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  • Neuropathy or Neuritis?

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    Old 01-30-2009, 01:53 PM   #1
    Freddie123
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    Neuropathy or Neuritis?

    I'm new and started reading the small fiber neuropathy postings thinking I had it. I might still, but when I saw the neurologist the other day, she ordered a nerve conduction test/EMG and MRI. MRI because she mentioned that sometimes a stenosis in the lower lumbar area or lumbosacral spine area can compress nerves that will cause the symptoms in the feet such as I have and others have written about - burn/freeze pain of feet. Mine gets unbearable and I can't concentrate at work.

    It's worth knowing that's a possibility for some people in case there's difficulty finding the diagnosis. This sort of compression can cause something called pedal neuritis. I've been chasing down an accurate diagnosis since November and it just goes on and on.

    I haven't had the tests yet, but am guessing it's nerve compression due to some degeneration noted on MRI in 2004. Unfortunately, treatment is surgery if all else fails and it has its risks of course. I've already had a left hip replacement and in the next few years will need the other side done. I'm 54. I don't know what will become of me if hip and spinal surgery will be needed to be able to have some quality of life. I can't imagine all of that going well.

     
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    Old 01-30-2009, 07:49 PM   #2
    cardshark
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    Re: Neuropathy or Neuritis?

    Hang in there! I am just a beginer when it comes to nerve conditions however I've been dealing with severe medical conditions for 22 years so I know a lot of medical terminology and I can tell you that technically neuritis is a form of neuropathy. Neuritis is inflammation of the nerve and neuropathy is a general term used to describe any condition/disease of the nerve. I hope you have better luck getting your doctors to figure things out than what I have. I've been on crutches for 5 months now because doctors can't figure out for sure the underlying cause of my symptoms.

     
    Old 02-01-2009, 03:12 PM   #3
    Freddie123
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    Re: Neuropathy or Neuritis?

    You're absolutely right about the terms essentially indicating the same thing. But I think it's good to know or consider the possibility that back problems such as compression in the lower spine could be the cause of neuropathic symptoms. I hope docs are also considering using MRI's to screen for something of that nature. The lower spine (and sacrum) can degenerate causing bone overgrowth in the vertebral facets that can compress nerves to lower legs and feet causing the weird debilitating symptoms. At any rate, it seems to be a long haul for patients like me (and you) to search out the right diagnosis (if it can be found). Doctor after doctor - test after test. But I can't give up as I know there's a reason and someone, somehow must eventually be able to find it.

     
    Old 02-04-2009, 06:14 PM   #4
    cardshark
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    Re: Neuropathy or Neuritis?

    My doctor was open to something being wrong with the back/spine and causeing referred pain in the leg; they did an MRI of my back along with CT of my chest, abdomen, and pelvis to make sure it wasn't something wrong with one of them (tumor) causing referred pain but they all came back "normal for me".

     
    Old 02-04-2009, 09:33 PM   #5
    woondog
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    Re: Neuropathy or Neuritis?

    Quote:
    Originally Posted by Freddie123 View Post
    I'm new and started reading the small fiber neuropathy postings thinking I had it. I might still, but when I saw the neurologist the other day, she ordered a nerve conduction test/EMG and MRI. MRI because she mentioned that sometimes a stenosis in the lower lumbar area or lumbosacral spine area can compress nerves that will cause the symptoms in the feet such as I have and others have written about - burn/freeze pain of feet. Mine gets unbearable and I can't concentrate at work.

    It's worth knowing that's a possibility for some people in case there's difficulty finding the diagnosis. This sort of compression can cause something called pedal neuritis. I've been chasing down an accurate diagnosis since November and it just goes on and on.

    I haven't had the tests yet, but am guessing it's nerve compression due to some degeneration noted on MRI in 2004. Unfortunately, treatment is surgery if all else fails and it has its risks of course. I've already had a left hip replacement and in the next few years will need the other side done. I'm 54. I don't know what will become of me if hip and spinal surgery will be needed to be able to have some quality of life. I can't imagine all of that going well.

     
    Old 02-04-2009, 09:46 PM   #6
    woondog
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    Re: Neuropathy or Neuritis?

    i have no knowledge of neuritis but i can comment on neuropathy as I have had it for a long time. of course, there are all kinds of reasons for pn..i have the diabetic type.
    Pain and burning is the most debilitating of the consequences. starting
    with somewhat bearable pain to incredible 'lightening strikes' of pain occuring
    every 21 seconds of so, lasting for days. Some people are only effected in the feet
    but, with others, it goes to the entire leg and often effects the hands. Balance
    is also a factor in some. last time i looked, there were about 27 causes of
    pn and the most famous one is idiomatic, too difficult to tie down.

