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  • I feel like I'm dying - possible Arachnoiditis

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    Old 05-15-2015, 08:42 AM   #1
    streetsk8er794
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    I feel like I'm dying - possible Arachnoiditis

    Hello all.

    My entire body - my arms, elbow joints, knee joints, upper back, lower back, ribs, lower stomach, skin, legs, neck - all burn and tingle. It doesnt burn to the touch, but feels like badd internal sunburn. I am on 2400 mg neurontin, 25 mg amitryptaline, 200 mg tegretol, and 750 mg chlorzoxazone and it barely makes it livable. Without these meds I am bed ridden and want to die. I am in college and cannot sit at all. I stand in the back of the class and watch the lecture, but even standing hurts and burns my legs. Sitting makes it worse, not only in the short term, but in the long term. Every time I sit for a long time or over exert my back (as in having sex or working out) my body pain gets permanently worse and I have to increase my meds. The doctors have found 5 herniated discs and I've had 2 EMGS - that show nothing. They can't find a source for this pain. No nerve clumping as is typical of arachnoiditis (to my understanding); but my symptoms sound exactly like it.

    Before the pain was this bad it was just lower back pain from the herniated disc. Before the burning and just the back pain, I had an epidural injection under fluoroscopy but it didnt help. Whenever I sat for too long and played sports each time I did that the pain spread to another area permanently. I even had a thoracic nerve ablation and THE VERY NEXT DAY the pain spread to my neck and ribs and arms and got EVEN WORSE. I dont know what to do as I am out of options and in school but I don't want to drop out or do something worse. Does this sound like arachnoiditis?

     
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    Old 09-19-2015, 06:03 PM   #2
    Moldova
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    Re: I feel like I'm dying - possible Arachnoiditis

    I am not a Dr of course, but done a lot of study on ARC during years of my ordeal with this condition.
    This doesn't sound like ARC at all; ARC doesn't spread.
    Your best bet will be to find good teaching hospital and search for a good specialist to get to the bottom of problem.
    Burning in areas you mention, most likely has to do with your muscles. I done yoga for years, it's amazing what deep stretching can do for us. Do you spend much time sitting in front of computer? Causing pain and burning in many areas of your concern.
    See Neurologist as well as good Internist, possible RA Dr, although this doesn't sound like RA...
    Check for food allergies too.

    Best of luck to you dear!

     
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    Old 09-23-2015, 11:24 AM   #3
    streetsk8er794
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    Re: I feel like I'm dying - possible Arachnoiditis

    Moldova,

    Thank you so much for replying, its good to finally get one!!! The pain is not just burning - it is tingling as well. I was led to believe that tingling can only be nerve pain and not muscle pain, is this correct?

     
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