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    Old 06-08-2013, 06:46 PM   #1
    Annee07
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    Unhappy Collateral damage of the war on pain! Need advice

    Hi everyone!! I've been in pain mgmt for over a decade for multiple Ortho problems from an accident & several rare illnesses!! With no advance warning, my doctor tells me 3wks ago that he's been told to start ending his pt relationships!(I think he's retiring myself) He cut my extended release meds down by less than half & made my monthly appt. I called his ofc the next day & told the recept. my pharmacy wants to know if this was my last script. She tells me no & she will call them: needless to say (it pretty much was) I'm now down to less than 1/4 of what I was on & dr. Tells me;"that's it!" He blames it on the "prop" legislation & the increasing scrutiny!! I don't even know where to begin or if there is ANY dr. that will see me. I did good on tapering down, but the pain is mind blowing & I'm not accustomed to it!! Should I start with a clean slate & ask my primary to help me transition to a new dr OR IS THIS IT for PM?? Is anyone else being let go? Thanks(:

     
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    Old 06-10-2013, 07:42 AM   #2
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    Re: Collateral dmg of the war on pain! Need advice

    anee07-

    So sorry for your dilemma! What a shocker for you, my GOSH-Are you having any WD?
    I hope not to badly.

    What the heck is "prop" legislation? And who's scrutiny? He's been told to start ending patient relationships by WHO or WHOM? I don't think any fine upstanding physician would retire in this fashion-do you?

    He didn't give you referral for other PM's? What makes you say you don't know if any doctor will see you? Did something happen, like did you break a rule or something?

    What do you mean should you start with a clean slate? Do you have something to hide?

    WOW.

    Call your local hospitals and ask for the name of PM's-this could be a blessing in disguise......

    Pretty s....y of your doctor to pull on you and every else in the practice. I would file a complaint with the Department of Professional Regulation if it were me. I would be filing lots of complaints..........how long were you with this particular doctor-the whole 10 yrs?

    Anyway-this is so very un-nerving. How could he in good conscious just put you on that kind of "taper" if that's what you call it.

    Did you say anything to him? Like "you are taking away my ability to function at some humane level while dealing with CP"

    I don't know what else to say-this is very cruel......I don't ge this at all.
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    Last edited by BB07; 06-10-2013 at 07:55 AM.

     
    Old 06-10-2013, 08:10 AM   #3
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    Re: Collateral dmg of the war on pain! Need advice

    Hi BB07: thank you for responding I had a rough time for a few days, but will be completely out of meds soon(accept for breakthroughs). The Prop legislation is supposed to limit the amount of medication to 90 days for people with chronic pain- the FDA is trying to chg the labeling that currently reads: for moderate to severe pain to only SEVERE!! Search for physicians for responsible opioid prescribing & you will see all the shenanigans going on!! LOL from what I'm seeing the AMA will not get on board & petitions against it have it held up!

    My doctor is up in age & I expected this COULD happen but was in denial. He's been under constant scrutiny by a state investigative team & they are on a mission to do away with CP clinics/physicians!!! The person leading this inv, said there is NO SUCH THING AS cp!! How idiotic is that!! She hasn't met us, huh??

    I'm checking (waiting on a response) fr:e clinic but do not think there is a dr. In the south yet? They treat CP!! ...& mail your prescriptions! Sounds to good to be true!! I've tried breaking away from this dr over the last couple yrs, but it's hard to make a transition when your taking "x" amount of medication for a number of
    Yrs under ONE physician(u would think that's a good thing) because most cp drs want to start out w/u on a clean slate!! TYVM for responding & if u don't mind; what's your CP Story?

    Quote:
    Originally Posted by BB07 View Post
    anee07-

    So sorry for your dilemma! What a shocker for you, my GOSH-Are you having any WD?
    I hope not to badly.

    What the heck is "prop" legislation?

    He didn't give you referral for other PM's?

    WOW.

    Call your local hospitals and ask for the name of PM's-this could be a blessing in disguise......

    Pretty s....y of your doctor to pull on you and every else in the practice. I would file a complaint with the Department of Professional Regulation if it were me. I would be filing lots of complaints..........how long were you with this particular doctor-the whole 10 yrs?

    Anyway-this is so very un-nerving. How could he in good conscious just put you on that kind of "taper" if that's what you call it.

    Did you say anything to him? Like "you are taking away my ability to function at some humane level while dealing with CP"

    I don't know what else to say-this is very cruel......I don't ge this at all.