    Nowadays, there are lots of drugs out there to deal with the pain. There's
    neurontin, nortryptilene, dilaudid,......one thing, i would strongly suggest, is that
    after being unsuccessful in pain management with one doctor, go to another
    one because it took me too long to lay the cards out with a doctor
    who i might choose to help me. Still pain---time for a new doctor. Don't suffer!

     
    Old 02-11-2009, 02:44 PM   #7
    Robbysmom
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    Re: Neuropathy or Neuritis?

    Is this true that the worst that can happen with neuropathy is the pain? I'm so worried about losing my mobility..that's part of it too, is it not?
    Thanks.
    Robbysmom

     
    Old 02-12-2009, 11:26 AM   #8
    cream9518
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    Re: Neuropathy or Neuritis?

    Have PN for the past two years and have been taking lyrica, and have tried all other medications with no avail. I do not have diabetes and have idiopathic neuropathy. My neurologist has said I have polyneuropathy (a diffuse neuropathy that affects all of the nerves.)The burning and numbness of back and legs are more intense that I am now using the ReBuilder Stimulator.

     
    Old 02-17-2009, 08:35 AM   #9
    Allegra
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    Re: Neuropathy or Neuritis?

    It is such a relief to find others who understand the neuropathy affects! It is very hard to explain that the feet are numb. And that they are on fire and tingle and feel like walking through fiberglass at the same time. My first neurologist,after a year, said there was nothing wrong with me because none of the drugs gave me made any difference, except for nightmares, and the tests all were negitive. The 2nd neurologist went the extra steps,(mega nerve testing plus 8 vials of blood!) and he listened to me! He diagnoised me with polyneuropathy. As Freddie 123 mentioned the stenosis in my lumbar is the cause. He called it "Arachnoiditis" it's rooted in the spiderlike web of nerves in the base of the spine. I find a heating pad on my feet gives more relief than on my back. A sleep through night hasn't happened in years. I too worry about losing mobility. When there is ice on the walkways I have to use a cane to navigate. I take the rubber thing off the bottom and use it like a ski pole. What worries me now is that it seems to be going higher up over my right ankle. I really have nothing positive to add just needed to let off some steam. Glad you guys are here.

     
    Old 02-19-2009, 02:04 PM   #10
    Freddie123
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    Re: Neuropathy or Neuritis?

    I am wondering, Allegra, how was the stenosis diagnosed? Did the neurologist do an MRI? You mentioned one doc had given the diagnosis of polyneuropathy; was this the same one that diagnosed the arachnoiditis? Also, did the stenosis cause the arachnoiditis? I am still seeking answers. The nerve studies done have been normal. My symptoms are the same as yours, but the neurologist said the degenerative processes seen on the MRI weren't enough to cause the foot symptoms. I disagree. Although there is no stenosis, there is spondylosis and foraminal narrowing in the lower lumbar areas right and left sides, which I believe can contribute to the sensory disturbance and pain in my feet. So I am fretting over which specialist to see next. Another neurologist? A neurosurgeon? I just don't know. But I know the pain I'm having isn't just "bothersome" as the neurologist stated - it is interfering with my ability to concentrate at work. I am frustrated. There may not be a cure/fix, but there is a reason somewhere in my body for this pain and I want to know it. I guess I'll keep going and try to get someone to really look and listen.

     
    Old 02-28-2009, 09:43 AM   #11
    Allegra
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    Re: Neuropathy or Neuritis?

    Maybe this time the computer won't bump me off! I tried several time to answer! Odd to say but the stenosis was discovered when I had a CTScan for a pelvic cyst problem! The scan showed part of the spine and from there it was to the orthodedic doc to neurologist #1 who said I had the polyneuropathy and then pretty much quit doing anything except taking payments. Basically he was useless.The second one really went all out with the extra testing and most important he really listened to me. I have a herinated disc from years ago and the spondilosis too. Gee, I never realized how messed up my spine really is! What is strange is that my feet don't bother me as much if I'm standing but my back doesn't like it and my feet are terrible when I lie down but my back is happier! It is hard to live with and the cold weather is the worst at making everything feel awful! I try not to go out in bad weather.I had to ask a stranger to help me to the car last week. While I was in the doc's office we had a snow/rain/ice fall and I literally couldn't manuver myself to the car. I felt like an idiot old lady! Finding a good doc is important keep looking for one you trust and especially one who listens!! Not just for this but for everything you need.

     
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