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junior26 11-10-2007 12:42 PM

Spaced out, drunken feeling for 3 1/2 years, 24/7. Please help me.
I'm back on this forum after 3 years to try and seek out new people who are experiencing the same problem.

Here is my story...

I have had a spaced-out drunken feeling for 3 1/2 years (24/7). It has never let up, not for a second. It started one day at work while looking at my computer screen, out of the blue. I got up suddenly and looked at my co-worker and said " I'm gonna pass out". I didn't pass out. But I went home, hoping that it would go away soon. After days, weeks and months, it never went away. Not for a single second during the past 3 1/2 years.

The only thing I had done different when it all started was that I has started to do some cardio exercise (hadn't exercised in years!). The night before, I had overdone myself and got a nose bleed. Then I started to feel a little lightheaded and went to bed. The next day, just as I was researching why I felt lightheaded after exercising, BAM! Huge fainting spell. That's how it started.

Despite my overwhelming fear of doctors (and death), I have had blood tests, EEGs, EKGs for the first time in my life, but they found nothing. The only referral I have left from my family doctor is for the ENT. Which I have put off for almost 2 years because I'm so sure that he won't be able to help me. I'm so discouraged.

Every doctor I have seen looks at me weird when I tell them that I have been like this for this long 24/7. They think I'm exaggerating when I tell them I feel this way from the minute I wake up to the minute I fall asleep. It has not let up for a single second. It's like my eyes aren't in sync with my brain. Like as if I've had a few glasses of wine. Even after I tell them that I feel that way 24/7, they still end up asking me, "Does it happen often?" or "When was your last episode?". It's ALL THE TIME! They just don't know what the heck I'm talking about.

I have learned to live with it. Doesn't affect me in my decision-making abilities, etc. But whenever I go in big stores with florescent lighting, it becomes almost unbearable. When I'm tired, it's also pretty bad.

The only thing left to try is Lexapro or Paxil, which scares the daylights out of me. I tell myself, if it's anxiety, wouldn't it have gone away once in a while? I mean, there are times when I don't have a care in the world, no stress. Yet, the feeling is still there. I don't know.

I really hope someone can relate. Just knowing that I'm not alone is giving me the strength to try and tackle this problem once and for all.

bridge of sighs 11-10-2007 01:38 PM

Re: Spaced out, drunken feeling for 3 1/2 years, 24/7. Please help me.
i have had the same symptoms for many years i have tried many meds and therapy blood test mri eeg all came back normal my psychaitrist says it is depersonalization right now i am on lamictal and xanax .but i am still in a fog like dream feeling. tired and stoned 24/7 and its not from the meds check out a book FEELING UNREAL: DEPERSONALIZATION DISORDER AND THE LOSS OF SELF BY DR. DAPHNE SIMEON

j2006 11-10-2007 02:51 PM

Re: Spaced out, drunken feeling for 3 1/2 years, 24/7. Please help me.
I have had this for a long time myself. Finally I have had a bit of relief with Zoloft (only 2 days on it, so we will see).

After finding the right therapist I have come to realize that I have a few things going on: anxiety, panic and PTSD.

I also have had an EEG done and found that I do have potential Seizures but DR tell me this will not give you this drunk feeling 24/7 - so I know it is not that.

I also found that I have narcolpesy - which will give you this drunk feeling.

After being on Zoloft for a while I am going to be prescribed Provigil to try and clear up this "fog" I have been in.

My suggestion would be this....

After you seen the ENT doctor and everything is fine - find a therapist that will work with you and see if anxiety is what is happening here.

I know this an awful feeling - I have had it a while and now after all these test and few ADs later I think I finally found a good neurologist and PDOC that are working together to try to clear up this feeling.

Let me know if I can help out or be support to you. Trust me I have been through HELL with this.

Pri Lily 11-10-2007 06:03 PM

Re: Spaced out, drunken feeling for 3 1/2 years, 24/7. Please help me.
Were you taking any meds when it first happened? Are you still on any meds now, that you were on then?

The ENT might actually be able to help you. I had a bad Doc couldn't figure it out. Sent me to an ENT. My jaw is out of alignment...I had to get a retainer. It works more earache.

Let us know....interesting...


junior26 11-11-2007 08:04 AM

Re: Spaced out, drunken feeling for 3 1/2 years, 24/7. Please help me.
Actually, after it started more than 3 years ago, I immediately thought that it might be anxiety and so I went to the Montreal Anxiety Clinic. Anxiety specialists! After a few sessions, he told me that he had never heard of anxiety causing 24/7 dizziness and told me to go see a medical doctor.

