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    Old 03-02-2012, 12:25 PM   #1
    drokendo
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    Question entrapped nerves

    as anyone suffered severe numbness and pain in the legs aand lower back after a spinal fusion? My surgen left me said he did not know what was wrong with me (this from a neurosurgen) after11 months and many doctors later I have been told that I suffer from entrapped nerve syndrome.can anyone tell me if they have had any releif from their pain?

     
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    Old 03-02-2012, 09:07 PM   #2
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    Re: entrapped nerves

    Welcome to the board.

    It is not uncommon to still suffer from nerve pain after spinal surgery, particularly fusion.

    At what level or levels was your fusion? Is the pain you have now the same as what you had prior to surgery? Has it continued ever since the surgery or was there a brief period when you were pain-free (other than the surgical pain, of course)? Is the pain mostly in your leg or lower back?

    Have you seen an orthopedic spine surgeon for an opinion?

     
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    Old 03-03-2012, 12:02 PM   #3
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    Re: entrapped nerves

    thank you for your reply my fusion is at L3-4L4-5 my surgery was in March2011 and another exploratory surgery in June 2011 by the same neurosurgen. I have had therapy injections tried many narcotics and now am on lyrica and methadone my pain and numbness are about the same as before pain in right leg and lower back, numness in left leg. I am now under the care of a spinal ortho. and considering neurostimulator inplant. to relieve some of the pain.

     
    Old 03-03-2012, 10:01 PM   #4
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    Re: entrapped nerves

    What does the ortho spine surgeon think is causing all the pain?

     
    Old 03-04-2012, 03:16 AM   #5
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    Re: entrapped nerves

    I have some nerves that are trapped in scar tissue.I will see him on tuesday to see what my next step will be.

     
    Old 03-04-2012, 10:12 AM   #6
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    Re: entrapped nerves

    Oh...I didn't understand that you were talking about scar tissue problems. That is a completely different issue.

    Just be aware that "scar tissue" gets blamed for more cases of failed back surgery syndrome than anything else. It has become a catch-all diagnosis for when surgeons cannot explain why the patient is still left in pain upon the completion of the surgery.

    If your nerves are indeed entertwined with scar tissue your options will be limited. But before facing that, it is important to figure out if this is really the case or just what the doctor is surmising.

     
    Old 03-19-2012, 09:56 AM   #7
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    Re: entrapped nerves

    Quote:
    Originally Posted by teteri66 View Post
    Oh...I didn't understand that you were talking about scar tissue problems. That is a completely different issue.

    Just be aware that "scar tissue" gets blamed for more cases of failed back surgery syndrome than anything else. It has become a catch-all diagnosis for when surgeons cannot explain why the patient is still left in pain upon the completion of the surgery.

    If your nerves are indeed entertwined with scar tissue your options will be limited. But before facing that, it is important to figure out if this is really the case or just what the doctor is surmising.
    Hi, yes scar tissue does get the blame for failed back surgery syndrome because 99% of time it's the cause overall. I know I am on yr 5 post surgery and my pain is nerve pain, tingling, unable to walk stand sit run and many things ppl take for granted I cannot do, who knew I'd still be using handicapped toilet after 5 yrs post L5-S1 hemi-laminectomy. To rule certain it's scar tissue, note how severe was your nerve compression n pain levels prior to surgery, more back, or more buttock, hip behind knee down calf and foot. Do you feel like your walking on marbles barefooted, is your foot numb.....these things then the safest way is MRI with contrast.....myleogram and disco gram can really make things worse and the MRI is usually enough to determine scar tissue or rerupture of same disc or above or below original. I can see my scar tissue myself very clearly on my MRI and its obvious by position the nerves are trapped, wish you well
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    Old 03-22-2012, 12:08 PM   #8
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    Question Re: entrapped nerves

    Is this the same as nerve clumping? I have nerve clumping and arachnoiditist.

    History:
    I had a fusion at L4-5 level in December 2000. Was good for 8 years. One day bent over to get something off the floor of my car and have had pain ever since. Had 3 MRI's since then and all said "arachnoiditist" and now a new one on last MRI - "nerve clumping". I also have a herniated disc above my fusion and S1 narrowing. I have pain in my leg (not daily) and tingling in my feet (almost daily). I have a lot of low back pain and hip/butt pain also. BTW, doctors will not discuss arachnoiditis with me. Like they don't know about it. I've read about it on internet - it's rare and uncurable.

    Been taking Lortab 10/500 for 3+ years - no more than 3 a day until recently I went up to 3 1/2 to 4 a day - helps for a little while but I pretty much stay in pain. Does anyone know if these pills are making my pain worse? Anyone experienced this with pain medications?

    Any help, suggestions, etc. would be greatly appreciated.

     
    Old 03-25-2012, 07:32 AM   #9
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    Re: entrapped nerves

    Quote:
    Originally Posted by Roadvibrations View Post
    Is this the same as nerve clumping? I have nerve clumping and arachnoiditist.

    History:
    I had a fusion at L4-5 level in December 2000. Was good for 8 years. One day bent over to get something off the floor of my car and have had pain ever since. Had 3 MRI's since then and all said "arachnoiditist" and now a new one on last MRI - "nerve clumping". I also have a herniated disc above my fusion and S1 narrowing. I have pain in my leg (not daily) and tingling in my feet (almost daily). I have a lot of low back pain and hip/butt pain also. BTW, doctors will not discuss arachnoiditis with me. Like they don't know about it. I've read about it on internet - it's rare and uncurable.

