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  • cauda equina syndrome

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    Old 11-28-2012, 01:08 AM   #1
    jenn328
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    cauda equina syndrome

    hi all just seen a neuro surgeon and i dont need surgery which is great but he told me i have cauda equina syndrome which i think is not so good,has anyone herehad this x

     
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    Old 11-28-2012, 05:58 AM   #2
    gmak
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    Re: cauda equina syndrome

    Quote:
    Originally Posted by jenn328 View Post
    hi all just seen a neuro surgeon and i dont need surgery which is great but he told me i have cauda equina syndrome which i think is not so good,has anyone herehad this x
    Hi jenn, Yes, ive heard of it. I was told that i had arachnoiditis, adhesive arachnoiditis, with no explanation either. While researching it, i have seen cauda equina symdrome as well.What does your MRI say about the spinal nerves, cauda equina? What surgeries, procedures, epidurals etc, tests have you had? Dont mean to be abrupt, be back in 4 hrs? Gmak

     
    Old 11-28-2012, 07:18 AM   #3
    teteri66
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    Re: cauda equina syndrome

    I hope by now you have found some of the excellent information pertaining to CES that is available online, that you have read through it and that you are going to call your neurosurgeon back to get more information about your case.

    I am not familiar with someone being told she has CES and not having surgery scheduled almost immediately. I can only conclude that the surgeon does not feel the nerve compression is sufficiently severe to warrant surgery.

    For others reading this thread who are not familiar with CES, it is an uncommon disorder that affects the bundle of nerve roots that is called the cauda equina (horse's tail due to its appearance) at the end of the spinal cord (running below about the L1 vertebral level). These nerve roots send and receive messages of movement and senstion to and from the pelvic organs and lower limbs.

    Cauda equina syndrome occurs when these nerves are compressed which cuts of sensation and movement. The nerve roots that control the function of the bladder and bowel are very vulnerable to damage.

    If those with CES do not get immediate treatment to decompress the nerves, it can result in permanent paralysis, impaired bladder and/or bowel control, loss of sexual sensation, and other problems.

    I have always been taught that anyone with problems in the lower lumbar area, particularly L4-L5 and L5-S1, should be aware of the symptoms of CES and should call their doctor immediately upon development of any of these symptoms.

    So I am a bit confused why your doctor would tell you that you had CES but that you didn't need to do anything about it. Most of the patients who develop permanant problems from CES do so because they wait too long to have treatment.

    What are your symptoms and for how long have you had them? What did this neurosurgeon suggest you do?

     
    Old 11-28-2012, 11:03 AM   #4
    jenn328
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    Re: cauda equina syndrome

    hi teteri
    you replied to my first post about my mri scan a few weeks back this was my scan
    MRI SCAN SPINE LUMBER
    sagittal images from T9 to the sacrum and axial images T11/T12 and from L3 to S1 have been provided
    normal alignment of the spine
    at T9/T10 a focal central disc protrusion is impinging upon the anterior subarachnoid space
    no cord compression is noted
    at T11/T12 the disc is dehydrated and a focal central disc protrusion is indenting the anteri or subarachnoid space
    at L4/L5 the disc is dehydrated and a focal central disc protrusion is encroaching upon the anterior thecal sac and is touching both traversing L5nerve roots
    at L5/S1 there are severe degenerative changes with irregular endplates,marginal osteophytes
    modic ii endplate-related signal alterations, severe loss of disc height and facet joint hypertrophy
    evidance of a left sided hemilamanectomy defect at L5/S1 with a small fibrotic scar left lateral of the thecal sac
    a very small left central disc protrusion is touching the traversing left S1 nerve root but no definite nerve root encroachment is observed
    a osteophyte is slightly narrowing the left sided
    L5/S1 neural foramen without nerve root involvment
    the remaining discs and vertebrae are of normal appearance without significant degenerative changes
    no spinal canel or further foraminal stenosis
    there are benign perineural root sleeve cysts (tarlov cysts) at S2/S3 a common incidential finding
    the unremarkable conus medullaris is situated at T12/L1
    CONCLUSION

    significant degenerative and postsurgical changes at L5/S1 with a very small disc protrusion and a left sided fibrotic epidural scar
    no nerve root encroachment particularly on the left
    disc protrusion L4/L5 touching both L5 nerve roots

    after seeing my surgeon he asked me questions about my op 12 years ago went on to check me over and said he thinks i dont need another op again but i need to see a pain specialist and to see someone else about my bladder and bowls as i have some damage to them i asked so what do i have and he said its called CES, ive never herd of it till i looked it up on the pc so all i can say is i had this 12 years ago and i still have it now and no one told me till now x