     
    Old 06-10-2013, 10:17 AM   #4
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    Re: Collateral dmg of the war on pain! Need advice

    The PROP thing isn't actually law yet, so there is some other reason that your doctor did this, he just isn't telling you. Yes, they have to make sure everything is well documented and have testing to back up the reason they prescribe the medications, etc. Personally, I think your doctor is lying to you (I'm not saying you did anything wrong) and I would speak to your primary doctor about a referral to a new pain management center. Also, get a copy of all of your records so you have them for the next doctor. If for some reason you can't get your records, at least get copies of your MRI's, x-rays, those things. Those you can get at the place where the testing was done. Also maybe a get your prescription list from your pharmacy. The more documentation you have about your condition and treatments, the easier it will be to find a doctor to help you. Yes you may have to start over from scratch, but its better than suffering completely. Good luck, keep us updated!

    Last edited by Paininohio; 06-10-2013 at 10:19 AM.

     
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    Old 06-10-2013, 06:20 PM   #5
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    Re: Collateral dmg of the war on pain! Need advice

    Hi annee, Im so sorry that you are going through this! Have you found a new PM dr yet? I read a letter the ama sent to fda about opposing in april, my dr told me there is so much pressure from dea that he knows drs that are stopping pain mgmt practices & i am in the south. According to my dr its hard for the drs & the patients now, legitimate drs & patients but there are good drs out there, have you tried calling your insurance company or the american academy of pain medicine for a referral in your area?

    Last edited by gmak; 06-10-2013 at 06:34 PM. Reason: wording

     
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    Old 06-10-2013, 10:20 PM   #6
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    Re: Collateral dmg of the war on pain! Need advice

    Annee07-

    My CP story-I was hit and crushed by a city bus moving pretty fast-put my lights out,almost permanently-also an obese lady also hit, landed on me full force-I was sitting outside reading and never saw it coming-just woke in trauma icu bout 2 mos later.

    Sufffered cardiac arrest on site, multi fractures/contusions,brain injury, etc. Had some ORIF's to fix fractures. Have not been the same since, needless to say.

    Now left with intractable pain, but my PM has done a wonderful job(also my Neuro) of helping control pain. But I am on a boat load of various medications which sucks-but without them I cannot live with the terrible pain.

    I was sent to pain management programs, brain injury programs, put thru numerous hoops to help my pain-really the only relief I really get is from the narcotic and benzo medications. I try and keep a good attitude and am no longer bitter for having to live with this-I was only hurting myself further by being angry-but I got help with all that too.

    I hope you find a good and caring physician-there are many out there-so don't feed into an idiotic propaganda-there is no such thing as CP!!!! That person, who said that, should be careful........just might end up as another chapter in the big CP book.

    Be well and good luck.
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    Old 06-10-2013, 10:32 PM   #7
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    Re: Collateral damage of the war on pain! Need advice

    Many, many physicians are getting out of the scheduled drug dispensing practice, some even posting signs in their offices stating they no longer accept chronic pain patients. It is going to be more difficult for any physician to justify prescribing ongoing chronic pain medications to a patient, especially those who have no current testing (MRI's, etc) to substantiate their pain. Doctors are going to have to do more work in documenting the medical files; many will simply not be willing the put in the extra work - sometimes hard to do in a two or three minute office visit where the main topic is writing a script. I'm not saying this is you.

    I've read some of the proposed laws concerning treatment of chronic pain patients (and other patients who have long histories of being prescribed narcotics without current medical documentation and testing), where we are lumped into one group and described as a bunch of drug seekers who "make up" or "exaggerate" our pain to obtain drugs. It is sometimes a common misconception, we don't really "need" these drugs. Speaking for myself, I only wish that were the case. Another side of the debate is the need to crack down on clinics who require cash and dispense narcotics on site with nothing more than a copy of an MRI from 1990 and a doctor who's never seen a "patient" before; we have all read these stories. We know clinics like this are less than ethical; no more than a place where out of state "patients" come in or "patients" are paid to come in, are prescribed narcotics. Some "patients" even so bold as to "conduct business" in the parking lot. We have all read these stories. Both hurt real Chronic Pain patients.

    Overall it's a two-fold problem, doctors dispensing to patients who don't medically need the drugs and patients who do stupid things like doctor shopping, sell their drugs, misuse their medications and/or mix illegal drugs with what they are prescribed.