I have had hypertension since I was a kid and decided to go get it chekced out thinking that it may be related. The doctor actually gave me anti-depressants for it (Celexa)! Told me that I'm probably a nervous type. Needless to say, it didn't do anything for my hypertension. Nor did it help for anything else. Apart from that, I was very allergic to it. It gave me severe hives, so I stopped using it.

sponge70 11-11-2007 10:04 AM

Re: Spaced out, drunken feeling for 3 1/2 years, 24/7. Please help me.
I Have Felt The Same Way For Years Now. I'm On Xanax And It Does'nt Help Much. My Balance Is Off Also. I Feel Like My Legs Are Going To Buckle Under. I Went To The Mall With My Grand Daughter And She Was Trying On Clothes. I Just Stood There Afraid To Take A Step Because I Was Afraid I Would Pass Out. When I Go To The Super Market I Have To Hang On To The Cart. If I Turn My Head To The Side I Get Dizzy. I Avoid Going To Malls Now.
I'm Here If You Want To Talk.

BadMalibu 11-11-2007 05:39 PM

Re: Spaced out, drunken feeling for 3 1/2 years, 24/7. Please help me.

I'm a regular on the OCD board, but I figured I would come over here to take a look around and I'm glad I did, because I found your post. Please know that you're not the only one that experiences depersonlization, because I get it too. When I talk to my therapist, he tells me that it's related to anxiety and it's sometimes the minds way of protecting you from further anxiety and stress. When the mind becomes so overwhelmed with stress and anxiety, the brain kind of shuts off to prevent any further anxiety or stress.

I did recently post on this very subject on the OCD board but I didn't get much of a response. If you're not having luck with a regular physcian, I would suggest seeking out a therapist that specializes in CBT as they're going to be more able to help you develop strategies to battle back against your symptoms.:D

Tim 007 11-11-2007 11:04 PM

Re: Spaced out, drunken feeling for 3 1/2 years, 24/7. Please help me.
This is a copy&pasted segment of my previous post...

I just wanted to inform people taking of a frightening, but HARMLESS feeling called "depersonalization". This is a disturbing experience that I feel is not properly talked about on this website.
Depersonalization, for me, is characterized by feelings of unreal proportion. Remember when you were a kid and you got your first tooth taken out. You could spend hours feeling the spot with your tongue, and each time it still felt "not right", and NEW. Now imagine it wasn't just one spot, but that it was your entire body...well, that's how it feels for me. Every time I touch my nose, scratch my arm, or move my tongue around in my mouth...the feeling seems "NEW" and "not right". It's extremely unsettling. It seems as though I had a stroke, and lost all sense of touch, and have to relearn everything by retouching everything. However, I don't have problems talking...I don't have trouble seeing...I don't have trouble remembering(well, long term... since I never know where I put my keys) what is it? "Depersonalization". Depersonalization not only affects my touch, but also certain sounds, and sights. I even get unsettled looking in the mirror.
This "feeling" scared me, but I was relieved to hear from my doctor, family, and friends that this is a common problem with anxiety sufferors.

Zoloft has helped greatly to lessen my depersonalization, I'm feeling better than I have in almost a year.

junior26 11-13-2007 08:54 AM

Re: Spaced out, drunken feeling for 3 1/2 years, 24/7. Please help me.
Actually, the therapist I saw was a CBT specialist. However, he still thought I should go to seek medical help first.

As for derealization & depersonlization, I guess the drunken feeling seems more like derealization. However, all references I have read say that people get "episodes" of derealization, not chronic 24/7. And they say that with derealization, things seem unfamiliar and bizarre. This is not the case with me. My brain and my way of thinking is 100% intact. I'm able to run my business without any problems, etc.

It's seems entirely visual. Like my eyes aren't focusing fast enough for my brain (or vise-versa). It's the best way I can describe it. If I focus on same spot (like this computer screen for example), I notice it less. But when I scan the room with my eyes, it's like as if my brain is milliseconds behind with what I see. Exactly like when you're a little drunk. However, my judgement is not impaired.

Thanks for your much appreciated help guys.

You can also read posts from tweeny456. She seems to have the exact same 24/7 symptoms.

ShakesMcThyroid 11-13-2007 10:21 PM

Re: Spaced out, drunken feeling for 3 1/2 years, 24/7. Please help me.
I have suffered from that spaced out, 'drunken feeling' for coming on 4+ years now. And I'm starting to finally get some answers.

It was triggered by an emotionally traumatic moment in my life. Many people don't fully understand what can be traumatic. For example, the average person may have a stranger say to them out of meanness, 'You're ugly.' It may hurt their feelings, maybe they'll cry, but if they have not been traumatized up to that point, the effects will be minimal (if any).

