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  • HELP. Scoliosis & Abdominal Pain

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    Old 01-10-2013, 09:02 AM   #1
    btay97
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    Location: Indiana
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    HELP. Scoliosis & Abdominal Pain

    Hello. I am new here and I was wondering if someone could possibly give me some insight to my pain & this dreadful word I hate hearing .. "scoliosis".

    I'm a 24 year old male. I have been relatively healthy my entire life. My family history consists of: My father was adopted when he was an infant, he also had to have 1 of his kidneys removed (for what reason, unknown). My father also passed away at 43, from lymphoma (whether it was Hodgkins or Non-Hodgkins, we are unsure as it took him within 3 months of him being diagnosed). My mother has had thyroid problems & if I remember correctly she did have thyroid cancer, (but none of her thyroid was removed?).

    Like I said I have been relatively healthy my entire life. I dropped out of highschool for a hard-working job instead when I was 16. No complaints, no aches, nothing.

    Recently for the past 2 years I have had abdominal pain. HORRIBLE pain to where I think at 24 years old, I’m not going to wake up in the morning. The pain radiates through my lower left abdomen (it can feel tender on the R side too, but is more prominent on the L side), over to what feels like my hip bone and up through my back on the left side. I have also found a small “lump” on or by my rib cage, that moves occasionally when I touch it, it is also very tender. I also get a bloated stomach.

    The pain also continues down the back and front of my leg, it feels tingling. This pain is so severe, I do not sleep at night, I can’t stand at the sink to do dishes, I can’t do anything. I can’t even drive my car.

    What I am most concerned about is my abdominal pain and back pain together. I have heard everything from I have IBS where I need Prozac for the nerves in my stomach? , they told me I have celiac disease, a pulled muscle, an inguinal hernia (which they “never found” or “cannot find”), I have heard I have epididymitis (which is in your testicles??). I have had CT scan after X-Ray, after seeing urologists, to surgical specialists that think I have a hernia but can’t find anything. I am always at a dead end where no one knows what’s wrong with me. I just know that I am in pain, severely. I know it sounds like I’ve had a lot checked out, but I haven’t. I have no insurance, and well.. when they find out you have no insurance, they’re not very eager to help where I live.

    LONG STORY SHORT…

    I recently went to the E.R for horrible back pain (it feels like my spine is going to snap) along with my usual abdominal pain. This time it was very severe. So I go into the E.R & literally thank the heavens for this doctor!! He asks me if I’ve ever been diagnosed with Crohn’s disease, & I tell him no. He then tells me he is going to make a few calls & find a doctor that can give me a colonoscopy today. After waiting, he tells me to come back at 1:30 for the evaluation & colonoscopy by the gastro-doctor (?)

    When the gastro-doctor comes in he starts to ask me a variety of questions about my pain and where it starts & travels to. I show him… he then asks me if I have fallen recently. I tell him no, but I did hurt my back BAD in a ice-storm we had gotten 2 years ago (I live in Indiana) where I literally couldn’t move my back, I was paralyzed for a couple days it felt like. He then proceeds to tell me he thinks I have a T-5 Crushed Vertebrae. He sends me off for X-Rays. I am relieved. FINALLY, THEY KNOW WHAT’S WRONG WITH ME!!!!

    Why a stomach doctor has told me more than any E.R doctor, urologist, surgical specialist, nurse, etc… about my pain and where it could POSSIBLY be coming from is mind boggling. ???

    I go back to the doctor before they even have a chance to call me..

    The x-ray’s come back. No T-5 fracture .. DANGIT.

    BUT…

    The nurse told me they found scoliosis. She didn’t say the degree of curve, nothing. I was just sent out the door with a “Well… you have scoliosis. You’ll need to be fitted for a back brace. We’ll call you. Have a great day!” ……. Great.

    Now, I have read that scoliosis, only about 2% are “unknown cases”. It’s either you get scoliosis because it’s hereditary and your born with it… or you’re aging and your spine isn’t as sturdy as it once was (“degenerative” was the word). Well my mom has scoliosis, not bad enough for her to have a brace or surgery. I found that out when I talked to her later that night about the doctor saying I have it.

    My question is .. can scoliosis cause severe horrible abdominal pain? I have tried to google adult scoliosis, but not much information comes up. I have heard that you can have a curve or twist in the spine to where it alters & shifts your intestines some and then you can’t eat as much and as a result you can get bloated, the curvature pushes up against the intestines and it’s such a tight fit in there that the abdominal wall weakens (like a hernia, but not a full blown hernia) and can push the intestines through the wall and cause severe pain.

    Im just wondering does anyone experience SEVERE abdominal pain because of scoliosis? When you also get scoliosis, do you get that lump on your ribcage/back that is tender? I just don’t know much about this. I’m scared to go to the doctor and have him just write me off as I am fine, because I am not. I don’t know how much longer I can take this pain. I just want to feel normal and happy again like I was before all of this pain.