    Been taking Lortab 10/500 for 3+ years - no more than 3 a day until recently I went up to 3 1/2 to 4 a day - helps for a little while but I pretty much stay in pain. Does anyone know if these pills are making my pain worse? Anyone experienced this with pain medications?

    Any help, suggestions, etc. would be greatly appreciated.



    Yes this is very similar in nature, nerves can become trapped as single fibers or in bundles and bundles get clumped....I also take Lortab 10/500 at 6 a day and it's never complete relief. I was pain free short of surgical pain for a whopping 3 days. I take Flexeril, Gabapentin, and Klonopin to aid this pain, have tried stronger meds all they do is make you out of it. As much as I hate to say, one a back surgery fails, some sooner than others, pain is just a ever present part of life...I do the best I can...but no the "pills" are not making your pain worse, if you stop them your pain would become more so and never abruptly stop a painkiller, I have been on it 5 1/2 yrs and my pain specialist said after 2-3 weeks of constant use you must be tapered off to prevent severe withdrawal and pain rebound...well wishes
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    Old 03-25-2012, 08:41 AM   #10
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    Re: entrapped nerves

    None of us are neurologists, so I hope we aren't passing along inaccurate information....it is my understanding that there is a difference between entrapped nerves and the nerve clumping that is indicative of arachnoiditis.

    An entrapped nerve is a compressed nerve which, in some cases, can be released from the compression. In arachnoiditis, the nerve clumping cannot be altered (at this point, anyway), and it is found in a very specific area...the arachnoid membrane that surrounds the nerves in the central canal.

    I think it is important to consider that just because someone has arachnoiditis, it does not rule out also having a disc herniation, or something similar, that is causing the current symptoms.

    The best way to diagnose arachnoiditis is a "T2 weighted, fat suppressed, gadolinium enhanced, high resolution MRI scan. Ideally, this should be read by a neuroradiologist experienced with the appearance of arachnoiditis.

    It is important that treatable causes of Failed Back Surgery Syndrome (FBSS) such as recurrent disc herniation, disc fragments or stenosis be excluded." (from NIH pamphlet on arachnoiditis)

     
    Old 03-25-2012, 11:36 AM   #11
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    Re: entrapped nerves

    Quote:
    Originally Posted by teteri66 View Post
    None of us are neurologists, so I hope we aren't passing along inaccurate information....it is my understanding that there is a difference between entrapped nerves and the nerve clumping that is indicative of arachnoiditis.

    An entrapped nerve is a compressed nerve which, in some cases, can be released from the compression. In arachnoiditis, the nerve clumping cannot be altered (at this point, anyway), and it is found in a very specific area...the arachnoid membrane that surrounds the nerves in the central canal.

    I think it is important to consider that just because someone has arachnoiditis, it does not rule out also having a disc herniation, or something similar, that is causing the current symptoms.

    The best way to diagnose arachnoiditis is a "T2 weighted, fat suppressed, gadolinium enhanced, high resolution MRI scan. Ideally, this should be read by a neuroradiologist experienced with the appearance of arachnoiditis.

    It is important that treatable causes of Failed Back Surgery Syndrome (FBSS) such as recurrent disc herniation, disc fragments or stenosis be excluded." (from NIH pamphlet on arachnoiditis)



    I did not imply anything, just sharing info givin to me during years of dealing with this, everyone here knows all info is suggestion, input, opinion and things they have been told in course of illness. Ultimately do what your doctor says, and if you don't trust believe have faith in our understand him, seek second opinion. I'm going by what I was told of how clumping occurs and symptomology of arachnoiditis vs failed back syndrome.
    Never once did I quote or state my involvement in medical field, not what I'm here for...here seeking support n sharing just like everyone else. Millions of quotes pamphlets books say 1000 different reasons. I could have gotten technical as I did until few years ago work in medicine. But that's not what Healtboards is for. Just passed along some knowledge of what I was told by doctors throughout my treatment. I know difference due to my own medical knowledge,but that's not what I quoted. I want to be a member here and have a place to share with others dealing with this type issue and to gain info that may shed light on a relief technique I have not yet learned. So if I offended someone's knowledge I'm truly sorry
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    Old 03-25-2012, 11:40 AM   #12
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    Re: entrapped nerves

    I was not specifically responding to any comment you made, but attempting to provide some information for the other poster who raised the question.

    Last edited by teteri66; 03-25-2012 at 11:54 AM.

     
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    Old 03-25-2012, 10:02 PM   #13
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    Re: entrapped nerves

    Quote:
    Originally Posted by teteri66 View Post
    I was not specifically responding to any comment you made, but attempting to provide some information for the other poster who raised the question.
    Just didn't want to offend anyone...or say something I shouldn't...thanks
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    Old 03-25-2012, 10:05 PM   #14
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    Re: entrapped nerves

    Quote:
    Originally Posted by drokendo View Post
    I have some nerves that are trapped in scar tissue.I will see him on tuesday to see what my next step will be.
    Good luck, would luv to know if they have any good ideas, my surgeon has no clue...keep us posted. Take care
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    Old 04-04-2012, 10:36 AM   #15
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    Re: entrapped nerves

    Injections of hyaluronidase works on scar tissue. More docs should be trying this, but it's only being used off label. I was told the brand Vitrase is the best. Since it's an enzyme, I don't think it could hurt. Probably safer than cortisone.

     
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