     
    Old 11-28-2012, 11:20 AM   #5
    jenn328
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    Re: cauda equina syndrome

    hi gmac
    12 years ago i had an emergency op as my dics had ruptured at L4 and L5 and embedded in my nervous system i was becoming paralysed and my bowels and bladder stopped working after my op my legs were ok and my bladder and bowels returned back to normal i still suffer from pains down my legs a numb bum sometimes and back pain i was never told anything else just took tablets and moaned a lot after it, and a few months ago my doc sent me for a mri as he said he can not understand why nothing else has been done for so long anyway here are my results 12 years after my op

    MRI SCAN SPINE LUMBER
    sagittal images from T9 to the sacrum and axial images T11/T12 and from L3 to S1 have been provided
    normal alignment of the spine
    at T9/T10 a focal central disc protrusion is impinging upon the anterior subarachnoid space
    no cord compression is noted
    at T11/T12 the disc is dehydrated and a focal central disc protrusion is indenting the anteri or subarachnoid space
    at L4/L5 the disc is dehydrated and a focal central disc protrusion is encroaching upon the anterior thecal sac and is touching both traversing L5nerve roots
    at L5/S1 there are severe degenerative changes with irregular endplates,marginal osteophytes
    modic ii endplate-related signal alterations, severe loss of disc height and facet joint hypertrophy
    evidance of a left sided hemilamanectomy defect at L5/S1 with a small fibrotic scar left lateral of the thecal sac
    a very small left central disc protrusion is touching the traversing left S1 nerve root but no definite nerve root encroachment is observed
    a osteophyte is slightly narrowing the left sided
    L5/S1 neural foramen without nerve root involvment
    the remaining discs and vertebrae are of normal appearance without significant degenerative changes
    no spinal canel or further foraminal stenosis
    there are benign perineural root sleeve cysts (tarlov cysts) at S2/S3 a common incidential finding
    the unremarkable conus medullaris is situated at T12/L1
    CONCLUSION

    significant degenerative and postsurgical changes at L5/S1 with a very small disc protrusion and a left sided fibrotic epidural scar
    no nerve root encroachment particularly on the left
    disc protrusion L4/L5 touching both L5 nerve roots

    i haver never been told its called CES till now or ever heard of it x

     
    Old 11-28-2012, 01:25 PM   #6
    gmak
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    Re: cauda equina syndrome

    Hi jenn, i mentioned arach because i have seen CES when researching. I had similar surgeryŚ4. Treated for pain under the diagnosis, failed back surgery, for 20 years. Had MRI this year, told tethered cord & arachnoiditis in 2012! Tarlov cysts are mentioned on YOUR MRI but the radiologist is quite precise in saying, in my interpretation(& teteri is SO much better at knowing mri's!) that it is an incidental finding, without the huge scarring of the meninges & spinal nerves, or cauda equina that can go with arachnoiditis, ces so advanced it would be on MRI? If this were my NS, i would ask exactly what my MRI shows re: my symptoms, their diagnosis & see if there is evidence that disc/ discs or disease process was/is causing them. Before anyone assumes that you have anything you need an explanation for it & a treatment plan other than pain mgmt. Even see another spine specialist, NS or ortho, to rule out need for surgery. Before blaming your bladder, bowel, pain symptoms on nerve damage from previous surgery or the discs that were on the nerve roots then. I did that. Believed that all my pain was b/c of prev surgs! Not true, they just never
    told me step by step what my mris said. If there was an oppurtunity to fix it I missed it apparently as no NS so far will operate now. Jenn, research your mri, understand what it says so well that whatever a dr says you know to the best of your ability if it is trustworthy, true or an assumption. Or to pass
    you off to next guy. Sorry if so glum. I just want the best outcome for you!
    Thank you, sorry for the book! gmak

    Ps: jenn, look @ a dermatome map. They are easy to find & self
    explanatory. Compare where you have pain, probs with the particular
    nerve that goes to that area. Good place to start. Imho, call NS get what you NEED from him, information. If no success see another.

    Last edited by gmak; 11-28-2012 at 01:39 PM. Reason: ps & typos

     
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