Now do the same thing to a person who has been told their entire life, by their parents, peers, in school and beyond, they are ugly, it may just be too much for them and they may 'snap.' Their mind has overloaded with lifelong trauma within a moment and hence depersonalization sets in. Its job; to detach the overloaded stress receptors from the body, wherein not to cause more damage. This is why average persons don't understand this disorder. Their stress and traumatic systems still have the ability to handle that trauma. Ours cannot.

When it happened to me, it caused many other illnesses, which I am starting to get under control. Not until I was hospitalized for stress-induced diabetes did I realize that whatever I had was more than 'in my head' (like it's a choice).

I went to a psychiatrist. Remember, all they do is prescribe meds. But those meds work. SSRIs stabilize your mood. For example, if your mood goes to extremes, high to low, SSRIs will eliminate that. The side effects stink, but hey, what do you want. :)

Benzodiazepines reduce the little things that irritate you that develop into big things. Like somebody cutting you off in traffic. Your first response is to become agitated. On benzos, that is reduced.

There are many other meds, but these are the most common. These along with some form of therapy (I do hypnotherapy, but CBT and many others are proven to work), a possible change of diet, exercise, self-education, and relaxation techniques have helped me enormously in becoming back to my old self.

I am functional again. I'm still not right, but I'm much better off than I was 8 months ago.

Good luck to all my brothers and sisters in arms. May we find a cure for this dreaded dissociative state.


DizzyAmber81 11-15-2007 06:33 PM

Re: Spaced out, drunken feeling for 3 1/2 years, 24/7. Please help me.
Hey junior26, I can relate to everything you have said. I have the same thing Im sure of it. You are the only other one that has that (feeling) 24 7, that I have found. Im going to share my story with you in hopes you can relate. About 4 months ago I was on my laptop and I got dizzy not really vertigo but dizzy like eyes shaking kinda dizzy and felt all off balance and like a general head change. So this went on for 2 weeks, it was really only dizzy at first. I noticed it became worse when I looked at the computer so I got nutty about the computer like it was some kind of radiation coming from it not the case of course. Anyhow then of course I began having anxiety attacks because of the feeling and my fears of cancer and death. These make it way worse and then everything does spin. Had 2 bad attacks that left me exhasted and spinning. Anyway it got somewhat better for a week but that feeling never left then after that it was back. Just a general hazy groggy weird horrible feeling that never ever goes away some days are better and some are horrible but it never goes and Im never normal again. Some days its like accompanied by a pressure in my head and sometimes bad bad headaches and also sometimes my neck muscles on both sides feel constricted and this makes the pressure and that feeling way worse. And sometimes I feel like my head is buzzing like im electric. Im not sure if these other things are because of the anxiety or a part of this thing the only true symptom that is there always is the (feeling). I do seem to have the better days after alot of sleep. I noticed also that when I force myself to do housework and things I have better days but when I just lay around I have more bad ones. Also it is somewhat better in the morning and somewhat worse at night when Im tired. I dont take any medications drink or do any drugs. Also my heart pounds all hard as well just from standing up and when im calm and trying to be happy not from anxiety. I have been to the ENT, a GP, and a Neuro had a CT scan of sinuses and head with contrast an ekg tons of blood work a holter monitor, Im going on Monday for an EEG i think the one for Epilepsy even though I dont have seizure and the one for MS. Then an MRI if those show nothing I think Im also going to ask for a chest xray just to rule out a lung prob. My heart rate was 100 at my cardio appt. and they acted like I was so stupid to even be there. Im just trying to find out what it is and rule stuff out, just because im young 26 doesnt mean I am immune to having health problems they actually told me I was too young to be having a heart problem. Ugh its just so frustrating to feel this way 24 hours a day 7 days a week with no break it is starting to wear me down, I cant even imagine being like this for almost 4 years what in the hell is it??? I just want a normal life again now I feel so bad for all I took for granted when I felt good feel bad for complaning about stupid crap. I guess I have made this long enough sorry to make it about me I was just so relieved to find someone like myself and wanted to see if you experience all of what I do or just some of it. Oh also the store thing I have horrible times in store the eye thing with the lights patterns and sounds I tried to go to the mall on my birthday everything started spinning and I literally thought I was dying I almost passed out that was like 2 months ago havent been back since. I vowed until this feeling leaves me I will not go back. I have been to like target and walmart feeling is worse there but I do ok. I also have anxiety at drs apptments because i am scared of what they may find but at the same time I want them to find something just not something like cancer.. Im sorry im rambling. Please respond to this and tell me if we are similar it would be such a relief to have someone to relate to and discuss this with. My husband is great and supportive as are my friend but they dont feel what I do and I think they are bored of the subject of my health. Thanks Junior

