It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Arachnoiditis Message Board

  • Question about nerve root on mri help please

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 07-23-2013, 05:02 PM   #1
    mustang06
    Member
    (female)
     
    Join Date: Mar 2013
    Location: GA / USA
    Posts: 62
    mustang06 HB User
    Question about nerve root on mri help please

    Hi everyone,
    Would they see clumping of nerve roots or anarchnitis (sp?) on my mri. I didnt know if it would need to be with contrast or not. I cant find any info on it. Does anyone know. Also does anyone know if its possible to have it from head to toe. Crazy symptoms no diag.
    Thanks so much. Have a good day.

     
    Sponsors Lightbulb
       
    Old 07-23-2013, 09:28 PM   #2
    teteri66
    Senior Veteran
    (female)
     
    Join Date: Nov 2010
    Location: USA
    Posts: 9,166
    teteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB User
    Re: Question about nerve root on mri help please

    A doctor who knows what he's looking at would be able to see nerve clumping on a MRI...and yes, it would show up better with contrast.

    Arachnoiditis is found along the spinal cord and column, so you could have it affecting various areas all over the body.

    You need to communicate with gmak. She has adhesive arachnoiditis. I hope you do not.

     
    Old 07-24-2013, 12:08 AM   #3
    gmak
    Senior Veteran
    (female)
     
    Join Date: Oct 2012
    Location: USA
    Posts: 2,648
    gmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB User
    Re: Question about nerve root on mri help please

    Quote:
    Originally Posted by mustang06 View Post
    Hi everyone,
    Would they see clumping of nerve roots or anarchnitis (sp?) on my mri. I didnt know if it would need to be with contrast or not. I cant find any info on it. Does anyone know. Also does anyone know if its possible to have it from head to toe. Crazy symptoms no diag.
    Thanks so much. Have a good day.
    Hi mustang, I just saw this just now, im sorry. First of all, very important do you have any & all copies of your MRI reports that you could read yourself to check for the phrase " clumping of nerve roots"? It has been recognized on my MRI's with & without contrast & the contrast is just given in an IV not a spinal tap. Next, have you had invasive procedures such as a lumbar puncture or a spinal tap, myelogram which is aseries of xrays on a tilting table after a spinal tap to put contrast or dye directly into your spinal fluid, back surgery, epidural steroid injections or epidural catheters or epidural anesthetic OR an infection such as meningitis? If not, it would be impossible to have adhesive arachnoiditis unless i have omitted an invasive procedure from my list which could include some types of spinal nerve blocks. If so, i will recheck this thread tomorrow. I hope with all my hope that you do not have the "clumping of nerve roots" on your MRI reports! However,it is not always recognized or reported on a radiologist report. "See" ya tomorrow

     
    Old 07-24-2013, 04:41 AM   #4
    mustang06
    Member
    (female)
     
    Join Date: Mar 2013
    Location: GA / USA
    Posts: 62
    mustang06 HB User
    Re: Question about nerve root on mri help please

    Thanks so much for responding teteri66 and gmak! I did have a c section 2 years ago with a spinal block. After I had my son is when I started having problems, but it wasn't right away. Maybe months later a had slight weakness, then came the toothache pain in my arms and legs, then 2 years later starting twitching, burning/cold nerve pain. Does that sound familiar gmak? I have been having problems in my face TMJ, twitching, burning, eye fatigue, neck pain, back pain, chest pain, legs and arms. Pretty much everywhere. No doctors have helped. I DO have my MRI reports and it does NOT say anything about the clumping of nerve roots. Just several bulging/ deg. disc. I had it done at a back/ neurosurgeon clinic. A DO doctor saw me and looked them over. Would the radiologist picked up on it or would it be obvious to a back pain management doctor? Im sorry you have this condition GMAK, its scary what medical procedures can cause. Thanks for everyones help!

