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  • Back pain /Sacroiliac joint injection

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    Old 09-29-2012, 08:13 AM   #1
    painmand80
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    Post Back pain /Sacroiliac joint injection

    Hello to all ,

    This is the first time I have posted on health forums anywhere - ive often read things but wanted to actually join one to talk about my experiences, get stuff off my chest and be able to converse with people in similar situations that know how awful it is living with pain, arhritis etc. Also to see how different treatments work for people compared with myself

    anyway I have had lower back pain for nearly two years now on my right side- burning, sharp, dull - its all of these but its so specific just above my bum clevage ( i dont know what else to call it lol) to the rt hand side. Have had physio and all that and lots of tablets.been told it was muscle weakness in my bum first lol then had to do exercises etc -Nothing was really working so (because i have psoriatic arthritis since I was 25 I am now 32) they decided its my Sacroiliac Joint "most probably" . Ive had x ray and Mri scan both had no conclusive results but they said I could have some "low grade inflammation" in my SI joint so steroid injection would be worth trying.

    4 days ago I had this injection and it was HELL - has anyone else had any experience of them?
    It hurt all the way through i was sweating and wincing with pain every mm of needle activity I felt . I was told before hand it wouldnt hurt and I even read that its not as bad as having a needle in your arm! they must be having a laugh -it was so painful it must be my SI joint thats the problem I thought? They seemed to struggle to get it in the right place it took ages , even under guided x ray. They kept asking where my pain was but they were literally on it . One of the most uncomfortable 15 minutes of my life. I had no immediate relief from the numbing agent at all and ever since its been hurting bad just as it always did do before if not worse. I am literally pulling my hair out in frustration as i am finding it hard to deal with this pain. Its in such a specific area that I keep thinking why the hell can't theyh get it sorted? . Its a sharp burning pain . If I do an stretch which is meant to help ( pull left leg up to chest whilst lying down) it makes it hurt much more and gets so sharp! I've tried everything, ive exhausted searches on the internet 0 and I have heard it can take up to 2 weeks to take effect but it doesn't feel promising at the moment. I can't get comfortable hardly ever - I end up lying on the floor on my left side (good side) most the time as sitting is so painful. Its ruining my life even more than how ruined it is and having a loving family and children makes this so much more annoying that I want to get sorted .

    I almost feel like they have missed the point of pain by mm's somehow ? I didnt have 100% confidence in the surgeon who did the injection - for me to have to point a few times to the pain site and how hard it seemed to be doing it - I know its pretty hard to do but they did have x ray .
    has anyone has this done and will it get any better?
    I'm already thinking of trying a chiropractor as my next option - but with no money thats going to be hard to do.

    sorry its a long post - hopefully there are other people who might be able to help me out with some info or experiences of their own . At the moment I am completely at my wits end I can't hack it anymore.
    Thanks

     
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    Old 09-30-2012, 12:17 AM   #2
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    Re: Back pain /Sacroiliac joint injection

    Post the results of your MRI. Some doctors will say u have nothing going on, but u might.

     
    Old 09-30-2012, 02:41 AM   #3
    painmand80
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    Re: Back pain /Sacroiliac joint injection

    Hi thanks for posting . I dont know nor have I even seen the report or the scan . All I know is they said "nothing conclusive , there may be low grade inflammation "

    Its day 5 since my injection and its burning all round the side of my pelvis and pain in the front aswell now on the right hand side - really strange. Also the fact I felt so much pain when I had the injection seems kind of weird?

    I'm proper fed up with it .Tramadol , paracetemol ,naproxen and sulfasalazine does not help with my back pain nor this new "bonus" pain I have gained lol

    Have to have a sense of humour about it or else I would crack up!
    when I was reffered to the "pain clinic" I thought they would help decrease pain not inflict it lol

     
    Old 09-30-2012, 11:57 AM   #4
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    Re: Back pain /Sacroiliac joint injection

    This comment refers to RFA injections: RUN screaming in the opposite direction instead of subjecting yourself to these. Ten weeks later, still have the burned sensation and the numbness. Had injections in left hip and left side of lumbar area of spine. Have to apply aloe vera with lidocaine all the time to try to soothe the skin. Was told these two side effects would disappear in TWO weeks. Could walk fairly well before, now can hardly walk. I know it was the RFA injections which went wrong. Feel like I was a guinea pig being used for a test!!! PLEASE do something else, it is not worth this risk.... Before the RFA, could at least walk with help of cane, now it is almost impossible to walk at all, much less try to get down any steps or in and out of a car. If you suffer from any spine/hip/leg pain, get a car which is not LOW TO THE GROUND, like our Saturn is. Saturns are the pits.