    As someone said, there are legitimate pain clinics out there. And yes sometimes I personally feel we have to jump through hoops to obtain treatment because of those who haven't followed the rules or lived by their pain contracts. And be honest, we all know some of these people.

    The key is medical documentation, appropriate medical testing and compliance on our part by willing to have adjunct treatments along with the medications. Personally, I am always willing to try nonscheduled drugs, the Physical Therapy, the steroid/facet/trigger point blocks, the deep tissue massages and yes I've had acupuncture - some of these things have helped, some have not and many, not covered by insurance, were not cheap . I try to be a "good" patient; I take advantage of my entire Pain Management team; I respect my therapist. While his CBT (Cognitive Behavioral Therapy) concept wasn't beneficial to me, he has helped me cope with a life where I feel all of the things I love to do have been taken away; admittedly I'm depressed....some days I don't cope as well as I do on other days. Pain which never sleeps is a terrible way to live.....and sadly I am not the only one in this terrible place.

    As for the hoops, I really don't care how many drug tests I have to take, how many pill counts I'm called in for. I don't care about our state's data base set up to keep track of doctors and patients who obtain scheduled drugs - you won't find me obtaining scheduled drugs from anyone but my PM group. You won't find my name on any other state's data base. I'm fast to have surgeons and/or ER doctors work through my PM doctors and along side my PCP Internal medicine doctor; I always identify myself as a chronic pain patient fully disclosing my pharmaceutical regimen. I follow the rules no matter how invasive, obtrusive or silly I think they are. I know when to call my PM group. I know to get my medications every 30 days, etc. and to use only one pharmacy. I don't break appointments, call in early for refills and I have a safe where my medications cannot be lost/stolen.

    Lastly my feeling is anyone wanting to read my medical files at the DEA is free to do so. I'm sure my name is on someone's "watch list" and I'm sure someone, somewhere has read my records and had other physicians interpret my tests. It should be quite boring yet easy to follow, a long line of surgeries, treatments, specialists and tests. My medical files go back thirty years; unfortunately I have so many diagnosed conditions there is never enough room to list them on a medical information form. Sometimes I ask if I can stick to the "top five". However, if the DEA or their delegate doctor(s) who probably have never personally seen me, can come up with anything I should have and haven't tried, I'm open to it.

    Having to say "just make it stop" every day isn't easy; we all know this feeling. We'll do anything on the off chance something may work even when medical science has given us no other option than pharmaceuticals. Contrary to the neurosurgeon philosophy, surgery does not heal everything; we have the scars and collateral nerve damage to prove it.

    To your point my dear poster, I do believe true Chronic Pain patients can and do get appropriate treatment. On the other hand, the days of being able to get scripts just because one always has, are over. Medical histories must be ongoing, symptoms thoroughly documented. I'm sorry your doctor pulled the carpet out from under you.......this though will happen to others. This is the new war on prescription drug abuse and we are simply where "those that know" will start.

    As long as one has complete and current medical files and has been compliant and/or honest with their physician(s), there are legitimate pain clinics where one can be treated. That said, the regimen will be rigid. We don't have to like it, it is what it is. Also understood, a "red flag" by any doctor or hospital is going to be a BIG problem.

    Sorry the ride on my soap box.

     
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    Old 06-11-2013, 07:49 AM   #8
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    Re: Collateral damage of the war on pain! Need advice

    BB07, 3red, gmac, paininohio: TY ALL for your replies: I'm going to answer ea one & post my CP story in the appropriate section! Plz bare with me: my blood pressure is very high (last: 160/90 pulse:99) my Primary is writing a referral to a pain clinic as we speak!! I never thought my body would react this way & I have a gastro procedure coming up which may not be done if my BP doesn't settle. I appreciate the feedback; which btw: substantiates what I've always believed: "CP patients are the most compassionate grp of individuals!" Ill get bk to ea. of u soon

     
    Old 06-11-2013, 09:27 AM   #9
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    Re: Collateral damage of the war on pain! Need advice

    Oh annee please take care! And thank you. All of this mess will work out & your pain managed & then you will be encouraging someone too! Great to have you here!