     
    Old 07-24-2013, 08:28 AM   #5
    gmak
    Senior Veteran
    (female)
     
    Join Date: Oct 2012
    Location: USA
    Posts: 2,648
    gmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB User
    Re: Question about nerve root on mri help please

    Hi mustang, There are so many symptoms, so varied & drs opinions are so varied that its hard to say if its adhesive arachnoiditis by symptoms. The typical ones which ive never had but once are a burning like hot oil on an extremity like arm or leg & a feeling like water trickling down your leg but so many more when you read about it. No dr told me from 1988 to 2012 & it was in my medical record & on my MRI's & i saw 3 spine specialist neurosurgeons in fall of 2012 & while they said i had it not one of them told me about it which is typical too because no one wants to be liable but they did see it on my MRI films, disk. Everything i learned was from people on this board helping me & from reading, Dr Charles Burton, Dr jorge Aldrete, dr sarah andrae jones smith the adhesive arachnoiditis syndrome, burton report etc. I hope that you dont have it but my most common symptoms have been severe, excruciating, incapatible with being alive pain in my low back & down to tailbone, pounding heartbeat, the soles of my feet are numb but painful at the same time right on the balls of my feet & under toes, 3 middle toes are dead feeling, intermittent numbness in feet but has occurred in my hands & once in my face, nerve pain in feet, legs, occasional vibrating sensation i call buzzing in my back, chest & it drove me nuts & thank God it has stopped, charlie horse spasms, twitching like im falling asleep & catch myself, sweaty, clammy freezing cold then hot, cold & heat intolerance, legs feel like they are cold but feel warm to the touch, questionable ones are bladder probs, dry & blurry eyes & i was diagnosed with glaucoma, migraines but i might just have these anyway i dont know because no drs will sit down & discuss it really but its definitely real & its been called significant & quite severe, quite remarkable on my medical record from the neurosurgeons & it is mentioned & discussed in full in letters back & forth between my original neurosurgeon & my old pain mgmt dr. Let me know what happens & if i were you i would obtain copies of all medical tests, surgeries, anesthesia reports from caesearean, dr office medical records etc & read & find out all about adhesive arachnoiditis so that if i find a NS that says i have it i could ask questions & be knowledgable enough to discuss it & the NS's did tell me that i could no longer have back surgery or ESI's. I really hope that you find a diagnosis of something curable & that you can get well from it.

    Last edited by gmak; 07-24-2013 at 08:44 AM.

     
    The following user gives a hug of support to gmak:
    froggie91206 (07-25-2013)
    Old 07-24-2013, 04:16 PM   #6
    teteri66
    Senior Veteran
    (female)
     
    Join Date: Nov 2010
    Location: USA
    Posts: 9,166
    teteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB User
    Re: Question about nerve root on mri help please

    gmak ~

    I know we have had several conversations about AA, but I wanted to mention something I was told. First many doctors do not even know about arachnoiditis. In the past, it wasn't really taught during med school, so unless one went on to take a fellowship in spine surgery, you didn't necessarily learn about it.

    Second, it could be a similar situation to "failed back surgery syndrome." Doctors in the know never put that diagnosis in writing. That just sets up a patient for denial by the insurance carriers for any further treatments or especially, any further surgeries. Plus in the case of FBSS, some doctors do not believe it is a real ailment...just an umbrella term for when a patient comes out of spine surgery with less than ideal results.

    So I think it is remotely possible that there might be a valid reason why you weren't told about the possibility of arachnoiditis back in 1988.

     
    Old 07-24-2013, 05:37 PM   #7
    mustang06
    Member
    (female)
     
    Join Date: Mar 2013
    Location: GA / USA
    Posts: 62
    mustang06 HB User
    Re: Question about nerve root on mri help please

    Wow gmak thats crazy no one ever told you. Im going to bring my copy of mri's to another neuro and ask. But it was not noted in the report from radioligist. I have very simular symptoms, I just have to find out I hate not knowing. Thanks so much for ya'lls help.

     
    The following user gives a hug of support to mustang06:
    froggie91206 (07-25-2013)
    Old 07-24-2013, 07:01 PM   #8
    gmak
    Senior Veteran
    (female)
     
    Join Date: Oct 2012
    Location: USA
    Posts: 2,648
    gmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB User
    Re: Question about nerve root on mri help please

    Mustang, Most definitely aa has never been put on my diagnosis with an icd code for insurance that i can see & my dr has kept failed back surgery syndrome & chronic intractable pain as my diagnosis. My MRI reports say in the impression ,arachnoiditis & peripherally clumped nerve roots as i recall. I read alot for months & months & im still reading to obtain info! I truly hope that the NS can help you.

    Last edited by gmak; 07-24-2013 at 07:05 PM.

     
    Closed Thread




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 06:15 AM.





    2019 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!