    If you could provide me with any insight or explanation or even a guess, please & thank you. I just want to go back to the doctor prepared and informed that "this" is what could "possibly" be going on because "this" is happening"...

    Thank you! It’s most appreciated!!

     
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    Old 04-21-2013, 03:23 PM   #2
    Nicoletta23
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    Join Date: Apr 2013
    Location: UK
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    Re: HELP. Scoliosis & Abdominal Pain

    Quote:
    Originally Posted by btay97 View Post
    Hello. I am new here and I was wondering if someone could possibly give me some insight to my pain & this dreadful word I hate hearing .. "scoliosis".

    I'm a 24 year old male. I have been relatively healthy my entire life. My family history consists of: My father was adopted when he was an infant, he also had to have 1 of his kidneys removed (for what reason, unknown). My father also passed away at 43, from lymphoma (whether it was Hodgkins or Non-Hodgkins, we are unsure as it took him within 3 months of him being diagnosed). My mother has had thyroid problems & if I remember correctly she did have thyroid cancer, (but none of her thyroid was removed?).

    Like I said I have been relatively healthy my entire life. I dropped out of highschool for a hard-working job instead when I was 16. No complaints, no aches, nothing.

    Recently for the past 2 years I have had abdominal pain. HORRIBLE pain to where I think at 24 years old, I’m not going to wake up in the morning. The pain radiates through my lower left abdomen (it can feel tender on the R side too, but is more prominent on the L side), over to what feels like my hip bone and up through my back on the left side. I have also found a small “lump” on or by my rib cage, that moves occasionally when I touch it, it is also very tender. I also get a bloated stomach.

    The pain also continues down the back and front of my leg, it feels tingling. This pain is so severe, I do not sleep at night, I can’t stand at the sink to do dishes, I can’t do anything. I can’t even drive my car.

    What I am most concerned about is my abdominal pain and back pain together. I have heard everything from I have IBS where I need Prozac for the nerves in my stomach? , they told me I have celiac disease, a pulled muscle, an inguinal hernia (which they “never found” or “cannot find”), I have heard I have epididymitis (which is in your testicles??). I have had CT scan after X-Ray, after seeing urologists, to surgical specialists that think I have a hernia but can’t find anything. I am always at a dead end where no one knows what’s wrong with me. I just know that I am in pain, severely. I know it sounds like I’ve had a lot checked out, but I haven’t. I have no insurance, and well.. when they find out you have no insurance, they’re not very eager to help where I live.

    LONG STORY SHORT…

    I recently went to the E.R for horrible back pain (it feels like my spine is going to snap) along with my usual abdominal pain. This time it was very severe. So I go into the E.R & literally thank the heavens for this doctor!! He asks me if I’ve ever been diagnosed with Crohn’s disease, & I tell him no. He then tells me he is going to make a few calls & find a doctor that can give me a colonoscopy today. After waiting, he tells me to come back at 1:30 for the evaluation & colonoscopy by the gastro-doctor (?)

    When the gastro-doctor comes in he starts to ask me a variety of questions about my pain and where it starts & travels to. I show him… he then asks me if I have fallen recently. I tell him no, but I did hurt my back BAD in a ice-storm we had gotten 2 years ago (I live in Indiana) where I literally couldn’t move my back, I was paralyzed for a couple days it felt like. He then proceeds to tell me he thinks I have a T-5 Crushed Vertebrae. He sends me off for X-Rays. I am relieved. FINALLY, THEY KNOW WHAT’S WRONG WITH ME!!!!

    Why a stomach doctor has told me more than any E.R doctor, urologist, surgical specialist, nurse, etc… about my pain and where it could POSSIBLY be coming from is mind boggling. ???

    I go back to the doctor before they even have a chance to call me..

    The x-ray’s come back. No T-5 fracture .. DANGIT.

    BUT…

    The nurse told me they found scoliosis. She didn’t say the degree of curve, nothing. I was just sent out the door with a “Well… you have scoliosis. You’ll need to be fitted for a back brace. We’ll call you. Have a great day!” ……. Great.

    Now, I have read that scoliosis, only about 2% are “unknown cases”. It’s either you get scoliosis because it’s hereditary and your born with it… or you’re aging and your spine isn’t as sturdy as it once was (“degenerative” was the word). Well my mom has scoliosis, not bad enough for her to have a brace or surgery. I found that out when I talked to her later that night about the doctor saying I have it.

    My question is .. can scoliosis cause severe horrible abdominal pain? I have tried to google adult scoliosis, but not much information comes up. I have heard that you can have a curve or twist in the spine to where it alters & shifts your intestines some and then you can’t eat as much and as a result you can get bloated, the curvature pushes up against the intestines and it’s such a tight fit in there that the abdominal wall weakens (like a hernia, but not a full blown hernia) and can push the intestines through the wall and cause severe pain.

    Im just wondering does anyone experience SEVERE abdominal pain because of scoliosis? When you also get scoliosis, do you get that lump on your ribcage/back that is tender? I just don’t know much about this. I’m scared to go to the doctor and have him just write me off as I am fine, because I am not. I don’t know how much longer I can take this pain. I just want to feel normal and happy again like I was before all of this pain.