     
    Old 06-11-2013, 03:15 PM   #10
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    Re: Collateral dmg of the war on pain! Need advice

    [/B]BBO7: I know you've heard this lots[im southern2:lol]:: BUT it's a miracle you survived!!! YOU (us) are exactly why CP needs to be treated & compassionately!! As for the "bafoons" who question the need for medication: well I couldn't have said it any better myself!! "They" better watch out what laws they so fervently push; because pain does NOT discriminate & they may find themselves on the very opposite end of the very laws they helped to facilitate!! My aunt died in a mva accident in the 60s(my parents often recall), but TODAY with the advancements made in medicine & trauma: WE SURVIVE!!!! Ill never understand the need (or drive) to do away w/our care because of the abuser!! How can anyone question your need for relief & even if that means opioids!!!! Haven't we suffered enough? God bless you my fellow "southern" cp friend!! TYVM FOR SHARING! I'm so sorry for all you've endured & continue too!! You have come a longggg way & inspire me😊👍

     
    Old 06-11-2013, 03:24 PM   #11
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    Re: Collateral damage of the war on pain! Need advice

    Quote:
    Originally Posted by gmak View Post
    Oh annee please take care! And thank you. All of this mess will work out & your pain managed & then you will be encouraging someone too! Great to have you here!
    TYVM GMAC: I'm probably going to ask my primary to help (been w/him through it all- since the beginning) because the pain & drop in medication is leaving me in danger of a stroke or heart attack & I'm in my early 40s!! YOUR so right: it's hard to get accepted & will take some time, but the referral was sent today & I will keep y'all posted😘 I 💕the scripture in psalms btw👍thank u for the support 😊

     
    Old 06-11-2013, 04:42 PM   #12
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    Re: Collateral damage of the war on pain! Need advice

    Dr forrest tennant wrote The intractable pain handbook, its very valuable info. Your pcp is great in a pinch but a paim mgmt referral or a physiatrist, a physical medicihe & rehab dr that works to restore function in all kinds of patients, they treat acute pain & chronic pain. Thats who i see & he has been great for me for 13 years!

    Last edited by gmak; 06-12-2013 at 02:49 PM.

     
    Old 06-11-2013, 07:53 PM   #13
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    Re: Collateral dmg of the war on pain! Need advice

    Paininohio: thanks for respondingeven though the law/label changes havent gone into affect: it does enough damage, because it gives the "police-state" officials the gumpshun to through their weight around & cause us (I know me) a lot of stress & worry!!i agree(have been wondering: just what EXACTLY happened) & I think my dr. Is loosing his prescribing privileges!! He was very forthcoming about having to endure constant scrutiny!! He's well along now in years & is a diabetic. I just think "he's had enough!" Ill keep you posted on how things turn out & thank you so very much for the support & tips !! It means the world to me in my current predicament & I got all my records together: by the hardest- today!

     
    Old 06-11-2013, 08:15 PM   #14
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    Re: Collateral damage of the war on pain! Need advice

    3red3red!! [best for last😘lol] WOW!! You hit every point: "spot-on"!! Even though your so very right; I'm frightened & exhausted!! We didn't ask for this life sentence!! Even though I'm very disabled; I never have accepted that or lived it! NOW I AM!! I have records galore, as I'm fighting one thing after another;year after year; hence the exhausted remark!! I don't like where this has brought my mind; & clearly understand why some throw in the towel, but my faith (love for family) won't allow me to go there!! You gave some extremely great advice to ALL in my situation!! Believe me I read it & read it again: & it's dually noted in my mind & I'm going to do exactly what you advised; take advantage of the acupuncture if I end up @ the facility I'm going to for a consult!! & whatever else is suggested!! Time to pay the piper I guess: lol I'm trying to psyche myself out & prepare mentally!! Your post/reply is a blessing, because we all need to hear that! Those days are over is right (&the good always suffers for the bad, but that's life) Sorry for my late, short, reply- but will surely let you know how it goes!! My life is in limbo, but I'm trying to stay positive!! Thank you so very much...& I know you put some time into your reply: much appreciated😊

     
    Old 06-11-2013, 08:40 PM   #15
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    Re: Collateral damage of the war on pain! Need advice

    Let me be REAL CLEAR about this: i took my meds as prescribed, I followed the rules, passed urine screens & NEVER EVER SOLD or DIVERTED, & will humbly admit; there were some early refills; burn me at the stake; lol!!! BUT THAT'S IT!!! I know this isn't a laughing matter & I'm sure ill be crying soon! BUT had to clarify this! This is just the reality of the "war on drugs!" No criminality here: I'm too chicken to break a rule!!

     
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