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  • Wow opiod dependency on my chart

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    Old 05-20-2015, 09:24 AM   #1
    blueline488
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    Wow opiod dependency on my chart

    "Opioid Type Dependence Continuous Pattern Of Use"

    Now, am I taking this wrong or could pain management be thinking this is all in my head? It's amazing to me that I went from being on max medications and I mean max to no medications for a year just to see if I could do the juicing and natural means of healing, which did crap and now I'm trying to just get by with the least amount possible of meds and haven't even uped or asked to go up on my meds at all since I've been there for about 9 months! I've even done without the meds for a month or two. Gosh this just makes me so mad! I get tired of being considered just popping pills for no reason. If they only knew how many times I hurt so badly and just take the pain. I don't know what to do. I was hoping for surgery to help with my pain, that was my way out...she knew I was checking out the other ways to stop this pain. Why the heck would I go through a fusion if the pain wasn't real? Now that I found out I have arachnoiditis, which she isn't even aware of which I was actually going to ask for more pain meds this time because I know I can't have surgery! I'm tired of being judged and I'm tired of the pain. I'm tired of the onset of new symptoms...i'm just so frustrated!

    Last edited by Administrator; 06-03-2015 at 01:13 AM.

     
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    Old 05-21-2015, 07:34 PM   #2
    bemindful
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    Re: Wow opiod dependency on my chart

    Wow. I was reading up on your diagnosis. There is a lot involved. I'm very sorry that you have to go through this, and that pain management is very difficult. I just wanted to share my concerns. I hope you do find some relief...

     
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    gmak (07-14-2015)
    Old 05-29-2015, 10:21 PM   #3
    gmak
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    Re: Wow opiod dependency on my chart

    Hi blue, I understand your frustration bc I have had adhesive arach for 27 years. Seen the same dr for 15 years and I've taken same dosages of same pai meds for 12 years. I had 3 NS's diagnose me and my MRI shows all of cauda equina nerves adhered to dura. I totally relate to increasing neuropathy symptoms as well as pain and I wondered if you have symptoms of CES bc with AA I have CES chronically. The dr that diagnosed you did he give you MRI disk and radiologist report to take to PM dr to prove you have arach bc if not i requested a copy of MRI disk and the report to take with me to PM dr and my pm dr said the documentation of this gives him a verified need for opiate meds in my records. Are you
    in pain management all the time or intermittently besides the eating right holiday bc I was wondering why you had to go without meds. Life is so much better when I can function more with pain controlled and I truly understand the severity of going without meds or not having the right dosages to function and it took my dr. I see a physiatrist, 2 years to find the right combination of meds and I hope that your dr is really trying to find yours and if not then I would try to find a dr that is an expert in managing pain at least and hopefully aa as well although I know the latter can be very hard to find. I'm here if you have questions or just need to talk to someone who gets it!

    Last edited by gmak; 05-29-2015 at 10:31 PM.

     
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    Old 07-03-2015, 03:30 PM   #4
    Kristina**
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    Re: Wow opiod dependency on my chart

    Hi,

    Let's address two issues. One, the pain itself. Two, what it says on your chart.
    ]
    You have severe pain and you deserve to be treated by a physician specializing in the treatment of pain. I liked what someone else said, which is to bring a copy either of records or tests that prove your diagnosis. Best is if your regular doctor could send you to a pain specialist, but most important that you just get to one.

    I had severe pain, and I mean really, really severe, since the age of 17 when I had a bad fall with an 85-lb backpack. I went many years without treatment and I felt that people didn't appreciate the amount of pain I was in and I couldn't understand why they didn't give me pain meds. I think a lot of it had to do with my young age.

    I am over 60 now and have been on very strong opiates for about 13 years now. I also get botox injections into the affected muscles. And the difference is absolutely ******. I look back and am really disappointed in the doctors I had as a young woman.

    The second thing is about what you saw on your chart. I saw something similar on my chart and I asked my doctor about it. It had something to do with an automatic program. If you put in that the patient continually took opiates, it added something like that to your list of diagnoses. It clearly made it look like I was abusing medications whereas he and I agree that I never had.

    He said that there was nothing he could do to change it. I insisted that he write a note specifically addressing that diagnosis and making it clear that I never had abused medication.

    that way if anyone ever questioned me about it, I could refer them to that note.

    I don't know if that is your situation or not, but if you think it is possible, maybe you should discuss it with your physician.

    Good luck to you.

     
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    Old 07-14-2015, 04:02 PM   #5
    gmak
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    Re: Wow opiod dependency on my chart

    I Appreciate the information so much bc especially with this diagnosis we need to share with each other. I can't see a pm/ Anes and i do better with my pain with the physiatrist who is also a pm specialist and I didn't mention that earlier. I'm sorry. I have a very very long history too and bc everyone of them, pm/ Anes, can't resist the need to insist on doing epidural steroids or other invasive spine procedures that are contraindicated by the diagnosis of aa and they do not help but hurt me, have had over 50+in the past. Yes, 8-10 esi's per procedure date. It IS very very severe pain and i take two long acting opioids for years And my meds still work to provide me with pain relief daily but you know like I know that it just really bites that there's nothing more that can be done surgically to help me. I'm blessed at this point to have my dr and I am mostly in a controlled pain situation except I began having a new unbelievable unrelievable pain that started after I fell too. I'm having an MRI to see what the cause could be like Tarlov or another fracture. It's in the lower sacrum now and may be just the increased symptoms of empty sac stage of this mess we have! It's not relieved by narcotics unfortunately! I appreciate how much pain you've been in too! I was 26 when I got injured and had 4 lumbar surgeries and had csf leaks and dural grafting and was mismanaged by pain drs in my past also and they knew I had aa but didn't tell me. It is so very sad. I wish there was more they could do for you also!

    Last edited by gmak; 07-18-2015 at 12:57 PM.

     
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    Old 07-18-2015, 07:03 AM   #6
    3RDSTAGE
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    Re: Wow opiod dependency on my chart

    Quote:
    Originally Posted by gmak View Post
    Hi Kristina, I Appreciate the information so much bc especially with this diagnosis we need to share with each other. I can't see a pm/ Anes and i do better with my pain with the physiatrist who is also a pm specialist and I didn't mention that earlier. I'm sorry. I have a very very long history too and bc everyone of them, pm/ Anes, can't resist the need to insist on doing epidural steroids or other invasive spine procedures that are contraindicated by the diagnosis of aa and they do not help but hurt me, have had over 50+in the past. Yes, 8-10 esi's per procedure date. It IS very very severe pain and i take two long acting opioids for years And my meds still work to provide me with pain relief daily but you know like I know that it just really bites that there's nothing more that can be done surgically to help me. I'm blessed at this point to have my dr and I am mostly in a controlled pain situation except I began having a new unbelievable unrelievable pain that started after I fell too. I'm having an MRI to see what the cause could be like Tarlov or another fracture. It's in the lower sacrum now and may be just the increased symptoms of empty sac stage of this mess we have! It's not relieved by narcotics unfortunately! I appreciate how much pain you've been in too! I was 26 when I got injured and had 4 lumbar surgeries and had csf leaks and dural grafting and was mismanaged by pain drs in my past also and they knew I had aa but didn't tell me. It is so very sad. I wish there was more they could do for you also!
    u have really been put through the ringer so to speak. i have successfully quit those blasted Suboxone after 3 yrs on them, just didn't want to let me go. i can relate to many of your issues. you'll be in my thoughts.

     
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