    If you could provide me with any insight or explanation or even a guess, please & thank you. I just want to go back to the doctor prepared and informed that "this" is what could "possibly" be going on because "this" is happening"...

    Thank you! It’s most appreciated!!

     
    Old 04-21-2013, 03:38 PM   #3
    Nicoletta23
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    (female)
     
    Join Date: Apr 2013
    Location: UK
    Posts: 2
    Nicoletta23 HB User
    Re: HELP. Scoliosis & Abdominal Pain

    Hi there! I too suffer with severe abdominal pain which I think is connected to scoliosis. No doctor I have consulted feels the "gynae" pain is connected to my back but my first symptoms occurred when I had a severe muscle spasm in my lower back which gave me right sided scoliosis. Then at the time of my period i had the most excruciating cramps & pain (like severe contractions) and I was then violently sick. This has continued to occur pretty much every month since which is really getting me down. (Never had period probs in my life before) After two years of being fobbed off by one particular doc who told me incorrectly I just had arthritis and had to live with it, my current doc (lovely) has referred me to a Consultant who has confirmed I have DDD (degenerative disc disease). I have three damaged discs causing the pain, spasms & scoliosis. But it makes sense to me that being so lop sided makes the internal organs out of place and causes other probs, ie the dreadful pain I get. But no doc seems to see the sense of that and nothing is being done! It is affecting badly my ability to work and is making me pretty depressed if I'm honest. Would be interested o hear from anyone else with a similar experience. Thank you! PS I'm 45

     
    Old 05-06-2013, 09:58 AM   #4
    Sygnet
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    Re: HELP. Scoliosis & Abdominal Pain

    I have the same thing.. pain is unbearable.. CT scan plus xrays showed Disk degeneration, stomach hernia, aorta anyerism small ( not to worry will recheck in 18 months, and gall stones. great.

    I live with this for 3 years first was digonised with acid reflux.. but not that, altho I do have to watch my diet many things cannot eat.

    I find that when it becomes intollerable it is that I have done things like heavy lifting something, mowing lawns or even working in the garden, cannot stretch up high or reach, as it pulls..

    But now I think it is more than that..
    I understand how you feel ,wish I could be of more help..


     
    Old 05-06-2013, 05:37 PM   #5
    Grapardry4
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    Re: HELP. Scoliosis & Abdominal Pain

    Since scoliosis is a side to side curve, not front to back, the degree of curvature would have to be enormous before you would have to worry about the displacement of intestines. However, it IS possible for scoliosis to affect the nerves that control bowel or bladder function. Research arachnoiditis and maybe you will find some info that will help. Good luck to you!

     
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    Sygnet (05-07-2013)
    Old 05-20-2013, 06:57 PM   #6
    merry1
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    Re: HELP. Scoliosis & Abdominal Pain

    I had acute onset abdominal pain and constipation. Went to many doctors and was given stupid diagnoses such as IBS. I had my spine x-rayed and I had severe scoliosis. I had surgery to correct the scoliosis and it totally cured the abdominal pain. I haven't found anything written about this; the diagnosis was suggested by a genius urologist/obgyn who suggested the pain might be from pudendal neuralgia. So scoliosis can cause abdominal pain but most doctors don't know this. If your scoliosis is bad enough to cause abdominal pain, it needs fixed. The recovery is slow and painful, but I believe will be worth it in the long run.

     
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    Sygnet (05-21-2013)
    Old 05-22-2013, 07:47 PM   #7
    merry1
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    Re: HELP. Scoliosis & Abdominal Pain

    I thought it would be helpful to try to explain how scoliosis can cause abdominal pain. I am no expert in this area, but I will try to do my best based on a little knowledge of anatomy and what the 2 physicians who diagnosed me said. The pudendal nerve is formed from sacral nerves s2, s3 and s4. The sacrum is a triangle shaped bone at the bottom of your spine and is joined to the ilium (hip bone) on each side. That joint is the sacroiliac joint. Problems with this joint are often connected with pudendal neuralgia--pain and disfunction which can cause lower abdominal (pelvic) pain and problems in any of the following: bowel, bladder and sexual organs. The pudendal nerve has a complicated route and can be trapped or pulled at various points along the way. My pain was due to tension on the sacroiliac joint due to the pelvis being tilted from my scoliosis. If you have scoliosis, you may notice your hips being uneven--this is the tilting of the pelvic bones. In my case it was bad enough to strain the pudendal nerve and cause my pelvic pain. It was quite severe at times. I also had low back pain and sciatic-like pain. The scoliosis surgery totally corrected all the radiating pains including the lower abdominal pain. I am very disappointed there is nothing I can find in the medical literature about this. I have written my spine surgeon and gyn/urologist about the need to educate physicians about this. I imagine they are too busy as they are both in great demand.

     
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    Sygnet (05-23-2013)
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