) types of vacular malformations are either a cavernous hemangima(fed veinously) or the arterial counterpart called an AVM. are they 100% certain that this is not an actual AVM and not actually aneurysm? its also in a very odd spot. not the usual inner brain type that is more typical of actual aneurysm. mine was in the left cerebellar artery and about the very same size as yours. have you consulted with whats called a neuro interventional radiologist yet? you simply need that level of expertise to really know for certain what this actually is and what can be done. this is the specialist who would also be doing any angiograms on you that just ARE the next step in better defining just what "type" of arterial malformation you actually have in on there in your carotid.

luckily we do have two carotids so you are still getting good blood flow to your brain. god really created our brain vascular structures in such a way that we do kind of have some rather helpful 'built in" compensatory types of 'back ups" for brain bloodflow,even IN the brain with that circle of willis and the way it circles the inner brain. i see you do have an appt with a neurosurgeon comming up. i can almost guarentee you that he IS going to set you up with that neuro rad for at least an angio and to find out just what this specialist can do for you too. this could all be handled internally if things are okay for a coiling procedure,or some other way of dealing with a much more accessable type of vascular malformation like where yours actually is? its eaisier to just get to. this is what i had since my particular aneurysm was just way too deep to even try a craniotomy with a clipping procedure(i was kind of thankful that that particular choice was completely taken off the table). i do think considering just where this is,a neuro rad will be the one who will be the most help. these types of specialists can really do some really amazing things when it comes to vascular issues,trust me on that one. i really am curious as to just what this actually is and what they plan to dowith it. please keep me posted as to what you find out,K? i went thru a coiling for mine back in 2005 and am doing great with it now that its been taken out of the normal arterial circulation for good. considering just where yours is located,you will probably have alot more options for possible treatment than i did. and thats a good thing. please keep me posted hon. good luck,marcia
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

Old 03-22-2009, 08:42 AM   #3
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Re: Just diagnosed with aneurysm

Thanks Marcia. The neurosurgeon I'm seeing has been highly recommended by numerous people, including my primary doc and friends who have been pts of him. I've never heard of a neuro radiologist so I will be sure to mention this to him if he does not. From what I've read this aneurysm is in a good spot in regards to lesser chance of rupture and treatment options. Not sure what AVM is. Off to learn about it now. Thanks again and I will definitely keep you updated!
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