    Last edited by moderator2; 09-30-2012 at 01:01 PM.

     
    Old 10-02-2012, 01:43 AM   #5
    painmand80
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    Re: Back pain /Sacroiliac joint injection

    sorry to hear that its a week today and I have not seen any benefits yet

     
    Old 10-09-2012, 03:51 PM   #6
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    Re: Back pain /Sacroiliac joint injection

    Quote:
    Originally Posted by painmand80 View Post
    sorry to hear that its a week today and I have not seen any benefits yet
    I am scheduled to have SI injections on Oct. 17. I have adhesive arachnoiditis & any steroid inj that comes near my spinal cord, spinal nerves or meninges is very dangerous for me. Thought si injs would be okBUT not after reading your post!! Are you better yet? If not, i may have some ideas why. What are RFA injections that she (so sorry i dont recall her name) referred, too. Luck25 is having fusion surgery on oct.10th. Please let us know if your better. Thank you for this post. Im cancelling!

     
    Old 10-09-2012, 04:52 PM   #7
    teteri66
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    Re: Back pain /Sacroiliac joint injection

    Do you know what caused your arachnoiditis?

     
    Old 10-09-2012, 05:25 PM   #8
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    Re: Back pain /Sacroiliac joint injection

    Yes. I had a myelogram with pantopaque, my original back injury caused holes in my dura, 4 surgeries with CSF leaks, epidural depo medrol injections & nerve blocks. 30 years of back probs & i was just told i had arachnoiditis this year. Even though it has been on MRI reports since 1988! Thank you for asking.How are you?

     
    Old 10-09-2012, 05:48 PM   #9
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    Re: Back pain /Sacroiliac joint injection

    Quote:
    Originally Posted by teteri66 View Post
    Do you know what caused your arachnoiditis?
    Teteri i see how many people you have helped!WOW! You are an angel! I posted my story under the thread in the pain mgt board called" Share your pain management story here". The title is ' i was so blessed and didnt know it'. I would be so privileged if you could find the time to read it. I would appreciare it so much. I read the message boards a long time before i actually posted & i saw and remember how kind, knowledgable you are to those in need.Thank you.

     
    Old 10-09-2012, 07:51 PM   #10
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    Re: Back pain /Sacroiliac joint injection

    You are very sweet to say such kind things. I am glad if anything I've said has helped someone. I will go read your story when I finish this. I am sorry you have arachnoiditis. I remember when I first learned about it and then did quite a bit of research on it. There isn't all that much information available, and, a lot of doctors have a very limited knowledge about it.

    I became a big pain to my doctors once I learned about it...always asking questions, etc. I thought for awhile I had it...but it turned out not to be the case...or at least if I do have it, it is very mild. (One surgeon I consulted with pointed it out on MRI so of in passing...and when I asked "my" surgeon about it, he shook his head and said I didn't have it...so I chose to believe I didn't have it. )

    I don't know for what reasons you are considering an injection in the SI joints. If there is instability that is causing pain, you might look into prolotherapy. It is considered experimental in most medical circles, but is slowly becoming more accepted. It would not be harmful to you as the solution that is injected is natural and not a chemical of any kind.