DizzyAmber81 11-15-2007 07:07 PM

Re: Spaced out, drunken feeling for 3 1/2 years, 24/7. Please help me.
Oh also I forgot, I am nausaous every moring also, and I do feel better in the car sometimes not always. I went back and read your first post about all this and we do have the same thing. Everything is the same. I dont think it is the anxiety though. Not constantly like this.........and that depersonalization theory Im realtively sure is not the problem. Oh and I am 26 also it started 2 months before my 26th birthday. I know its not much help but if we all get togather and compare things and keep up with tests and stuff maybe we can figure this thing out. See my other posts.

Pooke67 11-17-2007 11:44 AM

Re: Spaced out, drunken feeling for 3 1/2 years, 24/7. Please help me.
Wow. I can't believe that I found other people with this problem. I have been trying to figure out what is wrong with me for 9 months now. My head constantly feels like I'm in an airplane at high altitude. I've also described it to my friends as feeling like electricity is running through my head or my head is filled with Helium. I've been to the ENT and he says that my sinus tissue is inflamed and swollen, but I have no allergy/nasal symptoms. I've been thinking that this feeling is somewhat related to my sinuses, but in the last few weeks, I have had several bad panic attacks. Now I'm wondering whether the sinus problem is causing the anxiety or the anxiety is causing the sinus problem! Apparently, anxiety can wreak havoc on other systems of your body including digestive and respiratory. I started taking Paxil last week (only 5 mg/day) in hopes of getting rid of the anxiety. So far, the Paxil is making me more anxious, shaky and spacey, but I understand that I have to give it a couple of weeks. I keep feeling sorry for myself, wishing that someone else could see what this feels like and "pat me on the back" for getting through each day...working and taking care of 2 kids and a husband. Not easy, that's for sure. I agree, there is no break, you wake up with and and go to bed with it...sometimes I get nauseous and weak and I'm always tired and lacking any energy to do things that I normally like doing. I'm just praying that it's anxiety and the Paxil will get me out of this. Let me know if you have any the meantime, I'm scheduled for the ENT, GP, and GYN...I'm hoping that one of them will find an answer.

DizzyAmber81 11-19-2007 04:07 PM

Re: Spaced out, drunken feeling for 3 1/2 years, 24/7. Please help me.
Hi pooke
Im sorry your feeling so bad I know what you mean about how much it takes just to get through the day with this and how others cant possibly understand what it feels like. We are here for you and understand. I told my husband just the other day I wish you could feel it for just one day and then you would know what its like. Let us know how the test go. I will do the same maybe one of us can find what it is and maybe help the others out. I just want to be normal again. Is yours constant too??? Mine has not let up even once since it began. I had 2 different types of eeg's today looking for epilepsy without seizures and MS among other things next is chest xray and MRI. Have you been tested for Lyme disease I was but just the reg blood test which i have heard is like 90 percent wrong . Have you looked into lyme as a possibility the symptoms sound alot like mine and yours. Also I have been considering Cronic Migraine. Just a little Food for thought I hope you get to feeling better soon.

Pooke67 11-20-2007 05:29 PM

Re: Spaced out, drunken feeling for 3 1/2 years, 24/7. Please help me.
Thanks for the support Amber. I had a brain MRI 3 years ago when I was having a whole bunch of autoimmune blood tests which I think looked for Lupus and MS. I was also tested for Lyme in February, when this started, and it was negative. I don't have any other typical Lyme symptoms, like memory problems or sore joints, so I haven't been thinking about Lyme. I also don't have headaches, so I'm not thinking migraine. Other posts I've read on here mention TMJ and jaw clenching which affects your inner ear and can cause problems with dizziness and balance. Right now, I'm hoping it's just anxiety and the Paxil will eventually conquer it. In the meantime, I'm going to ask the ENT to really investigate my inner ear (and whatever tests might accompany that). The Paxil really makes the "airplane head" worse which is really killing me, but it takes a couple of weeks to get over the side effects and start working. I'll let you know. I'm also going to get my thyroid tested (even though I just had this done in February). Ive heard that low thyroid can give you symptoms like ours. It's unfortunate that anyone has to live like this, but I try to look at the bright side of things and imagine that alot of people live with things much worse than this...chronic pain, MS, Lupus, etc. Try to be thankful on Thanksgiving!

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