     
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    Old 10-09-2012, 08:59 PM   #11
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    Re: Back pain /Sacroiliac joint injection

    I suffer from bilateral SI joint pain and it is hell! Mine is caused by lupus and RA, and I've had SI injections as well. It is very important to distyinguish between SI pain and sciatica, which is in similar area but coming from different locations. Have you seen a pain management Dr? Your injection sounds like it didn't go well. There is no way it should take 15 minutes, and they usually slip it right into the joint, and it takes 15-30 seconds. I would see someone else whi is an anesthesiologist/pain specialist for next one. The day of injection it may hurt a little more, but by day 2-3 you should be much better. The problem with mine is they worked but for less than a week, so not worth it.
    The best drug orally for SI pain is an older antiinflammatory called Indocin. It comes in a sustained release formula. Some people can't tolerate it, but if you can it works well. When you get the injections, ask for a sedative. That is usually offered and believe me, I always opt for it. It's bad enough to suffer with the pain that you shouldn't have to suffer thru the injections too. Do you have a rheum who is treating your psoriatic arthritis? This may be a part of that. I use heat at night to help, but it gets severe at times. I don't think a chiropractor is going to help this and may make it worse. I am leary of their adjustments in inflammatory arthritis. Just my opinion.

     
    Old 10-09-2012, 09:08 PM   #12
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    Re: Back pain /Sacroiliac joint injection

    The RFA is radiofrequency ablation of the sensory nerves that carry the pain signals. It is usually done in situations where epidural or joint injections of steroids don't work. It is a "burning" of the nerve with an electrical current, under sedation, that stops the nerve from working and hurting for an average of 9 months. I have had it done and it worked well, but you need an experienced pain management Dr who does these all the time, and needs to know about arachnoiditis or anything else unusual in your history. They can do RFA of spinal nerves or SI joint nerves. I may get that done, as winter time always makes mine worse with storms and cold weather.

     
    Old 10-10-2012, 12:43 AM   #13
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    Re: Back pain /Sacroiliac joint injection

    Quote:
    Originally Posted by ladybud View Post
    The RFA is radiofrequency ablation of the sensory nerves that carry the pain signals. It is usually done in situations where epidural or joint injections of steroids don't work. It is a "burning" of the nerve with an electrical current, under sedation, that stops the nerve from working and hurting for an average of 9 months. I have had it done and it worked well, but you need an experienced pain management Dr who does these all the time, and needs to know about arachnoiditis or anything else unusual in your history. They can do RFA of spinal nerves or SI joint nerves. I may get that done, as winter time always makes mine worse with storms and cold weather.
    The new pm i saw thought i seemed tender in Si joint area & scheduled the injections under sedation. I told him i had arachnoiditis but he really did not verbalize understanding to me that he understood what it entails. As far as trusting him, i have only seen him once. Truly, it seemed more like a money making type place than a dr who really cared about his patients. But, i hope im wrong! After my dr left it took me 3 tries to find this dr! Thanks for your help!

     
    Old 10-10-2012, 01:03 AM   #14
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    Re: Back pain /Sacroiliac joint injection

    Thank you teteri for taking the time to read my post! I am so happy that you dont have AA! The dr scheduled the SI injections because he felt after exam that i was tender in that area. It seems that the tethered cord concerns the neurosurgeons more than aa. But, they may just feel more at liberty to discuss that. Although all 3 of them said seek pain mgmt or morphine pump. I will research prolotherapy. And if you see or think of anything else after reading my post, please know how very much i would appreciate your views/ opinions or info that might help me. I cant thank you enough. Hope tomorrow brings you a great day! You deserve one . You are a blessing!

    Last edited by gmak; 10-10-2012 at 01:06 AM. Reason: misspelling or mistyping

     
    Old 10-10-2012, 08:14 AM   #15
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    Re: Back pain /Sacroiliac joint injection

    To the original poster --

    I had a tough experience with some of the injections, including steroid epidurals and test nerve block (first -L4/L5 and L5/S1, second -SI jt). I think it is just worse for some folks...one doc was a jerk about it but another said it was perfectly understandable.

    My exp in a quick format for context....1) I did PT and epidurals first for a suspected annular tear, 2) more PT, 3) more testing leading to a fusion, 4) and a poor result (apparently with the specific material, I was in a 2-3% group with no bone growth at all)... 5) prob looking at another surgery.

    Anyway, I just wanted to say I totally have had to describe pain as "just above the butt crack." I don't have much else in the way of advice. While I can't provide answers, I just wanted to say hi and that you aren't alone...describing pain is TOUGH and I also sometimes don't know which words to check on forms and have had that awkward issue of describing the lowest of low back spaces.

    Keep asking and keep looking for the right doc. Don't accept one who makes you feel less than heard.

     
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